Cystic Fibrosis Foundation - Michigan-Northwest Ohio Chapter

Cystic Fibrosis Foundation - Michigan-Northwest Ohio Chapter Welcome to the official page of the Michigan- Northwest Ohio Chapter!
The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.
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About CF: Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.

Mission: The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.

06/05/2020

HAPPY FRIDAY!

We understand that we are living in a pretty unpredictable time right now, but we want you to know that your CFF Michigan-NW Ohio Staff is still here for you! If we haven’t had a chance to meet in person, we would like to introduce ourselves to you…in a fun way 😉

We would also like to invite you to join us today, 6/5, at 5pm EST to celebrate 65 years of the Cystic Fibrosis Foundation!

https://on.cff.org/Together65

PS: Thank you to The Lows for letting us use their awesome song, “Love Will Find A Way”, in our video. We truly believe that the love of this big beautiful community will find a way to a cure for everyone with CF ❤

#UntilItsDone

Please join us tonight at 7:00 PM for a virtual town hall with our University of Michigan Adult Cystic Fibrosis Care Cen...
06/03/2020

Please join us tonight at 7:00 PM for a virtual town hall with our University of Michigan Adult Cystic Fibrosis Care Center.
This will be an opportunity to connect with your care center staff, and ask questions in an open environment.

We hope to see you there!
https://primetime.bluejeans.com/a2m/live-event/bugkcgqy

06/01/2020
Join us on Friday, June 5th!

Who remembers Bam-Bam from Mark Levine’s social media takeover day? Well he’s here once again to let you know about our virtual 65 Roses Day celebration this Friday, June 5th at 5 PM.

It looks like Bam-Bam is geared up and ready to go for this Friday, and we hope you will join him, and the rest of us here at the CFF to celebrate the Foundation’s achievements over the past 65 years!

Register Today!
https://on.cff.org/Together65

This year, the Foundation celebrates 65 years of progress. Join us to celebrate all we have achieved, together! Register...
05/29/2020

This year, the Foundation celebrates 65 years of progress. Join us to celebrate all we have achieved, together!

Register Today!
https://on.cff.org/Together65

Have you been wondering how to send in or make donations for Great Strides, Endurance, Finest, or Team CF events? Here a...
05/27/2020
Two Ways to Send in Donations

Have you been wondering how to send in or make donations for Great Strides, Endurance, Finest, or Team CF events?
Here are two options; the NEW mobile check deposit feature and the process for offline donations!

Cystic Fibrosis Foundation 2265 Livernois, Suite 410 Troy, MI 48083 248-269-8759 www.cff.org/michigan Sending in Donations Have you been wondering how to send in or make donations for Great Strides, Endurance, Finest, or Team CF events? Below are two options; the NEW mobile check deposit feature and...

From all of us here at the Cystic Fibrosis Foundation Michigan-NW Ohio chapter, we hope you have a great Memorial Day!
05/25/2020

From all of us here at the Cystic Fibrosis Foundation Michigan-NW Ohio chapter, we hope you have a great Memorial Day!

Since 1955 we have made incredible strides in the fight against cystic fibrosis! This year, as we mark our 65th annivers...
05/22/2020

Since 1955 we have made incredible strides in the fight against cystic fibrosis! This year, as we mark our 65th anniversary, we’re celebrating with our biggest event yet.

Join us virtually Friday, June 5, to celebrate all we have achieved together over the past 65 years, hear stories from people with CF and their families all across the country, and unite in our focus to reach our ultimate goal: a cure for cystic fibrosis.

Register today: https://on.cff.org/Together65

ATTENTION TO ANY MICHIGAN CF FAMILIES AFFECTED BY THE MIDLAND FLOODS:If you are in need of disaster relief resources, pl...
05/20/2020

ATTENTION TO ANY MICHIGAN CF FAMILIES AFFECTED BY THE MIDLAND FLOODS:

If you are in need of disaster relief resources, please contact COMPASS! They can connect you to disaster relief resources to help you during your time and/or displacement. You can call as many times as you need, and it's open to everyone affected by cystic fibrosis.

**Please share this post to get the message out to our families in the area!**

COMPASS:
www.cff.org/compass | E: [email protected]cff.org | P: 844-266-7277

Only one hour left until we will be hosting our first ever Virtual Pep Rally!! We will be going live right here on our F...
05/16/2020

Only one hour left until we will be hosting our first ever Virtual Pep Rally!! We will be going live right here on our page!
Our CFF staff and our amazing presenters can’t wait to show you what we have in store!
Be sure to tune in at 11:00 AM- you won’t want to miss out!

05/16/2020
Happy Pep Rally Day!

Happy Pep Rally Day!!!

We only have a couple of hours until we will be going Live on our page, and we hope to see you there!

05/15/2020
Join us Tomorrow for our Virtual Pep Rally!

Our 2020 Great Strides Ambassadors are geared up and ready to go for our Virtual Pep Rally tomorrow at 11:00 AM on Facebook Live!
Mitchell will be presenting at the Pep Rally, and he’s ready to rock his fighter shirt!

We hope you will join us tomorrow at 11:00 AM, and will get in the spirit with your favorite Great Strides or CFF gear!

Happy Friday! It’s a Pajama Party for our CFF Spirit Week!Show us your favorite pair of PJs, and tag us with #CFFSPIRITW...
05/15/2020

Happy Friday! It’s a Pajama Party for our CFF Spirit Week!
Show us your favorite pair of PJs, and tag us with #CFFSPIRITWEEK2020!

Tomorrow is the last day of spirit week, and our virtual Pep Rally!! Be sure to join us on Facebook Live at 11:00 AM to see what our CFF staff, and amazing presenters have in store! It’s going to be a lot of fun, and we hope to see you there!

Happy Throwback Thursday! Show us a look from your favorite decade, or dig up an old photo from years back!Be sure to ta...
05/14/2020

Happy Throwback Thursday!

Show us a look from your favorite decade, or dig up an old photo from years back!
Be sure to tag us with #CFFSPIRITWEEK2020, or post in our Facebook event page:
https://www.facebook.com/events/675701523239917/

Introducing our amazing presenters for our virtual pep rally!  Mark Levine- CFF Michigan-NW Ohio Chapter Board President...
05/13/2020

Introducing our amazing presenters for our virtual pep rally!

Mark Levine- CFF Michigan-NW Ohio Chapter Board President, and Pep Rally Emcee
Mitchell Landheer- 2020 Great Strides Ambassador
Alayna Albanys- 2020 Great Strides Ambassador
Sarah & Alyssa Jackson- 2020 Great Strides Ambassadors
Tonya Hamilton- Mission Moment Speaker
Paula Woodhouse- Mission Moment Speaker

We hope you will tune in to our virtual pep rally this upcoming Saturday at 11:00 AM on Facebook Live! Our presenters are looking forward to sharing their stories with our CFF community, and we have a lot of fun in store!

It’s sports day for spirit week today, and we are all representing our favorite teams! Show us your team pride, snap a p...
05/13/2020

It’s sports day for spirit week today, and we are all representing our favorite teams!
Show us your team pride, snap a picture, and post using #CFFSPIRITWEEK2020, or on our Facebook event page:
https://www.facebook.com/events/675701523239917/

It's not quite summertime in Michigan yet, but we are still breaking out our beach wear for Tropical Tuesday! Join in ou...
05/12/2020

It's not quite summertime in Michigan yet, but we are still breaking out our beach wear for Tropical Tuesday! Join in our spirit week fun, and show us your best beach look with #CFFSPIRITWEEK2020, or post your photos in our Facebook event page:
https://www.facebook.com/events/675701523239917/

05/11/2020
Great Strides Pep Rally- May 16th at 11 AM

Alayna, one of our 2020 Great Strides Ambassadors, wants you to join us this Saturday, May 16th at 11 AM on Facebook Live for our local Great Strides Pep Rally!!! Be sure to tune in and see some special guests and have fun with us!

Today is Crazy Hair day for CFF Spirit Week! We all showed up to our morning meeting sporting our crazy hair-dos, and no...
05/11/2020

Today is Crazy Hair day for CFF Spirit Week!

We all showed up to our morning meeting sporting our crazy hair-dos, and now we want to see your looks!
Show us your wildest hairstyle and use #CFFSPIRITWEEK2020, or post in our Facebook event page:
https://www.facebook.com/events/675701523239917/

It’s the first day of our CFF Spirit Week, and we want to see your craziest hair-do! Please snap a photo of your look, a...
05/11/2020

It’s the first day of our CFF Spirit Week, and we want to see your craziest hair-do!

Please snap a photo of your look, and use #CFFSPIRITWEEK2020, or post in our Facebook event page:
https://www.facebook.com/events/675701523239917/

Happy Sunday to our amazing CFF community! This week marks the beginning of our SPIRIT WEEK to gear up for our Virtual P...
05/10/2020

Happy Sunday to our amazing CFF community!

This week marks the beginning of our SPIRIT WEEK to gear up for our Virtual Pep Rally on Saturday!
Join us in dressing in our spirit week themes all week long!

Monday- let’s see your craziest hair style!
Tuesday- we are heading to the beach! Show us your tropical vacation wear!
Wednesday- represent your favorite sports team!
Thursday- pick your favorite decade and show us your throwback look!
Friday- it’s a pajama party!
Saturday- join us for our virtual pep rally, and be sure to wear your bead color (details in the second photo)!

Please post your photos all week long with #CFFSPIRITWEEK2020, or on our Facebook event page:
https://www.facebook.com/events/675701523239917/

We can’t wait to see your spirit week looks!

We want to wish all of the amazing, strong, beautiful and fierce mothers out there a wonderful Mother’s Day! Thank you f...
05/10/2020

We want to wish all of the amazing, strong, beautiful and fierce mothers out there a wonderful Mother’s Day! Thank you for being the strength and the support system in our community. You are so loved and appreciated for all you do! #mothersday #cysticfibrosis

"Perfect way to pass the time and take a break from the screens" -Mitchell
05/09/2020

"Perfect way to pass the time and take a break from the screens" -Mitchell

"Quarantine edition of our small group meeting with friends from my church. Community is more important now than ever!" ...
05/09/2020

"Quarantine edition of our small group meeting with friends from my church. Community is more important now than ever!" -Mitchell

"Dinner starting with an 'in-range' blood sugar makes the meal taste that much better!" -Mitchell
05/08/2020

"Dinner starting with an 'in-range' blood sugar makes the meal taste that much better!" -Mitchell

"Lunchtime staple: grilled cheese and tomato soup with a side of enzymes" -Mitchell
05/08/2020

"Lunchtime staple: grilled cheese and tomato soup with a side of enzymes" -Mitchell

Address

2265 Livernois Suite 410
Troy, MI
48083

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Michigan - Northwest Ohio Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

(248) 269-8759

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Comments

I wanted to let you all know about a company that I have been a member of since 2005 that has healthy cleaning products as well as many other items that all of us use everyday. Melalueca is a wellness company that did a study of their natural cleaning products compared to commercial products that are on the market and I was shocked at the amount of toxins that are in so many of the products we all use and clean with everyday! I thought of our families especially when Melaleuca’s study showed the increased rates of lung damage that the commercial products caused and how dangerous that is for all of our loved ones fighting CF!! I have been using Melalueca’s highly concentrated, all-natural, safe cleaning products since 2005 and have not found anything that compares to them! They clean just as good, if not better than the commercial products without the dangerous chemicals and toxins. They have a 100% satisfaction guarantee on all their products and none of their cleaning products require child-proof caps because they are not toxic! (I know this well as a one of my kids has swallowed a few of their products over the years, and when I called poison control, as soon as they heard it was Melalueca they said there is nothing to worry about! 🙌🏼) If any of you would be interested in learning more about this amazing company, replacing all the toxic chemicals that may be in your house, and maybe earning some extra income when you share the great info with your loved ones and friends please message me and I would be happy to help you and your family in your health and wellness journey!
Is there a way you can post this? I am asking family and friends to help me out with something. A young woman I know who is in thehospital with cystic fibrosis complications among other probles. It is very lonely and stressful. for I am in Grand Rapids and I am far away from home and my mom and dad have passed away. If you have the time please send me get well cards or flowers or goodies. I would love it! Thank you to all who have taken a moment to read this and/or send me a card, god bless you!!! My address is as follows: Janelle Rowell. 100 Michigan St NE. Grand Rapids Mich. 49503. Room 9422. Thank you and god bless
Check out the group I HAVE CYSTIC FIBROSIS. would love for patients to be able to chat, vent, connect etc.
Anyone willing to send me something to do in the hospital? Crafts or coloring books? Anything? So bored here.
Come visit us this weekend, at the greater Toledo Auto Show in the Seagate Convention Center, 401 Jefferson St., Toledo, OH. Take a chance and help raise money for Cystic Fibrosis. Hours are: Friday. 12-9 pm Saturday 10-9 pm Sunday. 10-5 pm
I am looking for some advice. We are hoping to get my son a Vogmask before this weekend. Everyplace we check is out of stock. Any suggestions where we might find one before Saturday? We are in Michigan south of Ann Arbor. Thank you!!
Hi, I represent the artist Dave Santia from Detroit Michigan. Im reaching out to you to see if you would be interested in him donating his time to raise money for any of your upcoming event on November 3rd. Dave has helped numerous charities over the past 7 years raise over $900,000 along with providing entertainment that leaves the guest speechless. To see what Dave has to offer for your event you can visit his website at Davesantia.com
This saturday, 9/15, My friends and I will be live streaming our Call of Duty: Black Ops 4 Blackout Beta to raise money for the Cystic Fibrosis Foundation. My nephew, Liam Collins, has CF. I'm doing everything i can to help support him, and I love to stream, so I thought why not do a fundraising stream? I have a donate button on my stream that will go to the CFF, and i also will have a donate button on our page to make it easier if your not use to twitch. The stream will start at 6pm est and run threw the night. All donations will be going directly to the foundation. We will be doing giveaways during the stream also. We are currently looking for a business that would be willing to possibly match our donations we get in, or even donate a product or gift card to raffle off during the stream. If you guys have any ideas on any companies that would be willing to help, please pm me :) twitch link is twitch.tv/iishadie. We also have an event created for it at https://www.facebook.com/capitalesports/ . I have also created a youtube video promoting it, and would love if we could spread word about the fundraiser. https://www.youtube.com/watch?v=btx5vcx2vfg - - Thanks Again!
John and I enjoyed the “Meet and Greet” Thursday night. We were not sure if we had anything to contribute, but it proved not to be so. I know one thing for sure.... We are never too old to learn something new! Dinner was excellent. Many thanks for you time and effort. Love you all!💞
Thank you so much for the hat! And, more importantly, for everything you do to make the Detroit Great Strides event so wonderful. Team Walk Hard - Breathe Easy is honored to be participating and fundraising. I am, personally, so proud of my team and our chapter of the CFF. You are all amazing!
Please read the MESSAGE FROM A PROUD FATHER and purchase your raffle tickets to help out those suffering from cystic fibrosis. As you are aware, raising a child with cystic fibrosis is scary because CF affects many aspects of a child’s life. Keeping a child healthy and fighting CF takes a team effort and the London Cobra Show is just a small part of that team. Your purchases of raffle tickets for the London Cobra Show’s raffle allow our donations to the Cystic Fibrosis Foundation that are designated for ongoing research to find additional CF therapies that could help improve key symptoms of the disease by targeting the disease at its root. THANK YOU - YOUR SUPPORT WILL MAKE A DIFFERENCE TO INDIVIDUALS WITH CYSTIC FIBROSIS. Please share this post with your relatives, friends and colleagues that might be interested in helping.
Hello everyone at CFF! We from United for Life - the Brazilian Institute for Attention to Cystic Fibrosis - would like to share with you and CF Foundation a new video we developed about Cystic Fibrosis Awareness that we have created for the CF Awareness Month in Brazil. Given that the Worldwide Cystic Fibrosis Day was on September 8th, September was chosen in Brazil to become the Cystic Fibrosis Awareness Month. We would like to count on your help to propagate this wherever you deem necessary to help spread awareness for CF. The link to access the video is https://youtu.be/00L1qBZNemI. We hope you enjoy the video!