We are a nonprofit 501 (c) 3 organization and are supported by the generosity of the community to serve families affected by epilepsy.
Since 1953, the Epilepsy Foundation of Northern California has provided information, services, and support to the 140,000 Northern Californian’s who experience seizures. We are one of more than fifty affiliates of the National Epilepsy Foundation and our mission is to ensure that people with seizures are able to participate in all life experiences. Although epilepsy is more common than Cerebral Palsy, Parkinson’s disease, and Multiple Sclerosis combined, public awareness of epilepsy is unacceptably low.
This year, 200,000 Americans will be diagnosed with epilepsy. Only 30 percent of this population will have an identifiable cause of their seizures. And, many more will unnecessarily suffer the effects of epilepsy due to limited access to health services.
Yet, the achievements in the epilepsy community must not be overlooked. Every day, scientists learn more about the brain, the origin of seizures, and innovative approaches to treating epilepsy. Public awareness is steadily improving on both a local and national level. We continue to maintain and expand our scope of services available to Northern Californian’s. All people living with epilepsy should attain the highest quality of life possible! Please help us continue this progress and get involved in the Northern California epilepsy movement.
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Thanks to Tony Coelho for this succinct and impassioned op-ed piece regarding first responder training.
Former U.S. congressman says first responders need better training to help people who get seizures. He should know — he has epilepsy.
We love our Epilepsy Support Groups. Join one this month and meet up with people who can help you navigate every day life, find the resources you need to improve the quality of your life, and maybe even help someone else find their way! There's no reason to go it alone. To locate a group near you visit: https://www.epilepsynorcal.org/
IN THE NEWS: Brain can still be useful, even after it leaves you.
https://www.sacbee.com/news/article240187132.html
People with epilepsy are contributing in surprising ways to research into the brain.
Thank you Assembly Member Levine, Assembly Member Blanca Rubio, and Senator Umberg for introducing the Seizure Safe School Act (AB2116)! We are excited to support this important piece of legislation. This bill will improve the care of students with epilepsy and seizure disorders in schools by ensuring the administration of FDA-approved medications prescribed to treat seizure disorders; requiring students to have a seizure action plan in their file and ensuring that the action plan is properly distributed to any school personnel responsible for the supervision of the students; and by requiring school personnel and students to be trained in seizure recognition and response using the Epilepsy Foundation training materials. Stay tuned for more details on how you can get involved. Read more about this important bill: http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200AB2116
#SeizureSafeSchools #EndEpilepsyGLA #EndEpilepsy
The more you know! Share it with coworkers and friends so they can be prepared.
Share Seizure First Aid before Epilepsy Day officially comes to an end! More people knowing Seizure First Aid ➡️ more safety. #StaySafeSide #EndEpilepsy #EpilepsyDay
It's International Epilepsy Day! Today, we're encouraging everyone to share their photos, videos or stories on social media with the hashtag #EpilepsyDay so everyone can see that they're not alone. You can see posts shared around the world via an interactive map on the International Epilepsy Day website – www.internationalepilepsyday.org.
Epilepsy is a neurological disorder which affects the brain. It is a tendency to have repeated seizures. It is estimated that 65 million people are living with epilepsy around the world. If you need help and you're in Northern California, reach out to us here or through our website: https://www.epilepsynorcal.org/
We're here to help.
Great story, so glad to have Camila as part of the End Epilepsy team.
Fashion & beauty entrepreneur Camila Figueiredo Coelho joins the Epilepsy Foundation of America as an #EndEpilepsy Ambassador on International Epilepsy Day! She is one of 710,000 Latinos in the U.S. living with epilepsy, and she is sharing her epilepsy journey with the world for the first time. Camila will serve as an advocate on behalf of, and for, people living with epilepsy by leveraging her platform to create awareness and educate others about epilepsy and seizures. #EpilepsyDay
Watch her interview on CBS This Morning: https://cbsn.ws/2H9JQ35
Learn more: https://bit.ly/2uqx65A
Meet Camila: Epilepsy.com/Camila-Coelho
From our friends at MyEpilepsyTeam:
Can you relate? Members of MyEpilepsyTeam share humor and encouragement EVERY DAY! Join the FREE and private epilepsy social community: http://bit.ly/36jZ1BQ
We love our Epilepsy Support Groups. Join one this month for a chance to meet with people who can help you navigate every day life, find the resources you need to improve the quality of your life, and maybe even help someone else find their way! There's no reason to go it alone.
To locate a group near you visit: https://www.epilepsynorcal.org/support-groups/
Since this is an evolving story with new facts emerging, we can’t comment on the events surrounding the Fresno teenager with autism and epilepsy who was handcuffed.
This event reminds us all in the epilepsy community why it is important for others to learn how to recognize seizures and do seizure first aid. Seizures are often unrecognized by the public, including some police officers, first responders, firefighters and transit officers. It is vital that first responders and law enforcement recognize and manage seizures and epilepsy appropriately.
The Epilepsy Foundation regularly provides epilepsy education and training to these public servants: https://bit.ly/2UrqPAT.
You can learn seizure first aid: epilepsy.com/firstaid. The Epilepsy Foundation of Northern California offers Seizure First Aid training free of charge to our community. Reach out to us and request a training session at www.epilepsynorcal.org, email [email protected] or call 510 922 8687.
https://abc30.com/amp/5896343/
#seizurefirstaid #epilepsy #endepilepsy #efnc
A Valley mother claims her cry for help for her 16-year-old son who has autism and was suffering a seizure ended instead with his arrest by Fresno Police. They are now investigating the incident.
Training for a marathon can be a long and lonely process but this week, Miriam talks about how, in her case, every step is more of a group effort. https://bit.ly/2RLJu8Y
Not alone, but together Leave a Comment / BLOG / By Miriam Most of the time when I’m training, I’m out there on my own. I’m alone in my thoughts, alone on the road, all up to me and me alone to get the job done. But when it comes to the Ironman for Epilepsy race day, I’ll be anything but alo...
Registration fees go up on Feb 5th, so sign up now!
Join us for the Fourth Annual Seize the Moment Run in Downtown Sacramento on Sunday March 29th, 2020 and support the Epilepsy Foundation of Northern California.
Registration is NOW OPEN and there is an event for everyone:
--> Run or walk the 5K
--> Run the 10K
--> Run the kids ½ mile!
For details and to register visit https://www.stmrun.com/
If you're in the Mountain View area, stop by for a fascinating and informative meetup with Dr. Jessica Walter and the members of the local support group.
The meeting will be held on March 5th, from 7:00 – 9:00 PM at the El Camino Hospital Group – YMCA Building, Basement Room K - 2400 Grant Road, Mountain View, CA 94040
For more information and to RSVP, email the facilitator Stephen Forbes at [email protected]
Help a child with epilepsy soar to new heights this year. Click the link and donate to support our summer camps for kids: https://impact.epilepsynorcal.org/give/77777/#!/donation/checkout
(Image: Camp Coelho 2019)
High-fives all around for the Ponderosa High School girl's basketball team for supporting the cause with their 'Hoops for Epilepsy' pre-game fundraiser. In addition to collecting donations, they helped raise awareness, handing out literature and bracelets to the home crowd. For one of the players, this is a very personal cause and we hear there was plenty of love and support to go around! Thanks @pondobruins for being a part of our Epilepsy Awareness family.
Baby safety takes a little extra thought when you're a mom with epilepsy. Here are some tips from Epilepsy Foundation of America
---> If you have uncontrolled seizures, think about the best way to carry your child. Your type of seizures will affect this. For example, women who fall forward should avoid carrying their child in their arms or in a sling frequently when they are alone.
---> Use a small stroller to carry a baby around the house or outside.
---> Change the baby on the floor.
---> Do not bathe the baby in a tub when you are alone. Make this family time and share the job!
--> Feed an infant sitting in the middle of the bed or couch to support the baby more easily.
Do you have a tip that helped you with your new baby? Please share it.
Every two years, the Epilepsy Foundation hosts a one-day educational conference dedicated to people with epilepsy, their families and friends, and community supporters. Community Day is a day of learning, support, and networking with peers, providers and partners.
This year's event will take place March 14, 2020, from 8:00 A.M. to 4:30 P.M. PST, at the Santa Clara Marriott in Santa Clara, California. It takes place immediately after the Epilepsy Foundation Pipeline Conference which runs from March 12-13, 2020.
Registration is now open for the 2020 Epilepsy Pipeline Community Day. Cost to attend is $10 for individuals and $20 per family for families of 2 or more.
To register visit: https://www.epilepsynorcal.org/events/2020-epilepsy-pipeline-community-day/
In other words, you have the strength to cope and the ability to move on. Don't let the disease define you.
Race for Epilepsy! Join us for the Fourth Annual Seize the Moment Run in Downtown Sacramento on Sunday March 29th, 2020 and support the Epilepsy Foundation of Northern California.
Registration is NOW OPEN and there is an event for everyone:
--> Run or walk the 5K
--> Run the 10K
--> Run the kids ½ mile!
For details and to register, visit https://www.stmrun.com/
It's good to have goals, but not when they keep your from living in the here and now. Miriam talks about it in her latest Ironman for Epilepsy blog post.
A Start of a New Year Leave a Comment / BLOG / By Miriam A Start of a New Year The New Year is always a time for reflection, hope, and goals for the year ahead. Do the majority of people stick to their goals? The sad answer is no, but there are steps that can be taken to help you achieve personal go...
Epilepsy Foundation of Northern California's cover photo
La Fundación de Epilepsia del Norte de California les hace una cordial invitación al primer GRUPO DE APOYO PARA PADRES, EN ESPAÑOL!
La invitación es para todo los padres y personas que proveen cuidado de niños/adultos con epilepsia.
EL EVENTO SE LLEVARA ACABO: .
Fecha: Enero 18, 2020
Hora: 11:30am -1:00pm
Lugar: Oficina de la Fundación de Epilepsia del Norte de California
Learn more about the Epilepsy Foundation of Northern California and support the cause in two clicks! Just hop over to YouTube and subscribe. We'd appreciate it! https://youtu.be/FaX39zin25k
Start the year off right with a visit to a local Epilepsy Support Group. There you'll have a chance to meet with people who can help you navigate every day life, find the resources you need to improve the quality of your life, and maybe even help someone else find their way! There's no reason to go it alone.
To locate a group near you visit: https://www.epilepsynorcal.org/support-groups/
To our Yong Adult Meet And Greet Group: We have a location change- We will be meeting at Forge in Oakland (next door to Plank)
Looking OK does not mean we feel OK.
Join the social community for people living with epilepsy: http://bit.ly/2KEeztD
OTC oral gel for numbing and a mouth wash my dentist gave me to keep it from getting infected. And I'm picky on what I eat until healed. =) hope that… read more
Always nice to see a positive message associated with Epilepsy Awareness.
The boy claimed his doctor told him to watch Luka Doncic play to help him with his seizures
Just a reminder for our Sacramento Community: We will be having a special DMV speaker to answer all of your questions! Come Join our Sacramento Support Group on January 8th! Please message us for any questions or visit our website :https://www.epilepsynorcal.org/support-groups/ Hope to see you there!
Support Groups Group support is an important resource for anyone living with a chronic illness. Support groups are led by either trained professionals or peers with extensive personal experience coping with epilepsy and its impact on families and caregivers. These support groups provide knowledge an...
Come and meet us at Plank Oakland on Friday for our Young Adult Meet and Greet! Email us if you have any questions!
What are you doing on January 10th? If you are between the ages of 18 and 30 and you're living with epilepsy, we hope you'll be joining us for our Young Adult Meet and Greet at Plank in Oakland.
The evening will include a social hour with wonderful food and light refreshments. Make some new friends, connect with others who have epilepsy and share your story (you never know who it might help).
To register, visit our website : https://www.epilepsynorcal.org/events/young-meet/
As we prepare to put 2019 behind us, it's nice to look back at the smiling faces of the families who benefited from Camp Coelho, the Stroll, our Art Therapy program and other EFNC programs. But we didn't do it alone. We did it with the help of hundreds of people who supported our programs both financially and by putting in time. To everyone who helped us help people with epilepsy, these smiles are for you.
Have a safe, happy and healthy new year
The Epilepsy Foundation of Northern California’s Coelho Epilepsy Youth Summer Camp gives its young participants an unforgettable experience. For one week kid...
La Fundación de Epilepsia del Norte de California les hace una cordial invitación al primer GRUPO DE APOYO PARA PADRES, EN ESPAÑOL!
La invitación es para todo los padres y personas que proveen cuidado de niños/adultos con epilepsia.
EL EVENTO SE LLEVARA ACABO:
Fecha: Enero 18, 2020
Hora: 11:30am -1:00pm
Lugar: Oficina de la Fundación de Epilepsia del Norte de California
Para más información: https://www.epilepsynorcal.org/events/grupo/
Wishing you a healthy and happy holiday! #merrychristmas #seasonsgreetings #holiday #christmas
If you are between the ages of 18 and 30 and you're living with epilepsy, join us on January 10th for our Young Adult Meet and Greet.
The evening will include a social hour with wonderful food and light refreshments at Plank in Oakland. There's no reason for you to go it alone when there are others around who understand.
To register, visit our website : https://www.epilepsynorcal.org/events/young-meet/
Transportation can be a significant issue for those living with epilepsy, restricting their ability to get work, to the doctors or simply meeting up with friends for dinner and a movie.
So the Epilepsy Foundation of America is partnering with SK Life Science, Inc for a
first-of-its-kind Uber ride share campaign to support the epilepsy community. By taking a short survey, people with epilepsy and their caregivers are eligible to receive a $20 Uber ride share voucher. Get all the details here: https://www.epilepsy.com/ridesharerst-of-its-kind
You know more than you think you know. This week on the Ironman for Epilepsy blog, Miriam talks about the small things we can do to raise awareness, be it about epilepsy or any cause you're passionate about. https://ironman.epilepsynorcal.org/2019/12/10/the-power-of-awareness/
The Power of Awareness Leave a Comment / BLOG / By Miriam The Power of Awareness I often listen to podcasts when I am training much more than I listen to music because I always love to learn and grow and listening to the same songs over and over gets old. The Rich Roll Podcast is one of my favorites...
We are live with Dr. Robert Knowlton! Dr. Knowlton is a neurologist and epilepsy specialist at UCSF and is speaking about surgical interventions for medically refractory epilepsy. He will be answering questions at the end of his talk, so please comment below with any questions you have.
On Tuesday, December 17th, the Epilepsy Foundation of America will be hosting a free webinar on Epilepsy and Cognition.
Topics include:
--Making sense of memory and cognitive complaints
--Cognitive changes with normal aging
--Assessing memory and cognition
--Cognition and memory in epilepsy (adults and children)
--Maintaining cognitive health
For details and to register visit: https://www.epilepsy.com/article/2019/11/webinar-epilepsy-and-cognition
Join us for a webinar on thinking and memory in epilepsy, maintaining cognitive health and more.
1736 Franklin Street, Ste. 450
Oakland, CA
94612
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We are live with Dr. Robert Knowlton! Dr. Knowlton is a neurologist and epilepsy specialist at UCSF and is speaking about surgical interventions for medically refractory epilepsy. He will be answering questions at the end of his talk, so please comment below with any questions you have.
Back in March, DeMarcus Cousins wore a very special pair of purple kicks in support of his little friend Aria who was diagnosed with epilepsy when she was a baby. Now those shoes are going from raising awareness to raising funds when they go up for auction at our annual gala on Nov 2nd. Want to bid? Get a ticket for the gala. Details can be found on our website: https://www.epilepsynorcal.org/events/2019-gala/
Thank you Karen and Mike Valentine and Practical Martial Arts for another 26 Rounds to Fight Epilepsy. You helped us raise funds for the Epilepsy Foundation of Northern California programs. Thank you the Team from Salesforce to participate, you all rock!
Are you comfortable providing Seizure First Aid? We can help. The Epilepsy Foundation of Northern California provides free Seizure First Aid Training to schools, organizations, families and individuals. Contact us at [email protected] to request a training session.
November is Epilepsy Awareness Month. Help the Epilepsy Foundation of Northern California support the 180,000 people living with epilepsy in Northern California. Visit www.epilepsynorcal.org
November Epilepsy Awareness Month
November Epilepsy Awareness Month! Buy tickets for our Gala this Saturday at http://www.epilepsynorcal.org/2018Gala
We are live with Dr. Meador, epilepsy specialist at Stanford University. The topic this evening is Women & Epilepsy. Listen in and ask your questions in the comments section! There will be plenty of time for questions at the end of the talk.
November is Epilepsy Awareness Month. Do you have a brain?
Send a Child to Camp! Participate on the 2018 Gala!
We are live with Dr. David King-Stephens, Director of the Sutter Pacific Epilepsy Program. Listen to hear him speak on the important topic of The Level 4 Epilepsy Center - When & Why Go for Evaluation? Comment below with your questions!
Enjoying CARNIVAL at Camp Coelho!!
We're Live! Watch Dr. Josiah Ambrose, the Director of the Epilepsy Center at Kaiser Redwood City, discuss the surgical evaluation process at a Level IV Epilepsy Center. There will be time for Q&A at the end of his talk, please type your questions into the comments section below!
Hot? Check THIS out!!
Kicking off Camp Christopher!!
Hundreds gathered to raise epilepsy awareness! Started Stroll 26 steps BACKWARDS. . . Challenge accepted and done Boston Backwards!
Strollin for epilepsy awareness! Started walking BACKWARDS #26StepsBackwards. Challenge accepted and done Boston Backwards!!
2018 Stroll!!!!!
You're watching Dr. Masud Seyal, an epilepsy specialist at UC Davis Medical Center, discuss SUDEP - Sudden Unexpected Death in Epilepsy. Ask your questions in the comment section below!
RC crawl in action! Thx Wethands Brand for a great day!
The Epilepsy Foundation of Northern California and NeuroPace invite you to attend the first in a series of free educational webinars about epilepsy. In this webinar, Dr. Vikram Rao, epilepsy specialist at UCSF, will discuss neuromodulation, VNS and RNS, as treatment options for drug-resistant epilepsy.
Thank you Quaski and the San Francisco 49ers for helping us to spread epilepsy awareness! Wishing you a speedy recovery <3
Thx for the shout out San Francisco Giants!
The campers are still having a blast! :)
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