Linked With Liam

Linked With Liam Linked with Liam is Federal 501c3 Non Profit Co dedicated to improving the lives of children with cancer and supporting their families through our programs
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Liam Webb was a normal, happy 3 year old boy. He loved playing with his sisters, eating pizza and jumping away in bounce houses. He was in perfect health and I had no reason to think that anything might be wrong with my child. During Spring break of 2013, my mom noticed that Liam was leaning his head to the side. I brushed it off and continued on with life. About a week later, my mother in law flew in to town and noticed that his head was tilted as well. I decided to take him to his pediatrician to have it looked at. The doctor believed it was an injury, and sent us home with orders to give him ibuprofen for the swelling and to come back in 2 weeks if his neck was not better. Two weeks passed and Liam's neck was still tilted. I posted pictures of him online to ask family and friends if this had ever happened to their kids. I researched online and found explanations that ranged from torticollis to brain tumors. I actually laughed at the brain tumor explanation. "No" I laughed. "It is definitely not that serious!" I decided to call the doctor back to see what he suggested. He referred Liam to see a physical therapist and I called them right away. They were unable to see Liam until June which was still 3 months away! It was then that mother instinct kicked in, and I decided to take him to the emergency room. After a long wait, the doctor finally saw us and suggested an MRI. I thought that was a bit much because they would have to put him under anesthesia. Instead, we opted for the much faster CT scan. I knew nothing would show up. Nothing ever does, right? After another long wait, the doctor returned to our room and asked us to please turn down the Tinkerbelle movie that Liam was watching. It was then that I knew something was very wrong. "Unfortunately, there is a large mass located in your son’s brain." That was all I heard. My head started spinning and my world was shattered. On April 11, 2013, Liam was diagnosed with a brain tumor. It would later be diagnosed as a very rare and aggressive tumor called AT/RT. Despite the diagnosis, Liam was doing so well! He made it through 3 brain surgeries, meningitis and a horrible staph infection that hospitalized him for 4 weeks, 6 weeks of intensive radiation to his brain and 3 bone marrow transplants! After his third and final round of chemotherapy, Liam became ill with RSV which turned into pneumonia. After being hospitalized for a week, he finally began to improve! His fever was gone, he was talking again and was about to be moved from the ICU floor. Unfortunately, and without any warning, Liam passed away on November 23. It was not the cancer that killed him, but the treatments that lowered his immune system so that it was unable to fight infection. We all mourn differently in my family, but we are all still very much mourning. My daughter cries for him every night. My husband remembers Liam saying how much he wanted to play soccer, and that is no longer a possibility. I ache to feel his hugs and cuddles. The cards and letters have now stopped coming. The calls as well. It's to be expected. The world can't mourn with us forever. We need to find a way to continue on without our only son. I'm not in a deep hole. I don't need medication. I just miss him! I will always long for my comedian. My entertainer. My dancer. My singer. My giggler. My snuggle bug. My jumping bean. My helper. My joy. My life. My hero. My son. Linked With Liam is a Federal 501c3 Non Profit Corporation - Registration #46-4500627

Mission: It is our MISSION to improve the lives of children with cancer and their families with much needed support in the battle against their life threatening illness. We help with expenses that these families encounter when they are forced to put their lives on hold to be with their children. We know that family support can be just as important to recovery as medicine. When cancer strikes, especially when a child is affected, it can easily send life into a tailspin. Linked with Liam's MISSION is to assist every child and family facing this overwhelming journey, and let them know they are NEVER ALONE. Our goal is to reduce the impact not only on the warrior, but to the entire family.

We hope that everyone can come out to the 6th Annual Cheers to Liam on Saturday evening at St. Arnold's Brewery.  Please...
11/07/2019

We hope that everyone can come out to the 6th Annual Cheers to Liam on Saturday evening at St. Arnold's Brewery. Please tell all of your friends and family...the more donations we receive, the more families we can help! Thank you!

Kicking off October with two new Warriors, Anton and Tajah. You can read their story in the photo caption.
10/07/2019

Kicking off October with two new Warriors, Anton and Tajah. You can read their story in the photo caption.

A big thank you to White Oak and their sponsors for another successful White Oak Gives Back charity golf tournament.
10/07/2019

A big thank you to White Oak and their sponsors for another successful White Oak Gives Back charity golf tournament.

10/03/2019

HAPPY BIRTHDAY LIAM!
🎉🎂🍭🎊

LWL Astros Day Out Was a Success!!!  One of our Warrior Dads, Clint King, had this to say "Thanks for an amazing day.  A...
08/09/2019

LWL Astros Day Out Was a Success!!! One of our Warrior Dads, Clint King, had this to say "Thanks for an amazing day. As mentioned numerous times, Kaylee got to do very few things while she was sick, so we play make up and try to give her the world now. LWL was able to play a role in completing this mission. I would love to encourage y'all to continue to integrate kids that are done with treatment, as during treatment activities can be dangerous for them. Please continue to pursue ways to make these kids happy, as they are owed the world after what they endure. Thanks again."

08/06/2019

We have a couple more openings for tomorrow's game against the Colorado Rockies! If you are interested please contact me at [email protected].

07/31/2019

Linked With Liam will host the Annual Liam’s Day Out event at Minute Maid Park on Wednesday, August 7, 2019 at 1:10 pm. The Houston Astros will play against the Colorado Rockies and we would love the opportunity to have our Warriors join us. This year we will have a drawing to allow a few Warrior families attend the baseball game. Unfortunately, we do not have enough tickets to allow all that respond. If you are interested, please submit a request to [email protected]. Include Warrior name, phone number, email address and number of family numbers. We will notify all winners on Monday, August 5, 2019.

Meet our newest Warrior, Laila!Our story On September 5, 2018 at age 9 months Laila was diagnosed with aml leukemia, and...
07/25/2019

Meet our newest Warrior, Laila!

Our story

On September 5, 2018 at age 9 months Laila was diagnosed with aml leukemia, and began aggressive chemo therapy. After the first round Laila was in remission thank God , but a few weeks later we learned that she was high risk for relapse due to mll & flt3 two aggressive markers . Laila did 3 rounds of chemo and we began to search for a bone marrow donor since doctors believed that she had a very high chance of release. On December 14, Laila had her transplant after 10 days of chemotherapy that wiped out her little body completely . Today we are day +223 and she’s been doing amazing despite a few virus her marrow have been doing a wonder job ! She’s still under observation and have to be near the hospital but she’s thriving ! She’s now 20 months old.

07/22/2019

Linked With Liam will host the Annual Liam’s Day Out event at Minute Maid Park on Wednesday, August 7, 2019 at 1:10 pm. The Houston Astros will play against the Colorado Rockies and we would love the opportunity to have our Warriors join us. This year we will have a drawing to allow a few Warrior families attend the baseball game. Unfortunately, we do not have enough tickets to allow all that respond. If you are interested, please submit a request to [email protected]. Include Warrior name, phone number, email address and number of family numbers. We will notify all winners on Friday, August 2, 2019.

Our newest Warrior, Everly! Strong and brave!Everly was diagnosed with stage 4 HR neuroblastoma at Boston Children’s Hos...
07/18/2019

Our newest Warrior, Everly! Strong and brave!

Everly was diagnosed with stage 4 HR neuroblastoma at Boston Children’s Hospital on 8/24/2017. She had no other signs other than a swollen lymph node in her neck, which turned out to be just the tip of the iceberg. She has since had more than 30” of tumor removed from her tiny body and has been treated at 4 different facilities. She was stable and doing well until our insurance denied one of the medications she had been taking for a specific tumor mutation. She missed just one cycle and a tumor on her forehead began to grow. She and I have been living in Grand Rapids, MI since 5/16/19 and receiving treatment to get her back to stable. We’ve been here alone and we’ve both endured a great deal. We stayed at a hotel for a week until we could get into the Renucci Hospitality House. Praying we get to go home after scans on 7/16 provided they show improvement.

Meet our newest Warrior, Weston! We are honored to have helped Weston’s family through our Helping Hearts and Hands prog...
07/10/2019

Meet our newest Warrior, Weston! We are honored to have helped Weston’s family through our Helping Hearts and Hands program. A big thank you to our sponsors and supporters, without your generosity, we would not be able to assist families like Weston’s.

From Weston’s mom:

Weston was diagnosed with a brain tumor (DIPG) at the age of two years and 4 months old.

It all started with what our first Optometrist saying it was a lazy eye and prescribed Weston a pair of glasses. A couple months went by and my “mom gut” told me it was something more. We were able to get in to see a different optometrist, who told us right away that Weston’s eye was healthy and he did not have a lazy eye. Instead he believed that there was something wrong with the nerve that controls the eye to move out. He recommended we have an MRI done to see what exactly was going on. Fast forward 1 week as we were just called back to get Weston, he was done with his scan and not fully awake. It was while I was comforting him that we were told our Pediatrician was on the phone and what we were about to be told was going to be very hard to hear. All I remember was being hearing was that Weston had a tumor on his Brain-stem and that we needed to go to Children’s right away and our now Oncologist was waiting for us to go over what the next steps would be. The next few months were a blur of doctor appointments, more MRIs, a biopsy, hospital stays, port-a-cath placement, 6 weeks of radiation (31 treatments) and daily sedation. Some how our amazing little man never skipped a beat and was always happy and playing. Weston has been going to clinic for infusion once every two weeks, daily chemo at home (x2) and MRIs every 8 weeks for the last 18 months.

Words can’t even being to describe how happy we are that he is doing so well. His tumor shrunk and has been stable for 14 months. We know that everyday is a blessing that we have with him and I Thank God every day that we get to spend as a family.

Meet our newest Warrior, Campbell. Please visit Campbell’s caring bridge site for updates on her progress. https://www.c...
07/02/2019

Meet our newest Warrior, Campbell. Please visit Campbell’s caring bridge site for updates on her progress.

https://www.caringbridge.org/visit/campbellsena

Campbell, was diagnosed with Hodgkin's Lymphoma on March 28, 2019 after finding a lump on her collar bone. We went from urgent care, to the ER, and 10 hours later she was admitted to the oncology floor at Children's Health Dallas. She was inpatient for a week, started her first of 4 rounds of chemo, and should finish chemo this month. The decision about radiation is still pending.

During her treatment she was home bound for school, turned 16, and had 6 ER visits for various fevers or uncontrolled pain. She's looking forward to starting her junior year on August 15th and rejoining the classroom and all of her friends.

Meet our newest Warrior, Isaac! We were privileged to assist his family through our Helping Hearts and Hands fund. A big...
06/21/2019

Meet our newest Warrior, Isaac! We were privileged to assist his family through our Helping Hearts and Hands fund. A big thank you to our supporters, without your donations we wouldn’t be able to help families like Isaac’s.

Hi my name is Diana Barron I am the mom of Isaac Felix. Isaac was diagnosed with ALL leukemia he had just turned two years old when he was diagnosed. He did hit remission right after starting chemo he is still undergoing chemo currently. He has been doing good like he tells us he is Iron Man! Which he is he is a strong 4 year old little boy.

Our newest Warrior family we have assisted through our Helping Hearts and Hands fund, the Browns and  their daughter Cai...
06/08/2019

Our newest Warrior family we have assisted through our Helping Hearts and Hands fund, the Browns and their daughter Caitlyn. Sadly Caitlyn passed away from DIPG. We are honored to have met the Browns. You can read their daughters story here:

Caitlyn Rayne was born November 12, 2012. Caitlyn was a happy normal child until September 2017. Her teacher said she needed glasses so we got those. Then she started falling really bad and complaining of pain in her legs. We took her to the doctor here in Houma La June7,2018 which her dr thought she had MS. She scheduled an emergency MRI and a mass in her brain was discovered June 8, 2018. We was told to get her to Children’s Hospital in New Orleans. When we got there we then learned she had DIPG and was given 12-18 months to live. Easiness the only option given. We then took her to St. Jude in Memphis Tennessee where Caitlyn received 30 rounds of radiation. We stayed in St Jude for 3 months. She came home August 10, 2018 and we was told there was nothing else that could be done to just enjoy Caitlyn and make memories. We took her to Disney World, and to Colorado to see snow. Caitlyn was such an amazing child. She was known as the unicorn princess. She loved unicorns and the color purple and mama. Caitlyn had a seizure January 19,2019 and could no longer walk or talk or eat. She played in a hospital bed at home for 8 days. Caitlyn passed away peacefully January 27, 2019 at 8:19am. She was surrounded by people who loved her so much. We miss her dearly. Every day without her is harder and harder. Caitlyn was robbed of her life at 6 years old.

It’s May, which means it is brain cancer awareness month! Please, learn the signs of brain tumors in children, wear grey...
05/03/2019

It’s May, which means it is brain cancer awareness month! Please, learn the signs of brain tumors in children, wear grey to support the cause, and donate for a research to find a cure!

This is awesome news!
01/19/2019
MaxLove Project

This is awesome news!

We’ve held high hopes for the RACE for Children Act (Research to Accelerate Cures and Equity for Children Act) since it was passed into law in August 2018. The law will go into effect in August 2020. The legislation requires pharmaceutical companies to test potential cancer drug therapies on children as well as adults. The hope is that this strategy will result in more effective drug development for pediatric cancers, an historically underfunded and underserved target population for pharmaceuticals. It’s a strategy that only makes sense and we hope will accelerate positive change and hope for pediatric cancer patients worldwide. 💛🎗💛

> https://www.wsj.com/articles/for-children-with-cancer-hope-for-new-treatments-11547561004?fbclid=IwAR0sE12sStye7nTwpASsvdWZLHqfXG9_vV0yni08wgsqfvl1ykyeeKEBRrI

stillbirthday.com
12/22/2018

stillbirthday.com

Always an honor to give out toys at Texas Children’s Hospital. Thank you to all that donated toys, and those who volunte...
12/12/2018

Always an honor to give out toys at Texas Children’s Hospital. Thank you to all that donated toys, and those who volunteered.

Please join us if you can!
11/28/2018

Please join us if you can!

Tomorrow is giving Tuesday. Please consider buying a gift from the Amazon registry or dropping off your gifts at Cy-Fair...
11/27/2018
Your List

Tomorrow is giving Tuesday. Please consider buying a gift from the Amazon registry or dropping off your gifts at Cy-Fair Real Estate office! We only have a couple of weeks until delivery and need a lot more to reach our goal! Thank you!

Check out this list: https://www.amazon.com/gp/registry/wishlist/2VH4358HF6JG9

Linked With Liam
11/24/2018

Linked With Liam

Please consider donating! I will also be coming out with an amazon wishlist soon if you can’t make it in person for drop off! Thank you!

Linked With Liam
11/24/2018

Linked With Liam

Want to make a difference in the life of a child fighting cancer this Christmas? Linked with Liam will be delivering toys, books and gift cards to the families at the Texas Children’s oncology clinic this year, and we need your help! Please click the link to order something from our Amazon wish list today!
http://www.amazon.com/registry/wishlist/1PL5YL8WSAYZ6
#spreadingjoy

Please help Linked With Liam to deliver smiles to Texas Children’s Hospital and Cancer center! You may donate in 2 ways....
11/21/2018

Please help Linked With Liam to deliver smiles to Texas Children’s Hospital and Cancer center! You may donate in 2 ways. #1. Follow the link to shop the amazon wishlist and have it delivered directly to us! #2. Bring in donations to Cy-Fair Real Estate located at 16718 House & Haul rd. Suite N. It is next to Skips Farm in the office space. Thank you for giving these kids a reason to smile!!!

https://www.amazon.com/gp/registry/wishlist/2VH4358HF6JG9

Linked With Liam
11/20/2018

Linked With Liam

Want to make a difference in the life of a child fighting cancer this Christmas? Linked with Liam will be delivering toys, books and gift cards to the families at the Texas Children’s oncology clinic this year, and we need your help! Please click the link to order something from our Amazon wish list today!
http://www.amazon.com/registry/wishlist/1PL5YL8WSAYZ6
#spreadingjoy

Linked With Liam
11/20/2018

Linked With Liam

Want to make a difference in the life of a child fighting cancer this Christmas? Linked with Liam will be delivering toys, books and gift cards to the families at the Texas Children’s oncology clinic this year, and we need your help! Please click the link to order something from our Amazon wish list today!
http://www.amazon.com/registry/wishlist/1PL5YL8WSAYZ6
#spreadingjoy

Please consider donating! I will also be coming out with an amazon wishlist soon if you can’t make it in person for drop...
11/15/2018

Please consider donating! I will also be coming out with an amazon wishlist soon if you can’t make it in person for drop off! Thank you!

Today is Liam’s birthday, and for the first year in 5 years, I feel at peace! I used to beat myself up. Wondering what I...
10/03/2018

Today is Liam’s birthday, and for the first year in 5 years, I feel at peace! I used to beat myself up. Wondering what I could have done better. Wishing I could have been a better mom, a stronger advocate, a better thank you card sender when Liam was sick and all of you sent gifts! (I have always been horrible at sending thank you cards!) The reality is, I was the best mom that I could be to my son! I loved him fiercely and unconditionally. There is nothing, and I mean NOTHING, I would not have done if I thought it could have made him happy. I even prayed one night that God would take my arms and legs, but heal my son! If that is not love, I don’t know what is!

I have come to realize that Liam is all around me. He is energy! He is Joy! He is love! People tell me all the time “You are so strong!” And “I could NEVER go through what you have and still be standing!” But the truth is, you CAN! It is a matter of shifting the way that you look at things. I am so grateful for Liam’s example in my life! I’m so thankful that he LOVED me unconditionally! And how lucky I was to have known this amazing, beautiful, joyful child and to have been his mother! Happy birthday in heaven, sweet boy! #theluckiest

Linked With Liam Charity Golf Tournament with Whiteoak Energy.
10/02/2018

Linked With Liam Charity Golf Tournament with Whiteoak Energy.

Excited to be at the White Oak Gives Back charity golf tournament.
10/01/2018

Excited to be at the White Oak Gives Back charity golf tournament.

Come celebrate Liam’s Life AND support childhood cancer awareness month at Liam’s annual carnival. It would mean the wor...
09/28/2018

Come celebrate Liam’s Life AND support childhood cancer awareness month at Liam’s annual carnival. It would mean the world to know he is not forgotten. All proceeds will benefit Linked With Liam foundation to help assist families fighting childhood cancer! #childhoodcancerawareness #houstonevents #linkedwithliam #morethan4

#gogold
09/06/2018

#gogold

It is the first day of September means it is Childhood cancer awareness month! How can you help? Change your frame on yo...
09/01/2018

It is the first day of September means it is Childhood cancer awareness month! How can you help? Change your frame on your profile picture to raise awareness! Donate to Linked with Liam or towards childhood cancer research at Alex's Lemonade Stand Foundation! Children deserve our voice and our help! Be bold, and go gold!

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PO Box 842312
Houston, TX
77284

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Comments

Happy Birthday Liam.... 🤩🤩🤩
Thank you from Cullen #cullenkickscancer
🎈🎈🎈❤always❤🎈🎈🎈