Children's Cancer Cause

Children's Cancer Cause The Voice for Children with Cancer
(17)

Operating as usual

Children’s Cancer Cause recently collaborated with Pfizer, Inc. on a focus group around how to make better medicines to ...
04/19/2021
Nausea, Taste, and Schedule Highlighted as Challenges in Survivor Focus Group on Medications — Children's Cancer Cause

Children’s Cancer Cause recently collaborated with Pfizer, Inc. on a focus group around how to make better medicines to treat children and young adults.

We are so grateful to the childhood cancer survivors who joined us for this discussion to share their experiences, and we're pleased to share a few illuminating highlights with you on our blog:
https://www.childrenscancercause.org/blog/nausea-taste-and-schedule-highlighted-as-challenges-in-survivor-focus-group-on-medications

Children’s Cancer Cause recently collaborated with Pfizer, Inc. on a focus group around how to make better medicines to treat children and young adults. We are so grateful to the childhood cancer survivors who joined us for this discussion to share their experiences, and we’d like to share a few...

Don't know what to do with that old vehicle that just isn't reliable anymore? Donate it to Children's Cancer Cause! We a...
04/18/2021

Don't know what to do with that old vehicle that just isn't reliable anymore? Donate it to Children's Cancer Cause! We accept cars, truck, boats, RVs, snowmobiles, and more. Call 855-500-7433 or visit https://buff.ly/2Wjy5hk to learn how you can schedule your free pick-up.

#cardonation #vehicledonation #donateyourcar

Don't know what to do with that old vehicle that just isn't reliable anymore? Donate it to Children's Cancer Cause! We accept cars, truck, boats, RVs, snowmobiles, and more. Call 855-500-7433 or visit https://buff.ly/2Wjy5hk to learn how you can schedule your free pick-up.

#cardonation #vehicledonation #donateyourcar

Sequoia White was diagnosed with Non-Hodgkin’s Lymphoma at 15. She says “I know firsthand how lonely being in the hospit...
04/17/2021

Sequoia White was diagnosed with Non-Hodgkin’s Lymphoma at 15. She says “I know firsthand how lonely being in the hospital can feel and how difficult it can be without people your age to relate to,” Read Sequoia's story: https://buff.ly/3mSqXFQ #ChildhoodCancer

ACTION ALERT: The COVID-19 pandemic caused severe disruptions to federally-backed research, including childhood cancer r...
04/16/2021

ACTION ALERT: The COVID-19 pandemic caused severe disruptions to federally-backed research, including childhood cancer research. Many laboratories were forced to minimize operations beyond “essential” work, delay research already underway, and postpone planned projects.

The bipartisan RISE Act would provide $25 billion (including $10 billion to the NIH) to support independent research institutions, public laboratories, and universities as they restart their life-saving research - before the impact of these interruptions causes any further long-term harm.

Use this form to send a quick note to your Members of Congress, letting them know that children with cancer cannot afford any further disruptions to critical research:
https://www.votervoice.net/ChildrensCause/campaigns/83967/respond

ACTION ALERT: The COVID-19 pandemic caused severe disruptions to federally-backed research, including childhood cancer research. Many laboratories were forced to minimize operations beyond “essential” work, delay research already underway, and postpone planned projects.

The bipartisan RISE Act would provide $25 billion (including $10 billion to the NIH) to support independent research institutions, public laboratories, and universities as they restart their life-saving research - before the impact of these interruptions causes any further long-term harm.

Use this form to send a quick note to your Members of Congress, letting them know that children with cancer cannot afford any further disruptions to critical research:
https://www.votervoice.net/ChildrensCause/campaigns/83967/respond

"As I’ve expressed before in this blog series, I’ve found that people simply don’t fit into neat little boxes like burea...
04/14/2021
Guest Blog: Identity and Survivorship - College and Professional Life — Children's Cancer Cause

"As I’ve expressed before in this blog series, I’ve found that people simply don’t fit into neat little boxes like bureaucratic institutions would have us do. My experience with the Department of Rehabilitation (DOR) - California’s version of Vocational Rehabilitation (VR) - has been essential in cementing that concept in my mind.

I spent my high school years trying to ignore the fact that I was 'different.' I did not go to the guidance counselor who would have gotten me set up with DOR early on. It wasn’t until I was almost finished with community college that I found out DOR would have paid for the entirety of my first two years of education if I’d only acted sooner. I ended up working full-time at a movie theatre while also a full-time student those first couple years. It would’ve been great if I had only needed to focus on my studies.

My initial impression of VR had been that it was for people in wheelchairs, those who were nonverbal, and veterans with missing limbs. It wasn’t meant for 'people like me.' I was eventually convinced otherwise..."

We're pleased to bring you the sixth post in this guest blog series by childhood brain tumor survivor Rachel McCallum:
https://www.childrenscancercause.org/blog/mccallum-guest-blog-college-professional-life

Rachel McCallum is a long-term survivor diagnosed with Anaplastic Astrocytoma of the 4th ventricle of the brain stem in 1993. Her experience as a long-term survivor has encouraged her to become an advocate for others like herself who have struggled with the transition from pediatric patient to indep

Calling all childhood cancer families! As part of this year's Alliance for Childhood Cancer Action Days, you can partici...
04/12/2021
Alliance for Childhood Cancer : Join Us : Faces of Childhood Cancer Project

Calling all childhood cancer families! As part of this year's Alliance for Childhood Cancer Action Days, you can participate in the Faces of Childhood Cancer Project. But hurry - the submission deadline is 5pm EST on Tuesday!

We want our legislators to recognize that childhood cancer goes beyond statistics by showing them the faces of our children. Our children are more than just the cancer they experience. The Alliance has created the Faces of Childhood Cancer Project to share their stories with legislators at upcoming advocacy meetings. It’s a fun and meaningful activity that you can do from home!

Learn more:
https://www.allianceforchildhoodcancer.org/join-us/faces-of-childhood-cancer-project.html

Calling all childhood cancer families! As members of the childhood cancer community, we want our legislators to recognize that childhood cancer goes beyond statistics by showing them the faces of our children. Our children are more than just the cancer they experience. We have created the Faces of C...

The Biden administration's FY2022 budget request calls for a new agency that would seek to speed the development of medi...
04/11/2021
Biden wants $6.5 billion for new health agency to speed treatments

The Biden administration's FY2022 budget request calls for a new agency that would seek to speed the development of medical treatments by funding risky, innovative projects.

"The agency, dubbed ARPA-Health (ARPA-H), would be housed at the National Institutes of Health and have a 2022 budget of $6.5 billion. Few other details about ARPA-H have been released, except that it would initially focus on cancer and diseases 'such as diabetes and Alzheimer’s.'"

https://www.sciencemag.org/news/2021/04/biden-wants-65-billion-new-health-agency-speed-treatments

Some advocates worry about locating new entity at the National Institutes of Health

We are shopping online now more than ever! When you shop using Amazon and add Children's Cancer Cause as your charity us...
04/11/2021

We are shopping online now more than ever! When you shop using Amazon and add Children's Cancer Cause as your charity using their AmazonSmile program, a donation is made to our organization as a result of your purchase - at no cost to you. Get started today at https://buff.ly/2tVdTW7.

#ChildhoodCancer #AmazonSmile

We are shopping online now more than ever! When you shop using Amazon and add Children's Cancer Cause as your charity using their AmazonSmile program, a donation is made to our organization as a result of your purchase - at no cost to you. Get started today at https://buff.ly/2tVdTW7.

#ChildhoodCancer #AmazonSmile

Have you asked your Members of Congress to support the Gabriella Miller Kids First Research Act 2.0, which redirects pen...
04/10/2021

Have you asked your Members of Congress to support the Gabriella Miller Kids First Research Act 2.0, which redirects penalties levied against law-breaking pharmaceutical manufacturers towards the Kids First Pediatric Research Program? We make it easy with our Legislative Action Center. Check it out today at https://buff.ly/3etlfrU.

#childhoodcancer #canceradvocacy #advocacy #cancerresearch

Have you asked your Members of Congress to support the Gabriella Miller Kids First Research Act 2.0, which redirects penalties levied against law-breaking pharmaceutical manufacturers towards the Kids First Pediatric Research Program? We make it easy with our Legislative Action Center. Check it out today at https://buff.ly/3etlfrU.

#childhoodcancer #canceradvocacy #advocacy #cancerresearch

Thank you to Jake's mom for writing to us this week to share Jake's story during Adolescent and Young Adult Cancer Aware...
04/09/2021
Jake — Children's Cancer Cause

Thank you to Jake's mom for writing to us this week to share Jake's story during Adolescent and Young Adult Cancer Awareness Week.

Jake's life and legacy live on through his family, and we're honored they shared a slice of his inspiring story with us - so we could share it with you:
https://www.childrenscancercause.org/jake

We thought he twisted his knee doing the shotput during a track meet but it turned out to be a large tumor. Over the next several weeks, he went through chemo , had his femur removed, had a metal bar inserted, and continued with chemo. He was very sick but after eight months it seemed they got the c...

It's Adolescent and Young Adult Cancer Awareness Week and we're celebrating survivors like Sequoia! Sequoia is one of ou...
04/08/2021
Sequoia — Children's Cancer Cause

It's Adolescent and Young Adult Cancer Awareness Week and we're celebrating survivors like Sequoia! Sequoia is one of our 2020 College Scholars and is an outspoken advocate for improving the social and emotional care for other teens and young adults with cancer.

Sequoia is working with her local children’s hospital to create more teen-friendly activities and programs for older patients spending time on pediatric oncology wards.

“I know firsthand how lonely being in the hospital can feel and how difficult it can be without people your age to relate to,” she says. “Life in a hospital is never fun but I believe there’s a way to make it a little easier for teenage patients through connection with others.”

https://www.childrenscancercause.org/sequoia

Our College Scholars receive a financial scholarship to help with academic expenses, and each scholar commits to completing a project of their choosing related to childhood cancer advocacy, with support and mentorship from the Children's Cancer Cause team. Meet all seven of our 2020 scholars here, a...

As public policy advocates, we are deeply committed to addressing disparities in healthcare access, improving minorities...
04/07/2021

As public policy advocates, we are deeply committed to addressing disparities in healthcare access, improving minorities' quality of care, and fighting discrimination at every level.

It's World Health Day! Let's build a fairer, healthier 🌎🌍🌏

COVID-19 has highlighted how some 👱🙎🏽‍♀️ live healthier lives and have better access to health services than others, simply due to their living conditions.

It's time for health equity to reach health for all!

It is Adolescent and Young Adult Cancer Awareness Week, and we're sharing resources from our Stewart Initiative that aim...
04/07/2021
Education and Employment — The Stewart Initiative for Childhood Cancer Survivors

It is Adolescent and Young Adult Cancer Awareness Week, and we're sharing resources from our Stewart Initiative that aim to help guide and empower teen and young adult survivors.

The information and resources on our Education & Employment page is for those who are looking toward college and early career paths. Survivors can sometimes encounter discrimination at school or in the workplace, and it's important to know your rights and options:
https://www.childhoodcancersurvivorship.org/education-and-employment

Education & Employment The content on this page is aimed at teen and young adult survivors who are looking toward college and early career paths. If you are a caregiver to a younger survivor, a terrific resource is The Trish Greene Back to School Program For Children With Cancer, offered by the Leuk...

Our new blog post highlights some of our programs that help teens and young adults navigate their survivorship journey, ...
04/06/2021
89,000 Reasons to Recognize AYA Cancer Awareness Week — Children's Cancer Cause

Our new blog post highlights some of our programs that help teens and young adults navigate their survivorship journey, including our Stewart Initiative and College Scholars Program.

Several of our College Scholars alumni were diagnosed as teens and are outspoken advocates for improving the social and emotional care for other teens and young adults with cancer, and we're pleased to feature their good works here:

https://www.childrenscancercause.org/blog/aya-cancer-awareness-week-2021

This week marks Adolescent and Young Adult (AYA) Cancer Awareness Week (April 4-10). This annual awareness week is an opportunity to shine a light on the unique challenges that teen and young adult cancer patients and survivors face.

It is Adolescent and Young Adult Cancer Awareness Week! This annual awareness week is an opportunity to shine a light on...
04/05/2021
The Stewart Initiative for Childhood Cancer Survivors

It is Adolescent and Young Adult Cancer Awareness Week! This annual awareness week is an opportunity to shine a light on the unique challenges that teen and young adult cancer patients and survivors face.

According to the National Cancer Institute, about 89,000 young adults (ages 15 to 39) are diagnosed with cancer each year in the United States, which accounts for about five percent of cancer diagnoses nationally.

Our Stewart Initiative website has information and resources aimed at the AYA population, to help you navigate concerns about intimacy and sexuality to your rights in the workplace and much more:
https://www.childhoodcancersurvivorship.org/

With generous support from the Stewart Family, Children’s Cancer Cause is developing initiatives to address the medical and psychosocial care needs of pediatric cancer survivors. By delivering resources and interactive educational elements, we aim to empower the nation’s 500,000 childhood cancer...

SAVE THE DATE: Our 4th Annual Jazz in June will be held Thursday, June 17th virtually at 8 PM EST and will feature terri...
04/03/2021
Jazz in June — Children's Cancer Cause

SAVE THE DATE: Our 4th Annual Jazz in June will be held Thursday, June 17th virtually at 8 PM EST and will feature terrific jazz music, childhood cancer champions, and an online auction. Tickets are free -- sign up today at https://www.childrenscancercause.org/jazzinjune

#Jazz #jazzmusic #JazzAppreciationMonth #ChildhoodCancer

Join Children's Cancer Cause June 17, 2021, for our 4th annual Jazz in June event.

In case you missed this week's excellent CNN opinion piece by Andrew Kaczynski, which advocates for passage of the Gabri...
04/03/2021
Opinion: In Gabriella Miller's memory, a bill to help kids with cancer

In case you missed this week's excellent CNN opinion piece by Andrew Kaczynski, which advocates for passage of the Gabriella Miller Kids First Research Act 2.0: https://www.cnn.com/2021/03/29/opinions/pediatric-cancer-gabriella-miller-kaczynski/index.html

We're proud to be supporting this legislation and we hope you'll join us in asking your Members of Congress to support this bill. Take action here:
https://www.votervoice.net/ChildrensCause/campaigns/79807/respond

Andrew Kaczynski writes that pharmaceutical companies have never developed a drug for pediatric cancer, leaving the government and charities to be the private funders of this research. A new bill in Congress aims at creative solutions to change that.

04/02/2021
Our 2020 Annual Report

We are so pleased to share with you that our 2020 Annual Report is now available on our website:
https://www.childrenscancercause.org/financials-governance

Despite the unique challenges of 2020, much was accomplished: securing the third straight year of full funding for the STAR Act, announcing the first annual Survivorship Champion's Prize, awarding the most scholarships ever through our College Scholars Program, and more.

Please take a few minutes to review this summary of our work in 2020. If you would like a complimentary paper copy of this report mailed to your home, please send your mailing address to [email protected].

One week left to register for the Alliance for Childhood Cancer's Virtual Action Day, taking place April 27th! This virt...
04/02/2021
Virtual Action Days 2021

One week left to register for the Alliance for Childhood Cancer's Virtual Action Day, taking place April 27th!

This virtual event includes issues and advocacy training and pre-arranged Zoom meetings with Members of Congress and their staff. The Alliance’s goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to advocate for the important childhood cancer issues currently before Congress.

Learn more and register:
https://give.acco.org/event/virtual-action-days-2021/e322756

June 9th - 10th! Once again, organizational members of the Alliance for Childhood Cancer will host a two-day event that includes new advocate training, issues and advocacy training, and pre-arranged Capitol Hill visits with Members of Congress and their staff.

Address

1325 G Street NW, Suite 540
Washington D.C., DC
20005

Opening Hours

Monday 09:00 - 18:00
Tuesday 09:00 - 18:00
Wednesday 09:00 - 18:00
Thursday 09:00 - 18:00
Friday 09:00 - 18:00

Telephone

(202) 552-7392

Products

Children's Cancer Cause fills a critical gap by serving as the leading national organization dedicated to representing children with cancer, survivors, and their families in Washington, DC. We achieve this by:

- Educating national decision makers and other stakeholders about the unique needs and perspectives of this population and advocating for change at the federal level; and

- Empowering children, survivors and their families to become advocates for themselves and others by arming them with information, resources, and advocacy training.

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I sincerely pray for A cure soon . May God's healing power reach each of you. God 🙏🙏🙏 bless each of you. Pearl Brisco
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Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help
Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help.
Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (developmental difficulties as well), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help.
Thank you for your service for the kids there worth more than all the gold in the world
South Carolina Childhood Cancer Awareness Month Proclamation 🎗
Stop Causing Children's Cancer!
Please share
Looking forward to the music and hearing from Children's Cause!
We've got til March 30th to send in letters of support for a new type of SPORE grant which could change the way the Fed supports pediatric cancer research--we need more letters :)
In honor of your child, please consider writing a letter for this novel SPORE grant. It could literally begin paving the way for change in the medical research industry to better accommodate our children's needs. Thank you so much for your consideration! Sincerely, Janet Demeter