Links for Liam

Links for Liam As most of you know, despite efforts from L.A. It was a long battle with SCID, one of the most severe of a group of diseases called Primary Immune Disease (PI).

Please join the Whitlow Family and the Jeffrey Modell Foundation in raising money towards newborn screening and awareness for children with an underlying condition known as Primary Immune Deficiency Disease. Children’s Hospital and Phoenix Children’s Hospital, our son Liam Whitlow, died on September 30th, 2005 at almost two years of age. This disease is more commonly called “The Bubble Boy Disease

”. Liam could have had a better chance of survival if there had been newborn screening for Primary Immune Disease. Newborn Screening and Public Awareness are of the utmost importance in treating PI and a wide variety of other diseases. More comprehensive newborn screening is a very important cause! Newborn Screening for Primary Immune Disease was passed in Washington D.C.; however, many of the states are slow to adopt the program, and Jeffrey Modell Foundation still needs help with public awareness of PID.

Hey everyone... Links for Liam has decided to end it run. Thank you for everyone you contributed to such a great event.A...
04/14/2021

Hey everyone... Links for Liam has decided to end it run. Thank you for everyone you contributed to such a great event.

Another event has started...
Holesforehope.com

Hopefully you can all make it.

Your support and contributions will enable us to meet our goals and improve our events. Your generous donation will help fund our mission as well!

14th annual is underway!
04/27/2019

14th annual is underway!

Wow... the weather is going to be great today!
04/27/2019

Wow... the weather is going to be great today!

Cannot sleep... too excited for another great year at Links for Liam! Always a great time but more importantly for such ...
04/27/2019

Cannot sleep... too excited for another great year at Links for Liam! Always a great time but more importantly for such a great cause.

We still have some spots left! Please DM me if you are interested in playing this Saturday!
04/24/2019

We still have some spots left! Please DM me if you are interested in playing this Saturday!

We still have some spots left!

We still have some spots left!
04/24/2019

We still have some spots left!

04/18/2019

The rare genetic disease called severe combined immunodeficiency syndrome, or SCID, often kills children, mostly boys, in the first year or two of life.

01/18/2019

SAVE THE DATE. SAT. APRIL 27TH, 1:15 SHOTGUN START- 14TH ANNUAL LINKS FOR LIAM-ORANGE TREE

02/09/2018

SAVE THE DATE, APRIL 28TH, 2018 IS LINKS FOR LIAM

01/20/2018

Links for Liam Loyal Supporters, Save the date! April 28th, Orange tree, Liam would have been 14, Luke, his twin, turned 14 on January 13th, and he is 6 foot 1, and Meghan turned 16 on Jan. 15th.(driving, yikes) They are awesome, we are so blessed, they call Liam their "BRO IN HEAVEN"

04/26/2017

We still have some room. Please let me know if you or anybody else can play golf this Saturday.

04/05/2017

Address

10601 North 56th Street
Scottsdale, AZ
85254

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