Lupus Support Network (Pensacola, Fl)

19/07/2022

Have you ever wondered where it all began?

The first description of lupus was from the ancient Greek scholar Hippocrates in 460-375 BCE. It was called lupus, latin for wolf, because the skin lesions could be so severe that it looked like the patients “were ravaged by wolves.”

24/05/2022

Caffeine and Lupus.

Read more and see if you are as surprised as I was.

https://lupuscorner.com/caffeine-intake-and-lupus-staying-alert/

03/05/2022

Do you have trouble when traveling?
Information to help at the link below:

https://lupuscorner.com/traveling-lupus-common-symptoms/

12/04/2022

I've been living with lupus for over 30 years and thought I knew all of the words associated with lupus. I don't. Today is the first time I heard the word refractory lupus.

Read more about this aspect of lupus:

Some people with lupus don’t find relief from their symptoms with normal treatment. This is known as Refractory Lupus, and it requires a different approach.

05/04/2022

The eyes have it? Let's hope not.

Over 28% of people with lupus have eye symptoms, an issue that is not often discussed. The causes can be in the eye, the optic nerve, and the brain, but all are caused by inflammation.

22/03/2022

Inflammation-related anemia is real if you have lupus.

Caused by a lack of healthy red blood cells, inflammation-related anemia can lead to symptoms including fatigue, headaches, and decreased stamina

19/02/2022

American Kidney Foundation Launches New Campaign for Prevention, Management of Lupus Nephritis

The American Kidney Fund announced a new campaign called Looped in on Lupus Nephritis that is designed to improve diagnosis, awareness and equitable treatment of the disease among patients. According to a press release, the campaign “provides audience-centric, culturally appropriate informatio...

18/01/2022

Hygiene and lupus.

Living your life with lupus and other autoimmune diseases can be complicated, but something as simple as hygiene can make it a lot easier. Here are some tips!

06/11/2021

Do you have a butterfly rash?

Your skin is your body's largest organ, and while many of us focus on keeping it looking youthful and wrinkle-free, it could also be a vehicle through which other parts of your body signal that an illness or disease is brewing. Sudden onset of blistering, scaliness, discoloration, or a rash could po...

27/07/2021

I've felt it for a long time, and now my feelings are verified. Humidity affects my lupus.

Seasonal changes can affect people with lupus too, and, for many parts of the world, seasonal shifts can include different humidity conditions, along with heat and cold.

06/07/2021

Tracking disease activity:

SLEDAI, SLAM, and BILAG are assessment scales developed by clinicians and researchers to acurately measure lupus disease activity over time

30/06/2021

They are at it again and it makes me crazy.