The NBDPN is a volunteer-based organization that addresses the issues of birth defects surveillance,
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Members include public health officials, epidemiologists, academics, parents, and others committed to understanding factors that may lead to birth defects, identifying strategies for reducing birth defects, and working to prevent potential secondary disabilities. The NBDPN assesses the impact of birth defects upon children, families, and health care; identifies factors that can be used to develop
primary prevention strategies; and assists families and their providers in secondary disabilities prevention. To fulfill its mission, the Network pursues the following goals:
-Improve access and application of information about the prevalence and trends of birth defects.
-Increase collaboration between members within the birth defects community.
-Advance science through birth defects surveillance and its application to public health efforts and resource allocation. The objectives of the NBDPN are to:
-Improve the quality of birth defect surveillance data.
-Promote scientific collaboration for the prevention of birth defects.
-Provide technical assistance for the development of uniform methods of data collection.
-Facilitate the communication and dissemination of information related to birth defects.
-Collect, analyze, and disseminate state and population-based birth defect surveillance data.
-Encourage the use of birth defect data for decisions regarding health services planning (secondary disabilities prevention and services).
Sadly, National Conference is coming to a close. What a wonderful week of Connecting, Sharing, and Collaborating with peers and colleagues from near and far! Excited to share what we've learned with our State programs and partners in the days ahead! Thanks to everyone who came out and helped make it a fantastic conference.
Such a robust discussion today during the Diversity, Equity, and Inclusion session at the NBDPN National Conference, Day Two. As a community, what is the best way to address what we do?!? Open for discussion...
Discussing SET-NET and birth defect data collection, quality and new approaches this morning at the conference.
Learn more here https://www.cdc.gov/ncbddd/set-net/index.html
What a great first day of the Conference! Special thank you to all the speakers today for sharing their expertise. Game night was also a blast even though the Farkle game table got a little loud with excitement. See you all tomorrow!
We just heard from family advocate, Stephanie Meredith, and her experience parenting a son with Down Syndrome. What an inspiring and impactful story! Check out her son, Andy’s photography: https://www.andymeredith.com/
Representatives from MI’s Birth Defects Education, Outreach & Surveillance program are excited to connect, share & collaborate at NBDPN’s Conference!
We are so excited to get this conference started! We will see you soon and we hope your journey here is safe and easy.
Wow! What a great start to the NBDPN Conference! Thank you to from Depict Data Studio for providing such an awesome workshop. We all have a responsibility to tell compelling stories through our clear and engaging data presentations.
We can’t wait to see everyone at the NBDPN Conference next week! Be sure to check out the updated agenda and start planning your session selections. https://ow.ly/vG5Z50Puwgk
Please join your friends and colleagues for some fun playing games and socializing as part of the NBDPN Game Night! Games will hit the tables at 6 PM, and the dice will roll until 8 PM (or later!) in the Dogwood A conference room.
While a hard RSVP is not needed to attend the Game Night Social, a rough head count would be appreciated by the organizers so we can gauge the number of gamers that need to be accommodated. Please email [email protected] if you plan to attend (and if you feel like stepping up to the plate to run a particular game, please say so).
Many infants with birth defects, such as heart defects & gastroschisis, are not “cured” after surgery. Lifelong medical care is needed to ensure these individuals lead longer, healthier lives. https://averysangels.org/gastroschisis/
In the United States, gastroschisis affects 1 out of every 1953 babies. Several studies have shown that gastroschisis has become more common, especially among younger mothers. However, the exact cause is not known. https://www.cdc.gov/ncbddd/birthdefects/gastroschisis.html
Today is Gastroschisis Awareness Day! Gastroschisis is a birth defect that causes the intestines to protrude from a hole in the abdomen and must be repaired surgically. Today 90% of affected babies survive. More awareness of long-term challenges and better treatment options are needed to keep kids healthy for life. Learn more. https://www.cdc.gov/ncbddd/birthdefects/gastroschisis.html
Social connections might help protect health and lengthen life. Scientists are finding that our links to others can affect our health. Relationships influence our biology and well-being. Look for ways to connect with others!
For more information: https://ccare.stanford.edu/uncategorized/connectedness-health-the-science-of-social-connection-infographic/
Today is raising awareness of the most common known cause of inherited learning disability, yet so often goes undiagnosed. Today celebrates families impacted by FSX and highlights advances to find effective treatments and a cure.
Maintaining healthy social connections is an integral part of our mental health. Connect with those who make you feel loved and supported. Try asking each other, "What is the most interesting thing about you?" You might be surprised by what you learn.
Cleft lip and cleft palate occur very early in pregnancy. Most clefts appear to be due to genetic or environmental factors, though many cases have no known cause. The risks of recurrence of a cleft condition depend upon many factors, including the number of affected persons in the family, the closeness of affected relatives, the race and s*x of all affected persons, and the severity of the clefts.
www.acpa-cpf.org
All babies benefit from breastfeeding. A baby born with a cleft lip or cleft palate might have unique challenges when it comes to breastfeeding, but there are ways to be successful. Here are some important reminders:
1. It is very unlikely that your child’s cleft was caused by something you did or didn’t do.
2. Many mothers and babies have difficulties with breastfeeding, regardless of whether or not there are issues like a cleft to deal with.
3. Any amount of breast milk is beneficial. If you are unable to breastfeed, you may still be able to express milk and bottle-feed your baby.
Learn more about breastfeeding a baby with cleft lip or cleft palate at: https://www.clapa.com/treatment/feeding/breastfeeding/
A cleft is a gap in the lip and/or palate (roof of the mouth). It may include the alveolus (bones of the upper jaw and/or upper gum). Clefts occur when the two sides of the lip or palate do not grow together during baby’s development very early in pregnancy. Babies may be born with a cleft lip, a cleft palate, or both. Learn more here: https://www.cdc.gov/ncbddd/birthdefects/cleftlip.html
July is National Cleft & Craniofacial Awareness and Prevention Month! About 1 in every 1,600 babies are born with cleft lip with cleft palate in the United States each year, making them one of the most common birth defects. Family Resources are available: www.acpa-cpf.org
Attending the NBDPN Conference? The deadline to book your hotel rooms for the discounted conference rate is July 21st! Please reserve your room before this deadline to receive the per diem rates and secure room availability. After this date, the room block will be released to the general public due to increased demand from other local events occurring in the area. For reference, hotel reservations should be canceled 72 hours before arrival to avoid a one-night room & tax cancelation fee.
Reserve your room at: https://www.omnihotels.com/hotels/atlanta-cnn-center/meetings/amchp-nbdpn-national-conference-2023-08122023
If you are pregnant or trying to become pregnant, avoid areas experiencing a Zika outbreak and talk with your healthcare provider before traveling. Strictly follow steps to prevent mosquito bites during the trip: https://wwwnc.cdc.gov/travel/page/avoid-bug-bites
Men's Health Month Tip #5: Maintain a good mental well-being. A healthy mindset and healthy relationships are everyone's responsibilities and are key at helping others have healthy pregnancies, avoid post-partum mood disorders, and help children grow up to be healthy and happy.
Men's Health Month Tip #3: Avoid harmful workplace exposures. Did you know that workplace exposures to chemicals, fumes, dust particles can be a health risk to your child? Ask your employer about hazards in your workplace and how you can avoid them.
https://www.nbdpn.org/docs/Tips_for_Dad_2021.pdf
Men's Health Month Tip #4: Avoid infections. Did you know that even with no symptoms you can pass infections to your baby, child, or pregnant partner? Protect yourself and others by getting a flu shot every year, and stay up to date on the whooping cough and COVID-19 vaccine.
Men's Health Month Tip #2: Boost your health by avoiding harmful substances. Engaging in harmful substances can not only harm your health, but also the health of those around you. For help, call 1-800-662-HELP (4357) or 1-800-QUIT-NOW (1-800-784-8669)
June is Men's Health Month! Tip #1: Try to maintain a healthy weight. Obesity in men has been linked to lower fertility. Eating nutritious foods and getting regular physical activity will increase your energy and provide a healthy example for your kiddos.
https://www.nbdpn.org/docs/Tips_for_Dad_2021.pdf
Happy Father's Day! Dad's, you play such an important role in the lives of your kiddos, and your health is so important. June is Men's Health Month, and we are going to provide you with some tips to keep you healthy so you can continue to be the dad you want to be.
Men should become as healthy as possible before their partner becomes pregnant to increase the chance of having a healthy baby. Find more information here https://ow.ly/NPWR50OOwxs
Registration for the National Birth Defects Prevention Network (NBDPN) Conference, held August 14-16, 2023, in Atlanta, GA, is still open! Please visit this link to register: https://bit.ly/40hg2bo
Visit the website to learn : https://bit.ly/3n7pG1Y
The Biden-Harris Administration is working to ensure that infant formula is safe and available for families across the country. For information on measures being taken to address the formula shortage and resources on locating baby formula, visit: HHS.gov/formula
Interested in applying new strategies to break down barriers for people w/ (SCD)? View a webinar cosponsored by CDC and the American College of Emergency Physicians that will improve care in emergency departments (ED). https://www.cdc.gov/ncbddd/sicklecell/features/world-sickle-cell-day.html %20Sheets
Congenital scoliosis is a sideways curvature of the spine that is caused by a defect that was present at birth. It occurs in only 1 in 10,000 newborns and is much less common than the type of scoliosis that begins in adolescence. Learn more https://orthoinfo.aaos.org/en/diseases--conditions/congenital-scoliosis/
Today is World Clubfoot Day. Did you know that about 1 in 1,000 babies born in the United States are born with clubfoot? This is one of the more common birth defects and there is a greater chance of having a baby with if it runs in your family? There is also a greater risk if you smoke/vape, drink alcohol, or use illicit drugs during your pregnancy. Reduce your risk to have the healthiest pregnancy possible. For more info: https://www.marchofdimes.org/complications/clubfoot.aspx
Clubfoot is a birth defect of the foot that may affect your baby's ability to walk normally. Learn how clubfoot is treated.
CMV is an often-symptomless virus that is spread through bodily fluids. Learn how to protect your unborn baby from CMV, the leading viral cause of birth defects and developmental disabilities, including hearing loss, vision loss, and cerebral palsy. www.NationalCMV.org
Those who are pregnant or thinking about becoming pregnant can reduce their risk of delivering a baby with CMV -- the most common infectious cause of birth defects in the United States.
Learn more here:
https://www.nationalcmv.org/overview/prevention-tips
Did you know that smoking raises your baby’s risk for birth defects, including cleft lip and cleft palate? A cleft is an opening in your baby’s lip or in the roof of their mouth (palate).
May 31st is World No To***co Day. This year's focus is raising awareness about global to***co farming and mobilizing governments to end subsidies on to***co growing and shift towards crop substitution. Get involved with this global movement! http://ow.ly/ivw750Ojm6y
Want to quit smoking? Visit http://ow.ly/6LvB50Ojm6A for help today!
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Do you need help with your mental health? If you don't know where to start, this infographic from the National Institute of Mental Health (NIMH) (TAG) may help guide you. http://ow.ly/mQ0j50OjkUG
Each year, children with poorly managed asthma have more than:
🏫 10M missed school days
🏥 74K hospital stays
🚑 767K trips to the emergency room
Learn more about asthma from Breathe Better: https://www.nhlbi.nih.gov/LMBBasthma
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Those who are pregnant or thinking about becoming pregnant can reduce their risk of delivering a baby with CMV -- the most common infectious cause of birth defects in the United States. Learn more from: https://www.nationalcmv.org/overview/prevention-tips #StopCMV #ReduceYourRisk #CMVAwarenessMonth
It's #WorldImmunizationWeek! We are celebrating how many lives have been saved due to vaccines. Many diseases today are now preventable because of vaccines. Getting vaccinated not only protects you, it protects babies and other vulnerable individuals. #LongLifeForAll
It's #WorldImmunizationWeek! We are celebrating how many lives have been saved due to vaccines. Many diseases today are now preventable because of vaccines. Getting vaccinated not only protects you, it protects babies and other vulnerable individuals. #LongLifeForAll
Babies who have birth defects often need special care and interventions to survive and to thrive developmentally. On this #DoctorsDay, we want to acknowledge all healthcare providers that provide support and care for children and families living with birth defects across the lifespan. Thank you for your commitment to helping understand factors that may lead to birth defects, identifying strategies for reducing birth defects, and preventing potential secondary disabilities through earlier detection and optimal care.
#WorldBDDay
Did you know that globally it's estimated that only 19% of people wash their hands after using the toilet? Ick! If you are pregnant or may become pregnant, it's especially important to wash your hands regularly. It keeps you and your baby health. #PrenatalInfectionPreventionMonth
We are pleased to present a new video on how to prevent birth defcts just in time for you to share it and spread the word about World Birth Defects Day, March 3rd, 2017. NBDPN was proud to work with our colleagues at The Teratology Society, Antiepileptic Drug (AED) Pregnancy Registry and MotherToBaby in creating this important message. We encourage you to share it now and throughout the year.
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