10/14/2024
Tonight Is the last night of our 10 week hospital stay as we head into the next phase of this journey which is a rehab facility in Huntersville. It’s a very bittersweet moment because as much as we’ve waited for this day to come, it’s also the fear of the unknown as we’ve gotten so used to the routine here, feel comfortable with some of our favorite nurses and CNA’s and are leaving THE most amazing case manager behind…someone who has fought alongside us and for us to get us what sissy deserves!
Schmidt you are our forever ❤️😇
Just before coming to the hospital sissy was walking, she was eating full meals, sleeping in bed with me and doing many other things (with our assistance) as she was still recovering from intense radiation in Chapel Hill and working toward our next phase of treatment with a promising clinical trial. Now we leave here and she is so deconditioned that she’s 100% dependent with the inability to walk (disqualifying her from the trial), she has a peg tube for feeding (which I’m slowly working toward getting her off of 🙏🏼) and her tumor is no longer stable 🥹🥹🥹🥹
To say that my heart is so broken beyond what it already was is an understatement.
This part of the journey has been emotionally and mentally exhausting.
I’ve slept in a recliner and mom’s been by my side the entire time, sleeping on a rock hard sofa and never complaining once! We’ve lived off the bare minimums along with the kind grocery and dinner deliveries from some of the most amazing friends and family that we can’t thank enough.
So many of you have reached out to check in as I’ve been MIA and long overdue with a Facebook live feed…In part because of the day to day struggles and also because with the storms that have wreaked havoc causing tragic losses of life and livelihoods, it just didn’t seem right to do an update…instead we pray for all of those effected beceuse pain is pain and ours is no greater than yours.🙏🏼
As I dismantle our hospital room decor, I have shed so many tears as I say goodbye to the night shift that have become family to us, to the familiar surroundings that became our new routine and mostly because I regret not leaving here upon arrival when three doctors bombarded us with, your sisters at the end of days after not even a full exam, scan or review of her chart…they simply saw 55 year old female with Glioblastoma and counted us out.
Not sure those doctors will be lining the halls to say goodbye but I do hope they learn a new approach…meeting families where they’re at in the journey, that hope can go a long way and that only God knows our future 🙏🏼
I can barely find the right words to say to convey just how hard this has been nor how grateful we are for the continued support of our amazing community and prayer warriors…we appreciate you all!
We have a long road ahead of us (if God allows it) and it certainly won’t be easy, but with the love of God, sissys will and the endless love support…
WE GOT THIS💪🏼
Here’s to a new day…
Much love to you all 💕💕💕✨✨
