National Birth Defects Prevention Network

National Birth Defects Prevention Network The NBDPN is a volunteer-based organization that addresses the issues of birth defects surveillance, research and prevention under one umbrella by maintaining a national network of state and population-based birth defects programs.

Members include public health officials, epidemiologists, academics, parents, and others committed to understanding factors that may lead to birth defects, identifying strategies for reducing birth defects, and working to prevent potential secondary disabilities. The NBDPN assesses the impact of birth defects upon children, families, and health care; identifies factors that can be used to develop

Members include public health officials, epidemiologists, academics, parents, and others committed to understanding factors that may lead to birth defects, identifying strategies for reducing birth defects, and working to prevent potential secondary disabilities. The NBDPN assesses the impact of birth defects upon children, families, and health care; identifies factors that can be used to develop

Operating as usual

You have multivitamins with folic acid, but forget to take them daily? Use a pillbox, set doses where you see them (at w...
09/15/2021

You have multivitamins with folic acid, but forget to take them daily? Use a pillbox, set doses where you see them (at work, on nightstand), combine it with something you do every day – like brush your teeth. Or set a daily alarm, or use an app. You can do it! #folicacid

You have multivitamins with folic acid, but forget to take them daily? Use a pillbox, set doses where you see them (at work, on nightstand), combine it with something you do every day – like brush your teeth. Or set a daily alarm, or use an app. You can do it! #folicacid

09/14/2021

Nurses have been on the front lines of keeping our families safe—especially in the wake of the COVID-19 pandemic. While they deserve so much more than a week to be celebrated, help us honor #NeonatalNursesWeek in the comments below by thanking a #NICUnurse who made all the difference!

Where can you get free vitamins with folic acid? Arizona and Utah have free multivitamin programs for their residents so...
09/14/2021
Free Vitamin Program | Good Neighbor Pharmacy

Where can you get free vitamins with folic acid? Arizona and Utah have free multivitamin programs for their residents so women can get enough folic acid every day. You may live near a pharmacy that participates in a free vitamin program! #folicacid https://poweryourlife.health.utah.gov/ https://www.powermea2z.org/ https://www.mygnp.com/pharmacies/programs/healthy-kids-free-vitamins/

Free vitamins to help your entire family grow and thrive

While many foods that include wheat flour are fortified with folic acid in the United States, other common staple foods ...
09/13/2021

While many foods that include wheat flour are fortified with folic acid in the United States, other common staple foods like corn masa flour, are not fortified often. This is one reason why Latinas are more likely to have babies born with neural tube defects. No matter your diet, make sure to take 400 mcg of #folicacid daily. #folicacid https://www.cdc.gov/ncbddd/folicacid/faqs/faqs-fortification.html

While many foods that include wheat flour are fortified with folic acid in the United States, other common staple foods like corn masa flour, are not fortified often. This is one reason why Latinas are more likely to have babies born with neural tube defects. No matter your diet, make sure to take 400 mcg of #folicacid daily. #folicacid https://www.cdc.gov/ncbddd/folicacid/faqs/faqs-fortification.html

Taking 400 mcg of folic acid before pregnancy and during early pregnancy helps protect your baby from birth defects of t...
09/13/2021

Taking 400 mcg of folic acid before pregnancy and during early pregnancy helps protect your baby from birth defects of the brain and spine, called neural tube defects (NTDs). NTDs affect about 3,000 pregnancies each year in the United States. Food fortification with folic acid prevents about 1300 of these birth defects annually. #folicacid https://www.cdc.gov/ncbddd/folicacid/data.html

Taking 400 mcg of folic acid before pregnancy and during early pregnancy helps protect your baby from birth defects of the brain and spine, called neural tube defects (NTDs). NTDs affect about 3,000 pregnancies each year in the United States. Food fortification with folic acid prevents about 1300 of these birth defects annually. #folicacid https://www.cdc.gov/ncbddd/folicacid/data.html

Let's celebrate 30 years of preventing serious birth defects of the spine and brain! In 1991, the Medical Research Counc...
09/12/2021

Let's celebrate 30 years of preventing serious birth defects of the spine and brain! In 1991, the Medical Research Council (MRC) Vitamin Study showed that women who had a prior pregnancy diagnosed with a neural tube defect could greatly reduce their risk in a future pregnancy by taking a daily dose of folic acid before becoming pregnant and throughout early pregnancy. #folicacid https://www.thelancet.com/journals/lancet/article/PII0140-6736(91)90133-A/fulltext

Let's celebrate 30 years of preventing serious birth defects of the spine and brain! In 1991, the Medical Research Council (MRC) Vitamin Study showed that women who had a prior pregnancy diagnosed with a neural tube defect could greatly reduce their risk in a future pregnancy by taking a daily dose of folic acid before becoming pregnant and throughout early pregnancy. #folicacid https://www.thelancet.com/journals/lancet/article/PII0140-6736(91)90133-A/fulltext

September is Newborn Screening Awareness Month! Each year, about 12,500 babies are born with one of the conditions inclu...
09/11/2021

September is Newborn Screening Awareness Month! Each year, about 12,500 babies are born with one of the conditions included in state #newbornscreening panels. To learn more about newborn screening and the conditions that are checked, visit: https://www.babysfirsttest.org/ #2021NBS

September is Newborn Screening Awareness Month! Each year, about 12,500 babies are born with one of the conditions included in state #newbornscreening panels. To learn more about newborn screening and the conditions that are checked, visit: https://www.babysfirsttest.org/ #2021NBS

September is Newborn Screening Awareness Month! Did you know there are three parts to #newbornscreening? 1. The blood te...
09/11/2021

September is Newborn Screening Awareness Month! Did you know there are three parts to #newbornscreening?
1. The blood test (or heel stick)
2. The hearing screen
3. Pulse oximetry.

Learn more about what to expect from your baby’s first test: https://expectinghealth.org/after-delivery/what-newborn-screening #2021NBS

September is Newborn Screening Awareness Month! Did you know there are three parts to #newbornscreening?
1. The blood test (or heel stick)
2. The hearing screen
3. Pulse oximetry.

Learn more about what to expect from your baby’s first test: https://expectinghealth.org/after-delivery/what-newborn-screening #2021NBS

September is Fetal Alcohol Spectrum Disorders (FASD) Awareness Month.  Recent research has estimated that 5% or more of ...
09/09/2021
Fetal Alcohol Spectrum Disorders: Resources

September is Fetal Alcohol Spectrum Disorders (FASD) Awareness Month. Recent research has estimated that 5% or more of young school-age children in the United States are affected by an FASD, with most being undiagnosed. The CDC website is a good place to begin gathering the facts about FASD, its prevention and treatment. https://www.cdc.gov/ncbddd/fasd/features/resources-for-prevention-and-care.html

Fetal alcohol spectrum disorders (FASDs) are a group of conditions that can occur in a person who was exposed to alcohol before birth.

An estimated 40,000 babies are born each year with Fetal Alcohol Syndrome, which can result in birth defects, intellectu...
09/09/2021

An estimated 40,000 babies are born each year with Fetal Alcohol Syndrome, which can result in birth defects, intellectual or learning disabilities, behavior problems, and trouble learning life skills. With appropriate supports, individuals with #FASD can succeed. Learn about FASD stories: https://www.cdc.gov/ncbddd/fasd/stories.html

An estimated 40,000 babies are born each year with Fetal Alcohol Syndrome, which can result in birth defects, intellectual or learning disabilities, behavior problems, and trouble learning life skills. With appropriate supports, individuals with #FASD can succeed. Learn about FASD stories: https://www.cdc.gov/ncbddd/fasd/stories.html

How can you help raise awareness of FASD (Fetal Alcohol Spectrum Disorder)? 1. Learn more about FASD2. Share with others...
09/09/2021

How can you help raise awareness of FASD (Fetal Alcohol Spectrum Disorder)?
1. Learn more about FASD
2. Share with others what you learn
3. Support FASD organizations

https://www.cdc.gov/ncbddd/fasd/

How can you help raise awareness of FASD (Fetal Alcohol Spectrum Disorder)?
1. Learn more about FASD
2. Share with others what you learn
3. Support FASD organizations

https://www.cdc.gov/ncbddd/fasd/

REMINDER the Association of Public Health Laboratories (APHL) Newborn Screening Technical assistance and Evaluation Prog...
09/08/2021
Welcome! You are invited to join a meeting: Newborn Screening for Critical Congenital Heart Disease: Current Implementation Status and Future. After registering, you will receive a confirmation email about joining the meeting.

REMINDER the Association of Public Health Laboratories (APHL) Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) and the National Birth Defects Prevention Network are holding a joint webinar on Newborn Screening for Critical Congenital Heart Disease: Current Implementation Status and Future TOMORROW Thursday September 9, 2021 from 1:00 pm – 2:30 pm ET. If you haven't already registered please use this link (https://aphl.zoom.us/meeting/register/tJ0tceqtrTMrGNw1RsDMPbMOnJFuRXOAEXFp) to register for the webinar.

Description:

In 2011, Critical Congenital Heart Disease (CCHD) screening was added to the U.S. Recommended Uniform Screening Panel. Since then, all 50 states have passed laws or established newborn screening programs, making CCHD screening the standard of care in the U.S. This webinar provides an opportunity to review U.S. newborn screening program CCHD activities, the variation in implementation of newborn screening across the U.S. and discuss future needs as they relate to data infrastructure, linkages and collection, as well as educational opportunities for families and primary care physicians.

Objectives:

At the conclusion of this webinar, the participant will be able to:

Describe the implementation status of newborn screening for CCHD in the U.S.
Describe primary and secondary targets and implications for public health programs
Identify data infrastructure, linkages and collection, and educational opportunities with regard to CCHD newborn screening.
Speakers:

Careema Yusuf, MPH, Manager, NewSTEPs, APHL
Lisa A. (Hom) Wandler, RN Esq. Collaborative Practice Facilitator, Children's National Hospital
Amy Gaviglio, MS, CGC, Public Health Consultant

The National Birth Defects Prevention Network and the Association of Public Health Laboratories Newborn Screening Technical assistance and Evaluation Program are pleased to announce a joint webinar on Newborn Screening for Critical Congenital Heart Disease: Current Implementation Status and Future.....

Folic Acid Awareness Week has moved to September this year - Sept. 12-18.  We hope you will take an active part in raisi...
09/08/2021
Social Media Graphics: Folic Acid

Folic Acid Awareness Week has moved to September this year - Sept. 12-18. We hope you will take an active part in raising awareness of the importance of folic acid and dietary folates in reducing the risk of birth defects, particularly neural tube defects. We are happy to announce that there are many new resources to help you spread the word. Check out the new infographics now available on the CDC website that can help raise awareness of the recommendation that all women of child-bearing age, whether planning a pregnancy or not, take a multivitamin with 400 micrograms of folic acid everyday and also consume a diet rich in natural sources of folate.
https://www.cdc.gov/ncbddd/folicacid/infographics/folicacidhealthypregnancy/index.html

Learn three ways to get the recommended daily amount of the important nutrient Folic Acid.

As the summer ends, if you are pregnant or could become pregnant in the near future and your toddler or preschooler is r...
09/02/2021
Disease of the Week - Congenital CMV

As the summer ends, if you are pregnant or could become pregnant in the near future and your toddler or preschooler is returning to school or daycare, it is important to be aware of CMV (cytomegalovirus), the most common infectious cause of birth defects. Most children first become infected during their preschool years, but a woman who first becomes infected while pregnant is at risk of passing the infection to her unborn child. There are several steps you can take to avoid picking up CMV infection from your young child.

"Pregnant women may be able to lessen their risk of getting CMV by reducing contact with saliva and urine from babies and young children. The saliva and urine of children with CMV have high amounts of the virus. A pregnant woman can avoid getting a child’s saliva in her mouth by, for example, not sharing food, utensils, or cups with a child. Also, she should wash her hands after changing diapers. These cannot eliminate her risk of getting CMV, but may lessen the chances of getting it."

To learn more about CMV go to: https://www.cdc.gov/dotw/cmv/index.html

Learn more about CMV, a virus that can cause birth defects.

Whether it's going back to work or being away from baby for several hours, pumping and storing #breastmilk is a great wa...
08/27/2021

Whether it's going back to work or being away from baby for several hours, pumping and storing #breastmilk is a great way to feed your baby. Here is a guide to safely expressing and storing breastmilk: https://www.cdc.gov/breastfeeding/recommendations/handling_breastmilk.htm

Whether it's going back to work or being away from baby for several hours, pumping and storing #breastmilk is a great way to feed your baby. Here is a guide to safely expressing and storing breastmilk: https://www.cdc.gov/breastfeeding/recommendations/handling_breastmilk.htm

COVID-19 "vaccination among pregnant people remains low. Data show that only about 1 in every 4 pregnant people report v...
08/26/2021
COVID Data Tracker Weekly Review

COVID-19 "vaccination among pregnant people remains low. Data show that only about 1 in every 4 pregnant people report vaccination, and certain groups have much lower uptake. This low uptake persists despite recent increases in COVID-19 cases in pregnant people."

.....

"A recent CDC study shows that, even though COVID-19 vaccination coverage among pregnant people has been increasing, Black and Hispanic women have the lowest vaccination coverage among all racial and ethnic groups. Similar results have been reported with other vaccinations during pregnancy. These findings highlight racial and ethnic disparities in COVID-19 vaccination coverage among pregnant people, indicating a need to prioritize vaccine equity for racial and ethnic minority groups by addressing potential barriers and access issues"

https://www.cdc.gov/coronavirus/2019-ncov/covid-data/covidview/index.html

The week’s key data, narrative interpretations, & visualizations.

Mothers of babies with certain birth defects may need extra support in establishing and maintaining breastfeeding. #clef...
08/26/2021

Mothers of babies with certain birth defects may need extra support in establishing and maintaining breastfeeding. #cleft #craniofacial Find support here: https://www.cdc.gov/breastfeeding/breastfeeding-special-circumstances/maternal-or-infant-illnesses/birth-defects.html

Mothers of babies with certain birth defects may need extra support in establishing and maintaining breastfeeding. #cleft #craniofacial Find support here: https://www.cdc.gov/breastfeeding/breastfeeding-special-circumstances/maternal-or-infant-illnesses/birth-defects.html

Breastfeeding can be a beautiful way to bond with your baby, but it can also be very challenging. Learn about #breastfee...
08/24/2021

Breastfeeding can be a beautiful way to bond with your baby, but it can also be very challenging. Learn about #breastfeeding and how dads are a critical support to mom and baby.
https://wicbreastfeeding.fns.usda.gov/dads

Breastfeeding can be a beautiful way to bond with your baby, but it can also be very challenging. Learn about #breastfeeding and how dads are a critical support to mom and baby.
https://wicbreastfeeding.fns.usda.gov/dads

Do you use a Family Practitioner for your family’s healthcare? That is a great opportunity to make sure the whole family...
08/22/2021

Do you use a Family Practitioner for your family’s healthcare? That is a great opportunity to make sure the whole family is caught up in immunizations as your kids go #BackToSchool!

Do you use a Family Practitioner for your family’s healthcare? That is a great opportunity to make sure the whole family is caught up in immunizations as your kids go #BackToSchool!

Babies with cleft lip or cleft palate tend to have more ear infections—and breastfeeding protects against these infectio...
08/21/2021

Babies with cleft lip or cleft palate tend to have more ear infections—and breastfeeding protects against these infections. The mother's antibodies are passed on to the baby in the breast milk. For an infant facing surgery, this is an added benefit. https://kellymom.com/ages/newborn/nb-challenges/bfhelp-cleft/

Babies with cleft lip or cleft palate tend to have more ear infections—and breastfeeding protects against these infections. The mother's antibodies are passed on to the baby in the breast milk. For an infant facing surgery, this is an added benefit. https://kellymom.com/ages/newborn/nb-challenges/bfhelp-cleft/

Did you know that breastfeeding can help prevent babies from getting sick? In fact, when you breastfeed, your baby gets ...
08/19/2021

Did you know that breastfeeding can help prevent babies from getting sick? In fact, when you breastfeed, your baby gets antibodies from you to protect them from many different types of infections. It can also prevent moms from getting certain types of cancer. Learn more about the benefits of breastfeeding! http://ow.ly/SuNO50FQEGT.

Did you know that breastfeeding can help prevent babies from getting sick? In fact, when you breastfeed, your baby gets antibodies from you to protect them from many different types of infections. It can also prevent moms from getting certain types of cancer. Learn more about the benefits of breastfeeding! http://ow.ly/SuNO50FQEGT.

Vaccines are safe and effective during pregnancy. Learn more about the vaccines you need during pregnancy in CDC’s inter...
08/18/2021

Vaccines are safe and effective during pregnancy. Learn more about the vaccines you need during pregnancy in CDC’s interactive vaccine guide: https://bit.ly/3wB0ZtW
#VaccinesWork

Vaccines are safe and effective during pregnancy. Learn more about the vaccines you need during pregnancy in CDC’s interactive vaccine guide: https://bit.ly/3wB0ZtW
#VaccinesWork

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This course is an opportunity for all infertility specialists, obstetricians and gynaecologists to enhance their techniques in diagnosis and treatment For more details visit https://bit.ly/2IAtajR
What criteria has your state used for adding/deleting conditions to your registry? Wisconsin criteria. A Birth defect should: • Conform to the statutory definition of a birth defect – a structural deformation, disruption or dysplasia, or a genetic, inherited, or biochemical disease that occurs prior to or at birth. • Usually be identifiable by 2 years of age . • Be a major anomaly (having medical, surgical or developmental significance). • Be of ‘sufficient’ frequency (birth prevalence) – an estimated prevalence of 1/30,000 births.
Hi,I wanted to hear from states if they developed criteria used to determine what birth defects they enter into their registry. Due to statute changes, WI can be more flexiable. Current WI Policy - a birth defect should: • Conform to the statutory definition of a birth defect – a structural deformation, disruption or dysplasia, or a genetic, inherited, or biochemical disease that occurs prior to or at birth. • Usually be identifiable by 2 years of age (the limit of the statute). • Be a major anomaly (having medical, surgical or developmental significance). • Be of ‘sufficient’ frequency (birth prevalence) – an estimated prevalence of 1/30,000 births was selected; this would mean that 2 or more occurrences each year in Wisconsin would be expected, and be consistent as possible with data being collected elsewhere in the country. In addition, the list does not include most conditions identified by current newborn screening since ascertainment of these is virtually complete anyway. Thanks for your responses and help. Please reply to: [email protected] if you have such a policy.
Protect the pregnancies of childcare providers/volunteers: https://www.facebook.com/nationalcmv/posts/986541968166490
For all involved in some aspect of research, here is a newsflash from "Kids First 2.0": The Kids First program would like to share with you a funding opportunity in the area of Birth Defects research supported by the Centers for Disease Control and Prevention. Notice of Funding Opportunity (NOFO) #RFA-DD18-001: Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II was published/announced on 12/21/2017. If interested in applying, please check the website (https://www.grants.gov/web/grants/search-grants.html) for the full NOFO description and application documents. The opportunity number and link to the NOFO is below as well. Please note this is not an NIH or Kids First program funding opportunity. Opportunity title: Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II Opportunity number: CDC-2018-FCAST-0118 Link: https://www.grants.gov/web/grants/view-opportunity.html?oppId=297928
It's CMV awareness month! Could you please post about the most common congenital infection?
Can you sharesome information on congenital CMV since June is CMV Awareness Month?