MDA New Mexico

MDA New Mexico The New Mexico branch of the nonprofit dedicated to curing muscular dystrophy, ALS and related diseases. MDA also provides health care, advocacy and education.
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Mission: MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

Operating as usual

Looking to do something epic this spring? Join Muscular Dystrophy Association this May for Movement Month 2021! Choose t...
03/09/2021

Looking to do something epic this spring? Join Muscular Dystrophy Association this May for Movement Month 2021! Choose the activity of your choice while raising awareness for MDA’s mission. Make your move and register today as a Movement Month Hero to earn your first prize – an MDA mask! https://www.mdateam.org/moveformda21

Buying an Muscular Dystrophy Association Shamrocks supports services, research, and care for people living with #neuromu...
03/01/2021
MDA Shamrocks | Muscular Dystrophy Association

Buying an Muscular Dystrophy Association Shamrocks supports services, research, and care for people living with #neuromuscular diseases. Visit your local @Tuffy today! http://bit.ly/ShamrocksLocator2021

Make Your Move and Buy A Shamrock at a Retailer Near You. MDA Shamrocks Campaign is the nation’s largest charitable St. Patrick’s Day retail fundraising event. These iconic paper shamrocks have become a symbol of strength.

MDA celebrates the FDA’s decision to grant accelerated marketing approval to Sarepta Therapeutics’ casimersen (Amondys 4...
02/25/2021

MDA celebrates the FDA’s decision to grant accelerated marketing approval to Sarepta Therapeutics’ casimersen (Amondys 45) to treat Duchenne muscular dystrophy in patients using exon-skipping technology that targets exon 45. This is a significant step forward in the development of therapies for DMD that target the root cause of the disease. Learn more here: http://bit.ly/DMDRelease

MDA celebrates the FDA’s decision to grant accelerated marketing approval to Sarepta Therapeutics’ casimersen (Amondys 45) to treat Duchenne muscular dystrophy in patients using exon-skipping technology that targets exon 45. This is a significant step forward in the development of therapies for DMD that target the root cause of the disease. Learn more here: http://bit.ly/DMDRelease

Today we launch the 39th year of MDA’s Shamrocks campaign, the largest St. Patrick’s Day fundraiser in the country with ...
02/17/2021
Muscular Dystrophy Association to Roll Out the 39th Annual MDA Shamrocks Campaign with Retailers Nationwide | Muscular Dystrophy Association

Today we launch the 39th year of MDA’s Shamrocks campaign, the largest St. Patrick’s Day fundraiser in the country with thousands of retail partners nationwide. Learn more about our efforts and the fundraiser here: http://bit.ly/2021MDAShamrocksPR

Thousands of retailers nationwide support MDA’s fundraising campaign to transform the lives of people living with muscular dystrophy, ALS and related neuromuscular diseases throughout February and March. NEW YORK, NY – February 16, 2020 – The Muscular Dystrophy Association (MDA) today launched...

02/14/2021
Muscular Dystrophy Association

This Valentine’s Day, we’re bringing back MDA National Ambassador Ethan LyBrand’s special Joke A Day for MDA from his popular series to celebrate. Happy Valentine’s Day!

This Valentine’s Day, we’re bringing back MDA National Ambassador Ethan LyBrand’s special Joke A Day for MDA from his popular series to celebrate. Happy Valentine’s Day!

01/26/2021
Muscular Dystrophy Association

Larry King was an ardent supporter of our mission. He co-hosted telethons, appealed for the funding of research & raised awareness for muscular dystrophy, ALS & related neuromuscular diseases. We join the world in mourning the loss of one of the greats in broadcasting.

Larry King was an ardent supporter of our mission. He co-hosted telethons, appealed for the funding of research & raised awareness for muscular dystrophy, ALS & related neuromuscular diseases. We join the world in mourning the loss of one of the greats in broadcasting.

Looking for a great way to achieve your New Year’s resolution? MDA needs volunteers who are willing to contact our retai...
01/15/2021
Become a Volunteer | Muscular Dystrophy Association

Looking for a great way to achieve your New Year’s resolution? MDA needs volunteers who are willing to contact our retail partners to offer support and extend our thanks for their life-saving work. To participate, register at www.mda.org/volunteer, then sign up for the retail opportunity here: http://mda.force.com/volunteer/GW_Volunteers__PersonalSiteJobListing?JobID=a0T2L00000KpABw&nMonthsToShow=12.

Volunteers are an important part of MDA’s 70-year history. Through volunteer committees, boards, community events, and Summer Camps where kids build confidence and independence, volunteers are tightly woven into MDA’s fabric.

To our entire community, we wish you very safe and happy holidays. While we pivoted to a virtual environment in the pand...
12/17/2020

To our entire community, we wish you very safe and happy holidays. While we pivoted to a virtual environment in the pandemic, our work in research, care and advocacy never stopped. We thank you for your continued support.

To our entire community, we wish you very safe and happy holidays. While we pivoted to a virtual environment in the pandemic, our work in research, care and advocacy never stopped. We thank you for your continued support.

Have questions about the COVID-19 vaccine? Check out our FAQ on how it impacts the NMD community as we continue to advoc...
12/15/2020

Have questions about the COVID-19 vaccine? Check out our FAQ on how it impacts the NMD community as we continue to advocate for priority access for those living with muscular dystrophy, ALS and related neuromuscular diseases. https://www.mda.org/covid19#vaccine

Have questions about the COVID-19 vaccine? Check out our FAQ on how it impacts the NMD community as we continue to advocate for priority access for those living with muscular dystrophy, ALS and related neuromuscular diseases. https://www.mda.org/covid19#vaccine

12/01/2020
Muscular Dystrophy Association

FYI: Tune in Today on Giving Tuesday at 3pm ET for a FB Live chat. Join MDA Chief Scientific Officer Dr. Sharon Hesterlee, MDA Chief Medical Advisor Dr. Barry Byrne and MDA Board Member Dr. Elizabeth McNally for a year-in-review discussion and keeping research and clinical trials moving forward in 2021! Thank you to our event sponsors Mitsubishi Tanabe Pharma America, Inc., Sanofi Genzyme, and Genentech. Don’t forget to share your questions with us in the comments.

MDA will be hosting a FB Live this Giving Tuesday. Join MDA Chief Scientific Officer Dr. Sharon Hesterlee, MDA Chief Medical Advisor Dr. Barry Byrne and MDA Board Member Dr. Elizabeth McNally for a year-in-review discussion and keeping research, treatments and clinical trials moving forward in 2021 for the neuromuscular community, and more! Thank you to our event sponsors Mitsubishi Tanabe Pharma America, Inc., Sanofi Genzyme, and Genentech. Tune in next Tuesday, Dec. 1 at 3pm ET and drop all your questions below

From all of us at MDA, we wish our families, volunteers, medical teams, researchers, advocates, and partners a very happ...
11/26/2020

From all of us at MDA, we wish our families, volunteers, medical teams, researchers, advocates, and partners a very happy and safe #Thanksgiving! We are grateful for all of you.

This Giving Tuesday, give more than a gift. Help MDA make an impactful difference for kids and adults living with muscul...
11/23/2020

This Giving Tuesday, give more than a gift. Help MDA make an impactful difference for kids and adults living with muscular dystrophy, ALS and related neuromuscular diseases by donating to help fund research, care and advocacy. Donate today and all gifts will be matched up to $25,000. Today, help us transform lives! https://bit.ly/MDAGivingTuesday20

This Giving Tuesday, give more than a gift. Help MDA make an impactful difference for kids and adults living with muscular dystrophy, ALS and related neuromuscular diseases by donating to help fund research, care and advocacy. Donate today and all gifts will be matched up to $25,000. Today, help us transform lives! https://bit.ly/MDAGivingTuesday20

Please help support Thomas Bell who has a personal connection to MDA by casting your vote DAILY from now until November ...
11/19/2020
Vote for Tom Bell to build a bike with Paul Teutul, Sr.

Please help support Thomas Bell who has a personal connection to MDA by casting your vote DAILY from now until November 19th. Mr. Bell has entered to win a custom built chopper built by the Founder of Orange County Choppers, Paul Sr. The bike is valued at $100,000 and if won, all proceeds raised from the bike will go to benefit MDA. Please help show your support by clicking on the link below to cast your vote daily from now until Thursday, November 19th.

https://dreamchopper.com/2020/tom-bell

Will Tom Bell get to experience the opportunity of a lifetime?

Please help support Thomas Bell who has a personal connection to MDA by casting your vote DAILY from now until November ...
11/18/2020
Vote for Tom Bell to build a bike with Paul Teutul, Sr.

Please help support Thomas Bell who has a personal connection to MDA by casting your vote DAILY from now until November 19th. Mr. Bell has entered to win a custom built chopper built by the Founder of Orange County Choppers, Paul Sr. The bike is valued at $100,000 and if won, all proceeds raised from the bike will go to benefit MDA. Please help show your support by clicking on the link below to cast your vote daily from now until Thursday, November 19th.

https://dreamchopper.com/2020/tom-bell

Will Tom Bell get to experience the opportunity of a lifetime?

Please help support Thomas Bell who has a personal connection to MDA by casting your vote DAILY from now until November ...
11/17/2020
Vote for Tom Bell to build a bike with Paul Teutul, Sr.

Please help support Thomas Bell who has a personal connection to MDA by casting your vote DAILY from now until November 19th. Mr. Bell has entered to win a custom built chopper built by the Founder of Orange County Choppers, Paul Sr. The bike is valued at $100,000 and if won, all proceeds raised from the bike will go to benefit MDA. Please help show your support by clicking on the link below to cast your vote daily from now until Thursday, November 19th.

https://dreamchopper.com/2020/tom-bell

Will Tom Bell get to experience the opportunity of a lifetime?

Join MDA on Giving Tuesday for a Facebook Live discussion moderated by MDA Chief Scientific Officer Dr. Sharon Hesterlee...
11/17/2020

Join MDA on Giving Tuesday for a Facebook Live discussion moderated by MDA Chief Scientific Officer Dr. Sharon Hesterlee and featuring MDA Chief Medical Advisor Dr. Barry Byrne and MDA Board Member Dr. Elizabeth McNally. The live will cover a year-in-review of how we keep research and clinical trials moving forward, the state of treatments for the neuromuscular community, the COVID-19 vaccine and more! Thank you to our event sponsors Mitsubishi Tanabe Pharma America, Inc., Sanofi Genzyme, and Genentech. Tune in Tuesday, December 1 at 3pm ET, and share with us any questions in the comments below.

Join MDA on Giving Tuesday for a Facebook Live discussion moderated by MDA Chief Scientific Officer Dr. Sharon Hesterlee and featuring MDA Chief Medical Advisor Dr. Barry Byrne and MDA Board Member Dr. Elizabeth McNally. The live will cover a year-in-review of how we keep research and clinical trials moving forward, the state of treatments for the neuromuscular community, the COVID-19 vaccine and more! Thank you to our event sponsors Mitsubishi Tanabe Pharma America, Inc., Sanofi Genzyme, and Genentech. Tune in Tuesday, December 1 at 3pm ET, and share with us any questions in the comments below.

Muscular Dystrophy Association
11/10/2020

Muscular Dystrophy Association

The National ALS Registry is working toward a better future for people living with ALS by funding research, collecting meaningful data, and more. See how you can help future generations. cdc.gov/als/ALSJoinALSRegistry.html

Happy Halloween!
10/31/2020

Happy Halloween!

Wishing you an un-BOO-lievable and safe Halloween! Join MDA National Ambassador Ethan LyBrand in his new Bumblebee wheelchair and Magic Wheelchair and share an image of you in your Halloween costume below!

Congratulations to MDA researcher and Nationwide Children's Hospital's Dr. Jerry Mendell for his election to the Nationa...
10/28/2020
Jerry R. Mendell, MD, Elected to the Prestigious National Academy of Medicine

Congratulations to MDA researcher and Nationwide Children's Hospital's Dr. Jerry Mendell for his election to the National Academy of Medicine.

(COLUMBUS, Ohio) – Today, Jerry R. Mendell, MD, principal investigator in the Center for Gene Therapy at the Abigail Wexner Research Institute at Nationwide Children’s Hospital, was elected to the National Academy of Medicine (NAM), the second faculty member from Nationwide

MDA New Mexico
10/26/2020

MDA New Mexico

MDA New Mexico's cover photo
10/26/2020

MDA New Mexico's cover photo

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! Tonight we've ra...
10/25/2020

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! Tonight we've raised $10,548,454 - and we're not done yet. Visit thetelethon.org for more ways to give and advocate so that ALL have equal access to care and opportunity.

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! Tonight we've raised $10,548,454 - and we're not done yet. Visit thetelethon.org for more ways to give and advocate so that ALL have equal access to care and opportunity.

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! Tonight we've ra...
10/25/2020

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! Tonight we've raised $10,548,454 - and we're not done yet. Visit thetelethon.org for more ways to give and advocate so that ALL have equal access to care and opportunity.

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! Tonight we've raised $10,548,454 - and we're not done yet. Visit thetelethon.org for more ways to give and advocate so that ALL have equal access to care and opportunity.

10/23/2020
Muscular Dystrophy Association

The #MDAKevinHartTelethon auction is open! You won’t want to miss it – we have signed swag from David Beckham, Stephen Curry and Serena Williams, the bridal experience of a lifetime from @kleinfeldbridal, and - calling all gamers - the ultimate Herman Miller gaming chair! Click thru to bid NOW! And don’t forget to tune in tomorrow night at 8 PM ET on LOL Network YouTube! http://bit.ly/mdaauction

The #MDAKevinHartTelethon auction is open! You won’t want to miss it – we have signed swag from David Beckham, Stephen Curry and Serena Williams, the bridal experience of a lifetime from Kleinfeld Bridal, and - calling all gamers - the ultimate Herman Miller gaming chair! Click thru to bid NOW! And don’t forget to tune in tomorrow night at 8 PM ET on LOL Network YouTube! http://bit.ly/mdaauction

10/23/2020
Muscular Dystrophy Association

The #MDAKevinHartTelethon auction is open! You won’t want to miss it – we have signed swag from David Beckham, Stephen Curry and Serena Williams, the bridal experience of a lifetime from @kleinfeldbridal, and - calling all gamers - the ultimate Herman Miller gaming chair! Click thru to bid NOW! And don’t forget to tune in tomorrow night at 8 PM ET on LOL Network YouTube! http://bit.ly/mdaauction

The #MDAKevinHartTelethon auction is open! You won’t want to miss it – we have signed swag from David Beckham, Stephen Curry and Serena Williams, the bridal experience of a lifetime from Kleinfeld Bridal, and - calling all gamers - the ultimate Herman Miller gaming chair! Click thru to bid NOW! And don’t forget to tune in tomorrow night at 8 PM ET on LOL Network YouTube! http://bit.ly/mdaauction

10/23/2020
Muscular Dystrophy Association

Join us here at 10pm ET, immediately following the #MDAKevinHartTelethon for the MDA 70th Anniversary Show, hosted by Nancy O'Dell and Jann Carl.

We will have great stories from members of our MDA community, groundbreaking research in the field, advocacy, and a host of celebrities. Including Charo, David Hasselhoff, Shawn Parr, Larry Gatlin of Larry, Steve & Rudy - The Gatlin Brothers, and more!

Donate at MDAgive.org.

Join us here at 10pm ET, immediately following the #MDAKevinHartTelethon for the MDA 70th Anniversary Show, hosted by Nancy O'Dell and Jann Carl.

We will have great stories from members of our MDA community, groundbreaking research in the field, advocacy, and a host of celebrities. Including Charo, David Hasselhoff, Shawn Parr, Larry Gatlin of Larry, Steve & Rudy - The Gatlin Brothers, and more!

Donate at MDAgive.org.

Looking for a way to feed your family and friends while giving back to MDA? Papa Johns will be donating 20% of online or...
10/22/2020

Looking for a way to feed your family and friends while giving back to MDA? Papa Johns will be donating 20% of online orders from 10/23 to 10/24 in support of the MDA Kevin Hart Telethon. Pizza and Telethon are a winning combination for MDA! Use promo code MDA20 at papajohns.com

https://kendrascottmda.splashthat.com KENDRA SCOTT + MDA Oct 24 - Oct 25 12:00am – 11:55pm     Shop with Kendra Scott in...
10/22/2020

https://kendrascottmda.splashthat.com KENDRA SCOTT + MDA Oct 24 - Oct 25 12:00am – 11:55pm Shop with Kendra Scott in-store or online and 20% of your proceeds will go back to MDA!

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General information

DISCLAIMER FOR MDA’S FACEBOOK PAGE Welcome to MDA’s official Facebook fan page! This page exists so we can share breaking news, highlight our research and services programs and present you with interesting stories. We want to keep our page an open forum. Since MDA is a family friendly organization, please keep your comments and wall posts appropriate for all audiences. Accordingly, we ask that you adhere to the following guidelines: Be Respectful. MDA’s page is designed to offer a community where everyone communicates in a spirit of support and mutual respect. Keep Your Comments on Topic. Please keep all posts relevant to MDA’s mission. No Commercial Listings. Posts that promote or endorse any financial or commercial product, service, or entity are not permitted. Spam will not be tolerated. Prohibited Content. Prohibited content includes, but is not limited to, graphic, obscene, profane, discriminatory or retaliatory comments, comments that are threatening, harassing, abusive, hateful, defamatory, or libelous to any individual, class or persons, entity, or entities, and comments that suggest or encourage illegal, unsafe, or unethical conduct or activity. Inappropriate posts will be edited or deleted in MDA’s discretion. In addition, MDA, in its discretion, may ban any user who makes inappropriate posts or otherwise fails to comply with these guidelines. By accessing or using MDA’s page, you understand and agree that you do so at your own risk and you take personal responsibility for your comments, username and any information you provide. The appearance of external links on this page does not constitute official endorsement on behalf of MDA or our community. Information posted by MDA on this page is for informational and educational purposes only and is not intended to serve as medical advice. By accessing or using MDA’s page, you acknowledge your agreement to MDA’s Privacy Policy, which explains how user information is collected and used by MDA (not by Facebook). A copy of the Privacy Policy can be found at http://www.mda.org/privacy and is incorporated by reference.

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Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

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Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help.
Looking for an easy dinner option? Check out the Texas Roadhouse Family Packs and $5 Meal Deal! #Shamrocks
Hi, I am trying to find my cousin Christy Carson. Anyone know her? My uncle is her Dad Henry. Our CMT type is found to be in Belgium and wanted to talk to her. Thanks so much.
If you have OPMD please join our Facebook Group.
Parents or Caretaker of special need kids who are passionate to help their loved one can attend this FREE NATURAL HEALING session. Domingo Baca Multigenerational Center (1721 Carmel Ave NE) , Jan 5th and Feb 2nd. 12:30-1:30 PM
Thank you Lowes on Northern for donating the truck for MDA Summer Camp!! Special thanks to Denise Daniels!! You rock!!❤️❤️
Thank you Lowes on Paseo del Norte for donating ALL of the MDA summer camp supplies!!❤️❤️ special thanks to Deb!!!! You rock!!!!