Spina Bifida Association of California

Spina Bifida Association of California The Spina Bifida Association of California (SBA of CA) is an organization dedicated to building a better and brighter future for all people impacted by Spina Bifida.

We are all so excited to see what you plan on doing to participate in Virtual Walk-N-Roll tomorrow. Don't forget to take...
10/24/2020

We are all so excited to see what you plan on doing to participate in Virtual Walk-N-Roll tomorrow. Don't forget to take pictures/videos throughout and share them on the event page!

10/23/2020
10/22/2020

What do you want to know about working with the school system? Join us on Saturday, when you can ask questions directly to a transition coordinator representative with Fairfax County, VA Public Schools. https://www.sbevents.org/event/KCEd2020

10/22/2020
Our National Day of Walk-N-Roll is THIS SUNDAY! How are you planning on participating? www.walknrollforsb.org
10/21/2020

Our National Day of Walk-N-Roll is THIS SUNDAY! How are you planning on participating? www.walknrollforsb.org

10/21/2020
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Our last of our 2020 Virtual Spina Bifida Education Days is THIS SATURDAY! You do not want to miss out. Bring any questions you may have for the presenters. https://www.sbevents.org/event/KCEd2020

This one-day educational event is for parents of children and teens with Spina Bifida, and for adults with Spina Bifida. Sessions will include:

-Managing the challenges of learning when you or your child have problems related to executive function
-Special needs planning
-Employment and independent living
-Overcoming challenges when working with the school system
-Neurosurgery and tethered cord - you ask the questions!
-Bladder and bowel management
-Sexuality in young adults
-The role parents play in supporting their children's reproductive health

Who's ready for Sunday?? All event festivities will be happening in our National Day of Walk-N-Roll for Spina Bifida Fac...
10/20/2020

Who's ready for Sunday?? All event festivities will be happening in our National Day of Walk-N-Roll for Spina Bifida Facebook event (https://fb.me/e/1BiwDsoyx)! Be sure you're marked as going to receive all event updates! We can't wait to "see" you there THIS SUNDAY at 9am Est.

This Saturday is your last chance to ask questions directly to specialists in Spina Bifida care through our 2020 Spina B...
10/20/2020

This Saturday is your last chance to ask questions directly to specialists in Spina Bifida care through our 2020 Spina Bifida Education Days! During each session, the presenter will answer any questions you may have LIVE. https://www.sbevents.org/event/KCEd2020

If you're unable to attend day-of and still want your questions answered, don't fret!! Drop the question in the comments below by the end of day on Friday and we'll share them with the presenters to speak about during the event.
If you register, you'll receive a recording of the entire event in your inbox even if you weren't able to attend live.

Registration Link --> https://www.sbevents.org/event/KCEd2020

10/19/2020
10/19/2020
We are officially 1 WEEK away from this year's National Day of Walk-N-Roll! Make sure you and all teammates are register...
10/18/2020

We are officially 1 WEEK away from this year's National Day of Walk-N-Roll! Make sure you and all teammates are registered!
Northern California https://bit.ly/30Nr3UA
Southern California https://bit.ly/30ISHlJ

#FundraisingFriday! Did you know there's a customizable email template within your fundraising portal? Watch this short ...
10/16/2020

#FundraisingFriday! Did you know there's a customizable email template within your fundraising portal? Watch this short video for a quick how-to and follow us on TikTok for more helpful tips! https://vm.tiktok.com/ZMJ5CACvJ/

We are at the end of the road of our 10 Days to T-Shirt Challenge. For Day 10 we challenge you to ask for a $15 donation...
10/15/2020

We are at the end of the road of our 10 Days to T-Shirt Challenge. For Day 10 we challenge you to ask for a $15 donation through a registration link on your page. You'll then have raised $150 for the Walk-N-Roll T-Shirt! Don't forget your registration link at www.walknrollforsb.org

Next Sunday is World Spina Bifida Day and our first ever National Day of Walk-N-Roll. We can't think of a better way to ...
10/15/2020

Next Sunday is World Spina Bifida Day and our first ever National Day of Walk-N-Roll. We can't think of a better way to support, honor and celebrate all those who are impacted by Spina Bifida and hope you'll join us too! Here are the current standings for fundraising by chapter. You have a little over a week to see your chapter on top! Get started fundraising now www.walknrollforsb.org

We are at day 9 of the 10 Days to T-Shirt Challenge!! Today's task is to ask another friend for $15 - after this donatio...
10/14/2020

We are at day 9 of the 10 Days to T-Shirt Challenge!! Today's task is to ask another friend for $15 - after this donation you'll have raised $135! Let us know in the comments once you've completed day 9. Don't forget, in order to receive the Walk-N-Roll T-Shirt you have to raise $150.
Northern California https://bit.ly/30Nr3UA
Southern California https://bit.ly/30ISHlJ

Stay Tuned for our December Holiday Paint and Sip Date!
10/13/2020

Stay Tuned for our December Holiday Paint and Sip Date!

We are in the home stretch of the 10 Days to T-Shirt Challenge! It's officially day 8! Today we challenge you to ask a c...
10/13/2020

We are in the home stretch of the 10 Days to T-Shirt Challenge! It's officially day 8! Today we challenge you to ask a cousin for $15 - after this donation you'll have raised $120! Let us know in the comments once you've completed day 8. Don't forget, in order to receive the Walk-N-Roll T-Shirt you have to raise $150. If you're not registered for our National Day of Walk-N-Roll yet, it's not too late.
Northern California https://bit.ly/30Nr3UA
Southern California https://bit.ly/30ISHlJ

We are officially at day 7 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your sibling to donate $15 t...
10/12/2020

We are officially at day 7 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your sibling to donate $15 to your fundraiser. After they donate, you'll have raised $105 towards this year's Walk-N-Roll T-Shirt!
Let us know in the comments once you've completed day 6!
Don't forget, in order to participate in this challenge you have to be registered for your Walk-N-Roll.
---> https://bit.ly/2ZVokcr

Captain Lea Miranda for Team Simone StrongCaptain Chelsea Aguilar for Team Connor's Wingmen
10/11/2020

Captain Lea Miranda for Team Simone Strong
Captain Chelsea Aguilar for Team Connor's Wingmen

10/11/2020

Captain Joshua Bridgewater for Team PMA!
Captain Deanna Lorentz for Team Joseph
Captain Patti Jasinski for 3M: Mary's Merry Marchers

We are officially at day 6 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your sibling to donate $15 t...
10/11/2020

We are officially at day 6 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your sibling to donate $15 to your fundraiser. After they donate, you'll have raised $90 towards this year's Walk-N-Roll T-Shirt!
Let us know in the comments once you've completed day 6!
Don't forget, in order to participate in this challenge you have to be registered for your Walk-N-Roll.
---> Northern California https://bit.ly/30Nr3UA
---> Southern California https://bit.ly/30ISHlJ

We are officially at day 5 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your neighbor to donate $15 ...
10/10/2020

We are officially at day 5 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your neighbor to donate $15 to your fundraiser. After they donate, you'll have raised $75 towards this year's Walk-N-Roll T-Shirt!
Let us know in the comments once you've completed day 5!!
Don't forget, in order to participate in this challenge you have to be registered for your Walk-N-Roll.
---> Northern California https://bit.ly/30Nr3UA
---> Southern California https://bit.ly/30ISHlJ

We love #FundraisingFriday! Link your fundraising page to Facebook for optimal fundraising potential. Watch a tutorial h...
10/09/2020

We love #FundraisingFriday! Link your fundraising page to Facebook for optimal fundraising potential. Watch a tutorial here https://vm.tiktok.com/ZMJPjSyxn/.

We are officially at day 4 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your parents to donate $15 t...
10/09/2020

We are officially at day 4 of the 10 Days to T-Shirt Challenge! Today's challenge is to ask your parents to donate $15 to your fundraiser. After they donate, you'll have raised $60!
Let us know in the comments once you've completed day 4!!
Don't forget, in order to participate in this challenge you have to be registered for your Walk-N-Roll.
---> Northern California https://bit.ly/30Nr3UA
---> Southern California https://bit.ly/30ISHlJ

Address

PO Box 452194
Livermore, CA
94550

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Comments

I'm in southern California and I have extra peristeen enema kits that my son is no longer using so if anybody in the group could use them for their bowel management program please let me know.
Poll: Given the current COVID climate, come October, would you rather participate in an in-person WNR or a virtual WNR?
Hello everyone, I'm a spina bifida patient and a member of the advisory council for the Northern California chapter of SBA. One of the SB-related issues I am personally concerned about is the widespread use of latex products such as gloves. I am mildly allergic to it and know several other SB people with varying degree of latex allergies. As such, in collaboration with SBA, I am considering to craft a proposal advocating for the ban on latex products in common spaces, especially in, but not limited to, the food industry. Do you have any experience with it? If you do, please let me know. Thank you!
Hey guys would it be ok to Post My Wheelchair Fencing page to your site My Name is Jonathan Collins and i have Spina Bifida and Hydrocephalus and i am also a Wheelchair Fencer from the UK My aim is to show what it is Like to be an athlete with Both Conditions Please can I share My Wheelchair Fencing Page on your page to help spread the message if its not ok you can remove the post Many thanks Jonathan Collins https://www.facebook.com/WheelchairFencerJonathanCollins
Located in Southern California
I would like help (hopefully) clearing up some fears of mine. I was born with Spina Bifida Myelomeningocele and for the past few years I have been dealing with a recurring wound on the bottom of my foot. my primary care and podiatrist both think I would be better off with my leg. my main fear is that some of my friends have died after having amputation. is there anyone here who has had their leg amputated, and if so how was your recovery? also, if you know someone who has died after amputation, let me know.
NorCal WNR pictures
In California, 2.08 babies are born with Spina Bifida per 10,000 births. We believe information like this from research has the power to change lives. When you #WalkNRollForSB with us, you’re supporting Spina Bifida research that will improve the medical understanding of Spina Bifida throughout the lifespan. Have you registered for your Walk-N-Roll yet? Register today to make a difference in research and care!
What do you think of the 2019 Walk-N-Roll incentives? Every year we host a contest for a new Walk-N-Roll shirt design and Chapter leaders from across the country voted! If you raise $150 or more for your Walk-N-Roll, you’ll get a shirt of your own (or a baby onesie). #WalkNRollForSB Northern CA is coming up fast! Have you registered yet? www.walknrollforsb.org
We are only 3 weeks away from #WalkNRollForSB Northern California! We're looking forward to Mark Wellman's adaptive climbing wall at the event. Register TODAY so you can climb the wall yourself. http://www.sbevents.org/event/wnrnorcal
Hey Everyone would it be ok if i Shared My Wheelchair Fencing Disability Sports Video i have Spina Bifida and Hydrocephalus If its Not you can Remove it i hope you Find it Inspiring and you Enjoy it https://www.facebook.com/WheelchairFencerJonathanCollins/videos/1973980892861155/
Louis has been the top fundraiser at the Northern CA Walk-N-Roll for many years. As an adult with Spina Bifida, Louis understands the positive impact Walk-N-Roll for Spina Bifida has on the community. Louis is letting you in on all his fundraising tips and secrets to get you ready for the upcoming Walk-N-Roll season!