Share & Care Cockayne Syndrome Network - Canada

10/12/2025

10/12/2025

10/11/2021

12/06/2017

Location for a future retreat?!!

02/22/2017

Please keep Kelli in your prayers. She is hospital in Halifax. Praying doctors can help her. Such a sweet lady!!! Sending hugs kelli❤❤

12/31/2016

Please keep Jay and his mom in your prayers. He is hospital and need some suport and prayers.
Jay is an amazing little guy. And his mom and grandma are amazing. Please keep this sweet boy in your thoughts and prayers.

12/17/2016

Just a note to CS parents in Canada. I am sorry got nothing out for Christmas for the kids this year.
I am struggling right now just to get through my days. It's been a really rough road since the beginning of Oct. We have a family issue that is not going to resolve anytime soon. And I am really struggling with it right now. Life just isn't getting any better for for us. Mom is still in a cast on her arm. 9 weeks now. And it isn't looking good right now. She is not healing. So need to wait to see what surgeon decides to do for her. Poor girl can do hardly anything as it is her good arm. Feeding herself is tough. So praying hard we hear something soon.
We are not doing Christmas this year. It's just not there for us right now. I function as much as I can during the day but nights I am awake most night I cry. No sleep.
Just know I am thinking of you all and keeping these sweet kids in my thoughts and prayers. Love you all and hope our lives get back on track in the early New Year. Love you all and warm hugs to all your kiddos❤❤

10/22/2016

Got an awesome Halloween card from Kelli today it made my day. Thanks sweet girl.

10/15/2016

This sweet Jack. Jack has CS . right now his family has been told he is coming to the end of his Journey. Please pray for this sweet boy and his family. Ken and I had the pleasure of meeting this sweet boy and his mom. We are heart broken but praying for this lovely family. Prayer and strength being sent to the family at this time.