Many families travel great distances for treatment and it's expensive. Families with OI or "Brittle Bones" travel great distances to receive proper treatment. LionsHeart Network works to help cover some of those traveling expenses. We partner with local organizations and business to create various fundraisers.Every month, we select a different family to help. We have partnered with Footsteps To Fo
llow to create the "Traveling Tutus, an ongoing fundraiser. Every tutu sold helps an OI family. Sizes range from Preemie to Adult XL. We sponsor the OI Ball, which gives OI families a night of glamor and to be be celebrated, outside the hospital. This event takes place in November. This year, it will be in College Park, MD. Tickets and Sponsorships are available now. Please, go to the event page for more details. https://www.facebook.com/events/331599980275214/?fref=ts
We are excited about "The Black and White Affair" 2/22/13. With the help of the Bigg Chat, we will have a beautiful night of Awareness. 2 families will come to speak about their OI journeys. The audience will truly get to see OI life. We raise awareness through our Annual Wishbone Day Celebration, held during the first week of May. We join many, around the world, and turn the city Yellow. For more information please call me (336)528-4654 or email [email protected].
