Cystic Fibrosis Foundation - Central Pennsylvania Chapter

Cystic Fibrosis Foundation - Central Pennsylvania Chapter Welcome to the official page of the Central Pennsylvania Chapter! The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.
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Operating as usual

We are excited to join CF Foundation Grampion Chair, Bonnee Binker, in announcing that The Delaney Binker Family Cure Cy...
10/03/2020

We are excited to join CF Foundation Grampion Chair, Bonnee Binker, in announcing that The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation will match every new Legacy Society Donor with a $500 contribution to the CF Foundation up to $50,000! This nationwide match runs between August 1 and December 28, 2020, or when the match is completed, whichever comes first, and donors who join after the match is complete will support the mission of the CF Foundation.

Contact us to join today and create your legacy!

URL: https://mylegacywithcff.org/

Pumpkin Spice and everything nice! Crisp cooler air, falling leaves, Halloween and all the fun things in between! HELLO,...
10/01/2020

Pumpkin Spice and everything nice! Crisp cooler air, falling leaves, Halloween and all the fun things in between! HELLO, OCTOBER!

The Foundation has extended its offering of FREE memberships to "Beam" for adults with CF ages 18+ through the end of 20...
09/30/2020

The Foundation has extended its offering of FREE memberships to "Beam" for adults with CF ages 18+ through the end of 2020. Beam provides on-demand sessions and live classes with specialist fitness instructors who can adjust exercises specifically for people with CF.

Those interested can sign up at www.beamfeelgood.com (no access code is needed).

Have you registered for our national virtual event on October 6th? "Together: NOW, a Virtual 65 Roses Challenge Celebrat...
09/29/2020

Have you registered for our national virtual event on October 6th? "Together: NOW, a Virtual 65 Roses Challenge Celebration" spotlights members of the CF community and legendary athletes, who will share their inspiring stories and we will celebrate the many ways people with CF and their loved ones have tackled the 65 Roses Challenge to help us advance our mission! You must be registered to attend.

Link to register: https://community.cff.org/vlc/live/44/page/259

09/28/2020
Cystic Fibrosis Foundation

How will you ROSE UP? Sign up to help reach our goal of 650 community member registrants from all 50 states participating in a day of fundraising and story sharing on October 2.

http://on.cff.org/roseup

Join us and ROSE UP! ROSE UP is a new virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together to ROSE UP and support our mission. Anyone who wants to ROSE UP for a cure is welcome!

What does it mean to ROSE UP? 🌹
🔹 JOIN – once you register you are in!
🔹 ENCOURAGE others to ROSE UP
🔹 SHARE why you ROSE UP on social media using #ROSEUPCF
🔹 DONATE any amount big or small
🔹 ROSE UP on October 2!

How will you ROSE UP? Sign up to help reach our goal of 650 registrants from all 50 states participating in a day of fundraising and story sharing on October 2. Register to join the movement: http://on.cff.org/roseup

Today is National Family Day! Today puts the spotlight on the people that make our lives meaningful. Families come in ma...
09/26/2020

Today is National Family Day! Today puts the spotlight on the people that make our lives meaningful. Families come in many forms and sizes but what they all share is unconditional love and support. Take some time today to appreciate the special ones in your life — give them a call or send them a note to let them know you’re thinking of them!

*This photo features Maddie Hagler, a 16 year old with CF and her family. Featured (left to right) mother Jennifer Hallman, Maddie Hagler, step-mother Sarah Beth Hagler, sister Molly Hagler, father Clay Hagler, step-brother Miller Hagler, and step-sister Sadie Hagler*

The Central & Northeastern PA chapters are excited to be coming together to bring you our “No Show Gala,” a virtual week...
09/23/2020

The Central & Northeastern PA chapters are excited to be coming together to bring you our “No Show Gala,” a virtual week-long event beginning Friday, November 6th through November 13th! Attendees will have the opportunity to bid on auction items and make 100% tax deductible Bid for a Cure donations throughout the entire week! The best part is, you can watch the program anywhere, anytime...whenever it works best for your schedule!

We may not be able to be together in person, but we hope you will continue to advance our mission to cure cystic fibrosis by supporting this incredible event! Feel free to invite others to this fun-filled event! It will be a moment you will not want to miss! More information to come closer to the event!

09/22/2020
65 Hours for 65 Roses Results

Over the weekend, we asked you to participate in our 65 Hours for 65 Roses Challenge - we're so happy so many of you reached out and fundraised and we raised over $6,500 across Central and Northeastern PA Great Strides! Thanks for your participation!

Don't forget to join us on October 6th for Together:Now, a virtual 65 Roses Challenge celebration at 7pm to celebrate all of your hard work fundraising this year to help us advance our mission. To register, please visit our Together:Now website: https://community.cff.org/vlc/live/44/page/259

It's time to say goodbye to summer and HELLO to fall! Let this new season be a time to gather the things that bring you ...
09/22/2020

It's time to say goodbye to summer and HELLO to fall! Let this new season be a time to gather the things that bring you comfort and joy! HAPPY FALL!

We’re 48 hours in to our 65 Hours for 65 Roses challenge and we’re making progress toward our goal of $6,500 raised! Hav...
09/20/2020

We’re 48 hours in to our 65 Hours for 65 Roses challenge and we’re making progress toward our goal of $6,500 raised! Have you participated yet? It’s not too late! Let’s keep the momentum going!

09/19/2020
Cystic Fibrosis Foundation - Northeastern Pennsylvania Chapter

Cystic Fibrosis Foundation - Northeastern Pennsylvania Chapter

Alaina, CFF staff member and 65 Hours for 65 Roses supporter, wanted to share with you how easy it is to participate in the challenge. Check out her video below with some great reminders on how to participate!

09/17/2020
Tomorrow, 65 Hours for 65 Roses Begins!

Have you started to think about how you'll participate in our 65 Hours for 65 Roses challenge? If not, you've still got time! Take a quick look at the steps in the video and start talking to your friends and family about helping us hit our goal of $6,500 raised in 65 hours!

Join us on October 16 at 9:30 p.m. EST for this year’s National Tomorrow’s Leaders signature event! Live from Los Angele...
09/16/2020

Join us on October 16 at 9:30 p.m. EST for this year’s National Tomorrow’s Leaders signature event! Live from Los Angeles, you can join the virtual Get Salty Comedy Show from the comfort of your own home! The secret celebrity line-up is one you won’t want to miss. VIP tickets are on sale for $100 and will get you face-to-face with your favorite comics, so that you can laugh with them in real time. General admission tickets are available for $35. Link to purchase is https://finest.cff.org/getsaltycomedycentralpa . Show is for ages 18+.

Streamline your fundraising experience by downloading our new fundraising app - "Fight CF!" We've combined all our fundr...
09/15/2020

Streamline your fundraising experience by downloading our new fundraising app - "Fight CF!" We've combined all our fundraising apps for Great Strides, CF Climb, Cycle for Life, and Xtreme Hike into one convenient tool! No matter which events you participate in, use the app to connect with your donors, post on social media, remotely deposit checks and more!

Available now on the App Store and on the Google Play Store.

09/14/2020
65 Hours Self-Donation Challenge

This coming weekend the Challenge is on! Will you participate in our 65 Hours for 65 Roses Challenge and help us get one step closer to making CF stand for Cure Found? Check out our video below with how to participate!

Today we remember the men and women lost on 9/11. Our hearts and prayers are with their family and friends as we reflect...
09/11/2020

Today we remember the men and women lost on 9/11. Our hearts and prayers are with their family and friends as we reflect on that tragic day 19 years ago. 🇺🇸❤️Never Forget

Just a reminder to join Tonya and Brendan for another Great Strides Coffee Chat THIS Saturday, September 12th at 9:30am....
09/09/2020

Just a reminder to join Tonya and Brendan for another Great Strides Coffee Chat THIS Saturday, September 12th at 9:30am. Spend your morning with fellow Great Striders discussing our new recognition reward program, updates on new Foundation initiatives and our 65 Roses Challenge.

Make sure to join us with your favorite cup of coffee! Whether you take it with cream and sugar, black or you're more into pumpkin spice, we don't judge! We can't wait to see you there!

Link to join event:
https://bluejeans.com/706216762/5712?src=join_info

Participant Passcode
5712

Did you know...Compass is available to support the CF community in emergency and disaster situations?More about Disaster...
09/09/2020
Disaster and Emergency Preparedness Plan

Did you know...Compass is available to support the CF community in emergency and disaster situations?

More about Disaster and Emergency Preparedness here: https://www.cff.org/Assistance-Services/How-Compass-Helps-People-With-CF-and-Their-Families/Disaster-and-Emergency-Preparedness-Plan/

Having a disaster and emergency preparedness plan during a natural disaster or emergency is especially critical when someone has a chronic illness. The Cystic Fibrosis Foundation made the following guide to help you or someone you know with cystic fibrosis prepare for a disaster or emergency.

On this day, let's celebrate the great contributions workers have made to the well-being, strength and prosperity of our...
09/07/2020

On this day, let's celebrate the great contributions workers have made to the well-being, strength and prosperity of our nation. Happy Labor Day!

On September 25 and 26, all adults with cystic fibrosis age 18 and over are invited to BreatheCon: a free, virtual event...
09/06/2020

On September 25 and 26, all adults with cystic fibrosis age 18 and over are invited to BreatheCon: a free, virtual event. Connect with other adults living with CF around the globe and discuss shared experiences in small-group video breakouts, group chats, and fun activities like yoga and singing. In addition, registrants can join an affinity group based on your identity beyond CF to find your place in the community.

Link to register and learn more: https://cff.swoogo.com/breathecon2020

Cheers to our Grandparents! Let’s Celebrate National Grandparents Day with a Toast!On Thursday, September 10 at 7PM EST ...
09/03/2020

Cheers to our Grandparents! Let’s Celebrate National Grandparents Day with a Toast!

On Thursday, September 10 at 7PM EST join our amazing CF Grandmoms and hosts: Carol from Western PA and Reggie from Greater Delaware Valley for a fun, informal, virtual happy hour. Fellow CF grandparents from across our region are invited to join in to raise a glass, brag about the CF fighter(s) in your life and meet some other CF grandparents. Bring a photo to share (on your phone or off your wall) and grab the beverage of choice for our virtual toast!

Click this link on Thursday, September 10 to join the event:
https://bluejeans.com/8069472268
1. You can join the event with a laptop, tablet or phone
a. If you are utilizing a tablet or phone, please prepare your device by downloading the BlueJeans app: https://www.bluejeans.com/downloads
b. If you are joining the event with a laptop, click this link at the time of the event https://bluejeans.com/8069472268 and choose the “Join with browser” option
2. Enter Name and Email
3. Click “Sign in as Guest”
4. Choose your audio and video option
a. Click the headphones to watch and listen with your computer
b. Click the phone to watch with your computer and listen with your phone
5. Make sure your camera and microphone are on
6. Click “I’m Ready”
To join via phone, and listen only, please call 1-408-740-7256 and enter code 806 947 2268 #.

Anxious about joining “Virtually”? Comment below and a CFF Staff member will reach out to help you or call Tonya at 412-559-9039

Join Tonya Newberry and Brendan Demmy for another Great Strides Coffee Chat on Saturday, September 12th at 9:30am. Spend...
09/02/2020

Join Tonya Newberry and Brendan Demmy for another Great Strides Coffee Chat on Saturday, September 12th at 9:30am. Spend your morning with fellow Great Striders discussing our new recognition reward program, updates on new Foundation initiatives and our 65 Roses Challenge.

Make sure to join us with your favorite cup of coffee! Whether you take it with cream and sugar, black or you're more into pumpkin spice, we don't judge! We can't wait to see you there!

Link to join event:
https://bluejeans.com/706216762/5712?src=join_info

Participant Passcode
5712

If you have any questions or want additional information, please email Tonya Newberry at [email protected] or Brendan Demmy at [email protected].

We are so excited to announce something BIG! Your donations to the Central Pennsylvania Chapter Annual Fund could be MUL...
09/01/2020

We are so excited to announce something BIG! Your donations to the Central Pennsylvania Chapter Annual Fund could be MULTIPLIED!

While the global spread of COVID-19 is an unprecedented moment in time, the Cystic Fibrosis Foundation remains focused on curing cystic fibrosis and providing all people with CF the opportunity to lead long, fulfilling lives.

Wishes and Dreams for Cystic Fibrosis 501©3 has generously offered a $125,000 local matching gift campaign!

Wishes and Dreams for Cystic Fibrosis will match 2:1 all individual gifts from $1-$9,999 received by the Central Pennsylvania Chapter's Annual Fund. Individual major gifts of $10,000 or more will be matched 1:1. Eligible donations must be made beginning today, September 1st through December 31, 2020. The match will end when $125,000 is achieved or on December 31, 2020, whichever comes first.

Please donate today to make your gift go even further! To contribute, visit our Annual Fund site here: https://fightcf.cff.org/site/Donation2?df_id=1620&1620.donation=form1&s_chapter=1066

Ever wonder what Compass can do for you and your family's needs? There are SO MANY different reasons people call Compass...
08/31/2020

Ever wonder what Compass can do for you and your family's needs? There are SO MANY different reasons people call Compass...and they're here to help! Call 844-COMPASS (844-266-7277) Monday through Thursday, 9 a.m. until 7 p.m. ET and Friday, 9 a.m. until 3 p.m. ET, or email at [email protected].

Fundraising for the Cystic Fibrosis Foundation has never been easier and just involves a few simple steps! Did you know ...
08/27/2020

Fundraising for the Cystic Fibrosis Foundation has never been easier and just involves a few simple steps! Did you know you can use Facebook to create an online fundraiser? Your friends and family can donate directly on your page AND those donations get credited directly to you and your team. Follow the steps below to get started today!

For more than six decades, the Cystic Fibrosis Foundation has been leading the way in the fight against CF. Last year, w...
08/26/2020
Research We Fund

For more than six decades, the Cystic Fibrosis Foundation has been leading the way in the fight against CF. Last year, we invested $191 million on programs to advance research and improve care – more than any other time in the history of the Foundation. The latest figures showing our research investments are available in the "Research We Fund" section on cff.org.

For more information, visit: https://www.cff.org/Research/About-Our-Research/Research-We-Fund/

The Cystic Fibrosis Foundation is the world’s leader in the fight against CF, and our scientific portfolio reflects our drive to provide effective treatments and -- one day -- a cure to every individual with this disease.

Join us tomorrow, Tuesday, August 25 from 6-7pm ET for a cystic fibrosis research webinar focusing on infections. This f...
08/24/2020

Join us tomorrow, Tuesday, August 25 from 6-7pm ET for a cystic fibrosis research webinar focusing on infections. This free event is open to the entire CF community, including people with CF, their family and friends, and CF clinicians and researchers. Learn about current and upcoming research efforts to address key infection priorities, including nontuberculous mycobacteria (NTM), Aspergillus, and phage therapy. Attendees will also have the chance to ask infection research-related questions during the audience Q&A.

Register here now: https://primetime.bluejeans.com/a2m/register/thzrhvbp

As flu season quickly approaches, just a friendly reminder that there are great resources on our website on how to stay ...
08/18/2020
Influenza (the Flu)

As flu season quickly approaches, just a friendly reminder that there are great resources on our website on how to stay healthy, as well as a link to the Flu Vaccine Finder.

Visit https://www.cff.org/Life-With-CF/Daily-Life/Germs-and-Staying-Healthy/What-Are-Germs/The-Flu/ for resources on how to stay healthy and reducing the risk of getting and spreading germs.

Influenza, or “the flu,” is a highly contagious respiratory illness that is caused by a virus. For people with cystic fibrosis, getting the flu may cause a worsening of symptoms and lead to a faster decline in lung function.

Fundraising for the CF Foundation keeps getting easier! Did you know you can share your CF story by creating a personali...
08/13/2020
Annual Fund and Tributes

Fundraising for the CF Foundation keeps getting easier! Did you know you can share your CF story by creating a personalized fundraising page?

Whether you are celebrating a special milestone in your life, wanting to honor and remember a friend or loved one or support your local chapter throughout the year, you can easily create a web page where your family and friends can make a gift to help advance the Foundation's mission.

Visit https://give.cff.org/ to create your page!

Help support Cystic Fibrosis Foundation today!

Timeline Photos
08/12/2020

Timeline Photos

"Children are the living messages we send to a time we will not see." - John F. KennedyHappy "National Sons and Daughter...
08/11/2020

"Children are the living messages we send to a time we will not see." - John F. Kennedy

Happy "National Sons and Daughters Day" to our amazing sons and daughters in our CF community and beyond! We are celebrating how special you are not just today, but all year through.

Are you a parent who may benefit from peer support as the school year approaches? Through CF Peer Connect, parents of ch...
08/10/2020

Are you a parent who may benefit from peer support as the school year approaches? Through CF Peer Connect, parents of children with CF can request a peer mentor and talk with another parent who is experiencing similar challenges. Matches can be made for parenting through pre-school, school-age, adolescence, and college-age related issues.

To find out more information about CF Peer Connect and to request a mentor, visit: https://www.cff.org/Get-Involved/Connect/CF-Peer-Connect/

You asked and we listened! An online chat option is now available on all Compass pages on cff.org. The CF community can ...
08/06/2020

You asked and we listened! An online chat option is now available on all Compass pages on cff.org. The CF community can chat with a live agent or leave a message during normal business hours, Monday through Friday.

*Due to privacy concerns, Compass case managers won’t be able to provide full case management involving sensitive health information via the chat, but we are excited to provide another method for the community to connect with our case managers, making the first steps in navigating an issue easier.

To find out more information on how Compass can help you navigate through your CF journey, visit: https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/

Address

600 Corporate Cir Ste 103
Harrisburg, PA
17110

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Central Pennsylvania Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

Opening Hours

Monday 08:30 - 16:30
Tuesday 08:30 - 16:30
Wednesday 08:30 - 16:30
Thursday 08:30 - 16:30
Friday 08:30 - 16:30

Telephone

(717) 671-4000

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Our Story

Faced with insurmountable odds, but determined to save the lives of their children, a group of concerned parents came together in 1955 to form the Cystic Fibrosis Foundation. At the time, very little was known about cystic fibrosis, but the tenacity and strength of CF families laid the groundwork for monumental progress in research, care, and treatment of a rare disease. Today, because of their hard work and the support of generous volunteers and donors, many people with CF are living into adulthood. Yet, we still lose precious young lives every day and will not be satisfied until there is a cure for all those living with this disease.

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Comments

hello! My sorority, Delta Phi Epsilon at the University of Pittsburgh raises money every year for the Cystic Fibrosis Foundation and last year we raised over 9,000 dollars! This year our goal is to break 10,000 dollars!! As a part of that goal we are currently a part of a competition to get the most likes/comments on this post of us on the pittfiji instagram page! We're calling on everyone we know, including all Central PA CFF Supporters to help us win! If you could please like/comment/tell your friends and give dphie/CFF a shout out in the comments that would be awesome!! We have the chance to win $350 for the Cystic Fibrosis Foundation!! Thanks!! https://www.instagram.com/p/BoZ0erDn_bT/?utm_source=ig_web_button_share_sheet
Hello everyone at CFF! We from United for Life - the Brazilian Institute for Attention to Cystic Fibrosis - would like to share with you and CF Foundation a new video we developed about Cystic Fibrosis Awareness that we have created for the CF Awareness Month in Brazil. Given that the Worldwide Cystic Fibrosis Day was on September 8th, September was chosen in Brazil to become the Cystic Fibrosis Awareness Month. We would like to count on your help to propagate this wherever you deem necessary to help spread awareness for CF. The link to access the video is https://youtu.be/00L1qBZNemI. We hope you enjoy the video!
Please vote for our Hometown Hero! TN has taken the lead on the very last day! PLEASE, take 5 seconds out to VOTE & SHARE. There's only hours left. This is so important to Michael. He & his family are very involved in the Boomer Foundation & have been for years. He deserves to be the face of the foundation & there's no better choice for raising awareness of CF. He devotes his life to it. Please HELP! VOTE, SHARE & TAG 🙏🙏🙏🙌 http://woobox.com/dfn3xn