Special Education Alliance 4 Eastern North Carolina

Special Education Alliance 4 Eastern North Carolina A resource page to create awareness for our special community of people with disabilities and their families Mission Statement - Special Education 4 Eastern North Carolina (SEAL4ENC) is a non-profit organization to empower parents and professionals to excel to their highest abilities through education and training while seeking the strongest outcome possible for all students; especially students with disabilities.

We support system change that will enrich the lives and the quality of life for children and young adults with disabilities

We support system change that will enrich the lives and the quality of life for children and young adults with disabilities

Mission: Mission Statement - Special Education 4 Eastern North Carolina (SEAL4ENC) is a non-profit organization to empower parents and professionals to excel to their highest abilities through education and training while seeking the strongest outcome possible for all students especially students with disabilities. We support system change that will enrich the lives and the quality of life for children and young adults with disabilities.

Operating as usual

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01/10/2021

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The Beauty of Shia’s World.

Shia is our beautiful autistic, primarily non verbal son, who also has sensory processing disorder. I have watched him in his world over the years. I have felt his world deeply and I have seen the impact his world has on his Daddy. Enjoy a peek into his world as you read below. 💙

Come into my world and I will help you let go of the things that cause you to lose your peace...just ask my Daddy.

Your world is too chaotic for me. Too much noise. Too much hurry. Too busy. Too loud. The energy of the people in your world is just too intense for me. Too much anger. Too much fear. Too much worry. Too much stress. Too much negativity.

In my world life is simple, peaceful and calm. I laugh often. I listen to music. I walk around outside barefoot all the time. I sit in silence often. I enjoy the sunshine and all that nature has to offer. I spend more time outside than inside. I enjoy the simple things. I am content. I am joyful. I am peaceful. I am still.

But...the moment I step into your world, everything changes. I feel the intensity of it all. I can’t handle it. I don’t know how to process all that I am sensing. It is overwhelming for me until I step back into my world and regain peace again.

Maybe your world is overwhelming for you too. It seems when my Daddy steps into my world everything that he is dealing with in his world just falls away. So I invite you to take time to disconnect from your world and step into my world...Shia’s world. I bet, just like my Daddy, you will find it is easy to let go of all the stresses and burdens of your world and find peace and joy again. 💙

Thank you Abby - an NC mom in Harnett County for sharing this lovely article with us!

Our lives have changed!
01/09/2021

Our lives have changed!

😆

Zing Zumm, Children's Museum of Jacksonville
01/09/2021

Zing Zumm, Children's Museum of Jacksonville

Coming Soon: Do you have talent? Know someone that does? Our 2021 Fundraiser is all about showcasing talented Eastern NC kids!

Hahaha!
01/09/2021

Hahaha!

Goldfish and Chicken Nuggets

Lets practice forgiveness
01/08/2021

Lets practice forgiveness

Zing Zumm, Children's Museum of Jacksonville
01/07/2021

Zing Zumm, Children's Museum of Jacksonville

Our first Play For All is coming up next Thursday, 1/14! Please let us know if you plan on coming by registering. Registration simply helps us plan staffing for the event - There is no-prepay required!

Register here (or if you're on Instagram, check the link in our bio! :))

https://zingzumm.doubleknot.com/Event/2758929

Impressive!
01/07/2021

Impressive!

As of TODAY. The Hotel right by Longbow Golf Club is Scheduled to open MAY 14th 2021. We would be the first major group in if this happens. More details will follow as soon as we can. #Yeswehaveabackupplan

Advocate for change!
01/07/2021

Advocate for change!

True!
01/07/2021

True!

Be good to people. Pass the Love around!
01/07/2021

Be good to people. Pass the Love around!

ECAC - North Carolina's Parent Center
01/07/2021

ECAC - North Carolina's Parent Center

Excellent question!!!🤔

How cute!
01/06/2021

How cute!

Absolutely lovely garden palette inspiration! Love the yard tools as paint brushes! ❤

via --> Overland Park Arboretum

This is awesome!
01/06/2021

This is awesome!

Happy Birthday Emelda ~ you make our Savannah shop shine!

We thought you shoukd know!
01/06/2021
If I've already had the coronavirus, can I get it again?

We thought you shoukd know!

WASHINGTON (AP) - If I've already had the coronavirus, can I get it again? It's possible, but such cases seem to be rare. Evidence is growing that people whose bodies mounted a strong defense to the virus are unlikely to test positive again for at least several months and maybe longer. It's not unus...

Lil' Tulips is a line of baby dolls that has a large variety of diversity in choosing your new friend! So amazing to see...
01/05/2021
Baby Down Syndrome Caucasian Girl

Lil' Tulips is a line of baby dolls that has a large variety of diversity in choosing your new friend! So amazing to see inclusion taking shape in many different platforms!

Baby Down Syndrome Caucasian Girl15" Boxed with Underwear Vanilla Scented Atomically Correct Made in Spain

RFA for BH/IDD Tailored Plan – What You Need to Know – i2i Center
01/05/2021
RFA for BH/IDD Tailored Plan – What You Need to Know – i2i Center

RFA for BH/IDD Tailored Plan – What You Need to Know – i2i Center

A key indicator that Medicaid Transformation is back is the recent publication of the Request for Application (RFA) for the BH/IDD Tailored Plan.  The Tailored Plan is scheduled to go-live on July 1, 2022, one year after the Standard Plan is implemented.  And with all of the requirements in the RF...

What a brave and loving family!
01/05/2021

What a brave and loving family!

Karsyn had a really great Holiday season with her family, and she hopes you did, too! Here she is sportin’ all her 🦄 loot she received from her friends and peers just to the north of us at Factory 2025, a youth basketball league straight outta Indianapolis, Indiana! 🙌 Thanks so much friends. We appreciate you! 🏀

New eating habits for the new year!
01/05/2021

New eating habits for the new year!

This man’s collection of lost apples varieties.

He has a website that you can buy saplings from!! This is a great way to fight back against corporate farming and the destruction of heirloom foods (which while usually ‘ugly’, are heartier, and more nutritious than store bought varieties, and more delicious).

https://applesearch.org/

01/05/2021
Nneka Irobunda

Make future plans!

Experience Africa through Afro-Fusion Dance
Move & groove like water: Afro Beastilettos
Find fluidity in your movement: Oru Art

Moms are the real Super Heros!
01/05/2021

Moms are the real Super Heros!

Option's are great to have and to share! We have options!
01/05/2021
African Fairy Tales & Folktales for Kids | Small Online Class for Ages 5-10

Option's are great to have and to share! We have options!

Join me as we explore the continent of Africa using African Fairy Tales & Folktales as our guide. In this class we'll hear a tale from Ghana. We'll act out scenes from the tale, and learn about African geography and culture along the way.

Traditions matter!
01/05/2021

Traditions matter!

Women wearing traditional First Nation ribbon skirts rallied outside a school in Kamsack, Sask., Monday to support Grade 5 student Bella Kulak. The 10-year-old was shamed by an educational assistant last month who said her attire didn’t fit on Formal Day.

Read more here: https://www.aptnnews.ca/national-news/first-nations-ribbon-skirts/

🧐
01/04/2021

🧐

🤨

Its important to socialize
01/03/2021

Its important to socialize

With bad pandemic news and endless social distancing, it can already feel like the longest winter ever. But keeping up nourishing bonds of human connection is possible with a little ingenuity.

Happy New Year!
01/01/2021

Happy New Year!

May the new year be full of peace and magical moments ❄️🤍❄️🤍❄️🤍❄️

MTJFoundation
12/29/2020

MTJFoundation

Calling all Knitters & Crocheters! We are in need of both child size and adult size cancer beanies for our Superhero Bags & Chemo Boxes. If you are looking for a project, we would gratefully accept your donations! Please mail to: Lisa Backer, Martin Truex Jr. Foundation, 156 Cayuga Drive, Mooresville, NC 28117 😁🙏 #NeverGiveUp #childhoodcancer #ovariancancer #SherryStrong

12/21/2020
Robin Knapp- Onslow County Commissioner

Please send your questions to Commissioner Knapp!

Folks:

I will be having a Facebook live discussion/answer session with Dr Arin Piramzadian in the very near future. He is one of the leading medical professionals fighting the war on COVID-19 and he’s local as well. He has been a GREAT source of information amd he has agreed to go live on Facebook with me to discuss the myths/facts about COVID-19. I will announce soon when this will occur and please feel free to ask questions, etc. I think this will be essential and I will keep you posted on our status. Thanks to all. Stay tuned.

R/S,
Robin Knapp
Commissioner

We have lost a true leader for our children in Onslow County.  Pamela Thomas will be missed! Rip
12/21/2020

We have lost a true leader for our children in Onslow County. Pamela Thomas will be missed! Rip

Folks:

It is with great sadness that I inform all of you of the passing of Ms Pam Thomas, former Chairman of the Board of Education and one of my dearest friends. Ms Thomas had been admitted to OMH for the past week or so after contracting COVID-19 and she appeared to be recovering; however, she took a turn for the worst and has been received into heaven this morning. She recently lost her mother, who she completely adored, approximately 3 days prior and it breaks my heart.

Ms Thomas was a true leader and lady, always looking out for the interests of the students and willing to do what she believed was right. She was one of my biggest supporters in 2016 and recently and she was always gracious. Although she was unaffiliated, she believed in doing what’s right and wasn’t afraid to speak her mind. I personally am heartbroken and I pray earnestly for her loved ones. She has fought so many battles in her life and I have the deepest respect for her.

I remember driving to work one morning and she pulled up alongside of me at a traffic light and she rolled her window down to congratulate me and wish me well. She had a big smile on her face and I told her thank you and I appreciated her beyond belief. She smiled and waved and drove off after the light turned green. I will always have the memory of her smile on that day and her kind words.

Please say a prayer for her family members today and/or offer a moment of silence. Her impact on Onslow County was HUGE and her impact on me was life changing. God bless you Pam and may you enjoy heaven for all eternity. We love you very much and will miss you.....Selah.

Buy Local!
12/18/2020

Buy Local!

ALL SEASONAL MASK ON SALE $5.00 ea.

Address


General information

We have delivered speeches at the local Board Of Education as well as the legislative committees. We served as a parent liaison for the local exceptional children’s division. We also organized and developed over 12 free workshops for parents and professionals of special needs children. The forums and workshops offered by SEAL where educational and informative with various categories from writing effective individual education plans, positive behavior support and inclusion. We learned about laws governing special education and learned to become advocates for our students and children. We provided on-site childcare for the parents during those workshops. We received training from STOMP (specialized training of military parents), Family Support Network of the Crystal Coast and The Exceptional Children’s Assistance Center (ECAC). We became a voice for the disabled population, while initiating positive changes within the local schools and community

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PLEASE SHARE: Hi! As you know, we always want the best for our children & our families. It is getting close to time to make a decision about Breakfast with Santa 2020. Because we are in the middle of a pandemic, IF we hold the event this year, it will look A LOT different. Please share with us your thoughts, concerns, and questions and complete the survey here: http://bit.ly/BWS2020-Survey This will help us to decide if we will have the event this year. We want everyone to be safe & feel comfortable, and we realize that our children have not been able to experience so much this year (school, friends, other events, etc.) as they normally would have. We don't necessarily want to cancel, but we know many people probably would not attend (for various reasons). We hope to make a decision by the first week in November & will let everyone know through email & facebook. Thank you again for your dedication to your children & your families and please know that we only want what's best for everyone. Thanks again & have a blessed day! Stay well!
https://files.nc.gov/covid/documents/COVID-19-Support-Services-Program-Fact-Sheet.pdf
The UCLA-Duke ASAP Center for Trauma-Informed Suicide, Self-harm, & Substance Abuse Treatment & Prevention (https://www.asapnctsn.org/) is seeking partners to serve on a Family Advisory Board and a Youth Advisory Board. The goal of the Advisory Boards will be to provide feedback on ASAP Center programs and future directions. The Advisory Boards will consist of youth and family members with lived experience related to traumatic stress, suicide, and/or substance use. The first Family Advisory Board virtual meeting is on September 9th from 6pm-7pm. Contact: Adrienne Inscoe at: [email protected] if you are interested in a role as an advisory partner. More Background Information: The ASAP Center is focused on the development, dissemination, and implementation of treatments for suicide, self-harm, and substance use. As a partner in the National Child Traumatic Stress Network (https://www.nctsn.org/), our goal is to ensure that the treatments that we develop are trauma-informed and reach youth and families who have been affected by trauma. Advisory Board member responsibilities will include: · Participation in semi-annual virtual Advisory Board meetings (60-90 minutes) · Reviewing and providing feedback on ASAP Center programs for suicide, self-harm, and substance use · Providing feedback on how to ensure that interventions reach youth and families affected by trauma We hope to involve youth and families who are interested in an ongoing commitment to informing the future directions of the ASAP Center. Damie Jackson-Diop (she/her/hers) The Resiliency Collaborative, Raleigh NC Community Research & Training Partner 336-215-6422 www.resiliencycollaborative.org
What, Where, Why, and When must a Special Needs Trust Be Reported to Government Agencies? One of the most common questions attorneys are asked after drafting a Special Needs Trust (“SNT”) is, “do I have to tell Social Security and Medicaid about the trust?” The short answer is yes. Of course, the longer answer is more complicated. Reporting requirements may be different depending on the type of trust, the type of benefit the beneficiary receives, and the state in which the beneficiary lives. There are two basic categories of SNTs. The first type of SNT is the third party SNT – one that is drafted as part of an estate plan where a beneficiary of that plan is receiving government assistance. The purpose of such planning is to allow the special needs beneficiary to inherit funds, in trust, and not lose Supplemental Security Income (“SSI”) or Medicaid benefits. This SNT is called a “third party SNT” because the money in the trust is from a third party – someone other than the beneficiary. The second type of SNT is one that is created when a special needs beneficiary owns assets that he or she is putting into the trust. This might occur if the special needs beneficiary was injured and receives a personal injury award, or when he or she is the beneficiary of assets such as life insurance or a retirement account and a third party trust was not previously set up to receive those assets. We call this trust a “first party SNT.” The purpose of both types of SNTs is to enable the recipient of certain government assistance programs to maintain those benefits while still permitting the trustee of the SNT to spend money for the benefit of the beneficiary. It may seem odd that the SNT and the assets it owns must be reported to the public benefits agencies. It is not odd because when an individual accepts SSI and/or Medicaid benefits he or she agrees to inform the Social Security Administration (“SSA”) and state Medicaid agency about any changes in his or her financial situation. A beneficiary of an SNT has a financial interest in the trust, even though the beneficiary has no direct access to the money, accounts, real estate, or other assets titled in the name of the SNT. Typically, any change to one’s financial situation must be reported no later than ten days after the end of the month in which the change occurred. Some Medicaid agencies may have a shorter reporting time requirement – usually ten days after the change occurred. An SNT might also need to be reported to the agency providing public or subsidized housing. Distributions from the SNT might impact the amount and availability of those benefits. The drafting attorney likely drafted a Special Needs Trust that complies with all of the requirements to ensure that the assets in the trust will not be counted, and thus the beneficiary will remain eligible for government assistance; however, it is the agencies that provide those benefits that get to make that decision. The SNT must be reported even if there was a hearing in court and the judge approved the SNT. Who has the obligation and authority to report the SNT? Some trusts will be clear about who has the responsibility to report the SNT. However, most trusts are silent on this issue. Typically, the beneficiary of the SNT, his representative payee, or his guardian has the responsibility to keep the Social Security Administration apprised about changes in the beneficiary’s financial situation. Or one of them may direct the trustee to do so. In some states, state law dictates who is responsible for reporting to the various agencies. When does it have to be reported? If the SNT does not own any assets because it will be funded with assets after someone dies, there is no reason to report the SNT because the beneficiary’s financial situation has not changed. However, when assets are titled in the name of the SNT, the trust and all of the assets that are titled to that trust must be disclosed to the SSA if the person is receiving SSI, and may need to be reported to the state Medicaid agency as well. Generally, this must be done within ten days after the end of the month in which the trust is funded. Some public housing agencies require that the trust or trust distributions be reported on the annual recertification forms. There may be ongoing reporting requirements as well. Therefore, a trustee of an SNT must keep excellent and detailed records of the use of the funds. At some point the trustee will probably have to provide an accounting of the use of the SNT assets to the agencies that provided government benefits, to the beneficiary, to a court, or to those who will receive the assets in the SNT after the primary beneficiary passes away. A trustee cannot be too prepared or too organized when it comes to a administering an SNT! What must be reported? Generally, a copy of the trust and the initial inventory must be sent to any agency that is providing a needs-based benefit to the beneficiary. The state Medicaid agency where the trust beneficiary receives benefits may or may not require a third party SNT to be reported. A trust must be reported to Medicaid and the SSA when assets or accounts are titled to that trust. The attorney who drafted the SNT can provide information about the best way to report the SNT and its funding. It is always best to include a cover letter to each of the agencies explaining that the trust being provided is an SNT and the assets it owns should not be counted as belonging to the SNT beneficiary. Also, it is important to reference the social security number of the beneficiary and, if the SNT is also being reported to the Medicaid agency, the beneficiary’s Medicaid number should be included. This will allow the agencies to make sure the information is saved in the correct file. Keep a copy of your letter and proof that you mailed it in case you need to prove at some later time that you did report the trust. Finally, if the SSA or Medicaid notifies the beneficiary or the trustee that the assets in the SNT and the income it earns will be counted and not excluded, and that the individual’s public benefits will stop as a result, it is important to contact an attorney immediately. There are very short time frames in which to appeal to avoid loss of benefits. Do not procrastinate! About this Article: We hope you find this article informative, but it is not legal advice. You should consult your own attorney, who can review your specific situation and account for variations in state law and local practices. Laws and regulations are constantly changing, so the longer it has been since an article was written, the greater the likelihood that the article might be out of date. SNA members focus on this complex, evolving area of law. To locate a member in your state, visit Find an Attorney. Requirements for Reproducing this Article: The above article may be reprinted only if it appears unmodified, including both the author description above the title and the “About this Article” paragraph immediately following the article, accompanied by the following statement: “Reprinted with permission of the Special Needs Alliance – www.specialneedsalliance.org.” The article may not be reproduced online. Instead, references to it should link to it on the SNA website.