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Alabama Muscular Dystrophy Association

Alabama Muscular Dystrophy Association MDA is fighting to free individuals — and the families who love them — from the devastating effects of muscular dystrophy, ALS and related diseases.

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Happy International Firefighters Day! In honor of ALS Awareness Month, MDA and the International Association of Fire Fig...
05/04/2022

Happy International Firefighters Day! In honor of ALS Awareness Month, MDA and the International Association of Fire Fighters have joined together to coordinate an ALS Educational Initiative to raise awareness and provide resources for fire fighters impacted by ALS. For information and critical resources to support fire fighters and their families impacted by ALS, visit https://firefighters.mda.org/als-resources

Thank you to Mitsubishi Tanabe Pharma America, Inc. for supporting this initiative!

MDA Celebrates FDA Approval of Alexion's Ultomiris for Treatment of gMG | Muscular Dystrophy Association
04/28/2022
MDA Celebrates FDA Approval of Alexion's Ultomiris for Treatment of gMG | Muscular Dystrophy Association

MDA Celebrates FDA Approval of Alexion's Ultomiris for Treatment of gMG | Muscular Dystrophy Association

New York, NY. April 28, 2021– Today the Muscular Dystrophy Association celebrates the approval by the US Food and Drug Administration (FDA) to ravulizumab (Ultomiris) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR) ant...

MDA Celebrates FDA Approval of Alexion's Ultomiris for Treatment of gMG | Muscular Dystrophy Association
04/28/2022
MDA Celebrates FDA Approval of Alexion's Ultomiris for Treatment of gMG | Muscular Dystrophy Association

MDA Celebrates FDA Approval of Alexion's Ultomiris for Treatment of gMG | Muscular Dystrophy Association

New York, NY. April 28, 2021– Today the Muscular Dystrophy Association celebrates the approval by the US Food and Drug Administration (FDA) to ravulizumab (Ultomiris) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR) ant...

04/25/2022

From broken wheelchairs to inaccessible lavatories, we know air travel can be a nightmare for the disability community. Learn what Congress & the U.S. Department of Transportation can do to finally make air travel more accessible on April 28 @ 7pm ET on the next MDA Advocacy Institute webinar. Register free: https://ringcentr.al/3vdRS3y

04/25/2022

From broken wheelchairs to inaccessible lavatories, we know air travel can be a nightmare for the disability community. Learn what Congress & the U.S. Department of Transportation can do to finally make air travel more accessible on April 28 @ 7pm ET on the next MDA Advocacy Institute webinar. Register free: https://ringcentr.al/3vdRS3y

04/25/2022

From broken wheelchairs to inaccessible lavatories, we know air travel can be a nightmare for the disability community. Learn what Congress & the U.S. Department of Transportation can do to finally make air travel more accessible on April 28 @ 7pm ET on the next MDA Advocacy Institute webinar. Register free: https://ringcentr.al/3vdRS3y

04/22/2022

We could not build on our legacy of innovation in research, care, advocacy and fundraising without the help of our valued volunteers. This National Volunteer Week, MDA thanks the countless volunteers and partners who work tirelessly to support our mission and the families we serve, including our friends at Burn Boot Camp, CITGO Fueling Good, National Association of Letter Carriers, Harley-Davidson, Acosta, Sundt Construction, Inc., and so many more.

Will you volunteer and help empower our families? Sign up today at https://bit.ly/Volunteer_MDA

04/20/2022

Join us Tuesday, April 26 from 2-3pm ET for a conversation about living with ALS and parenting. Archana Basu Ph.D and Cindy Moore Ph.D from Massachusetts General Hospital will focus on providing guidance to parents who have an ALS diagnosis with an emphasis on talking to your children about ALS. Register today: https://webinar.ringcentral.com/webinar/register/WN_gMTo9IFpSVSpHy5C7CSFcg

International Association of Fire Fighters Launches Thousands of Fill the Boot Fundraisers for the Muscular Dystrophy As...
04/13/2022
International Association of Fire Fighters Launches Thousands of Fill the Boot Fundraisers for the Muscular Dystrophy Association | Muscular Dystrophy Association

International Association of Fire Fighters Launches Thousands of Fill the Boot Fundraisers for the Muscular Dystrophy Association | Muscular Dystrophy Association

More than 300,000 IAFF members and their affiliates across the country to launch MDA Fill the Boot events to raise lifesaving funds for scientific and clinical research and care for MDA families living with muscular dystrophy, ALS, and related neuromuscular diseases. NEW YORK, NY – April 13, 2022 ...

Simply Stated: What is Myotonic Dystrophy? - Muscular Dystrophy Association
04/08/2022
Simply Stated: What is Myotonic Dystrophy? - Muscular Dystrophy Association

Simply Stated: What is Myotonic Dystrophy? - Muscular Dystrophy Association

Myotonic dystrophy (DM) is a type of muscular dystrophy that affects about 1 in 8,000 people worldwide. The disease is known by several names, including Steinert disease, after the doctor that first described it, and “DM” in reference to its Greek name, dystrophia myotonica. Similar to other for...

TCS New York City Marathon Registration with Team Momentum has opened! Join our team today! #TeamMomentum; @mdaorg; @MDA...
03/31/2022

TCS New York City Marathon Registration with Team Momentum has opened! Join our team today!

#TeamMomentum; @mdaorg; @MDATeammomentum; #nyrr #tcsnycmarathon

Expanding to reach more of our friends with Muscular Dystrophy, ALS and other Neuromuscular Diseases.
03/30/2022
Muscular Dystrophy Association Announces Addition of 13 Care Centers to its MDA National Care Center Network | Muscular Dystrophy Association

Expanding to reach more of our friends with Muscular Dystrophy, ALS and other Neuromuscular Diseases.

NEW YORK, NY – March 30, 2022 – The Muscular Dystrophy Association (MDA) today announced the addition of 13 new hospitals and health institutions to the 150+ Care Centers which make up the MDA Care Center Network. These include 10 new Care Center grant awards and three Care Center affiliates pro...

TCS New York City Marathon Registration starts TOMORROW! Come Run for a cause! Registration link goes live 9:00 A.M. EDT...
03/29/2022

TCS New York City Marathon Registration starts TOMORROW! Come Run for a cause! Registration link goes live 9:00 A.M. EDT 3/30: https://mda.donordrive.com/event/TCSNYCMarathon

#TeamMomentum @MDAOrg @MDATeamMomentum #TCCSNYCMarathon #NYRR

Have you or anyone you know been recently diagnosed with ALS or Lou Gehrig's Disease?  Register to receive information o...
03/22/2022

Have you or anyone you know been recently diagnosed with ALS or Lou Gehrig's Disease? Register to receive information on health services, support groups, clinical trials, and studies.

The National ALS Registry supports research and provides additional benefits for people living with ALS. The Registry provides a variety of information on health services, support groups, clinical trials, and studies. Find out more at cdc.gov/als

Celebrating Muscular Dystrophy Association Shamrocks☘️ 40th birthday🎂 supports research, care, and advocacy for people l...
03/16/2022

Celebrating Muscular Dystrophy Association Shamrocks☘️ 40th birthday🎂 supports research, care, and advocacy for people living with neuromuscular diseases. Visit Rock City today! https://bit.ly/Shamrocks40

#Shamrocks40 #MDA #Shamrocks

Are you traveling for Spring Break? Make Your Move to transform lives and empower MDA families by buying an @MDAorg Sham...
03/03/2022

Are you traveling for Spring Break? Make Your Move to transform lives and empower MDA families by buying an @MDAorg Shamrocks☘ during your next visit to @SeeRockCityGardens! https://bit.ly/Shamrocks40

BIG thanks to our friends Greystar Apartments for help empower MDA families across the US by funding research, care, and...
03/03/2022

BIG thanks to our friends Greystar Apartments for help empower MDA families across the US by funding research, care, and advocacy for the 40th birthday of MDA Shamrocks☘️. Buy your Shamrock today! https://bit.ly/Shamrocks40

Muscular Dystrophy Association ; Greystar Apartments ; #Shamrocks40 🎂; #MDA ; #Shamrocks

The #RedHillsMarket locations in #Tallahassee are celebrating the 40th birthday 🎂of the iconic #MDA #Shamrocks 🍀from Mar...
02/28/2022

The #RedHillsMarket locations in #Tallahassee are celebrating the 40th birthday 🎂of the iconic #MDA #Shamrocks 🍀from March 1-April 30. How can you support MDA families in Florida and beyond? Stop by Red Hills Market and buy a Shamrock (or two!) today. Find a participating location at www.mda.org/shamrocks!
@RaineyCawthonDistributor

02/04/2022
Today and every day, we are thankful for our Firefighters!
11/24/2021

Today and every day, we are thankful for our Firefighters!

Our long-time partner’s at International Association of Fire Fighters have you covered for all your recipe needs this Th...
11/17/2021

Our long-time partner’s at International Association of Fire Fighters have you covered for all your recipe needs this Thanksgiving! These buttermilk biscuits from Chattanooga Fire Fighters Association, Local 820 are a firehouse favorite, and when you donate to MDA, you can access this recipe and more in the IAFF recipe book!

Donate now: https://filltheboot.donordrive.com/event/firefightercookbook

Our long-time partner’s at International Association of Fire Fighters have you covered for all your recipe needs this Thanksgiving! These buttermilk biscuits from Chattanooga Fire Fighters Association, Local 820 are a firehouse favorite, and when you donate to MDA, you can access this recipe and more in the IAFF recipe book! Donate now: https://filltheboot.donordrive.com/event/firefightercookbook

We can't wait to see you TONIGHT for the Virtual Toast to Life Gala! Tickets are free! Sit back, relax, and bid on some ...
11/09/2021

We can't wait to see you TONIGHT for the Virtual Toast to Life Gala! Tickets are free! Sit back, relax, and bid on some amazing silent auction items (who needs a vacation?) while you hear updates on research, advocacy, care and more! Join us here at 7:45PM EST!
http://bidpal.net/mdatoast

Be an #MDAWalkStar! MDA Muscle Walk is back in 2022! Register your #MDA #MuscleWalk Team today and together we can empow...
10/28/2021

Be an #MDAWalkStar! MDA Muscle Walk is back in 2022! Register your #MDA #MuscleWalk Team today and together we can empower people living with neuromuscular disease to achieve their full potential. Visit mda.org/musclewalk to register for any in-person or virtual walk Muscular Dystrophy Association

National Seating & Mobility is a proud sponsor of the MDA Toast for Life Event. At NSM, we honor our clients’ journeys o...
10/25/2021

National Seating & Mobility is a proud sponsor of the MDA Toast for Life Event. At NSM, we honor our clients’ journeys of independence and help them get where they deserve to go; at home, in their community and throughout their lives.

Learn more about NSM here: https://bit.ly/3ngb4tx

Join MDA for the virtual 2021 MDA National Toast to Life Gala, hosted by April Warnecke, on November 9th at 8pm ET! Regi...
10/20/2021

Join MDA for the virtual 2021 MDA National Toast to Life Gala, hosted by April Warnecke, on November 9th at 8pm ET! Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases. Learn more: https://www.mda.org/.../mda-to-host-toast-to-life...
Thank you to our supporters DTE Energy, Hanover Life Reassurance Co, and Medical Properties Trust.

Join MDA for the virtual 2021 MDA National Toast to Life Gala, hosted by April Warnecke, on November 9th at 8pm ET! Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases. Learn more: https://www.mda.org/press-releases/mda-to-host-toast-to-life-national-virtual-gala-on-november-9-at-8pm-et-on-youtube

Thank you to our supporters DTE Energy, Hanover Life Reassurance Co, and Medical Properties Trust.

Join us on November 9th for the 2021 National Toast to Life Gala and help raise funds for research, care and advocacy fo...
10/12/2021

Join us on November 9th for the 2021 National Toast to Life Gala and help raise funds for research, care and advocacy for families like Amber Joi-Watkins and her daughter Celine, who lives with #SMA. Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases: https://one.bidpal.net/mdatoast/welcome
Thank you to Outback Bowl, Structure Tone Organization, and Cigna Together for their support

Join us on November 9th for the 2021 National Toast to Life Gala and help raise funds for research, care and advocacy for families like Amber Joi-Watkins and her daughter Celine, who lives with #SMA. Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases: https://one.bidpal.net/mdatoast/welcome

Thank you to Outback Bowl, Structure Tone Organization, and Cigna Together for their support!

07/01/2021
National Postal Worker Day,

We love our postal workers and long-time partners at National Association of Letter Carriers! Today, on National Postal Worker Day, we kick off the Branch Challenge to fund research and care for people living with muscular dystrophy, ALS, and related neuromuscular diseases. Join us and donate today in honor of your postal worker! http://bit.ly/NALC_2021

Announcing the MDA Access series to support people living with neuromuscular diseases throughout their lives. Programmin...
06/09/2021
Muscular Dystrophy Association Announces Family Access Programming to Address Barriers for 300,000+ People Living Neuromuscular Diseases Nationwide | Muscular Dystrophy Association

Announcing the MDA Access series to support people living with neuromuscular diseases throughout their lives. Programming includes access to equipment, assistive devices, K-12, higher education, insurance coverage and therapies. Read more: https://www.mda.org/.../muscular-dystrophy-association.

NEW YORK, NY – June 8, 2021 – The Muscular Dystrophy Association (MDA) today announced a new series of programming called MDA Access Workshops. The educational workshops will be on-demand and focus on providing resources for over 300,000 families in the U.S. living with muscular dystrophy, ALS, ...

05/21/2021

Dan Polizzi, member of Aurora Firefighters Local 99, is making his move for Movement Month! In addition to being an #IAFF fire fighter, Dan has also appeared on American Ninja Warrior. He is excited to show how you can #MakeYourMove like a fire fighter and Ninja Warrior.

TONIGHT 5/20, join us for our annual MDA's Wings Over Wall Street (VIRTUAL) event to Unlock the Cure for ALS. With ABC E...
05/20/2021

TONIGHT 5/20, join us for our annual MDA's Wings Over Wall Street (VIRTUAL) event to Unlock the Cure for ALS. With ABC Eyewitness News Anchor Bill Ritter, honoring the late Pat Quinn co-founder of the Ice Bucket Challenge, experts from the ALS medical community and families, and an auction. See below for a statement from Pat Quinn's father.

For more info: https://one.bidpal.net/wow21/welcome

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Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including deelopemntal diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help
Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help
This is JC Higginbotham, the 2009 State of Alabama Goodwill Ambassador. He was busy tending to his farm animals but he wanted to send a big Thank You to everyone who has and will support the MDA Shamrock program. God bless you and buy them and post them proud please! 🍀
We want to extend a huge thank you to everyone who came out to support Guardian’s Inaugural Clays for a Cause Tournament today! Through this tournament we were able to raise money that will go toward research, screenings, and sending children to MDA Summer Camp! We are proud to support Alabama Muscular Dystrophy Association and the efforts they make towards care and research for those affected by neuromuscular disease. Special thanks to Lower Wetumpka Shotgun Sports Club for hosting and helping making this event a success!
The Muscular Dystrophy Association supports those with neuromuscular diseases such as Muscular Dystrophy and ALS. They raise money for medical procedures like newborn screenings and visits to MDA Care Centers, along with sponsoring kids to attend MDA Summer Camp. Funds from our Inaugural Clays for a Cause Tournament will benefit Alabama Muscular Dystrophy Association and their efforts to help those afflicted with neuromuscular disease. Visit https://www.myguardiancu.com/clays-for-a-cause for more information.
Thank you, Montgomery!! 🎉🙌🙏👍 Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!! Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌 These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy. Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍 Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!! Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌 These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy. Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍 Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!! Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌 These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy. Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍 Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!! Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌 These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy. Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍 Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!! Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌 These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy. Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
How about a Chief climbing the 110’ aerial ladder?👀🚒 That’s exactly what District Chief Stuart (Car 34) did today at the Walmart on Ann Street while Truck 42 was #fillingtheboot for #MDA. Listen in as he shows us his view from the top. #firefighter #laddertruck #districtchief #firetruck #firefighters #community #thankyou Muscular Dystrophy Association Alabama Muscular Dystrophy Association
There's still an hour left to get to the Alabama Muscular Dystrophy Association's Ability Meet Up at Mobile's Hank Aaron Stadium.