Epilepsy Foundation of Northern California

Epilepsy Foundation of Northern California The Epilepsy Foundation of Northern California is a 501(c)(3) charitable organization leading the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. www.epilepsynorcal.org
We are a nonprofit 501 (c) 3 organization and are supported by the generosity of the community to serve families affected by epilepsy. Since 1953, the Epilepsy Foundation of Northern California has provided information, services, and support to the 140,000 Northern Californian’s who experience seizures. We are one of more than fifty affiliates of the National Epilepsy Foundation and our mission is to ensure that people with seizures are able to participate in all life experiences. Although epilepsy is more common than Cerebral Palsy, Parkinson’s disease, and Multiple Sclerosis combined, public awareness of epilepsy is unacceptably low. This year, 200,000 Americans will be diagnosed with epilepsy. Only 30 percent of this population will have an identifiable cause of their seizures. And, many more will unnecessarily suffer the effects of epilepsy due to limited access to health services. Yet, the achievements in the epilepsy community must not be overlooked. Every day, scientists learn more about the brain, the origin of seizures, and innovative approaches to treating epilepsy. Public awareness is steadily improving on both a local and national level. We continue to maintain and expand our scope of services available to Northern Californian’s. All people living with epilepsy should attain the highest quality of life possible! Please help us continue this progress and get involved in the Northern California epilepsy movement.
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With everything that's been going on in the world, it can be even harder to get a good night's rest but it's vitally imp...
06/07/2020

With everything that's been going on in the world, it can be even harder to get a good night's rest but it's vitally important for your well-being. You can't fight the fight if you're not healthy.

Make sure you are getting enough rest so that you can continue taking action. Be kind to yourself and your #brain. Go to epilepsy.com/wellness to learn more how sleep can affect seizures in many different ways. #EndEpilepsy #Seizures #Epilepsy

Inviting our community members to share their story. We're here to listen, learn and help.
06/04/2020

Inviting our community members to share their story. We're here to listen, learn and help.

The Epilepsy Foundation supports everyone who advocates for justice. We stand with all communities of color in the fight against inequality and health disparities. We know that together, we can build a better, safer, and more positive society for everyone. Tell us how you are helping others right now in your community.

To all the members of our NorCal epilepsy community - we're only a phone call away if you need help, support or a friend...
06/04/2020

To all the members of our NorCal epilepsy community - we're only a phone call away if you need help, support or a friendly voice. We're Carlos, Miriam and Cendy and we're here for you.

Call 800-632-3532

This Wednesday, join us for the Parent and Caregiver Virtual Support Group meet-up on Zoom. Chat with people who underst...
06/02/2020

This Wednesday, join us for the Parent and Caregiver Virtual Support Group meet-up on Zoom. Chat with people who understand what's involved in caring for a loved one with epilepsy. Come with questions, answers or just for support and friendship - we'd enjoy having you as part of the group.

For times and the link to join us visit https://www.epilepsynorcal.org/support-groups/

Have you taken the 1 in 26 Workout Challenge yet? You'll feel better physically while helping support the Epilepsy Found...
05/29/2020

Have you taken the 1 in 26 Workout Challenge yet? You'll feel better physically while helping support the Epilepsy Foundation of Northern California.

How many of these "26" reps can you complete? Give it a try (even if you can only do a few reps of one) and post a picture or video on social media with the hashtag: #26RoundsToFightEpilepsy!

Tag 5 friends and challenge them!

And if you can, make a donation of $26 (more if you can/less if you need) to the Epilepsy Foundation of Northern California. We have been forced to postpone our in-person 26 Rounds fundraising events so we need this to help offset that loss

BONUS! Do you know why the workout is called “1 in 26”?* Be sure to let people know the answer in your post.

1 in 26 Workout:

26 squats

26 plank walkouts

26 hip escapes

26 bridge reach

26 pushups

26 side plank reach throughs

26 sprawls

26 jab, cross

26 jab, cross, hook, cross

26 uppercuts

26 elbows

26 double knees

26 middle/roundhouse kick

26 switch middle/roundhouse kick

26 front kicks

26 foot jabs

26 back fall/technical get up

26 hip sweep sit ups

26 folding chair triangles

26 sit outs

26 superman arch ups

26 ball up to hollow hold

26 mountain climbers

26 jumping jacks

26 high knees

26 sit ups

By popular demand, we are taking on more members for another round of Art Therapy Sessions. The classes are free and tak...
05/28/2020

By popular demand, we are taking on more members for another round of Art Therapy Sessions. The classes are free and take place every Saturday starting at 10:30 PST via Zoom.

Get creative! It's relaxing and therapeutic and can help during these times of isolation.

To apply, visit https://www.epilepsynorcal.org/events/artadult2020/

"There are many things I have accomplished in my 13 years of life. My biggest accomplishment however, is learning to dea...
05/28/2020

"There are many things I have accomplished in my 13 years of life. My biggest accomplishment however, is learning to deal with my seizures.

Seizures are big things in my brain and I have to take medicine everyday. 1 in 26 people have Epilepsy and that makes me special even though it can be scary sometimes. In conclusion, I think that my Epilepsy makes me a stronger person. "
-- Levi

What is your greatest accomplishment in life so far?

Thinking of those we lost in the fight for freedom.
05/25/2020

Thinking of those we lost in the fight for freedom.

05/25/2020
Jennifer Reyes Spotlight - A professional navigating living with Epilepsy

In this month's Spotlight Video, Jennifer Reyes gives us a quick synopsis on how she navigates her professional career and her challenges living with epilepsy. She also talks about the importance of advocacy and getting involved supporting the community.

When you're over on YouTube, please consider subscribing. Our goal is to get to 100 subscribers before next month's video, so tap the button! We'd appreciate it.

Jennifer Reyes gives us a quick synopsis on how she navigates her professional career and her challenges living with epilepsy. She also talks about the impor...

Levi Valentine - Epilepsy Hero!Journal prompt May 21, 2020What is your greatest accomplishment in life so far?"There are...
05/22/2020

Levi Valentine - Epilepsy Hero!
Journal prompt May 21, 2020

What is your greatest accomplishment in life so far?

"There are many things I have accomplished in my 13 years of life. My biggest accomplishment m however, is learning to deal with my seizures. Seizures are big things in my brain and I have to take medicine everyday. 1 in 26 people have Epilepsy and that makes me special even though it can be scary sometimes. In conclusion, I think that my Epilepsy makes me a stronger person."

Thanks Levi for sharing.

I tell everybody the story of how I went to camp last year, thinking I could be an excellent mentor to many kids living with epilepsy. It only took a few hours to figure out that I was there to learn from them about the lessons in life that only kids living with epilepsy can teach us. Levi’s journal entry is a lesson we all need to learn from. After my few years at the Foundation, I am starting to understand better the challenges kids like Levi have to face every day. To meet those challenges and actually acknowledge how they make you stronger at age 13 is amazing. We all have to learn from Levi, I sure do.

Levi, you made my day!

Carlos
CEO EFNC

#epilepsy #epilepsynorcal #endepilepsy #epilepsyawareness

HOY!!La Fundación de Epilepsia del Norte De California, les invita a participar en nuestro grupo de apoyo virtual. El gr...
05/21/2020

HOY!!

La Fundación de Epilepsia del Norte De California, les invita a participar en nuestro grupo de apoyo virtual. El grupo se llevara acabo cada tercer Jueves del mes, a las 4pm de la tarde. Solo haga click aquí para participar por zoom: https://zoom.us/j/6796448783

Si necesita ayuda con su conexión, favor de llamar al 510-922-8687

Now, more than ever, the people in our community need support from people who understand their unique situation. Our in-...
05/19/2020

Now, more than ever, the people in our community need support from people who understand their unique situation. Our in-person meetups have been put on hold, but that's not going to stop us from getting together - we're just going to do it online! .

Whether you need advice and resources or just a friendly voice, we have a virtual support group to suit. All you need is internet access through a computer or mobile phone. We'll be using Zoom conferencing which is free and easy. Just log on during any of our virtual support group meeting times and chat live with the whole group. .

For times and the link to join us, please click the link in our bio and navigate to the Support Group page under "Programs". We hope to "see" you online real soon. .
#epilepsy #epilepsyawareness #epilepsyfdnnorcal #epilepsynorcal #virtualsupportgroup #stayhome #supportgroup #socialdistancing

Did you know that viewing and engaging in the arts can have a positive impact on your brain? Join us online this Saturda...
05/19/2020

Did you know that viewing and engaging in the arts can have a positive impact on your brain? Join us online this Saturday, May 23rd at 10:30 for 'An Introduction to Art and Neuroscience' where we'll be talking about how art therapy is being used in hospitals and we'll discuss art exercises that you can do at home to promote relaxation.

The webinar is free, just email [email protected] to register

https://www.epilepsynorcal.org/events/an-introduction-to-art-and-neuroscience/

Dealing with epilepsy was hard enough and then the virus turned our world upside down. It's a lot to handle but no matte...
05/18/2020

Dealing with epilepsy was hard enough and then the virus turned our world upside down. It's a lot to handle but no matter how dark your world is right now, there are bright spots if you take the time to find them and enjoy them. Maybe it's a phone call with a friend, a flower growing in your garden, a food that reminds you of your childhood - find that tiny sparkle and let it lift you up if only for a day, an hour or a few minutes.

What is the star in your dark sky? Leave us a comment and let us know.

05/14/2020
1 in 26 Workout Fundraiser

Feeling a bit lethargic at home? Take the 1 in 26 Workout Challenge! You'll feel better physically while helping support the Epilepsy Foundation of Northern California.

1 in 26 Workout Fundraiser! Make a donation to support our programs at https://impact.epilepsynorcal.org/1in26Workout

This video dedicated to Levi Valentine!!! Thanks Karen and Mike Valentine and Practical Martial Arts in Costa Madera for your continous support.

Feeling a bit lethargic at home? Take the 1 in 26 Workout Challenge! You'll feel better physically while helping support...
05/13/2020

Feeling a bit lethargic at home? Take the 1 in 26 Workout Challenge! You'll feel better physically while helping support the Epilepsy Foundation of Northern California.

How many of these "26" reps can you complete? Give it a try (even if you can only do a few reps of one) and post a picture or video on social media with the hashtag: #26RoundsToFightEpilepsy!

Tag 5 friends and challenge them!

And if you can, make a donation of $26 (more if you can/less if you need) to the Epilepsy Foundation of Northern California. We have been forced to postpone our in-person 26 Rounds fundraising events so we need this to help offset that loss

BONUS! Do you know why the workout is called “1 in 26”?* Be sure to let people know the answer in your post.

1 in 26 Workout:

26 squats

26 plank walkouts

26 hip escapes

26 bridge reach

26 pushups

26 side plank reach throughs

26 sprawls

26 jab, cross

26 jab, cross, hook, cross

26 uppercuts

26 elbows

26 double knees

26 middle/roundhouse kick

26 switch middle/roundhouse kick

26 front kicks

26 foot jabs

26 back fall/technical get up

26 hip sweep sit ups

26 folding chair triangles

26 sit outs

26 superman arch ups

26 ball up to hollow hold

26 mountain climbers

26 jumping jacks

26 high knees

26 sit ups

Nasal Rescue Medicines
05/11/2020
Nasal Rescue Medicines

Nasal Rescue Medicines

Learn who can use it, about packaging and dose, how long it takes to work, side effects, and monitoring.

05/10/2020
Happy Mother’s Day

Happy Mother’s Day from all of us at the Epilepsy Foundation of Northern California.

Here's a giant THANK YOU to all of the nurses working in hospitals, homes and everywhere in between. We don't have the w...
05/06/2020

Here's a giant THANK YOU to all of the nurses working in hospitals, homes and everywhere in between. We don't have the words to tell you what your dedication means to our community right now. It's our hope that when all is done, you'll have some time to relax and recharge - you've earned it.

Help us celebrate the mothers in our community by submitting a short video message thanking your mom for all she's done....
05/06/2020

Help us celebrate the mothers in our community by submitting a short video message thanking your mom for all she's done. Videos must be under 30 seconds and you can submit them as a Direct Message here on Facebook or text them to 510-922-8687 - Deadline Saturday, May 9th. We'll share your videos on our social accounts on Mother's Day.

It's good to talk with new people every week! We have several virtual support group meeting each month designed to fit a...
05/05/2020

It's good to talk with new people every week! We have several virtual support group meeting each month designed to fit a variety of people whose lives are affected by epilepsy.

Coming Up:
Parents/Caregivers Support Group – May 6th at 10am
School aged Support Group – May 12th at 11am
Spanish Support Group – Every Third Thursday of the Month at 4pm
Adults Support Group – Every Second and Fourth Friday of the Month at 5pm

For more information on virtual support groups schedules and information on how to join visit: https://www.epilepsynorcal.org/support-groups/

Be Prepared! Join us for our virtual Seizure First Aid training class tomorrow, Tuesday May 5th at 2pm. Because you neve...
05/04/2020

Be Prepared! Join us for our virtual Seizure First Aid training class tomorrow, Tuesday May 5th at 2pm. Because you never know when you're going to need to know.

It's free! Get the details here: https://www.epilepsynorcal.org/trainingseducation/

By popular demand, we are taking on more members for another round of Art Therapy Sessions. The classes are free and tak...
05/01/2020

By popular demand, we are taking on more members for another round of Art Therapy Sessions. The classes are free and take place every Saturday starting at 10:30 PST via Zoom. Get creative! It's relaxing and therapeutic and can help during these times of isolation.

To apply, visit: https://www.epilepsynorcal.org/events/artadult2020/

"I can’t go to the gym. In light of everything that’s going on in the world, this seems like a ridiculous thing to even ...
04/30/2020
Learning to adapt

"I can’t go to the gym. In light of everything that’s going on in the world, this seems like a ridiculous thing to even mention. It’s not like the gym is essential! You can work out at home and walk or ride a bike, so what the big deal? Read on for this week's blog and find out!" -- Miriam https://ironman.epilepsynorcal.org/2020/04/22/learning-to-adapt/

Learning to adapt Leave a Comment / BLOG / By Miriam I can’t go to the gym. I know, in light of everything that’s going on in the world, this seems like a ridiculous thing to even mention. It’s not like the gym is essential! You can work out at home and walk or ride a bike, so what the big dea...

04/30/2020
Epilepsy Foundation of Northern California - Parent Spotlight

Epilepsy affects not only you as an individual but it also affects the people in your life. From family members, to friends and coworkers, having the support of those around you can make a big difference. In this spotlight video, Sabrina's dad talks about what it's like being a parent to a child with epilepsy and what parents can do to help their children lead a better life. https://youtu.be/4JzyQOneCV8

Epilepsy affects not only you as an individual but it also affects the people in your life. From family members, to friends and coworkers, having the support...

***PAID RESEARCH STUDY NEEDS PARTICIPANTS***Researchers at Fort Hays State University are currently conducting a PAID te...
04/27/2020

***PAID RESEARCH STUDY NEEDS PARTICIPANTS***

Researchers at Fort Hays State University are currently conducting a PAID telehealth study that is designed to measure the efficacy of Ashtanga yoga at reducing seizure frequency and improving quality of life.

Eligible participants will practice yoga in their homes and then be asked to measure heart rate variability using a non-invasive finger sensor. The study will last 8 weeks and will require 30 minutes a day for the yoga session (via video) plus the time to fill out the required documentation after each session.

Participants who complete the study will receive $120.

For more information and to see if you are eligible, contact Dr. Whitney Whitaker via
email ([email protected]) or phone (785-628-4537)

Think you know what to do when someone has a seizure? Not sure? No idea? Join us on Tuesday, April 27th at 2pm PST for a...
04/23/2020

Think you know what to do when someone has a seizure? Not sure? No idea? Join us on Tuesday, April 27th at 2pm PST for a virtual training class on seizure first aid. Be prepared because you never know when you'll need what you've learned.

Visit our website for details: https://www.epilepsynorcal.org/trainingseducation/

The Stanford Medicine Annual Epilepsy Family Conference is going online! Join us this Saturday, April 25th from 8:30 to ...
04/22/2020

The Stanford Medicine Annual Epilepsy Family Conference is going online! Join us this Saturday, April 25th from 8:30 to 1:00 pm for a chat with a variety of topics including Epilepsy Genetics, Neurostimulation, EGG and MEG, big data in epilepsy care and more. Filmmaker Miles Levin will also be on hand to talk about fighting the epilepsy stigma through cinema.

The conference is free and you do not need to register to join. Just join us via the zoom link on Saturday morning and you're in! https://stanford.zoom.us/j/525231900

For more information visit: https://www.epilepsynorcal.org/events/pediatricannualstanford/

Think you know what to do when someone has a seizure? Not sure? No idea? Join us on Tuesday, April 21st at 2pm PST for a...
04/20/2020

Think you know what to do when someone has a seizure? Not sure? No idea? Join us on Tuesday, April 21st at 2pm PST for a virtual training class on seizure first aid. Be prepared because you never know when you'll need what you've learned.

Visit our website for details: https://www.epilepsynorcal.org/trainingseducation/

Sarah Vital wrote a poem about her life with epilepsy as part of our art therapy program and we're proud to share her wo...
04/18/2020

Sarah Vital wrote a poem about her life with epilepsy as part of our art therapy program and we're proud to share her work with you. We hope it will inspire you to try your hand at poetry, fiction or even essay writing. It can really help when you're trying to make sense of the world.

"I Am From Epilepsy"

I am from epilepsy

Jagged sparks dancing in my brain

Uncertainty,

A shadowy and unwelcome companion

Follows me

Bearing the offerings of

fear and embarrassment.

Time slips away in a haze

And with it,

My dreams



I am from epilepsy

A repository of resilience

Unstoppable

In the face of ever-transforming circumstance

A flood of joy washing over me

As I am alive in every moment



I am from epilepsy

Kindness envelopes me

And gratitude, like a flower

Blooms in unexpected places.


-Sarah Vital

For those who understand what it's like to be seen only as "a person with epilepsy", rather than as "a person".
04/15/2020
Don’t Let Fear of Covid-19 Turn into Stigma

For those who understand what it's like to be seen only as "a person with epilepsy", rather than as "a person".

When a disease is stigmatized, people are less likely to get tested or treated.

Time for your kids to meet our kids -- virtually! Join us on every 2nd Tuesday of the month (that's April 14th this mont...
04/12/2020

Time for your kids to meet our kids -- virtually! Join us on every 2nd Tuesday of the month (that's April 14th this month) at 11am for an online meetup of kids with epilepsy. Join us on Zoom using your mobile phone, tablet or computer. Webcams are optional. Visit our website for details. https://www.epilepsynorcal.org/support-groups/

REMINDER REMINDER REMINDEROur virtual meetup group for adults with epilepsy starts at 5pm PST TONIGHT. All you need is i...
04/10/2020

REMINDER REMINDER REMINDER

Our virtual meetup group for adults with epilepsy starts at 5pm PST TONIGHT.

All you need is internet access through a computer or mobile phone. We'll be using Zoom conferencing which is free and easy. Just log on during any of our virtual support group meeting times and chat live with the whole group.

Log on at five using this link: https://zoom.us/j/6796448783

Or go to our website for more details: https://www.epilepsynorcal.org/support-groups/

Address

1736 Franklin Street, Ste. 450
Oakland, CA
94612

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

(510) 922-8687

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INTERNATIONAL EPILEPSY DAY FEBRUARY 10th, 2020 Both my service dog, named: "Zern" and I appeared on Central Valley Talk yesterday to talk about "International Epilepsy Day" which will be happening next Monday, February 10th. Here is a video from "Central Valley Talk":
We are looking for a trainer or an alert dog for our 7 yr old. Any info would be appreciated.
** Stranger Things Seizure Trigger Warning** This season was packed with tons and tons of flashing lights! I found it hard to watch most of the episodes/scenes. Episode 7 and 8 was the worst for me. HIGHLY advised watching with precautions. DO NOT force yourself or those with flashing light sensitivity to watch!! 💞💖💖💖
Hello, Seizario is a mobile app for seizure & fall detection, helping people in emergencies by sending SMS to family or care givers for help. It won the Epilepsy foundation's innovation award (in San Francisco). Now available on Google Play! Best Wishes to all!
I wanted to share with everyone that I got to be on the cover of a magazine and share my story and experiences with the photographer. #HypothalamicHamartomaSurvivor Capture the moments and smile 😃
3 years seizure free today!
Never Give up💜💜😊😊
I got featured In my local newspaper online. I’m an HH survivor and got bullied all throughout school. Here’s the link: https://patch.com/california/dublin/dublin-woman-who-survived-brain-tumor-bullying-writes-book. There is no excuse to bully others - just be kind to one another!
This is really strange to ask ... I’m sorry🤦🏻‍♀️ but would anyone want to hang out one day, I’m looking for friends , and to have this in common, and just someone to talk to , would be great. If you live in L. A county I’d love to meet and if your farther , I’m here to talk :)
It was our belief my husbands seizures were controlled for a year and a half. His employer never informed us that he had blanked out at work. My husband does not experience auras before a seizure so there was no way for us to know this was going to happen. I feel they judged my husband on the idea that individuals with epilepsy should not drive and this is discrimination! The analogies they used at my husbands trial could be used for anybody, but the Prosecutors prejudice ideas made an impact on the jury's decision. We have all come to a time when driving and have been cut off on the freeway. Should that driver be driving? Sometimes completely normal individuals are threats to public safety and what is the DMV doing about this? Is the DMV keeping our roadways safe? On the news we always hear about impaired drivers causing fatal accidents and what do they get charged with; vehicular manslaughter which holds a 6 year sentence. The DA of yolo county has claimed harsher punishment on impaired drivers but in reality they punish harsher individuals who had no choice in the matter. My husband has epilepsy and on his way home he has a seizure behind the wheel. He gets charged with 2nd degree murder. Sentenced to 18 years 9 months to life. #stop discrimination #epilepsy awareness #mercy for Armando A Gonzalez #Epilepsy Foundation #national innocence project #wrongful conviction #we need change in yolo county
Hi everyone! I am excited to share with you that I made an appearance on the news and was able to open up and share about my life story and book. Here is the link: https://gooddaysacramento.cbslocal.com/video/4040002-sierra-crislip/ Thank you!!
I just mailed some of my book's to be donated to your foundation! Thank you for letting me share my story! :)