Cystic Fibrosis Foundation - Delaware Valley Chapter, Harrisburg

12/07/2020

CF Foundation Seeks Input from Communities of Color

Cystic fibrosis affects people of many different racial and ethnic backgrounds; however, for many years there has not been adequate recognition or representation of Black individuals and other people of color within the CF community. The CF Foundation is working to deepen its understanding of this issue by listening to Black members of the CF community, other people of color with CF, and leading researchers who are focused on health disparities.

If you are interested in helping to shape the Foundation's efforts to create an equitable and inclusive community for all people with CF, we encourage you to complete this interest form: https://www.surveymonkey.com/r/KGQB7K9

To find out more information about how to become involved or what the CF Foundation is doing to address racism and discrimination, visit: https://www.cff.org/News/News-Archive/2020/CF-Foundation-Seeks-Input-from-Communities-of-Color/

Hearing from diverse voices is critical as we continue our journey to listen, learn, and take action against racism and discrimination.

12/04/2020

Looking for the perfect holiday gift? How about a donation to our Annual Fund? Help gift the gift of a CURE to someone with cystic fibrosis.

Donate today: fightcf.cff.org/centralpa-anf

12/02/2020

THANK YOU for your support! We not only met our Giving Tuesday $250,000 match but FAR exceeded it! Until it's done!

Your support, no matter how much you give, helps ensure we have the resources to stay the course and find a cure for every person with cystic fibrosis. Because of you, we met the Stremick family match and raised more than $1 million on Giving Tuesday.

Thank you for your support, and for your commitment to the CF community. Our work will not be done until CF stands for Cure Found.

12/01/2020

Today’s the day! Show your support this Giving Tuesday by helping us reach our matching gift goal of $250,000 from the Stremick family. Your gift will go twice as far in helping to improve the lives of all people living with cystic fibrosis. Get matched today: https://fightcf.cff.org/site/Donation2?df_id=2985&mfc_pref=T&2985.donation=form1

11/30/2020

This year, Giving Tuesday starts early. Thanks to the Stremick family, your gift will be matched, dollar-for-dollar, up to $250,000, in honor of their granddaughter, Ella, and everyone living with cystic fibrosis. Your gift will help us get closer to our ultimate goal: a cure for CF.

Be one of the first to have your donation doubled. Give early and help us unlock the match: https://fightcf.cff.org/site/Donation2?df_id=2985&mfc_pref=T&2985.donation=form1

11/28/2020

Did you make a donation to the CF Foundation? Easily increase your impact with a matching gift from your employer! Many employers sponsor matching gift programs and will match any charitable contributions made by their employees. To find out more information, including if your company participates, visit https://www.cff.org/Get-Involved/Give-to-the-Cause/Matching-Gifts/?fbclid=IwAR3o5iQvLy4ckM7jTipeR0dKcEY7smok9ZvFHVcOk4HejOf0I7ptdnWhF8E.

11/26/2020

This year brings new meaning to the word THANKFUL! We are so thankful for you - our amazing CF community of advocators, volunteers, fighters and donors for your unwavering support of the Cystic Fibrosis Foundation.

From our family to yours, Happy Thanksgiving!

11/24/2020

We are extra grateful this week! You rallied behind this year’s Wishes and Dreams for Cystic Fibrosis match like never before. In just a few short weeks you donated more than $50,000 to the Delaware Valley, Central and Northeastern PA Chapter’s annual fund - $50,000 that was multiplied 2:1 and helped us meet the Wishes and Dreams for CF match in record time! Thank you for your continued support of the CF Foundation – together we are going to make CF stand for Cure Found!

11/23/2020

Giving Tuesday is just around the corner. Are you ready?

On Tuesday, December 1, the cystic fibrosis community will come together to show our unending support for the people we love most – and help move us closer to a cure. We know that when the CF community unites, anything is possible.

Mark your calendar and stay tuned for an exciting announcement!

11/19/2020

The first National Breath of Life Celebration is TONIGHT! We hope you will join us at 8:00 p.m. EST, when we will take time to relax and connect with each other. We will also enjoy beloved entertainers as we raise funds to advance the Foundation’s mission.

During this special event, we will honor Preston W. Campbell, III, MD, former President and CEO of the CF Foundation, for his transformative contributions over the past three decades in advancing research and care in CF.

Please note, registration will close at 7 p.m. EST TONIGHT! Your support will help us get one step closer to realizing our shared dream – a cure for cystic fibrosis.

https://events.cff.org/breathoflifecelebration

11/18/2020

There's no "GOBBLE" about it...we are SO CLOSE to meeting our match challenge! Take advantage of the opportunity to triple your donation with our local matching gift campaign with Wishes and Dreams for Cystic Fibrosis 501©3. They are matching all individual gifts from $1 to $9,999 TWO TO ONE up to $125,000. This means your $50 gift would multiply to $150! With your help, we can move our mission forward.

Donate here: fightcf.cff.org/centralpa-anf

11/17/2020

CF Peer Connect (Global) | Program Overview pages

Parents of individuals living with CF navigate many phases and challenges – from the moment of diagnosis to behavioral challenges, schooling, hospitalizations, transitions during adolescent years and letting go as their child moves into adulthood. It can be therapeutic to have support from another parent who has been there! Visit https://cfpeerconnect.com/ to get connected with a mentor or find out more information!

Are you facing a challenge and interested in talking to someone who has been in a similar situation? Through CF Peer Connect, you can connect with a peer mentor who has been in your shoes and can share experiences on topics that are important to you. Peer mentors are adults with CF and family member...

11/13/2020

Happy Friday! We hope you’ve enjoyed our No Show Gala Spirit Week just as much as we have! Just a friendly reminder that today is the last day to place bids on your favorite auction items, and to make your Bid For A Cure donations. We are so close to hitting our matching gift goal. Will you help us finish strong? To view our Gala, place your bids, and make your donations please visit: https://finest.cff.org/centralpa. Don’t delay, the auction closes at 9pm tonight!

As of December 31, 2019, the Cystic Fibrosis Foundation, a 501(c)(3) nonprofit organization, had unrestricted financial reserves of about 11 times its budgeted 2020 expenses, following a royalty sale in 2014. The sale was made possible by the Foundation’s successful venture philanthropy model, through which we have raised and invested hundreds of millions of dollars to help discover and develop breakthrough CF therapies. This and any future revenue from our model is reinvested into the CF Foundation’s mission to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives. To obtain a copy of our latest Annual Report, visit https://www.cff.org/About-Us/Reports-and-Financials/, email [email protected] or call 1-800-FIGHT-CF.

The official registration and financial information of the Cystic Fibrosis Foundation may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement.

11/12/2020

We would like to take a moment to recognize and thank our amazing 2020 No Show Gala Sponsors and Planning Committees for their generosity and continued support! We are stronger together and thank you for your commitment to one day making CF stand for Cure Found

11/11/2020

Have you watched our No Show Gala program yet? If you haven’t, there is no time like the present! So, grab a drink, get comfortable and take a few moments to celebrate with us! To view our program, bid on auction items, and make your 100% tax deductible Bid For A Cure donation please visit: https://finest.cff.org/centralpa

11/11/2020

Happy Veteran’s Day! Today, we salute our country’s heroes. Your bravery will never be forgotten!

11/10/2020

Dreaming of a getaway? Then we have the perfect place for you! Visit our No Show Gala website to bid on a one-week stay at this beautiful Marco Island, Florida home with 50,000 American Airline Miles! Register at https://finest.cff.org/centralpa to access our mobile bidding site to learn more. The No Show Gala auction closes on Friday, November 13th at 9pm so don’t delay and place your bid today!

11/10/2020

Sam & Gail Lindenberg and Chuck & Honi Kibler have generously offered a $13,000 local matching gift campaign. The Lindenberg’s & Kibler’s will match dollar for dollar (1:1) any Bid For A Cure gifts received by the Central & Northeastern PA Chapters through our No Show Gala Auction Site. *Bid for a Cure Donations are 100% Tax Deductible!* Eligible donations must be made and payment received between November 1, 2020 and November 30, 2020. The match will end when $13,000 is achieved or on November 30, 2020, whichever comes first. Donations made in excess of the goal will support the mission of the Cystic Fibrosis Foundation. Bid for a Cure donations can be made at: https://finest.cff.org/centralpa





As of December 31, 2019, the Cystic Fibrosis Foundation, a 501(c)(3) nonprofit organization, had unrestricted financial reserves of about 11 times its budgeted 2020 expenses, following a royalty sale in 2014. The sale was made possible by the Foundation’s successful venture philanthropy model, through which we have raised and invested hundreds of millions of dollars to help discover and develop breakthrough CF therapies. This and any future revenue from our model is reinvested into the CF Foundation’s mission to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives. To obtain a copy of our latest Annual Report, visit https://www.cff.org/About-Us/Reports-and-Financials/, email [email protected] or call 1-800-FIGHT-CF.

The official registration and financial information of the Cystic Fibrosis Foundation may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement.

11/09/2020

Happy Monday! This week we will be celebrating our No Show Gala and the 65th Anniversary year of the CF Foundation. We’d like to kick off the week with our sincerest thanks to our Gala speakers! Thank you for your continued support of our Central and Northeastern PA events, and for your willingness to share your stories and talents with us. Please join us in thanking them for bringing our Gala to life! If you haven’t taken a few moments to hear their stories, please visit: https://finest.cff.org/centralpa.

11/08/2020

Shout out to Dan Magro, our official No Show Gala mixologist, for creating a special cocktail for our event, the 65 Roses Spritzer! We appreciate you sharing your talent with us all the way from LA! Have you watched the program and followed along with Dan yet? Then post a photo or comment below with how your Spritzer came out!

11/07/2020

Need a little pick me up this weekend? Then take a breather, watch our No Show Gala program, and bid on our amazing auction items! It’s been a long year and you deserve to treat yourself or someone you love! Below is just a sneak peek, so be sure to visit: https://finest.cff.org/centralpa to view and bid on all of our favorite items by Friday, November 13th!

11/06/2020

We finally made it to the Central & Northeastern PA Chapters' No Show Gala! Today marks the day we've all been waiting for! Here are some important links so you can participate with us!

Register here to participate in our auction and make bid for a cure donations! You will receive an email/text message with your unique link to begin bidding after registration. Bidding runs from 9AM today through November 13 at 9PM: https://auction.cff.org/?idEvent=2800&flsr=1&_ga=2.105363392.2110305006.1604516249-1366400032.1602780795

Pre-recorded Gala Video (watch anywhere, anytime!): https://www.youtube.com/watch?v=MSRkY2WrGSU&feature=youtu.be

Digital Keepsake Program Book: https://drive.google.com/file/d/12P5VEaNSJmHFFbSyP2Rc_AXlHtB6F-sZ/view

If you have any questions or concerns or need any help, please reach out to us at [email protected]. Thank you so much for your support of the Cystic Fibrosis Foundation and the No Show Gala!

11/04/2020

Our No Show Gala features unique and exciting silent auction packages! Thinking of shopping for the holidays? Want a little treat for yourself? No matter the reason, we have something for you! Here's a sneak peak!

Want even MORE exciting news? Sam & Gail Lindenberg and Chuck & Honi Kibler have generously offered a $13,000 local matching gift campaign and will match dollar for dollar (1:1) any Bid For A Cure gifts received by the Central & Northeastern PA Chapters through our No Show Gala Auction Site.

*Eligible donations must be made and payment received between November 1, 2020 and November 30, 2020. The match will end when $13,000 is achieved or on November 30, 2020, whichever comes first. Donations made in excess of the goal will support the mission of the Cystic Fibrosis Foundation.

We would like to thank Sam & Gail Lindenberg and Chuck and Honi Kibler for their generous gifts in honor of Alyssa Kibler.

To register for our No Show Gala, visit here: https://auction.cff.org/?idEvent=2800&flsr=1&_ga=2.154209080.1465152267.1603219702-1366400032.1602780795

11/02/2020

COVID-19 Community Questions and Answers

Celebrating the holidays with friends and family is something that people with cystic fibrosis need to approach with caution under the best of circumstances. The COVID-19 pandemic makes staying safe this holiday season more complicated. We've updated our COVID-19 community Q&A to include information about the factors that affect your risk as you consider how — and with whom — to celebrate the holidays.
To visit our updated Q&A's, visit here:
https://www.cff.org/Life-With-CF/Daily-Life/Germs-and-Staying-Healthy/CF-and-Coronavirus/COVID-19-Community-Questions-and-Answers/

The Cystic Fibrosis Foundation has prepared FAQs to address key concerns we have heard from the CF community regarding the coronavirus (COVID-19) outbreak, including information from the CDC on the risk to people with underlying health conditions and steps you can take to protect yourself and your l...

11/01/2020

The Halloween fun is now all done but there is one more task that needs to be done! Don't forget to turn your clocks back before bed! You'll have one extra hour to rest your head!

10/31/2020

Ghosts and goblins, spooks galore. Scary witches at your door. Jack-o-lanterns smiling bright. Wishing you a haunting night! Happy Halloween!

We would LOVE to see your costumes! Post a picture below!

10/30/2020

65 Roses Spritz Ingredients

Surprise! Did you know the No Show Gala has its own specialty cocktail? What's a gala event without a tasty adult beverage in hand?!

Dan Magro, our official No Show Gala mixologist, has created a cocktail for this very special occasion, the 65 Roses Spritz! Make sure to watch his video for all the ingredients you will need to have on hand. Don't worry...it's SUPER SIMPLE, but SUPER DELICIOUS!

This is an event you will NOT want to miss! To register and find out more information, visit our event page here: https://finest.cff.org/centralpa?_ga=2.119481995.30088415.1603981001-1366400032.1602780795

We hope to "see" you there!

https://www.youtube.com/watch?v=iNUgOE1LOlk&feature=youtu.be

Dan Magro, our No Show Gala's official mixologist gives a sneak peek at the ingredients you need to have on hand to put together your 65 Roses Spritz during ...

10/28/2020

CF Foundation | Together: Now

The recording from Together: Now, our virtual event celebrating the cystic fibrosis community, is now available! Watch as special guests including NFL quarterback Joe Flacco, former Bachelorette Becca Kufrin, and adults living with CF share their stories as we celebrate the many ways the CF community tackled the 65 Roses Challenge together.

https://www.youtube.com/watch?reload=9&v=SU6K0Jx6YA8&t=3s

At Together: Now, members of the cystic fibrosis community and special guests, including Joe Flacco and Becca Kufrin, shared their inspiring stories as we ce...

10/27/2020

Take advantage of our "Spooktacular" $125,000 local matching gift campaign with Wishes and Dreams for Cystic Fibrosis 501©3 by making a donation to our annual fund. It's no trick that tripling your impact is the sweetest Halloween treat! With your help, we can move our mission forward. Donate here: fightcf.cff.org/centralpa-anf

10/23/2020

Have you registered for our "No Show Gala" yet? This virtual week-long event begins November 6th at 9AM through November 13th at 9PM. You will have the opportunity to bid on unique auction items and make Bid for a Cure donations throughout the entire week!

All registrants will be emailed a pre-recorded video of our gala program, showcasing our CF Fighters, community members and CF Foundation updates and highlights that will be sure to inspire all viewers. This allows you to watch our program anytime, anywhere, on your own schedule! Attendees will also receive a keepsake Digital Virtual Program Book.

While we may not be able to be together in person, we hope you will continue to advance our mission to cure cystic fibrosis by supporting this incredible event! It will be a moment you will not want to miss!

Register today at: https://auction.cff.org/?idEvent=2800&flsr=1&_ga=2.206216283.933393543.1602780795-1366400032.1602780795