We are a nonprofit 501 (c) 3 organization and are supported by the generosity of the community to serve families affected by epilepsy.
Since 1953, the Epilepsy Foundation of Northern California has provided information, services, and support to the 140,000 Northern Californian’s who experience seizures. We are one of more than fifty affiliates of the National Epilepsy Foundation and our mission is to ensure that people with seizures are able to participate in all life experiences. Although epilepsy is more common than Cerebral Palsy, Parkinson’s disease, and Multiple Sclerosis combined, public awareness of epilepsy is unacceptably low.
This year, 200,000 Americans will be diagnosed with epilepsy. Only 30 percent of this population will have an identifiable cause of their seizures. And, many more will unnecessarily suffer the effects of epilepsy due to limited access to health services.
Yet, the achievements in the epilepsy community must not be overlooked. Every day, scientists learn more about the brain, the origin of seizures, and innovative approaches to treating epilepsy. Public awareness is steadily improving on both a local and national level. We continue to maintain and expand our scope of services available to Northern Californian’s. All people living with epilepsy should attain the highest quality of life possible! Please help us continue this progress and get involved in the Northern California epilepsy movement.
The Epilepsy Foundation of America shared some great news with us this morning. Passing it along.
The Administration has pulled back harmful provisions that would have impeded access to anticonvulsants for Medicare beneficiaries.
League of Legends, an extremely popular video game, has a special mode for players who are colorblind. But now it's time for the game's maker to seriously consider a photosensitive mode to protect players with epilepsy.
Yesterday, a League of Legends player posted on the game’s forums to complain that a new animation was causing problems for those suffering from epilepsy. One of the game’s designers then apologized, noting that they didn’t have “time or bandwidth” to implement a toggle so that players cou...
We're making magic and balloon animals at this year's Stroll for Epilepsy Awareness. Join us for an afternoon of family fun, meet the magician, hang out with the cartoon characters all while raising money for the Epilepsy Foundation of Northern California. Visit our website for more details. Hope to see you there!
If you're in the Fresno area and you have a child with epilepsy, join the Easter Seals Pediatric Epilepsy Support Group. This month's meeting s on May 16th from 5:30 to 7:30.
Location: East Medical Plaza Building
2335 E Kashian Lane, Fresno
3rd Floor Reception Area.
For more information, contact the group leader Ken Hutchinson at 559-824-2959.
Thank you Karen and Mike Valentine and Practical Martial Arts for another 26 Rounds to Fight Epilepsy. You helped us raise funds for the Epilepsy Foundation of Northern California programs. Thank you the Team from Salesforce to participate, you all rock!
Need to talk with people who understand epilepsy? Join the Adults with Epilepsy & Caregivers Group
When: Wednesday, May 15th from 6 to 8 p.m.
Where: California Pacific Medical Center, Spivey Room 106, 2100 Webster Street, #SanFrancisco
For More Information: Call Diane at 415-751-1907
#epilepsysupport #livingwithepilepsy #epilepsy #epilepsyawareness #epilepsyfdnnorcal #epilepsynorcal
This month, the Epilepsy Support Group "Eric's Corner" will be discussing The Importance Nutrition and Diet during the upcoming May 16 meeting. The meeting begins at 6:30 at the Valley Care Health Library in Pleasanton.
If you plan to attend, please RSVP to: [email protected] with your name and number of people in your party.
Families, Friends, Supporters, and Individuals with Epilepsy - join us at the Shower of Blessings Church, 2200 A Street, Unit B Antioch, CA this Thursday, May 16 from 6:30-7:30 PM.
Everyone is welcome, and you can reach the group leader, Virginia Phillips at 415-573-4810.
Join NeuroPace RNS System for Epilepsy on May 14th for a free educational webinar. The event will be hosted by Dr. Patricia Dugan, an epilepsy specialist at NYU Langone Health, and Martha, an RNS Ambassador who is benefiting from the therapy.
Register now, it's FREE: https://www.neuropace.com/patient-events
We have a few slots left in our Summer Art Therapy program for children living with epilepsy. The program is open to kids 9-17 and it runs for four Saturdays through July and August at our offices in Oakland.
Spaces are extremely limited, so don't wait. Enroll your child today! http://www.epilepsynorcal.org/events/art/
#arttherapy #epilepsy #epilepsyawareness #kidswithepilepsy #specialneedsmom
RESEARCH: Epilepsy/autism ratio in boys vs. girls
The ratio of autistic boys to girls is roughly the same among children with epilepsy, according to a new meta-analysis.
PLEASE NOTE: This month's meeting has been canceled as the leader is a bit under the weather. But mark your calendar for next month on June 12.
Need to talk with people who understand epilepsy? Join the Sacramento Adult Support Group out of Mercy General Hospital.
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When: Wednesday, May 8th from 6 to 7:30 p.m.
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Where: Mercy General Hospital, Greenhouse A Conference Room, next to the cafeteria
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For More Information: Call Angie at 916-930-9252
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#epilepsysupport #Sacramento #livingwithepilepsy
She had her first seizure during a dance class when she was 16, now she's mesmerizing the world as a finalist on World of Dance. Read Briar Nolet's inspiring story.
She’s sharing the full story for the first time.
We don't want to 'Bugs' you, but missing our annual Epilepsy Awareness Stroll would be positively Daffy! We'll be strolling with all of our pals on Saturday, May 18th at Six Flags Discovery Kingdom. To join the fun, click the events tab.
While you're here, say hi with the name of your favorite cartoon character so we can all share a smile.
The Mountain View Epilepsy Support Group is meeting tonight, May 2 from 7-9pm at the El Camino Hospital Group, YMCA Building, Basement Room K, 2400 Grant Rd., Mountain View, CA 94040.
Steve Forbes is leading the meeting and he'd be happy to have you join. If you need more information or the address of a support group near you visit: http://www.epilepsynorcal.org/support-groups/
On day one or day 100, we understand. Apply for the Peer2Peer program and we'll connect you with a parent, a teacher, a support group leader or a member who can relate to where you are in your journey. You don't have to go it alone.
Sign up at: http://www.epilepsynorcal.org/peer2peer
You can't undo the past but you can change tomorrow's ending..
SpeakupSpeakOut! Go Teens Go!
Today the Epilepsy Foundation was joined by over 40 teens from across the United States, staff from local Epilepsy Foundations, and volunteers on Capitol Hill to #SpeakUpSpeakOut for epilepsy awareness and research funding! This amazing group of young adults visited legislators to tell their personal stories and discuss the importance of funding epilepsy research and programs at the Centers For Disease Control (CDC), implementing step therapy reforms, preserving the Six Protected Classes, and supporting safe and legal access to cannabis and cannabidiol (CBD). Thank you to these young advocates and everyone that participated in the visits on Capitol Hill today! #TSU2019
#Epilepsy treatment is not one size fits all. If your seizure meds are not working, it may be time to learn about a new treatment option for adults with focal epilepsy. Join the RNS Community Chat on 5/14 to learn about the RNS System. http://ow.ly/r7nX50trAw1
EPILEPSY SUMMER CAMP: WHERE KIDS CAN BE KIDS
While on her journey to find seizure control, Meg volunteered at a summer camp for children with cancer. This inspired Meg to create a new camp experience, where kids with epilepsy can be active and talk about their condition openly with peers.
http://ow.ly/rwAr50sXHr2
We offer free Seizure First Aid Training. Our presentation topics include Epilepsy 101, identification of seizures types, and basic first aid tactics. Does your school or business need training need training Email us at [email protected]
http://www.epilepsynorcal.org/trainingseducation/
Arcata Support Group
City of Arcata,Library Conference Room 500
7th Street Arcata, CA 95521
1st Wednesday 5:30-7:00 PM
Gabriel Brody
[email protected]
Have faith what will be
BMJ Journal: Gurugram docs help girl with epilepsy to eat after a year:
The BMJ Journal explains abdominal epilepsy as a rare, genetic condition, mostly in children, and is one of the very rare causes of abdominal pain.
Making diagnosis for it can be challenging, and Suleman’s journey to get better faced several misdiagnoses.Ikhlas Suleman’s pain was distributed mainly in the upper central region of the abdomen, and would last for more than 20 minutes each time she suffered an episode. Read more http://ow.ly/pMEA50rnK0a
Remember - OPEN WEBINAR Calling all chatters!
Join Us On Thursday, May 2, 2019, From 5:00 To 6:00 P.M. PT For An Open Chat.
Host Patty Osborne Shafer, epilepsy nurse specialist and senior director of health information and resources, will answer questions and introduce our new wellness team members:
Cate Brocker, executive director of the Wellness Institute
Hillary Dolloff, community manager
http://ow.ly/g0MS50tbZ1d
Fatigue and Epilepsy
Unaware of seizures that may occur when sleeping, those with epilepsy may often feel fatigue as a state of being tired—not sleepy, but physically exhausted which has an impact on daily life.Managing how to cope with fatigue is best done alongside others who understand what you are going through.
On MyEpilepsyTeam, the social network and online support group for those living with epilepsy, members talk about a range of personal experiences and struggles. Fatigue is one of the top 10 topics most discussed.
http://ow.ly/N5wX50sXFw9
The “Peer2Peer” program provides 1:1 support to individuals living with epilepsy. A Mentor can make the world of difference as living proof that life does not end with epilepsy.
Would you like someone to talk to ?Learn more: http://ow.ly/SQMi50qla2q
Join us May 18th! Share this flyer with your friends and family! On your social media or email it ! We need everybody we can get to make this the best Stroll /Walk ever!
Learn to rest- not give up
Epilepsy Foundation of Northern California's cover photo
Epilepsy Foundation of Northern California's cover photo
Thank you to all that participated in the 26 Rounds today!
Learn more about SUDEP :People who continue to have seizures are at greater risk of a number of complications, which is why preventing seizures and other problems is so important. The most serious complications are injuries and dying from seizures. This section gives frank information about one of the more common causes of dying from seizures called “Sudden Unexpected Death in Epilepsy,” which is abbreviated SUDEP. http://ow.ly/XWVM50sXDA0
SUDEP KNOWLEDGE:People living with epilepsy should be aware of their risk for sudden unexpected death in epilepsy (SUDEP). We believe the more information you have, the more empowered you will feel to manage your epilepsy and risks. To help you find the best care and know what questions to ask your health care provider, the Epilepsy Foundation's SUDEP Institute has created a new flyer, "SUDEP: Knowledge is Power." Take it to your next provider appointment and start talking about your risk. Download the flyer here: http://ow.ly/svwZ50sWimy
What is Responsive Neurostimulation?
Dr. Vikram Rao of the University of California, San Francisco, describes the RNS System, including who it may help, how safe and effective it is, how it works to reduce seizures, and how it may help with diagnosing seizures and seizure forecasting research.
http://ow.ly/33EV50szjjs
Bring your cast of characters to 6 Flags Discovery Kingdom- and join us for a fun filled family day raise funds and help spread Awareness about epilepsy! May 18th ! #27thAnnualEpilepsyAwarenessStroll
http://ow.ly/fVxA50rnYBv
Be the reason someone smiles today. Thank you in advance for your support and kindness !
http://ow.ly/2wLi50rfb42
Chat About
A Q&A with the Epilepsy Foundation
Join a live, Q&A, text-based chat with our wellness team on Thursday, May 2, 2019, at 5 p.m.
Find out how »http://ow.ly/iJc750szgbt
Seizure First Aid Spots in Movie Theatres
Greg Grunberg, co-founder of Talk About It! and his friends got together to make sure everyone knows seizure first aid. Check out Screenvision Media spot running in 10,000 movie theatres. Share with your friends.http://ow.ly/9gyi50szdnW
Dentistry and Seizures-
During a seizure, a person may bite the tongue, lips, and cheeks. They may have possible fracturing or breaking of teeth. The temporomandibular joint can be affected, as well as damage to the periodontal ligaments of the dentition. Bruising of the lateral border of the tongue is apparent in the picture. The person was wearing upper and lower custom mouth guards.
Dental considerations and treatment
It is extremely important that a dental patient taking anticonvulsant drugs maintain immaculate oral hygiene with proper brushing and flossing. Frequent recall appointments are needed to maintain proper biofilm removal and reduce the risk of developing gingival hyperplasia.
During periodontal procedures, a person taking valproate may have increased bleeding. It is recommended that the person have blood levels checked before beginning periodontal treatment.
~A person taking anticonvulsant drugs may experience xerostomia. ~Oral moisturizing rinses can be recommended.
~Mouth guards can be helpful to prevent a person from severely biting the tongue, lips, and cheeks.
https://www.dentistryiq.com/articles/2019/04/nocturnal-epileptic-seizures-and-their-oral-complications.html
Only One more Day Until 26 Rounds!
Fight for the 1 in 26 who fight epilepsy every day
April 28, 2019
9:00 am - 12:00 pm
Location
Practical Martial Arts
5768F Paradise Dr.
Corte Madera CA
There is still time to donate to a team!
https://practicalmartialarts.net/programs/26rounds/
Give yourself time
Although treatment-resistant epilepsies are rare, there are a growing number of resources helpful for these conditions. To make it easier to access, Take on Rare Epilepsy has organized this information in one central and convenient location:
https://www.takeonepilepsy.com/expert-resources#federal-and-state-programs
Will I Always Have Seizures?
About 6 out of 10 people diagnosed with epilepsy can become seizure free within a few years with proper treatment. Many of these people will never have any more seizures. For the rest of the people, some will have occasional breakthrough seizures or side effects of medicines and others will have uncontrolled seizures.
If you are still having seizures after 1 year or after trying 2 seizure medicines, it is time to see an epilepsy specialist.
http://www.epilepsynorcal.org/doctors-centers/
Bring your families and friends and lets make this the biggest stroll ever! let's walk to raise funds for our programs and support and spread awareness about epilepsy in Northern CA. May 18th Six Flags Discovery Kingdom. Let's bring it on!http://ow.ly/Skag50riDnn
1736 Franklin Street, Ste. 450
Oakland, CA
94612
| Monday | 09:00 - 17:00 |
| Tuesday | 09:00 - 17:00 |
| Wednesday | 09:00 - 17:00 |
| Thursday | 09:00 - 17:00 |
| Friday | 09:00 - 17:00 |
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Thank you Karen and Mike Valentine and Practical Martial Arts for another 26 Rounds to Fight Epilepsy. You helped us raise funds for the Epilepsy Foundation of Northern California programs. Thank you the Team from Salesforce to participate, you all rock!
Are you comfortable providing Seizure First Aid? We can help. The Epilepsy Foundation of Northern California provides free Seizure First Aid Training to schools, organizations, families and individuals. Contact us at [email protected] to request a training session.
November is Epilepsy Awareness Month. Help the Epilepsy Foundation of Northern California support the 180,000 people living with epilepsy in Northern California. Visit www.epilepsynorcal.org
November Epilepsy Awareness Month
November Epilepsy Awareness Month! Buy tickets for our Gala this Saturday at http://www.epilepsynorcal.org/2018Gala
We are live with Dr. Meador, epilepsy specialist at Stanford University. The topic this evening is Women & Epilepsy. Listen in and ask your questions in the comments section! There will be plenty of time for questions at the end of the talk.
November is Epilepsy Awareness Month. Do you have a brain?
Send a Child to Camp! Participate on the 2018 Gala!
We are live with Dr. David King-Stephens, Director of the Sutter Pacific Epilepsy Program. Listen to hear him speak on the important topic of The Level 4 Epilepsy Center - When & Why Go for Evaluation? Comment below with your questions!
Enjoying CARNIVAL at Camp Coelho!!
We're Live! Watch Dr. Josiah Ambrose, the Director of the Epilepsy Center at Kaiser Redwood City, discuss the surgical evaluation process at a Level IV Epilepsy Center. There will be time for Q&A at the end of his talk, please type your questions into the comments section below!
Hot? Check THIS out!!
Kicking off Camp Christopher!!
Hundreds gathered to raise epilepsy awareness! Started Stroll 26 steps BACKWARDS. . . Challenge accepted and done Boston Backwards!
Strollin for epilepsy awareness! Started walking BACKWARDS #26StepsBackwards. Challenge accepted and done Boston Backwards!!
2018 Stroll!!!!!
You're watching Dr. Masud Seyal, an epilepsy specialist at UC Davis Medical Center, discuss SUDEP - Sudden Unexpected Death in Epilepsy. Ask your questions in the comment section below!
RC crawl in action! Thx Wethands Brand for a great day!
The Epilepsy Foundation of Northern California and NeuroPace invite you to attend the first in a series of free educational webinars about epilepsy. In this webinar, Dr. Vikram Rao, epilepsy specialist at UCSF, will discuss neuromodulation, VNS and RNS, as treatment options for drug-resistant epilepsy.
Thank you Quaski and the San Francisco 49ers for helping us to spread epilepsy awareness! Wishing you a speedy recovery <3
Thx for the shout out San Francisco Giants!
The campers are still having a blast! :)
Yesterday the campers enjoyed yoga, pool time, and team-building games! If you'd like to help support these amazing kids with scholarships please click here: https://www.classy.org/campaign/send-a-kid-to-camp/c83107
East Bay Interfaith Immigration Coalition (EB
1814 Franklin StAllscan LIVE SCAN Fingerprints
505 - 14th Street #900California Association of Food Banks
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388 19th StACS California Youth Against Cancer
American Cancer Society California Division, 1710 Webster St.
Californians For Justice - Oakland
520 3rd St, Ste 209
East Bay Housing Organizations
538 9th St, Ste 200
Alameda County Community Food Bank
7900 Edgewater Dr
East Bay Regional Park District
2950 Peralta Oaks Ct
Vietnamese American Community Center of the E
655 International Blvd
Phoenix Adventure / Social Club LLC.
412 13TH STREET
Oakland Private Industry Council, Inc.
268 Grand Avenue
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3232 Elm St
East Bay Interfaith Immigration Coalition (EB
1814 Franklin St