MOM Multiple Systems Atrophy

MOM Multiple Systems Atrophy MSA is a cruel relentless disease that progressively ravaged and robbed my mom's life. The lack of knowledge is what we will strive to change

03/08/2019

Miss you so much Mom.
I hate you MSA.

03/24/2017

#like msa

M. u l t i p l e  S. y s t e m s  A. t  r  o p h y: A cruel progressive neuro degenerative disease,similar to ALS though...
03/14/2017

M. u l t i p l e
S. y s t e m s
A. t r o p h y:

A cruel progressive neuro degenerative disease,similar to ALS though lesser known,thought to be rare but often diagnosed as Parkinsons. It's ,swift,deadly,traps a beautifully healthy mind in its own body. I HATE YOU M S A !

MOM Multiple Systems Atrophy
03/09/2017

MOM Multiple Systems Atrophy

#FightMultipleSystemAtrophy #fmsa

03/08/2017

I miss you momma, every single hour, every single day !

#FightMultipleSystemAtrophy #fmsa
03/08/2017

#FightMultipleSystemAtrophy #fmsa

MOM Multiple Systems Atrophy
02/24/2017

MOM Multiple Systems Atrophy

MOM Multiple Systems Atrophy
02/24/2017

MOM Multiple Systems Atrophy

Let's see how many shares this purple MSA ladybug can get!

02/24/2017

Please call me if you need an ear or a shoulder help of any kind 757-403-3249

02/24/2017

March is coming MSA Awareness month wearing something purple 💜 all month

MOM Multiple Systems Atrophy
01/08/2017

MOM Multiple Systems Atrophy

Let's see how many shares this purple MSA ladybug can get!

Please share
06/08/2016

Please share

Let's see how many shares this purple MSA ladybug can get!

05/23/2016

May is and was a very hard month for all of us. May brought out our first Mothers Day without mom, and now tomorrow the 24th will bring the first birthday without her. I often wonder as I wake each day if I will be able to function knowing that she is not here and this has been ongoing since she left. Somehow I believe that mom gives me that strength to function without her and move along my day, some easy and some not so easy.
In between my thoughts I am still angry at MSA the disease that robbed her of her life, this disease may have taken her ability to move, her ability to do things on her own but she never allowed it to take her ability to smile, take her ability to be strong not for herself but for her children, nor did she allow it to take her ability to feel the joy and happiness of her family around her.
I love you mom and I miss you so much.

05/06/2016

Mothers Day approaches....and so does the fear; not scared of the boogeyman kind of fear, the fear that this day will bring back the exact overwhelming pain and realization of loss as she left us. I will admit this is a selfish thought. I realize there are thousands of sons and daughters out there feeling the same way. I miss my mommy, I miss her smile, her laugh, I miss her worrying about me, I miss what she brought to our family! Momma left us only when she knew her job was absolutely completed, and she succeeded we've all never been closer and realize its family that holds each other together. My brother and sisters and I are unbelievably blessed, we left no stone unturned and neither did momma.
To my siblings, each of us were incredibly amazing to mom, we each had special gift, a special bond, not one greater than the other. She knew how very much she loved us and she knew just how much we loved her.
I leave this note with a few gifts from mom, her words...repeatedly she would say

"I am the luckiest mom"
"Wow my kids must really love me"
"My kids love me...that's why"
"My Kids take care of me"
"Your a good daughter you know that?"
"Yep he's my baby and he loves his momma!
"Thank you"

We love you mom! There is one reason we each had the ability to persevere through this terrible disease, to love as deeply and to provide for her with the thought that no one else would ever, could ever care for our mother the way we would, could, and did. We learned this from mom, she not only taught us , more importantly she showed us and it was by that example of love she left knowing we loved her and she loved us..
Happy Mothers Day Momma

Miss u everyday
05/03/2016
MOM Multiple Systems Atrophy

Miss u everyday

MSA is a cruel relentless disease that progressively ravaged and robbed my mom's life. The lack of knowledge is what we will strive to change

Timeline Photos
04/30/2016

Timeline Photos

Second consensus statement on the diagnosis of multiple system atrophy
04/29/2016
Second consensus statement on the diagnosis of multiple system atrophy

Second consensus statement on the diagnosis of multiple system atrophy

A consensus conference on multiple system atrophy (MSA) in 1998 established criteria for diagnosis that have been accepted widely. Since then, clinical, laboratory, neuropathologic, and imaging studies have advanced the field, requiring a fresh evaluation ...

You got that right!
04/19/2016

You got that right!

Mammy's favorite first born grandchild...Allygator

MOM Multiple Systems Atrophy
04/19/2016

MOM Multiple Systems Atrophy

Let's see how many shares this purple MSA ladybug can get!

Let's see how many shares this purple MSA ladybug can get!
04/17/2016

Let's see how many shares this purple MSA ladybug can get!

Photos from MOM Multiple Systems Atrophy's post
04/12/2016

Photos from MOM Multiple Systems Atrophy's post

Multiple System Atrophy Awareness
04/05/2016
Multiple System Atrophy Awareness

Multiple System Atrophy Awareness

The words that make up multiple system atrophy (MSA) define the disease; wasting away of one system (the Autonomic Nervous System - ANS) in multiple ways. An easier way to say it: an intact mind inside a broken body.

What is Multiple System Atrophy?
04/05/2016
What is Multiple System Atrophy?

What is Multiple System Atrophy?

Multiple System Atrophy is a rare neurodegenerative disorder that is considered a type of Parkinsonism, but has more widespread effects on the brain and body.

Living Day By Day With MSA
03/31/2016

Living Day By Day With MSA

THIS IS IT ! Hurry Hurry!

This is THE FINAL day to participate in the dataMSA Survey for Multiple System Atrophy. You still have time to add your experiences and information (if you have not already participated). Click here:

https://docs.google.com/forms/d/1ZCupm26uUe9YSrmWl-CE1GaUYrrsaj7Rn9DTeAUEMaw/viewform

Thanks again, everyone, for making this project such a fine success! If you have any questions, or cannot meet this
deadline, drop me a line.

I'll keep you posted as begins to Mayo Clinic utilize the data.

Bill Sydnor
MSA Patient/dataMSA Creator

Living Day By Day With MSA
03/29/2016

Living Day By Day With MSA

The Multiple System Atrophy Coalition
03/29/2016

The Multiple System Atrophy Coalition

There are many Multiple System Atrophy online community discussion groups where you can find fellowship and support. Click the photo (and then click comment) to see just some of the groups available. There are open(public) groups, closed(private) groups and even secret groups (you must be invited). There are also groups for specific countries or regions where you can feel more closely connected to those near you. If you don't see a group that fits you or you need help to join please contact Msa CoalitionStaff

M.S.A. M U L T I P L E S Y S T E M SA T R O P H Y
03/22/2016

M.S.A.
M U L T I P L E
S Y S T E M S
A T R O P H Y

03/19/2016

Tomorrow I run for those who desire to but can no longer. For them and for my sweet little momma. I miss you so much.

Timeline Photos
03/19/2016

Timeline Photos

I will be there!!!
03/15/2016
2016 Conference – MSA New Jersey

I will be there!!!

MSANJ Regional Patient and Caregiver Support Conference Saturday, March 19 First Energy Park Lakewood BlueClaws Stadium Executive Conference Center 10:00 a.m. – 4:30 p.m. 2 Stadium Way Lakewood New Jersey 08701 Join other families living with Multiple System Atrophy. Learn about the disease, man…

Where is the MSA Shoe?
03/13/2016

Where is the MSA Shoe?

The Yates Family Hosts the MSA Shoe!

The Multiple System Atrophy Coalition
03/12/2016
The Multiple System Atrophy Coalition

The Multiple System Atrophy Coalition

Dear Friends, If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits-a review site like TripAdvisor-is honoring highly reviewed nonprofits with their 2016 Top-Rated Awards. Won't you help us raise visibility for our work by posting a review of your experience with us? All reviews will be visible to potential donors and volunteers. It’s easy and only takes 3 minutes!

Go to http://greatnonprofits.org/org/multiple-system-atrophy-coalition to get started!

Address

Virginia Beach, VA
23452

Alerts

Be the first to know and let us send you an email when MOM Multiple Systems Atrophy posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Nearby government services


Comments

My mom became an MSA angel in 2014. Not a day goes by without thinking of her. I miss her.