National Epilepsy Association of Malawi

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10th July, 2026| Bangwe Primary School| Blantyre, Southern RegionAs part of our ongoing Champion for Change project, our...
17/07/2026

10th July, 2026| Bangwe Primary School| Blantyre, Southern Region

As part of our ongoing Champion for Change project, our team successfully rolled out our latest activity aimed at dismantling the deep-rooted social stigma surrounding epilepsy. Central to this mission is our innovative 'Stigma Bench Initiative', which establishes safe, supportive spaces within school environments to foster open dialogue, inclusion, and mental well-being for affected students.

The event brought together an influential group of community stakeholders committed to educational equity, including two Headteachers, two Special Needs Education (SNE) teachers from the participating institutions, a parent representing learners with epilepsy, and three local Chiefs representing the traditional areas surrounding the two engaged schools.

During her welcoming speech, Elizabeth Mtoseni, the Primary Education Advisor (PEA) for Bangwe Zone gave our team a warm reception, emphasizing the profound psychological impact the project will have on the student body. The PEA noted that the visit is highly likely to boost the morale of learners living with epilepsy, while expressing a strong desire for institutional growth.

"We are hopeful that through this project we will learn a lot to fill the gaps that exist in our knowledge of epilepsy," She said.

During the interactive sessions, the SNE teachers shared invaluable insights from their daily experiences on the front lines of inclusive education. They highlighted a critical barrier to student success, a widespread lack of open dialogue from parents regarding their children's condition.

The teachers noted that parental concealment and a reluctance to discuss epilepsy openly ranks highest among the challenges they face. This communication gap severely limits the teachers' ability to understand individual student needs, ultimately preventing them from assisting and supporting learners with epilepsy effectively.

Fired up by the awareness session, the educators refused to let this knowledge sit idle. The teachers enthusiastically pledged to take the information and insights gained from the activity and actively embed them into their daily learning systems to create a permanent culture of inclusion. One of the SNE teachers, Agnes Losani, shared their concrete plan of action.

"We will introduce this to the learners and our fellow teachers so that we can agree on a regular schedule for holding these stigma bench sessions," she said.

In his closing remarks, Group Village Headman Ishmael Kawinga expressed deep gratitude to the National Epilepsy Association of Malawi (NEAM) for bringing resources directly to their doorstep. He noted how privileged the community felt to be selected out of the numerous schools across Malawi that face similar challenges.

Reflecting on how this school-based project will overflow into the broader villages, the Chief made the following remarks "I am thankful for your visit. The awareness we now have of this condition will contribute immensely to our efforts to eradicate stigma and fill the existing knowledge gaps about epilepsy within our community."

with partnerships between NEAM, local chiefs, and the dedicated teacher from the two schools, the ‘Champion for Change’ project aims to successfully build a protective, well-informed ecosystem where learners with epilepsy can safely thrive.

11/07/2026

Big shout out to my newest top fans! Hermes Tebulo, Samuel Gondwe

Champion for Change ending epilepsy stigma.
11/07/2026

Champion for Change ending epilepsy stigma.

Central Region, Lilongwe, Malawi | 2nd July, 2026|  On 2nd July, 2026 we took a step forward in breaking the stigma surr...
03/07/2026

Central Region, Lilongwe, Malawi | 2nd July, 2026|

On 2nd July, 2026 we took a step forward in breaking the stigma surrounding epilepsy. We hosted a powerful and highly successful Epilepsy Awareness Session at M'buka Primary School in Lilongwe.

It was incredible to see such a diverse turnout that including local chiefs, teachers, parents, nurses, and learners all gathering for one common cause.

Setting the stage, the National Epilepsy Association of Malawi (NEAM) Secretary kicked off the session by introducing the program and evaluated people's expectations for what was to come. What transpired afterwards was a session characterized with active participation and interactions from the audience that demonstrated eagerness to learn and know more about Epilepsy and how they can proactively help in eradicating the stigma that surrounds it.

Building from the general knowledge and the preceding discussions, our clinical nurse delivered a vital presentation on the medical realities of epilepsy, debunking common myths and teaching essential seizure first aid.

The presence of the Special Needs teacher who shared an inspiring insight into how the school’s resource center supports and accommodates children with various disabilities provided valuable knowledge on both the success and challenges they face.

A lively Question and Answer session where parents and community members voiced their questions to which answers were provided through an interactive session.

The National Coordinator, Chifundo Zamadunga Phiri, highlighted our ongoing programs and our flagship project, Champions for Change.

We are absolutely thrilled by the response from the local leadership! The Chief enthusiastically emphasized the critical need for more awareness in the community and warmly welcomed our initiatives. In an incredible show of leadership, he officially joined the Champions for Change club.

A huge thank you to everyone who made this day a success. Together, we are changing minds, saving lives, and building a more inclusive society.

It was a successful wrap!!
15/06/2026

It was a successful wrap!!

Northern Region, 13th June, 2026The final training of our ‘Living Safely with Epilepsy’ Project is officially underway h...
13/06/2026

Northern Region, 13th June, 2026

The final training of our ‘Living Safely with Epilepsy’ Project is officially underway here at the Ekwendeni College of Health Sciences.

Following our successful sessions in Blantyre and Lilongwe, today’s room is packed with an incredible mix of People Living with Epilepsy (PLWE), parents, guardians, and passionate students from Ekwendeni College of Health Sciences.

Dr. Tolu and Dr. Blessings Mvalo kicked things off by assessing the room's foundational knowledge. It was an eye-opening morning, while most participants only knew of one type of seizure, they learned that there are over 40 different types. This sparked an amazing, interactive exchange of experiences and knowledge between the audience and our facilitators.

DAY 2 OF 'LIVING SAFELY WITH EPILEPSY – MALAWI' TRAININGS HELD IN LILONGWE  Central Region, Lilongwe, 10th June, 2026 As...
10/06/2026

DAY 2 OF 'LIVING SAFELY WITH EPILEPSY – MALAWI' TRAININGS HELD IN LILONGWE

Central Region, Lilongwe, 10th June, 2026
As the ‘Living Safely with Epilepsy - Malawi’ training progresses, day 2 of the engagements took place at St. John of God in Area 43, Lilongwe drawing yet another diverse group of People with Epilepsy (PWE), parents and guardians, clinicians, and teachers.

In her opening remarks, Tolu Olaniyan, C.E.O of Pretola Global Health & Consulting and Epilepsy Nurse, explained that the initiative aims to equip communities and other stakeholders to better support PWE by focusing on defining what epilepsy is (and what it is not), providing seizure first-aid training and addressing stigma.

The morning sessions featured interactive discussions where PWE and other participants shared personal experiences and learned to recognize different types of seizures.

One special needs teacher recalled her encounters with students with epilepsy, "A student would come and give me a hug then have the seizure." Echoing the same warning sign, a mother of a child with epilepsy had the exact sentiment to share, "Mama!! My child will come calling and hug me, then have an episode."

Tolu emphasized that identifying the specific seizure characteristics and describing them accurately to clinicians is critical as it ensures that a correct medication is prescribed. Without failure to clearly describe the seizures, doctors risk prescribing wrong treatment which can inadvertently make seizures worse.

The session proved invaluable for medical professionals on the ground. For Donnalina Chilinda, a medical intern at Area 18 clinic, mastering seizure types and identification was the missing piece in her medical training. “I missed that part in class, even during my own research I still could not understand it,” She shared “But today, I got it all, for which I am thankful.”

Witnessing a seizure can provoke a powerful wave of mixed emotions from the public. For some bystanders, their desire to help is often paralyzed by fear or a lack of necessary seizure first-aid knowledge. At the heart of the issue is a persistent stigma as some bystanders are held back by the mistaken fear that epilepsy is contagious and can be contracted through contact.

An engagement activity for seizure first aid started in the afternoon session led by Tolu, was a timely and necessary session that aimed at addressing the negative and false perceptions associated with epilepsy and equipping participants with the first aid knowledge.

During the sessions, Tolu guided participants on a safe and dignified seizure first aid. She emphasized the need to ensure that the environment is safe by removing hazardous objects where possible. If this is not possible, you can support by gently moving the person away from danger at the same time. This session highlighted an inclusive involvement where everyone can help safely without harming a PWE or themselves.

“I need two volunteers, a woman and a man”, Tolu announced as she began the seizure first-aid training. She, together with the participants, created a marketplace scene where a person with epilepsy (PWE) experienced a seizure. A powerful moment of community action unfolded during the role playing scene, which demonstrated a beautiful gender balance of care, as men rushed to support female participants during seizures, and women did the same for men. Yet, at the same time, a critical knowledge gap in seizure first aid was highlighted.

“Despite the good intention of wanting to help, the interventions were unsafe,” observed Tolu. She pointed out that those who came out to help were firmly restraining individuals during seizures, a practice that risks causing injuries e.g. breaking bones. She also cautioned against holding the head during jerking movements, explained that it poses a serious risk of neck injury.

As the focus now shifts to the final training session slated for 13th June, 2026 in Mzimba, Ekwendeni, the trainings leave behind a trail of significant progress and invaluable lessons. Continued appreciation goes to Pretola Global Health and Consulting for partnering with the Epilepsy Africa IBE, National Epilepsy Association of Malawi, and Epilepsy Warriors Foundation to implement this life-changing initiative whose impact will remain within the reached communities and beyond.

Heartfelt gratitude is also extended to all the sponsors who made this initiative a resounding success.


A very good start indeed. Lilongwe you are next. Onwards forwards!!
09/06/2026

A very good start indeed. Lilongwe you are next. Onwards forwards!!

Here is a photo dump for yesterday’s training launch in Blantyre that took place at RFP Auditorium Hall. An event marked...
09/06/2026

Here is a photo dump for yesterday’s training launch in Blantyre that took place at RFP Auditorium Hall.

An event marked with active participation, from facilitators to the audience. A room filled with lessons and a lot of lived experiences that transformed the way of living safely for us living with epilepsy.

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