National Alliance for Caregiving

National Alliance for Caregiving Learn more about us at www.caregiving.org. You can also follow our work on Twitter ()

Medicaid cuts do not just affect individuals. They reshape entire systems of care, and not always for the better. Statel...
06/12/2026

Medicaid cuts do not just affect individuals. They reshape entire systems of care, and not always for the better.

Stateline recently reported on how proposed federal Medicaid cuts to home-based services could push more older adults into nursing homes, at the same time that states are grappling with the consequences of private equity ownership in long-term care. From patient safety failures to hidden ownership structures, the piece paints a sobering picture of what is at stake.

National Alliance for Caregiving's President and CEO, Jason Resendez, put it plainly: "When we take those benefits away, it doesn't take away the need for that care." Without home-based services, families face impossible choices. And as demand for nursing home beds grows, distressed facilities may become prime targets for private equity acquisition.

States like Connecticut, California, and Illinois are already stepping up with new transparency and accountability measures. But state action alone is not enough. Federal policy must protect the people and families who depend on these systems, not expose them to greater risk.

Thank you to Anna Claire Vollers and Stateline for bringing this issue the attention it deserves.

Read the full story: 🔗 https://stateline.org/2026/06/09/after-nursing-home-crises-states-target-private-equitys-role/

This ‍🌈, we're honoring the LGBTQ+ caregivers who show up every day with love, strength, and resilience, even when the...
06/11/2026

This ‍🌈, we're honoring the LGBTQ+ caregivers who show up every day with love, strength, and resilience, even when the systems around them fall short.

Gwendolyn has been caring for her wife, who lives with lupus and related diagnoses, for the past ten years. In that time, she has had to fight to be recognized as a care partner, chase down information about her wife's condition, and advocate tirelessly when doctors dismissed her wife's symptoms as "typical" — a painful and all-too-common experience for Black and Brown patients navigating a healthcare system that too often fails them.

Caregiving is already demanding. Doing it while pushing back against bias and invisibility is exhausting in a way that is hard to put into words. And that isolation is real. Our Caregiving in the US 2025 research found that 32% of LGBTQ+ caregivers report experiencing loneliness on their caregiving journey, compared to 23% of non-LGBTQ+ caregivers. Yet Gwendolyn keeps showing up, and she is not alone in finding meaning in it. More than half of all caregivers say caregiving gives them a sense of purpose, even amid the strain.

She hopes for a future where patient advocacy groups actively reach caregivers where they are, where research reflects the realities of Black and Brown communities, and where trust between those communities and the healthcare system is genuinely rebuilt, led by people from within those communities.

Gwendolyn's story is a reminder that caregiving is an act of love, and that every caregiver deserves to be seen, supported, and resourced in return.

This , we are committed to doing more than raising awareness. LGBTQ+ caregivers like Gwendolyn deserve real recognition, real resources, and real change. ‍

Read Gwendolyn’s care journey: 🔗 https://www.caregiving.org/care_stories/gwendolyn/

Tag a caregiver you know below ⬇️

🌈

Medicare’s Caregiver Training Services (CTS) reimburse certain providers for delivering structured training and educatio...
06/10/2026

Medicare’s Caregiver Training Services (CTS) reimburse certain providers for delivering structured training and education to family caregivers when those skills are necessary for the patient’s treatment plan. These codes represent a new avenue for caregiver support and are beginning to be implemented across healthcare systems. This session will examine how these efforts are emerging and what early adopters are learning.

Featuring national insights from organizations advancing awareness and advocacy around CTS codes, along with perspectives from healthcare providers integrating the CTS codes into practice, the webinar will offer a clear look at both the policy landscape and on the ground implementation. Participants will gain practical resources and strategies to strengthen caregiver engagement and embed caregiver support within existing care models.

Join Rush University Medical Center, AARP, and the National Alliance for Caregiving for this important discussion on advancing support for family caregivers and strengthen care delivery.

📅: June 24, 1-2PM ET
🔗: https://bit.ly/3RXRfKs

Rural family caregivers are the heart of their communities, and too often, they're doing it alone. Today, the National...
06/08/2026

Rural family caregivers are the heart of their communities, and too often, they're doing it alone.

Today, the National Alliance for Caregiving and Lutheran Services in America release Rooted in Care: Transforming the Future for Rural Family Caregivers, a new report highlighting the realities facing more than 12.6 million rural caregivers across our country.

The data tell a clear story:

📊 57% of rural caregivers provide 21+ hours of care each week with one-third providing more than 40 hours.
📊 Nearly 88% report moderate to high emotional stress.
📊 More than half report high financial stress.
📊 Access to critical supports remains limited.

For rural caregivers, geographic isolation, limited access to services, and under-resourced communities mean that caregivers in rural America are carrying an even heavier load, quietly and often invisibly.

Their resilience is extraordinary. But resilience alone is not a policy solution.

Federal and state leaders must invest in caregiver supports, strengthen the direct care workforce, expand access to home and community-based services, improve rural healthcare infrastructure, and ensure caregivers are recognized as essential partners in care.

Rural caregivers are rooted in their communities. It's time our policies are rooted in supporting them.

Thank you to Lutheran Services in America and RRF Foundation for Aging for your support and partnership in this work.

Explore the full report and tell us: what would make the biggest difference for family caregivers in your community?

🔗 https://lutheranservices.org/rural-caregivers/

Confused about Medicare drug costs? You’re not alone. Join CancerCare and special guest speakers to learn more about the...
06/04/2026

Confused about Medicare drug costs? You’re not alone.

Join CancerCare and special guest speakers to learn more about the Medicare Prescription Payment Plan (MPPP), a program for people with Medicare that helps spread out prescription drug costs into monthly payments and how it ties to the new $2,100 Medicare drug cost cap.

Many have never heard of this program or aren’t sure how it works. We created this webinar to provide a simple explanation based on the questions we’ve heard from you.

This session is for people with cancer, family caregivers, family members, and anyone who wants to learn more. We’ll explain the basics in plain language and share where to find more information.

Register here: https://loom.ly/P5Gnlus

The Centers for Medicare & Medicaid Services (CMS) released an interim final rule on Medicaid work requirements that wil...
06/03/2026

The Centers for Medicare & Medicaid Services (CMS) released an interim final rule on Medicaid work requirements that will determine who can access essential Medicaid coverage.

We appreciate that CMS exempted many family caregivers from work requirements and recognized that caregiving is demanding work. But exemptions only matter if people can actually claim them.

We remain concerned that eligible caregivers risk losing coverage not because they fail to qualify — but because of paperwork and administrative barriers. And the rule's narrow definition of medical frailty puts people with serious health conditions like cancer at greater risk of losing coverage.

"Between the looming documentation requirement and a medical frailty standard that's more restrictive than states expected, the people most likely to lose coverage are the ones already holding our care system together." — Jason Resendez, President & CEO of the National Alliance for Caregiving

Family caregivers deserve clear pathways to verify their status, fewer administrative barriers, and stronger protections. The care they provide is complex, demanding, and saves Medicaid and Medicare billions of dollars annually.

Read our full statement: 🔗 https://www.caregiving.org/nac-responds-to-the-interim-final-rule-from-the-centers-for-medicare-medicaid-services-cms/

How have the experiences of cancer caregivers—including care intensity, emotional toll, financial strain, and interactio...
06/01/2026

How have the experiences of cancer caregivers—including care intensity, emotional toll, financial strain, and interactions with the health care providers evolved since 2015? More importantly, whose experiences remain underrepresented, and how can the next national study capture that answer with rigor and equity?

The National Alliance for Caregiving is seeking a Fellow to lead the development of the Report Planning and Analysis Framework to update our 2016 report Cancer Caregiving in the US: An Intense, Episodic, and Challenging Care Experience — one of NAC's most widely cited publications.

This role will shape the secondary analysis of the Caregiving in the U.S. 2025 dataset, with a clear mandate to embed health equity, methodological rigor, and relevance to cancer care at every stage. The Fellow will:

🔹 Co-develop an analytical framework across core domains (e.g., care intensity, healthcare system integration, economic impact) to identify trends, gaps, and research priorities in cancer caregiving.
🔹 Center caregivers from diverse communities in shaping analytic priorities, processes, and report updates.
🔹 Engage with NAC’s cancer caregiving partners to translate findings into actionable insights that advance research, policy, and practice.

Fellowship Snapshot:

📅 July 2026 – June 2027 | ~4 hrs/week
💰 $15,000 stipend
🎯 Reports to NAC Program & Research Leadership

You bring: A completed PhD (preferred) in health services research, epidemiology, or a related field + caregiving expertise + experience facilitating stakeholders or community-engaged processes.

Apply by June 20, 2026. Full details & Candidate FAQ 👉🏼 https://www.caregiving.org/careers/

Did you know? Family caregivers contribute more than $1 trillion in care labor annually to our healthcare system so gett...
05/28/2026

Did you know? Family caregivers contribute more than $1 trillion in care labor annually to our healthcare system so getting sick isn’t an option.

When a caregiver gets sick—especially with a serious infection like pneumonia or meningitis—it doesn't just impact their health. It disrupts their entire family's care plan.

Many caregivers ages 50+ remain vulnerable to preventable diseases like pneumococcal disease. Pneumococcal vaccination is a simple, effective way to protect both yourself and those who depend on you. Most insurance plans cover it at no cost, and vaccines are available year-round.

As a caregiver, you show up for others every day. Make sure you're also showing up for yourself. Talk to your healthcare provider about pneumococcal vaccination today.

Your health matters. Your family depends on it. 💙

Learn more: CVEEP.org/pneuprotectsyou

A new six-month moratorium on Medicare home health and hospice provider enrollment raises a critical question: what happ...
05/27/2026

A new six-month moratorium on Medicare home health and hospice provider enrollment raises a critical question: what happens to families who depend on these services when access shrinks?

The National Alliance for Caregiving recently urged CMS to closely monitor the impact of its six-month enrollment moratorium on new Medicare home health and hospice providers.

For millions of family caregivers, home health and hospice services are essential. When access disappears, caregivers step in, often without training or support, while balancing work, family, and their own health. And these access gaps are deepening in rural areas and underserved communities where provider supply is already thin.

We support efforts to strengthen program integrity, but families should not have to choose between oversight and access to care. We are calling for transparency on emerging shortages, pathways for trusted providers to serve underserved communities, and swift action to protect access in rural and home care desert areas.

Family caregivers shouldn't have to choose between program integrity and the care their loved ones need. We welcome the opportunity to work with CMS to get this right.

Read our letter: 🔗https://www.caregiving.org/wp-content/uploads/2026/05/NAC_CMS_Home-Health-Hospice-Moratorium-Letter_May-2026.pdf

JOIN US TOMORROW: Building on the National Alliance for Caregiving's March webinar, where we explored why family caregiv...
05/26/2026

JOIN US TOMORROW: Building on the National Alliance for Caregiving's March webinar, where we explored why family caregivers are essential partners in complex care, this session will focus on how health systems are integrating them into care delivery.

Learn how hospitals and health systems are testing, implementing, and expanding caregiver support programs across different caregiving contexts and patient populations. The session will also highlight resources on Medicare’s Caregiver Training Services reimbursement codes which can be leveraged to better assess and support family caregivers.

Join us for this important discussion outlining what it takes to support family caregivers across different health care settings.

📅: May 27, 1-2 PM ET
🔗: https://bit.ly/4e3GqzH

March’s webinar, watch here 🔗: https://youtu.be/UJLp_1vA7w4?si=FJVK09e4EneTN0KF

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Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 9am - 12pm

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