Alabama Muscular Dystrophy Association

Alabama Muscular Dystrophy Association MDA is fighting to free individuals — and the families who love them — from the devastating effects of muscular dystrophy, ALS and related diseases.

Operating as usual

08/29/2021

Join us on Saturday, September 4, at 4:00 p.m. ET, for the MDA Takes Vegas Stream-a-thon, an eight-hour live-streaming show on Twitch featuring top creators, gamers, and athletes including Alpharad, Terroriser, and Nyheim Hines. Streaming live from the HyperX eSport Arena Streamer Studio at the Luxor Hotel, the MDA Let’s Play channel on Twitch will host hours of competitions, giveaways, and celebrity and surprise guest appearances. Funds raised from the stream-a-thon will support research and care for people living with muscular dystrophy, ALS, and related neuromuscular diseases. Don’t miss out! Learn more here: https://www.mda.org/press-releases/mda-announces-its-inaugural-mda-takes-vegas-stream-a-thon-labor-day-weekend

08/23/2021

Thank you to all that have supported MDA & Jiffy L**e’s Drive2DoMore campaign so far! There’s still time to Drive2DoMore for MDA families - donate today to support MDA’s programs and services for children and adults living with muscular dystrophy, ALS and related neuromuscular diseases: https://bit.ly/JiffyL**e21

08/16/2021

MDA is teaming up with long time partner Jiffy L**e for the Drive2DoMore campaign to support research, care and advocacy for children and adults living muscular dystrophy, ALS and related neuromuscular diseases. Find a participating Jiffy L**e and donate today! https://bit.ly/JiffyL**e21

Mark your calendars for the 2021 National Toast to Life Gala on November 9th, 2021! You can help MDA continue funding ou...
08/11/2021

Mark your calendars for the 2021 National Toast to Life Gala on November 9th, 2021! You can help MDA continue funding our mission by registering for the event today and inviting your friends, colleagues, and family to save the date! Visit http://bidpal.net/MDAToast to register and check out our sponsorship opportunities for this unforgettable event! #MDA Cigna DTE Energy Outback Bowl Structure Tone

Mark your calendars for the 2021 National Toast to Life Gala on November 9th, 2021! You can help MDA continue funding our mission by registering for the event today and inviting your friends, colleagues, and family to save the date! Visit http://bidpal.net/MDAToast to register and check out our sponsorship opportunities for this unforgettable event! #MDA Cigna DTE Energy Outback Bowl Structure Tone

08/07/2021

Today is the Virtual Muscle Walk! Thank you to all our donors, participants, sponsors and MDA families who have helped us advance our mission to find a cure for neuromuscular diseases! Check out this video from one of our top Walk teams, The Preston Project, who've raised almost $17K this year for Muscle Walk! Comment below with a photo of how you're celebrating today!

08/02/2021

Kristine Welker, Chief of Staff of Muscular Dystrophy Association says, “My family connection to Somerville Local 76, Cambridge Local 30, Boston Local 718 fire fighter communities runs deep, and I was grateful to meet with the man whose family started filling the boot for MDA families over 67 years ago! I had the honor of thanking Tom Graney, retired Deputy Chief, in-person! His father, George, started the Fill the Boot program in Boston Local 718 from where the new IAFF General President, Edward “Edzo” Kelly hails, to help out a friend whose children were diagnosed with Duchenne muscular dystrophy -- and the IAFF have been indefatigable in their efforts to never stop filling the boot until cures are found. Today, MDA family members are living longer, fulfilling lives, thanks to the IAFF’s unwavering commitment which has led to 12 FDA approved treatments in the past 6 years! Together, we will continue to find breakthrough treatments and cures.”

International Association of Fire Fighters

Photo (L to R): Kristine's husband, Bill Welker; Jay Colbert, Lt. & IAFF District 3 DVP; Tom Graney, Retired Deputy Chief; Kristine Welker, MDA Chief of Staff; Michael Jefferson, Union President L76; Barry Hamilton, Acting/Lieutenant; Kristine's father, Lawrence Lowe.
Photo credit: Ruby Souza

Thank you, Blue Cross and Blue Shield of Alabama  for sponsoring the 2021 Muscle Walk. With your support, we can continu...
08/02/2021

Thank you, Blue Cross and Blue Shield of Alabama for sponsoring the 2021 Muscle Walk. With your support, we can continue to provide support for people living with muscular dystrophy, ALS and related neuromuscular diseases, through research, care and advocacy.

Thank you, Blue Cross and Blue Shield of Alabama for sponsoring the 2021 Muscle Walk. With your support, we can continue to provide support for people living with muscular dystrophy, ALS and related neuromuscular diseases, through research, care and advocacy.

MDA is partnering with Payce, a program that will donate to MDA every time you shop at more than 400 online retailers or...
07/28/2021

MDA is partnering with Payce, a program that will donate to MDA every time you shop at more than 400 online retailers or with a linked card at participating national stores and restaurants. Sign up today and start shopping for MDA at paycepays.com/MDA

MDA is partnering with Payce, a program that will donate to MDA every time you shop at more than 400 online retailers or with a linked card at participating national stores and restaurants. Sign up today and start shopping for MDA at paycepays.com/MDA

07/27/2021

Throughout the month of August, you can help Jiffy L**e change more than oil. For 10 years our partnership continues to fund MDA’s mission to transform the lives of children and adults living with muscular dystrophy, ALS and related neuromuscular diseases, through research, care and advocacy. With a donation of $3 or more at your local Jiffy L**e, you can Drive2DoMore and receive a savings book on Jiffy L**e services! Find a participating Jiffy L**e and donate today! https://www.mda.org/press-releases/jiffy-lube-and-muscular-dystrophy-association-celebrate-10th-annual-fundraising-campaign-to-support-the-neuromuscular-community

07/15/2021

Join us on July 22nd at 7PM ET for a conversation around accessibility and inclusion in STEM education and careers. Engineers, designers, and innovators from General Motors will share their experiences pursuing a career in STEM and how they are now using their skills and creativity to solve challenges around accessibility and sustainability.

Some of the panelists will also share their personal experiences living with a disability and how they advocated for their needs in higher education and employment. This panel will be co-moderated by MDA Ambassadors Justin Moy and Amanda Zurek, who are currently pursuing careers in STEM. Register today! https://mda.secure.force.com/eventRegistration/?id=7015G0000013hcb

07/13/2021

MDA staff member, Colleen Vineer, ran the Run Disney 2017 Super Heroes Half Marathon with MDA Team Momentum and now is back for the 2021 Disney Wine & Dine Half Marathon Weekend.
“I run with MDA team to show my support for my sister, Laney, who lives with mitochondrial myopathy. Laney never lets a challenge get her down and she doesn’t give up, even when the circumstances seem impossible. I’ll continue to run with MDA to show her that I’ll never give up my commitment to helping fund research and clinical care to help her live her best life.”

Visit https://www.mdateam.org/wad2021 to join Colleen at Walt Disney World for Wine & Dine Weekend! Thank you to CITGO Fueling Good for their support.

Join us on July 22nd at 7PM ET for a conversation around accessibility and inclusion in STEM education and careers.  Eng...
07/08/2021
Inclusion in STEM: A Discussion with General Motors - Muscular Dystrophy Association

Join us on July 22nd at 7PM ET for a conversation around accessibility and inclusion in STEM education and careers. Engineers, designers, and innovators from General Motors will share their experiences pursuing a career in STEM and how they are now using their skills and creativity to solve challenges around accessibility and sustainability. Some of the panelists will also share their personal experiences living with a disability and how they advocated for their needs in higher education and employment. This panel will be co-moderated by MDA Ambassadors Justin Moy and Amanda Zurek, who are currently pursuing careers in STEM. https://strongly.mda.org/inclusion-in-stem-a-discussion-with-general-motors/

According to the National Science Foundation, individuals living with a disability, such as neuromuscular disease, are underrepresented in the fields of science, technology, engineering, and math (STEM). Yet STEM-based careers are growing exponentially, and diversity is needed to drive innovation ...

07/01/2021
National Postal Worker Day,

We love our postal workers and long-time partners at National Association of Letter Carriers! Today, on National Postal Worker Day, we kick off the Branch Challenge to fund research and care for people living with muscular dystrophy, ALS, and related neuromuscular diseases. Join us and donate today in honor of your postal worker! http://bit.ly/NALC_2021

Announcing the MDA Access series to support people living with neuromuscular diseases throughout their lives. Programmin...
06/09/2021
Muscular Dystrophy Association Announces Family Access Programming to Address Barriers for 300,000+ People Living Neuromuscular Diseases Nationwide | Muscular Dystrophy Association

Announcing the MDA Access series to support people living with neuromuscular diseases throughout their lives. Programming includes access to equipment, assistive devices, K-12, higher education, insurance coverage and therapies. Read more: https://www.mda.org/.../muscular-dystrophy-association.

NEW YORK, NY – June 8, 2021 – The Muscular Dystrophy Association (MDA) today announced a new series of programming called MDA Access Workshops. The educational workshops will be on-demand and focus on providing resources for over 300,000 families in the U.S. living with muscular dystrophy, ALS, ...

05/21/2021

Dan Polizzi, member of Aurora Firefighters Local 99, is making his move for Movement Month! In addition to being an #IAFF fire fighter, Dan has also appeared on American Ninja Warrior. He is excited to show how you can #MakeYourMove like a fire fighter and Ninja Warrior.

TONIGHT 5/20, join us for our annual MDA's Wings Over Wall Street (VIRTUAL) event to Unlock the Cure for ALS. With ABC E...
05/20/2021

TONIGHT 5/20, join us for our annual MDA's Wings Over Wall Street (VIRTUAL) event to Unlock the Cure for ALS. With ABC Eyewitness News Anchor Bill Ritter, honoring the late Pat Quinn co-founder of the Ice Bucket Challenge, experts from the ALS medical community and families, and an auction. See below for a statement from Pat Quinn's father.

For more info: https://one.bidpal.net/wow21/welcome

TONIGHT 5/20, join us for our annual MDA's Wings Over Wall Street (VIRTUAL) event to Unlock the Cure for ALS. With ABC Eyewitness News Anchor Bill Ritter, honoring the late Pat Quinn co-founder of the Ice Bucket Challenge, experts from the ALS medical community and families, and an auction. See below for a statement from Pat Quinn's father.

For more info: https://one.bidpal.net/wow21/welcome

In recognition of ALS Awareness Month, join MDA’s Advocacy Institute featuring Representative Mike Quigley and Congressm...
05/19/2021

In recognition of ALS Awareness Month, join MDA’s Advocacy Institute featuring Representative Mike Quigley and Congressman Jeff Fortenberry, on May 24th at 4pm ET. This session will dive into the ACT for ALS, a piece of legislation that would speed up development and access to potentially lifesaving ALS therapies. Save your spot today! https://webinar.ringcentral.com/webinar/register/WN_aj7VdBiOTAeUtiFkjUxy3A

In recognition of ALS Awareness Month, join MDA’s Advocacy Institute featuring Representative Mike Quigley and Congressman Jeff Fortenberry, on May 24th at 4pm ET. This session will dive into the ACT for ALS, a piece of legislation that would speed up development and access to potentially lifesaving ALS therapies. Save your spot today! https://webinar.ringcentral.com/webinar/register/WN_aj7VdBiOTAeUtiFkjUxy3A

05/09/2021

Thank you Savanna Woods Music for being an awesome part of our MDA family. Your message to MDA moms and to your mom, Lacey, is beautiful and we hope everyone has a very happy Mother's Day!

BIG thanks to the customers Piggly Wiggly JTM  for helping to transform the lives of families across Georgia and Alabama...
04/23/2021

BIG thanks to the customers Piggly Wiggly JTM for helping to transform the lives of families across Georgia and Alabama by funding research, care, and advocacy.

BIG thanks to the customers Piggly Wiggly JTM for helping to transform the lives of families across Georgia and Alabama by funding research, care, and advocacy.

The results are in…. Congrats to the Paradigm Investment Group, LLC.  and Hardee’s community for a RECORD BREAKING #MDA ...
04/22/2021
Thank You Hardee's for Participating in MDA's Shamrocks Program

The results are in…. Congrats to the Paradigm Investment Group, LLC. and Hardee’s community for a RECORD BREAKING #MDA #Shamrock season!

A HUGE thanks to our partners and their customers who raised over $64,300 in support of MDA’s mission. Congrats to the @paradigminvest and Hardee’s community for a RECORD BREAKING #MDA #Shamrock season! A HUGE thanks to our partners and their customers who raised over $64,300 in support of MDA’s mission. #partneringforacure Paradigm Investment Group LLC Montgomery-Central & South Alabama Locations #partneringforacure Paradigm Investment Group LLC Montgomery-Central & South Alabama Locations

https://www.youtube.com/watch?app=desktop&v=2dBa-23B9vQ&feature=youtu.be

Thank You Hardee's for participating in MDA's Shamrocks Program and helping individuals with neuromuscular disease live longer and grow stronger.

JUST IN - Numotion Foundation  is doubling donations for Virtual Muscle Walk NOW - Sunday, April 18, up to $25,000! Ther...
04/14/2021

JUST IN - Numotion Foundation is doubling donations for Virtual Muscle Walk NOW - Sunday, April 18, up to $25,000!

There's no time to lose - let's get those dollars in to find cures for neuromuscular diseases!

https://mda.donordrive.com/event/2021vmw

JUST IN - Numotion Foundation is doubling donations for Virtual Muscle Walk NOW - Sunday, April 18, up to $25,000!

There's no time to lose - let's get those dollars in to find cures for neuromuscular diseases!

https://mda.donordrive.com/event/2021vmw

It's National Boot Day and The Boot is Back! Join over 300,000 IAFF members for this year’s Fill the Boot fundraisers to...
04/13/2021

It's National Boot Day and The Boot is Back! Join over 300,000 IAFF members for this year’s Fill the Boot fundraisers to support MDA families. You can donate online or in-person and make a huge difference for people living with muscular dystrophy, ALS, and related neuromuscular diseases! http://bit.ly/MDA_FTB21

It's National Boot Day and The Boot is Back! Join over 300,000 IAFF members for this year’s Fill the Boot fundraisers to support MDA families. You can donate online or in-person and make a huge difference for people living with muscular dystrophy, ALS, and related neuromuscular diseases! http://bit.ly/MDA_FTB21

MDA is looking for volunteers to support our Fill the Boot program! Volunteers will contact fire departments (virtually)...
04/08/2021
Become a Volunteer | Muscular Dystrophy Association

MDA is looking for volunteers to support our Fill the Boot program! Volunteers will contact fire departments (virtually) to provide support and strengthen our partnership to enhance their fundraising efforts.

Interested? Register at www.mda.org/volunteer

Then sign up for the Fill the Boot opportunity here:

http://mda.force.com/volunteer/GW_Volunteers__PersonalSiteJobListing?JobID=a0T2L00000Kjz99&nMonthsToShow=12

Volunteers are an important part of MDA’s 70-year history. Through volunteer committees, boards, community events, and Summer Camps where kids build confidence and independence, volunteers are tightly woven into MDA’s fabric.

Announcing MDA’s newest National Ambassador…Keisha Greaves! We look forward to her journey representing MDA by sharing h...
04/06/2021

Announcing MDA’s newest National Ambassador…Keisha Greaves! We look forward to her journey representing MDA by sharing her story to raise awareness and support for research, care, and advocacy programs for our community. Congratulations and welcome, Keisha!

Girls Chronically Rock
http://bit.ly/NationalAmbassador2021

Announcing MDA’s newest National Ambassador…Keisha Greaves! We look forward to her journey representing MDA by sharing her story to raise awareness and support for research, care, and advocacy programs for our community. Congratulations and welcome, Keisha!

Girls Chronically Rock
http://bit.ly/NationalAmbassador2021

It’s almost St. Patrick’s Day – remember to order from a participating ShakeShack  near you on Wednesday, March 17! Each...
03/15/2021

It’s almost St. Patrick’s Day – remember to order from a participating ShakeShack near you on Wednesday, March 17! Each purchase will fund research and care for families living with muscular dystrophy, ALS, and related neuromuscular diseases in our community. Use the code “DONATION” on the Shack App, web, or kiosk when checking out and they’ll donate 25% of your total purchase to MDA.

It’s almost St. Patrick’s Day – remember to order from a participating ShakeShack near you on Wednesday, March 17! Each purchase will fund research and care for families living with muscular dystrophy, ALS, and related neuromuscular diseases in our community. Use the code “DONATION” on the Shack App, web, or kiosk when checking out and they’ll donate 25% of your total purchase to MDA.

When you buy @Muscular Dystrophy Association Shamrocks at Rock City, you are helping to transform the lives of children ...
03/15/2021

When you buy @Muscular Dystrophy Association Shamrocks at Rock City, you are helping to transform the lives of children and adults living with #musculardystrophy, #ALS, and related #neuromuscular diseases. http://bit.ly/ShamrocksLocator2021

When you buy @Muscular Dystrophy Association Shamrocks at Rock City, you are helping to transform the lives of children and adults living with #musculardystrophy, #ALS, and related #neuromuscular diseases. http://bit.ly/ShamrocksLocator2021

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Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including deelopemntal diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help
Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help
This is JC Higginbotham, the 2009 State of Alabama Goodwill Ambassador. He was busy tending to his farm animals but he wanted to send a big Thank You to everyone who has and will support the MDA Shamrock program. God bless you and buy them and post them proud please! 🍀
We are excited to announce that MDA received grants from Walmart Giving! Thank you Walmart Alexander City, Walmart Jasper and Walmart Oneonta! #BetterTogether, #Walmart Giving, #Walmart
Inner Strength is a Myasthenia Gravis Support Group but anyone is welcome at our Support Group Meeting. Inner Strength will have our May meeting at the North Shelby Library, Cahaba Valley Road, Birmingham, AL on May 14, 2019 at 1 pm. The library has easy access for wheelchairs and walkers (no stairs to get to the room we meet in). We are very excited to have Ashley Lemsky from the United Way come and speak. Inner Strength is an MG support group, we are open to anyone affected by MG, patients, care givers, friends and family. Please join us. Hope to see you there.
Highlands Elementary is excited about participating in the Shamrock Sales to support muscular dystrophy! We hope to raise enough to send a kid to camp for a week!
Monroeville Elementary School is excited to join the fight against muscular dystrophy.
I am a student at Georgia State University and for my entrepreneurship class my team and I are working to create a product that could potentially serve as a huge benefit for many developmentally disabled. I am looking to survey adults from age 18-30 with a developmental disability, who are willing an able to complete an online questionnaire. If you or someone you know fits this description, please link us in a message. This would not only help me personally but potentially many others.
Please sign my petition you don't have to send money I just want people to see what disabled people have to deal with!
In 1985 as a Member of the World Famous 82nd ABN Div. All American Chorus I Had the Honor of Performing on the Jerry Lewis Telethon at Caesar's Palace Las Vegas. Mr Lewis Was a true Humanitarian and Awesome Performer. His Hard work helped millions with MD. There is a special place in Heaven for People with His Heart and Spirit. Rest In Heaven Mr. Lewis...You've Earned it ! 1985 Jerry Lewis Telethon Memories - Sammy Davis Jr, Glenn Campbell, Steve Lawrence 4 Clips from the 1985 Jerry Lewis Telethon... Beginning with Jerry and Sammy Davis doing a long distance… youtube.com