Brianna's Medical Journal

Brianna's Medical Journal This journal will follow me, Brianna Greenspan, through my medical journey as a patient and researcher of Genetic Connective Tissue Disorders. Hi!

My name is Brianna Greenspan. I was diagnosed with EDS, POTS, Tethered cord, Spondylolistheisis, craniocervical instability, costocondritis, and a variety of other medical challenges... The first major symptoms started when i was around 4 years old with my eyes.. by 12 i was in a full back brace that went down one leg and i was forced to walk with a limp in the hopes of stabilizing my hip joint. By the time I was 19, I has an L5-S1 fusion surgery that ultimately left me unable to walk and in worse shape then I had ever been in. My parents created a very rigorous rehabilitation program in the hopes that I would one day lead a full life, or at least lesson the pain if at all possible. They created an at home program where a therapist came to the house 7 days a week for 6 weeks.. We did CranioSacral Therapy, Mayofacial Release, Aqua Therapy, Physical Therapy and a variety of other modalities that eventually gave me the ability to walk again. Despite constant monitoring and quality care, old symptoms still seems to recur and new symptoms still appear... Its almost as if the moment I am able to get a handle on one symptom or condition, another pops up. This has led me to embark on a medical research project at Cedar Sinai Hospital entitled "Hypermobility and its correlation to disease" The doctor I am currently working with has over 60 EDS patients as well as a variety of other interesting connective tissue disorder patients. We are diligently working to help properly diagnose and treat these patients to give them an improved quality of life. This page will be used for a variety of things, I will give periodic updates on my health as well as updates on what is happening in my research and with my patients/friends in the invisible illness community. Please like and share this page with your friends who you think would benefit from this page!! Also please feel free to follow my Instagram - Dr.Bri1111 as I post a lot of cool research on it.

My birthday is coming up in just a few days, and I’ve been spending this week in deep reflection. Living with a complex ...
10/16/2025

My birthday is coming up in just a few days, and I’ve been spending this week in deep reflection.

Living with a complex chronic illness has taught me that growth isn’t linear — it’s cyclical. It’s seasonal. If you know me personally, you know bits and pieces of story and what drives me every day to show up and shine light into this world.

Today, I want to let you in even more.

Let me rewind: March 6, 2008 shaped the course of my life. It was one of the most emotionally taxing and complex days of my life — and also the day that broke me open.

I was sitting in a neurosurgeon’s office after learning that my L5-S1 fusion surgery hadn’t worked, being presented with a list of not-so-amazing answers, suggestions, and band-aids. In that moment of exhaustion and fear, I asked myself my first intentional question:

“Is there anything else out there that can help me with the way that I’m suffering — and if so, where can I find it?”

That single question changed everything.

It opened a door to curiosity, possibility, and healing. It sparked a lifelong practice of reflection and micro-massive action that has since transformed every aspect of my life into one I’m profoundly grateful for.

And today, after years of research, writing, and collaboration with my dear friend and co-author Dr. Gregory Stock, I’m honored to share the work born from that moment. 💛

📖 The Book of Questions: Living with Chronic Illness comes out November 17, 2025 and is available for pre-order now: 🥰 https://amzn.to/3W3ZJyD

This isn’t a book of answers; it’s an invitation to turn toward yourself with curiosity, compassion, and courage.

As Dr. Mark Hyman, MD, New York Times bestselling author of Young Forever and host of The Dr. Hyman Show, shared:

“The Book of Questions: Living with Chronic Illness is a powerful and compassionate guide that gives voice to the silent struggles so many endure. It doesn’t offer prescriptions—it offers something even more essential: the right questions. These questions invite reflection, connection, and healing, helping us shift from powerlessness to possibility. As a physician who’s spent decades helping people reclaim their health, I’ve learned that transformation begins not with answers, but with the courage to ask better questions. This book is a lifeline for anyone navigating the invisible terrain of chronic illness.” 💫

This project began as a personal practice and evolved into a movement — one rooted in the belief that transformation begins not in finding the perfect answer, but in daring to ask the next brave question.

More to come soon. 🌿💜

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