Epilepsy Foundation of Northern California

Epilepsy Foundation of Northern California The Epilepsy Foundation of Northern California is a 501(c)(3) charitable organization leading the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. www.epilepsynorcal.org
We are a nonprofit 501 (c) 3 organization and are supported by the generosity of the community to serve families affected by epilepsy. Since 1953, the Epilepsy Foundation of Northern California has provided information, services, and support to the 140,000 Northern Californian’s who experience seizures. We are one of more than fifty affiliates of the National Epilepsy Foundation and our mission is to ensure that people with seizures are able to participate in all life experiences. Although epilepsy is more common than Cerebral Palsy, Parkinson’s disease, and Multiple Sclerosis combined, public awareness of epilepsy is unacceptably low. This year, 200,000 Americans will be diagnosed with epilepsy. Only 30 percent of this population will have an identifiable cause of their seizures. And, many more will unnecessarily suffer the effects of epilepsy due to limited access to health services. Yet, the achievements in the epilepsy community must not be overlooked. Every day, scientists learn more about the brain, the origin of seizures, and innovative approaches to treating epilepsy. Public awareness is steadily improving on both a local and national level. We continue to maintain and expand our scope of services available to Northern Californian’s. All people living with epilepsy should attain the highest quality of life possible! Please help us continue this progress and get involved in the Northern California epilepsy movement.
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We love our Epilepsy Support Groups. Join one this month and meet up with people who can help you navigate every day lif...
02/14/2020

We love our Epilepsy Support Groups. Join one this month and meet up with people who can help you navigate every day life, find the resources you need to improve the quality of your life, and maybe even help someone else find their way! There's no reason to go it alone. To locate a group near you visit: https://www.epilepsynorcal.org/

Thank you Assembly Member Levine, Assembly Member Blanca Rubio, and Senator Umberg for introducing the Seizure Safe Scho...
02/13/2020

Thank you Assembly Member Levine, Assembly Member Blanca Rubio, and Senator Umberg for introducing the Seizure Safe School Act (AB2116)! We are excited to support this important piece of legislation. This bill will improve the care of students with epilepsy and seizure disorders in schools by ensuring the administration of FDA-approved medications prescribed to treat seizure disorders; requiring students to have a seizure action plan in their file and ensuring that the action plan is properly distributed to any school personnel responsible for the supervision of the students; and by requiring school personnel and students to be trained in seizure recognition and response using the Epilepsy Foundation training materials. Stay tuned for more details on how you can get involved. Read more about this important bill: http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200AB2116

#SeizureSafeSchools #EndEpilepsyGLA #EndEpilepsy

The more you know! Share it with coworkers and friends so they can be prepared.
02/10/2020

The more you know! Share it with coworkers and friends so they can be prepared.

Share Seizure First Aid before Epilepsy Day officially comes to an end! More people knowing Seizure First Aid ➡️ more safety. #StaySafeSide #EndEpilepsy #EpilepsyDay

It's International Epilepsy Day! Today, we're encouraging everyone to share their photos, videos or stories on social me...
02/10/2020

It's International Epilepsy Day! Today, we're encouraging everyone to share their photos, videos or stories on social media with the hashtag #EpilepsyDay so everyone can see that they're not alone. You can see posts shared around the world via an interactive map on the International Epilepsy Day website – www.internationalepilepsyday.org.

Epilepsy is a neurological disorder which affects the brain. It is a tendency to have repeated seizures. It is estimated that 65 million people are living with epilepsy around the world. If you need help and you're in Northern California, reach out to us here or through our website: https://www.epilepsynorcal.org/

We're here to help.

Great story, so glad to have Camila as part of the End Epilepsy team.
02/10/2020

Great story, so glad to have Camila as part of the End Epilepsy team.

Fashion & beauty entrepreneur Camila Figueiredo Coelho joins the Epilepsy Foundation of America as an #EndEpilepsy Ambassador on International Epilepsy Day! She is one of 710,000 Latinos in the U.S. living with epilepsy, and she is sharing her epilepsy journey with the world for the first time. Camila will serve as an advocate on behalf of, and for, people living with epilepsy by leveraging her platform to create awareness and educate others about epilepsy and seizures. #EpilepsyDay
Watch her interview on CBS This Morning: https://cbsn.ws/2H9JQ35
Learn more: https://bit.ly/2uqx65A
Meet Camila: Epilepsy.com/Camila-Coelho

From our friends at MyEpilepsyTeam:Can you relate? Members of MyEpilepsyTeam share humor and encouragement EVERY DAY! Jo...
02/10/2020

From our friends at MyEpilepsyTeam:

Can you relate? Members of MyEpilepsyTeam share humor and encouragement EVERY DAY! Join the FREE and private epilepsy social community: http://bit.ly/36jZ1BQ

We love our Epilepsy Support Groups. Join one this month for a chance to meet with people who can help you navigate ever...
02/05/2020

We love our Epilepsy Support Groups. Join one this month for a chance to meet with people who can help you navigate every day life, find the resources you need to improve the quality of your life, and maybe even help someone else find their way! There's no reason to go it alone.

To locate a group near you visit: https://www.epilepsynorcal.org/support-groups/

Since this is an evolving story with new facts emerging, we can’t comment on the events surrounding the Fresno teenager ...
02/04/2020
Fresno Police handcuffed, arrested 16-year-old boy with autism after he had seizure, mom says

Since this is an evolving story with new facts emerging, we can’t comment on the events surrounding the Fresno teenager with autism and epilepsy who was handcuffed.

This event reminds us all in the epilepsy community why it is important for others to learn how to recognize seizures and do seizure first aid. Seizures are often unrecognized by the public, including some police officers, first responders, firefighters and transit officers. It is vital that first responders and law enforcement recognize and manage seizures and epilepsy appropriately.

The Epilepsy Foundation regularly provides epilepsy education and training to these public servants: https://bit.ly/2UrqPAT.

You can learn seizure first aid: epilepsy.com/firstaid. The Epilepsy Foundation of Northern California offers Seizure First Aid training free of charge to our community. Reach out to us and request a training session at www.epilepsynorcal.org, email [email protected] or call 510 922 8687.

https://abc30.com/amp/5896343/

#seizurefirstaid #epilepsy #endepilepsy #efnc

A Valley mother claims her cry for help for her 16-year-old son who has autism and was suffering a seizure ended instead with his arrest by Fresno Police. They are now investigating the incident.

Training for a marathon can be a long and lonely process but this week, Miriam talks about how, in her case, every step ...
02/03/2020
Not alone, but together

Training for a marathon can be a long and lonely process but this week, Miriam talks about how, in her case, every step is more of a group effort. https://bit.ly/2RLJu8Y

Not alone, but together Leave a Comment / BLOG / By Miriam Most of the time when I’m training, I’m out there on my own. I’m alone in my thoughts, alone on the road, all up to me and me alone to get the job done. But when it comes to the Ironman for Epilepsy race day, I’ll be anything but alo...

Registration fees go up on Feb 5th, so sign up now! Join us for the Fourth Annual Seize the Moment Run in Downtown Sacra...
02/02/2020

Registration fees go up on Feb 5th, so sign up now!

Join us for the Fourth Annual Seize the Moment Run in Downtown Sacramento on Sunday March 29th, 2020 and support the Epilepsy Foundation of Northern California.

Registration is NOW OPEN and there is an event for everyone:
--> Run or walk the 5K
--> Run the 10K
--> Run the kids ½ mile!

For details and to register visit https://www.stmrun.com/

If you're in the Mountain View area, stop by for a fascinating and informative meetup with Dr. Jessica Walter and the me...
02/01/2020

If you're in the Mountain View area, stop by for a fascinating and informative meetup with Dr. Jessica Walter and the members of the local support group.

The meeting will be held on March 5th, from 7:00 – 9:00 PM at the El Camino Hospital Group – YMCA Building, Basement Room K - 2400 Grant Road, Mountain View, CA 94040

For more information and to RSVP, email the facilitator Stephen Forbes at [email protected]

High-fives all around for the Ponderosa High School girl's basketball team for supporting the cause with their 'Hoops fo...
01/28/2020

High-fives all around for the Ponderosa High School girl's basketball team for supporting the cause with their 'Hoops for Epilepsy' pre-game fundraiser. In addition to collecting donations, they helped raise awareness, handing out literature and bracelets to the home crowd. For one of the players, this is a very personal cause and we hear there was plenty of love and support to go around! Thanks @pondobruins for being a part of our Epilepsy Awareness family.

Baby safety takes a little extra thought when you're a mom with epilepsy. Here are some tips from Epilepsy Foundation of...
01/26/2020

Baby safety takes a little extra thought when you're a mom with epilepsy. Here are some tips from Epilepsy Foundation of America

---> If you have uncontrolled seizures, think about the best way to carry your child. Your type of seizures will affect this. For example, women who fall forward should avoid carrying their child in their arms or in a sling frequently when they are alone.

---> Use a small stroller to carry a baby around the house or outside.

---> Change the baby on the floor.

---> Do not bathe the baby in a tub when you are alone. Make this family time and share the job!

--> Feed an infant sitting in the middle of the bed or couch to support the baby more easily.

Do you have a tip that helped you with your new baby? Please share it.

Every two years, the Epilepsy Foundation hosts a one-day educational conference dedicated to people with epilepsy, their...
01/24/2020

Every two years, the Epilepsy Foundation hosts a one-day educational conference dedicated to people with epilepsy, their families and friends, and community supporters. Community Day is a day of learning, support, and networking with peers, providers and partners.

This year's event will take place March 14, 2020, from 8:00 A.M. to 4:30 P.M. PST, at the Santa Clara Marriott in Santa Clara, California. It takes place immediately after the Epilepsy Foundation Pipeline Conference which runs from March 12-13, 2020.

Registration is now open for the 2020 Epilepsy Pipeline Community Day. Cost to attend is $10 for individuals and $20 per family for families of 2 or more.

To register visit: https://www.epilepsynorcal.org/events/2020-epilepsy-pipeline-community-day/

In other words, you have the strength to cope and the ability to move on. Don't let the disease define you.
01/22/2020

In other words, you have the strength to cope and the ability to move on. Don't let the disease define you.

Race for Epilepsy!  Join us for the Fourth Annual Seize the Moment Run in Downtown Sacramento on Sunday March 29th, 2020...
01/20/2020

Race for Epilepsy! Join us for the Fourth Annual Seize the Moment Run in Downtown Sacramento on Sunday March 29th, 2020 and support the Epilepsy Foundation of Northern California.

Registration is NOW OPEN and there is an event for everyone:
--> Run or walk the 5K
--> Run the 10K
--> Run the kids ½ mile!

For details and to register, visit https://www.stmrun.com/

It's good to have goals, but not when they keep your from living in the here and now. Miriam talks about it in her lates...
01/17/2020
A Start of a New Year

It's good to have goals, but not when they keep your from living in the here and now. Miriam talks about it in her latest Ironman for Epilepsy blog post.

A Start of a New Year Leave a Comment / BLOG / By Miriam A Start of a New Year The New Year is always a time for reflection, hope, and goals for the year ahead. Do the majority of people stick to their goals? The sad answer is no, but there are steps that can be taken to help you achieve personal go...

Epilepsy Foundation of Northern California's cover photo
01/16/2020

Epilepsy Foundation of Northern California's cover photo

La Fundación de Epilepsia del Norte de California les hace una cordial invitación al primer GRUPO DE APOYO PARA PADRES, ...
01/14/2020

La Fundación de Epilepsia del Norte de California les hace una cordial invitación al primer GRUPO DE APOYO PARA PADRES, EN ESPAÑOL!
La invitación es para todo los padres y personas que proveen cuidado de niños/adultos con epilepsia.

EL EVENTO SE LLEVARA ACABO: .
Fecha: Enero 18, 2020
Hora: 11:30am -1:00pm
Lugar: Oficina de la Fundación de Epilepsia del Norte de California

Start the year off right with a visit to a local Epilepsy Support Group. There you'll have a chance to meet with people ...
01/11/2020

Start the year off right with a visit to a local Epilepsy Support Group. There you'll have a chance to meet with people who can help you navigate every day life, find the resources you need to improve the quality of your life, and maybe even help someone else find their way! There's no reason to go it alone.

To locate a group near you visit: https://www.epilepsynorcal.org/support-groups/

01/11/2020

To our Yong Adult Meet And Greet Group: We have a location change- We will be meeting at Forge in Oakland (next door to Plank)

Looking OK does not mean we feel OK.Join the social community for people living with epilepsy: http://bit.ly/2KEeztD
01/10/2020
Epilepsy pain is invisible... | MyEpilepsyTeam

Looking OK does not mean we feel OK.
Join the social community for people living with epilepsy: http://bit.ly/2KEeztD

OTC oral gel for numbing and a mouth wash my dentist gave me to keep it from getting infected. And I'm picky on what I eat until healed. =) hope that… read more

Just a reminder for our Sacramento Community: We will be having a special DMV speaker to answer all of your questions! C...
01/06/2020
Support Groups – Epilepsy Foundation of Northern California

Just a reminder for our Sacramento Community: We will be having a special DMV speaker to answer all of your questions! Come Join our Sacramento Support Group on January 8th! Please message us for any questions or visit our website :https://www.epilepsynorcal.org/support-groups/ Hope to see you there!

Support Groups Group support is an important resource for anyone living with a chronic illness. Support groups are led by either trained professionals or peers with extensive personal experience coping with epilepsy and its impact on families and caregivers. These support groups provide knowledge an...

Come and meet us at Plank Oakland on Friday for our Young Adult Meet and Greet! Email us if you have any questions!
01/06/2020

Come and meet us at Plank Oakland on Friday for our Young Adult Meet and Greet! Email us if you have any questions!

What are you doing on January 10th? If you are between the ages of 18 and 30 and you're living with epilepsy, we hope yo...
01/06/2020

What are you doing on January 10th? If you are between the ages of 18 and 30 and you're living with epilepsy, we hope you'll be joining us for our Young Adult Meet and Greet at Plank in Oakland.

The evening will include a social hour with wonderful food and light refreshments. Make some new friends, connect with others who have epilepsy and share your story (you never know who it might help).

To register, visit our website : https://www.epilepsynorcal.org/events/young-meet/

01/02/2020
2019 Camp Coelho - Epilepsy Foundation of Northern California

As we prepare to put 2019 behind us, it's nice to look back at the smiling faces of the families who benefited from Camp Coelho, the Stroll, our Art Therapy program and other EFNC programs. But we didn't do it alone. We did it with the help of hundreds of people who supported our programs both financially and by putting in time. To everyone who helped us help people with epilepsy, these smiles are for you.

Have a safe, happy and healthy new year

The Epilepsy Foundation of Northern California’s Coelho Epilepsy Youth Summer Camp gives its young participants an unforgettable experience. For one week kid...

La Fundación de Epilepsia del Norte de California les hace una cordial invitación al primer GRUPO DE APOYO PARA PADRES, ...
12/27/2019

La Fundación de Epilepsia del Norte de California les hace una cordial invitación al primer GRUPO DE APOYO PARA PADRES, EN ESPAÑOL!

La invitación es para todo los padres y personas que proveen cuidado de niños/adultos con epilepsia.

EL EVENTO SE LLEVARA ACABO:

Fecha: Enero 18, 2020

Hora: 11:30am -1:00pm

Lugar: Oficina de la Fundación de Epilepsia del Norte de California

Para más información: https://www.epilepsynorcal.org/events/grupo/

Wishing you a healthy and happy holiday! #merrychristmas #seasonsgreetings #holiday #christmas
12/23/2019

Wishing you a healthy and happy holiday! #merrychristmas #seasonsgreetings #holiday #christmas

If you are between the ages of 18 and 30 and you're living with epilepsy, join us on January 10th for our Young Adult Me...
12/21/2019

If you are between the ages of 18 and 30 and you're living with epilepsy, join us on January 10th for our Young Adult Meet and Greet.

The evening will include a social hour with wonderful food and light refreshments at Plank in Oakland. There's no reason for you to go it alone when there are others around who understand.

To register, visit our website : https://www.epilepsynorcal.org/events/young-meet/

Transportation can be a significant issue for those living with epilepsy, restricting their ability to get work, to the ...
12/19/2019

Transportation can be a significant issue for those living with epilepsy, restricting their ability to get work, to the doctors or simply meeting up with friends for dinner and a movie.

So the Epilepsy Foundation of America is partnering with SK Life Science, Inc for a
first-of-its-kind Uber ride share campaign to support the epilepsy community. By taking a short survey, people with epilepsy and their caregivers are eligible to receive a $20 Uber ride share voucher. Get all the details here: https://www.epilepsy.com/ridesharerst-of-its-kind

You know more than you think you know. This week on the Ironman for Epilepsy blog, Miriam talks about the small things w...
12/13/2019
The Power of Awareness

You know more than you think you know. This week on the Ironman for Epilepsy blog, Miriam talks about the small things we can do to raise awareness, be it about epilepsy or any cause you're passionate about. https://ironman.epilepsynorcal.org/2019/12/10/the-power-of-awareness/

The Power of Awareness Leave a Comment / BLOG / By Miriam The Power of Awareness I often listen to podcasts when I am training much more than I listen to music because I always love to learn and grow and listening to the same songs over and over gets old. The Rich Roll Podcast is one of my favorites...

12/13/2019
Epilepsy Surgical Interventions

We are live with Dr. Robert Knowlton! Dr. Knowlton is a neurologist and epilepsy specialist at UCSF and is speaking about surgical interventions for medically refractory epilepsy. He will be answering questions at the end of his talk, so please comment below with any questions you have.

On Tuesday, December 17th, the Epilepsy Foundation of America will be hosting a free webinar on Epilepsy and Cognition. ...
12/11/2019
Webinar on Epilepsy and Cognition

On Tuesday, December 17th, the Epilepsy Foundation of America will be hosting a free webinar on Epilepsy and Cognition.

Topics include:
--Making sense of memory and cognitive complaints
--Cognitive changes with normal aging
--Assessing memory and cognition
--Cognition and memory in epilepsy (adults and children)
--Maintaining cognitive health

For details and to register visit: https://www.epilepsy.com/article/2019/11/webinar-epilepsy-and-cognition

Join us for a webinar on thinking and memory in epilepsy, maintaining cognitive health and more.

Address

1736 Franklin Street, Ste. 450
Oakland, CA
94612

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

(510) 922-8687

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INTERNATIONAL EPILEPSY DAY FEBRUARY 10th, 2020 Both my service dog, named: "Zern" and I appeared on Central Valley Talk yesterday to talk about "International Epilepsy Day" which will be happening next Monday, February 10th. Here is a video from "Central Valley Talk":
We are looking for a trainer or an alert dog for our 7 yr old. Any info would be appreciated.
** Stranger Things Seizure Trigger Warning** This season was packed with tons and tons of flashing lights! I found it hard to watch most of the episodes/scenes. Episode 7 and 8 was the worst for me. HIGHLY advised watching with precautions. DO NOT force yourself or those with flashing light sensitivity to watch!! 💞💖💖💖
Hello, Seizario is a mobile app for seizure & fall detection, helping people in emergencies by sending SMS to family or care givers for help. It won the Epilepsy foundation's innovation award (in San Francisco). Now available on Google Play! Best Wishes to all!
I wanted to share with everyone that I got to be on the cover of a magazine and share my story and experiences with the photographer. #HypothalamicHamartomaSurvivor Capture the moments and smile 😃
3 years seizure free today!
Never Give up💜💜😊😊
I got featured In my local newspaper online. I’m an HH survivor and got bullied all throughout school. Here’s the link: https://patch.com/california/dublin/dublin-woman-who-survived-brain-tumor-bullying-writes-book. There is no excuse to bully others - just be kind to one another!
This is really strange to ask ... I’m sorry🤦🏻‍♀️ but would anyone want to hang out one day, I’m looking for friends , and to have this in common, and just someone to talk to , would be great. If you live in L. A county I’d love to meet and if your farther , I’m here to talk :)
It was our belief my husbands seizures were controlled for a year and a half. His employer never informed us that he had blanked out at work. My husband does not experience auras before a seizure so there was no way for us to know this was going to happen. I feel they judged my husband on the idea that individuals with epilepsy should not drive and this is discrimination! The analogies they used at my husbands trial could be used for anybody, but the Prosecutors prejudice ideas made an impact on the jury's decision. We have all come to a time when driving and have been cut off on the freeway. Should that driver be driving? Sometimes completely normal individuals are threats to public safety and what is the DMV doing about this? Is the DMV keeping our roadways safe? On the news we always hear about impaired drivers causing fatal accidents and what do they get charged with; vehicular manslaughter which holds a 6 year sentence. The DA of yolo county has claimed harsher punishment on impaired drivers but in reality they punish harsher individuals who had no choice in the matter. My husband has epilepsy and on his way home he has a seizure behind the wheel. He gets charged with 2nd degree murder. Sentenced to 18 years 9 months to life. #stop discrimination #epilepsy awareness #mercy for Armando A Gonzalez #Epilepsy Foundation #national innocence project #wrongful conviction #we need change in yolo county
Hi everyone! I am excited to share with you that I made an appearance on the news and was able to open up and share about my life story and book. Here is the link: https://gooddaysacramento.cbslocal.com/video/4040002-sierra-crislip/ Thank you!!
I just mailed some of my book's to be donated to your foundation! Thank you for letting me share my story! :)