Cystic Fibrosis Foundation - Delaware Valley Chapter, Harrisburg

Cystic Fibrosis Foundation - Delaware Valley Chapter, Harrisburg The Delaware Valley Chapter - Harrisburg is helping to advance the Cystic Fibrosis Foundation’s mission to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives.

The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.

The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.

Operating as usual

Today we celebrate, honor and recognize the American labor movement and its workers in its extraordinary development and...
09/06/2021

Today we celebrate, honor and recognize the American labor movement and its workers in its extraordinary development and achievements of the United States.

Thank you for all you do! Happy Labor Day!

Today we celebrate, honor and recognize the American labor movement and its workers in its extraordinary development and achievements of the United States.

Thank you for all you do! Happy Labor Day!

Registration is open for BreatheCon on Sept. 24 – 25! All adults with cystic fibrosis age 18 and older are invited to jo...
09/05/2021

Registration is open for BreatheCon on Sept. 24 – 25! All adults with cystic fibrosis age 18 and older are invited to join this free, online event to connect, learn, and share with one another about experiences unique to life with CF. Discussions will focus on mental and emotional health and creative outlets through keynote panels, group chats, small-group video breakouts, and more.

Register to join us here: https://hopin.com/events/breathecon-2021?utm_source=Internal&utm_campaign=Internal

Registration is open for BreatheCon on Sept. 24 – 25! All adults with cystic fibrosis age 18 and older are invited to join this free, online event to connect, learn, and share with one another about experiences unique to life with CF. Discussions will focus on mental and emotional health and creative outlets through keynote panels, group chats, small-group video breakouts, and more.

Register to join us here: https://hopin.com/events/breathecon-2021?utm_source=Internal&utm_campaign=Internal

Hello, my name is Melanie and I am a 30 year old adult living with CF. I work as an Art Therapist and freelance artist i...
09/02/2021

Hello, my name is Melanie and I am a 30 year old adult living with CF. I work as an Art Therapist and freelance artist in Philadelphia. I have always had the constant support of my family and husband to raise money and awareness for my disease. I choose to ROSE UP to not only make others aware of the reality of CF, but for CF to someday stand for Cure Found. #ROSEUPCF

I’ll be ROSEing UP by creating another piece of artwork inspired by the beauty of the CF community coming together, even though we have to stay apart.

Come ROSE UP with me! https://events.cff.org/ROSEUP

Hello, my name is Melanie and I am a 30 year old adult living with CF. I work as an Art Therapist and freelance artist in Philadelphia. I have always had the constant support of my family and husband to raise money and awareness for my disease. I choose to ROSE UP to not only make others aware of the reality of CF, but for CF to someday stand for Cure Found. #ROSEUPCF

I’ll be ROSEing UP by creating another piece of artwork inspired by the beauty of the CF community coming together, even though we have to stay apart.

Come ROSE UP with me! https://events.cff.org/ROSEUP

Compass is ready to support people with cystic fibrosis and their families impacted by natural disasters. If you, a frie...
09/02/2021

Compass is ready to support people with cystic fibrosis and their families impacted by natural disasters. If you, a friend, or family member needs assistance finding and accessing resources during a disaster, contact our dedicated disaster email address [email protected] or call Compass at 844-266‐7277.

Compass is ready to support people with cystic fibrosis and their families impacted by natural disasters. If you, a friend, or family member needs assistance finding and accessing resources during a disaster, contact our dedicated disaster email address [email protected] or call Compass at 844-266‐7277.

"By all these lovely tokens September days are here, with summer's best of weather and autumn's best of cheer." - Helen ...
09/01/2021

"By all these lovely tokens September days are here, with summer's best of weather and autumn's best of cheer." - Helen Hunt Jackson

Happy September!

"By all these lovely tokens September days are here, with summer's best of weather and autumn's best of cheer." - Helen Hunt Jackson

Happy September!

Hello, my name is Emma! I am 19 years old and a student at the University of Delaware, majoring in finance. Being a ROSE...
08/31/2021

Hello, my name is Emma! I am 19 years old and a student at the University of Delaware, majoring in finance. Being a ROSE UP Ambassador is such a cool opportunity to raise cystic fibrosis awareness and I am so excited to see everyone’s creative projects. I was considering a musical challenge, since I enjoy playing guitar, but I need to get back in shape so I chose a fitness challenge. Since I will be back at my college on ROSE UP day (finally, since I was home during the pandemic), I thought it would be a great chance to go to the fitness center and complete a 65 minute workout, symbolic for 65 roses. I will also be sure to dress festively and wear a Cystic Fibrosis Foundation shirt! #ROSEUPCF

Come ROSE UP with me! https://events.cff.org/ROSEUP

Hello, my name is Emma! I am 19 years old and a student at the University of Delaware, majoring in finance. Being a ROSE UP Ambassador is such a cool opportunity to raise cystic fibrosis awareness and I am so excited to see everyone’s creative projects. I was considering a musical challenge, since I enjoy playing guitar, but I need to get back in shape so I chose a fitness challenge. Since I will be back at my college on ROSE UP day (finally, since I was home during the pandemic), I thought it would be a great chance to go to the fitness center and complete a 65 minute workout, symbolic for 65 roses. I will also be sure to dress festively and wear a Cystic Fibrosis Foundation shirt! #ROSEUPCF

Come ROSE UP with me! https://events.cff.org/ROSEUP

Happy Friday! Today is National "Just Because" Day! Tell us - what would you like to do today...just because?
08/27/2021

Happy Friday!

Today is National "Just Because" Day! Tell us - what would you like to do today...just because?

Happy Friday!

Today is National "Just Because" Day! Tell us - what would you like to do today...just because?

08/26/2021

Get ready! Get Inspired! Let’s ROSE UP!

Last week we announced the kickoff to our 2nd annual ROSE UP event happening Sept. 17. This national virtual fundraising event encourages participants to get creative, have some fun and choose ANY meaningful activity that they would like to accomplish on or before ROSE UP Day.

Nationally, our goal is to raise $350,000 this year and locally, we are shooting for $5,000. With the help of our ROSE UP Ambassadors, Emma Jeffery and Melanie Hower, and individuals like yourself, WE CAN DO THIS.

ROSE UP with us today – Register at https://events.cff.org/ROSEUP

Cystic fibrosis care team members are paramount in providing highly specialized care to people living with CF. Cystic Fi...
08/23/2021
How Compass Can Help CF Care Teams

Cystic fibrosis care team members are paramount in providing highly specialized care to people living with CF. Cystic Fibrosis Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.

Learn more here: https://www.cff.org/Assistance-Services/How-Compass-Can-Help-CF-Care-Teams/

Cystic fibrosis care team members are paramount in providing highly specialized care to people living with CF. Cystic Fibrosis Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.

08/20/2021
Mike Boyle COVID-19 Community Update

In case you missed it - to protect the health and safety of the CF community, the CF Foundation will require all events through the end of the year to take place fully outdoors or in a virtual setting. Hear more about this decision from our President and CEO, Michael Boyle, MD.

ROSE UP with us!ROSE UP is a unique national virtual fundraising event that encourages participants to have fun and choo...
08/18/2021

ROSE UP with us!

ROSE UP is a unique national virtual fundraising event that encourages participants to have fun and choose an activity that is meaningful to them to accomplish on or before ROSE UP Day (Sept. 17). This event enables anyone and everyone to show support of the CF community by raising awareness through creative, meaningful acts. #ROSEUPCF

Join the Delaware Valley Chapter and its two ROSE UP Ambassadors – Emma Jeffery & Melanie Hower, as we ROSE UP together! Follow along as Emma gets ready for her 65 minute fitness challenge and Melanie, an artist and calligrapher, teases her upcoming CF artwork which will be unveiled on ROSE UP Day.

Nationally the CF Foundation aims to raise $350,000 on ROSE UP Day. Locally, the Delaware Valley Chapter is striving for a goal of $5,000. YOU are KEY to our SUCCESS!

Will you ROSE UP with us??

REGISTER TO ROSE UP TODAY - https://events.cff.org/ROSEUP

ROSE UP with us!

ROSE UP is a unique national virtual fundraising event that encourages participants to have fun and choose an activity that is meaningful to them to accomplish on or before ROSE UP Day (Sept. 17). This event enables anyone and everyone to show support of the CF community by raising awareness through creative, meaningful acts. #ROSEUPCF

Join the Delaware Valley Chapter and its two ROSE UP Ambassadors – Emma Jeffery & Melanie Hower, as we ROSE UP together! Follow along as Emma gets ready for her 65 minute fitness challenge and Melanie, an artist and calligrapher, teases her upcoming CF artwork which will be unveiled on ROSE UP Day.

Nationally the CF Foundation aims to raise $350,000 on ROSE UP Day. Locally, the Delaware Valley Chapter is striving for a goal of $5,000. YOU are KEY to our SUCCESS!

Will you ROSE UP with us??

REGISTER TO ROSE UP TODAY - https://events.cff.org/ROSEUP

Thank you to our donors - because of your commitment to the CF Foundation, research like this is made possible!
08/18/2021

Thank you to our donors - because of your commitment to the CF Foundation, research like this is made possible!

Thank you to our donors - because of your commitment to the CF Foundation, research like this is made possible!

Let's start the week off with some motivation! Hear from Tiffany Rich, an adult with CF, on being diagnosed with CF-rela...
08/16/2021
Adjusting to Life With CFRD

Let's start the week off with some motivation! Hear from Tiffany Rich, an adult with CF, on being diagnosed with CF-related diabetes shortly after her transplant and how working with her doctor helped her create a strategy to make it easier.

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier.

Our volunteers and our national sponsors – AbbVie, Vertex, Gilead, and Genentech – are an important part of our progress...
08/12/2021

Our volunteers and our national sponsors – AbbVie, Vertex, Gilead, and Genentech – are an important part of our progress and the cystic fibrosis story. Thank you for your steadfast support in our search for a cure for CF.

Our volunteers and our national sponsors – AbbVie, Vertex, Gilead, and Genentech – are an important part of our progress and the cystic fibrosis story. Thank you for your steadfast support in our search for a cure for CF.

Special friends like you add tomorrows for all people living with CF and create a lasting legacy of hope. Join a communi...
08/11/2021

Special friends like you add tomorrows for all people living with CF and create a lasting legacy of hope. Join a community of people who have provided a gift in their will to help future generations by joining the Legacy Society.

Create your legacy today: https://mylegacywithcff.org/

Special friends like you add tomorrows for all people living with CF and create a lasting legacy of hope. Join a community of people who have provided a gift in their will to help future generations by joining the Legacy Society.

Create your legacy today: https://mylegacywithcff.org/

Register for our Sinus Disease Research Webinar on Wednesday, August 25 at 7 p.m. to learn about the latest research add...
08/09/2021
Welcome! You are invited to join a webinar: Research Overview: CF Sinus Disease. After registering, you will receive a confirmation email about joining the webinar.

Register for our Sinus Disease Research Webinar on Wednesday, August 25 at 7 p.m. to learn about the latest research addressing this important topic, including studies looking at the impact of highly effective modulators on sinus disease and sinus surgery outcomes. This free event is open to the entire CF community!

Register here: https://cff.zoom.us/webinar/register/WN_BKD4lY4KTQ6sOYIS3KP7xw

Join us on Wednesday, August 25 from 7:00 – 8:00 p.m. ET for a cystic fibrosis research webinar focusing on sinus disease. This free event is open to the entire CF community, including people with CF, their family and friends, care center staff and researchers. Learn about the latest research in t...

Join us for BreatheCon 2021! BreatheCon is a two-day event for adults with cystic fibrosis, held on Sept. 24-25, 2021, t...
08/06/2021

Join us for BreatheCon 2021! BreatheCon is a two-day event for adults with cystic fibrosis, held on Sept. 24-25, 2021, that provides a virtual space to share, connect, and learn while supporting one another.

Sign up at https://www.cff.org/Get-Involved/Attend-an-Event/Community-Conferences/Be-Notified-About-Community-Conferences/ to receive email updates and be notified when registration opens and the agenda is posted.

Join us for BreatheCon 2021! BreatheCon is a two-day event for adults with cystic fibrosis, held on Sept. 24-25, 2021, that provides a virtual space to share, connect, and learn while supporting one another.

Sign up at https://www.cff.org/Get-Involved/Attend-an-Event/Community-Conferences/Be-Notified-About-Community-Conferences/ to receive email updates and be notified when registration opens and the agenda is posted.

Great Strides is more than just a walk. Your participation in Great Strides matters a lot! We don’t just want to treat C...
08/04/2021

Great Strides is more than just a walk. Your participation in Great Strides matters a lot! We don’t just want to treat CF, we want to end CF. Which is why we need your help!

We are so close to reaching our chapter goal of $183,000. We are less than $20,000 away! Won't you help us get there? Donating to any one of our Great Strides events helps support our CF fighters and fund our advancements in therapies they could benefit from. Together, we can cross that finish line. Until it's done!

Donate here: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page

Great Strides is more than just a walk. Your participation in Great Strides matters a lot! We don’t just want to treat CF, we want to end CF. Which is why we need your help!

We are so close to reaching our chapter goal of $183,000. We are less than $20,000 away! Won't you help us get there? Donating to any one of our Great Strides events helps support our CF fighters and fund our advancements in therapies they could benefit from. Together, we can cross that finish line. Until it's done!

Donate here: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page

Here's to soaking up every last bit summer has left! Happy August!
08/01/2021

Here's to soaking up every last bit summer has left! Happy August!

Here's to soaking up every last bit summer has left! Happy August!

Tara Goodwin, an adult with CF, shares some haikus she wrote to help you laugh about life with cystic fibrosis. "I alway...
07/30/2021
11 Haikus to Help You Laugh About CF

Tara Goodwin, an adult with CF, shares some haikus she wrote to help you laugh about life with cystic fibrosis.

"I always say that when life gives you lemons … turn around and write some Japanese-style poetry."

https://www.cff.org/CF-Community-Blog/Posts/2021/11-Haikus-to-Help-You-Laugh-About-CF/

I always say that when life gives you lemons … turn around and write some Japanese-style poetry. I hope you enjoy these haikus I have written about life with cystic fibrosis.

Each year participants at BreatheCon receive SWAG as part of participation in the event.  Adults with CF were invited to...
07/28/2021
Vote: BreatheCon Swag Design Contest 2021

Each year participants at BreatheCon receive SWAG as part of participation in the event. Adults with CF were invited to submit a creative work, of their own design, with the theme “commUNITY: Exploring the healing power of connecting, creativity, and integrating well-being practices into your life.”

Finalists were selected and now we are asking the CF community to choose the winning artwork that will be printed on the BreatheCon swag! Visit https://cff.swoogo.com/bcswag/vote to check out the designs and cast your vote for your favorite! Voting is open until 11:59 p.m. on July 31.

Adults with CF were invited to submit a creative work of their own design with the theme “commUNITY: Exploring the healing power of connecting, creativity, and integrating well-being practices into your life" The finalists were selected based on artistic skill, creativity and originality, and cont...

We are excited to announce that our CF Cycle and CF Climb events will be held in-person this fall! The CF Cycle for Life...
07/27/2021

We are excited to announce that our CF Cycle and CF Climb events will be held in-person this fall! The CF Cycle for Life event will be held on Sunday, September 19th in Conshohocken, PA. Register for the Cycle Event by clicking here: https://on.cff.org/3jVIzRE

CF Climb for Life will be held on Saturday, November 20 at Lincoln Financial Field in Philadelphia. Register for the CF Climb event by clicking here: https://on.cff.org/3ynfwum.

We are excited to announce that our CF Cycle and CF Climb events will be held in-person this fall! The CF Cycle for Life event will be held on Sunday, September 19th in Conshohocken, PA. Register for the Cycle Event by clicking here: https://on.cff.org/3jVIzRE

CF Climb for Life will be held on Saturday, November 20 at Lincoln Financial Field in Philadelphia. Register for the CF Climb event by clicking here: https://on.cff.org/3ynfwum.

Bring your unique insights and priorities to the forefront of research, care, and programs for people with cystic fibros...
07/25/2021

Bring your unique insights and priorities to the forefront of research, care, and programs for people with cystic fibrosis by joining Community Voice. You will receive tailored opportunities catered to your interests -- from answering surveys to joining committees -- that you can do from the comfort of your own home on your time. There is no minimum commitment required.

Join Community Voice today to help shape our future work: https://www.cff.org/Get-Involved/Connect/Community-Voice/

Bring your unique insights and priorities to the forefront of research, care, and programs for people with cystic fibrosis by joining Community Voice. You will receive tailored opportunities catered to your interests -- from answering surveys to joining committees -- that you can do from the comfort of your own home on your time. There is no minimum commitment required.

Join Community Voice today to help shape our future work: https://www.cff.org/Get-Involved/Connect/Community-Voice/

You can help improve the future of cystic fibrosis research, care, and programs for the entire CF community by joining C...
07/22/2021

You can help improve the future of cystic fibrosis research, care, and programs for the entire CF community by joining Community Voice. By sharing your unique insights, you can share your priorities and help actively shape the Foundation’s work.

If you or someone you love has cystic fibrosis, join Community Voice today to share your story and make a difference: https://www.cff.org/Get-Involved/Connect/Community-Voice/

You can help improve the future of cystic fibrosis research, care, and programs for the entire CF community by joining Community Voice. By sharing your unique insights, you can share your priorities and help actively shape the Foundation’s work.

If you or someone you love has cystic fibrosis, join Community Voice today to share your story and make a difference: https://www.cff.org/Get-Involved/Connect/Community-Voice/

Address

600 Corporate Cir Ste 103
Harrisburg, PA
17110

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Central Pennsylvania Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

(717) 671-4000

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Videos

Our Story

Faced with insurmountable odds, but determined to save the lives of their children, a group of concerned parents came together in 1955 to form the Cystic Fibrosis Foundation. At the time, very little was known about cystic fibrosis, but the tenacity and strength of CF families laid the groundwork for monumental progress in research, care, and treatment of a rare disease. Today, because of their hard work and the support of generous volunteers and donors, many people with CF are living into adulthood. Yet, we still lose precious young lives every day and will not be satisfied until there is a cure for all those living with this disease.

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Comments

hello! My sorority, Delta Phi Epsilon at the University of Pittsburgh raises money every year for the Cystic Fibrosis Foundation and last year we raised over 9,000 dollars! This year our goal is to break 10,000 dollars!! As a part of that goal we are currently a part of a competition to get the most likes/comments on this post of us on the pittfiji instagram page! We're calling on everyone we know, including all Central PA CFF Supporters to help us win! If you could please like/comment/tell your friends and give dphie/CFF a shout out in the comments that would be awesome!! We have the chance to win $350 for the Cystic Fibrosis Foundation!! Thanks!! https://www.instagram.com/p/BoZ0erDn_bT/?utm_source=ig_web_button_share_sheet
Hello everyone at CFF! We from United for Life - the Brazilian Institute for Attention to Cystic Fibrosis - would like to share with you and CF Foundation a new video we developed about Cystic Fibrosis Awareness that we have created for the CF Awareness Month in Brazil. Given that the Worldwide Cystic Fibrosis Day was on September 8th, September was chosen in Brazil to become the Cystic Fibrosis Awareness Month. We would like to count on your help to propagate this wherever you deem necessary to help spread awareness for CF. The link to access the video is https://youtu.be/00L1qBZNemI. We hope you enjoy the video!
Please vote for our Hometown Hero! TN has taken the lead on the very last day! PLEASE, take 5 seconds out to VOTE & SHARE. There's only hours left. This is so important to Michael. He & his family are very involved in the Boomer Foundation & have been for years. He deserves to be the face of the foundation & there's no better choice for raising awareness of CF. He devotes his life to it. Please HELP! VOTE, SHARE & TAG 🙏🙏🙏🙌 http://woobox.com/dfn3xn