People Against Childhood Cancer (PAC2)

People Against Childhood Cancer (PAC2) PAC2 - "One Voice United Against Childhood Cancer!" PAC2 is grassroots, volunteer operated and does not raise funds; PAC2 has no operating budget and is independent. PAC2 does not duplicate or compete with the efforts of organizations that are members.
PAC2 was founded in 2008 to provide the childhood cancer community a place to share information, connect and support the mission of curing childhood cancer. It has since grown to over 6,000 members, including nearly 100 childhood cancer organizations. PAC2 provides a national forum for sharing information and news and continually supports and promotes the efforts of all childhood cancer organizations. PAC2 is operated by volunteers, does not raise funds, has no operating budget and is independent. PAC2 does not duplicate or compete with the efforts of organizations that are members. PAC2's overall mission is reflected in its slogan “One Voice United Against Childhood Cancer.” www.PeopleAgainstChildhoodCancer.org

We serve the childhood cancer community and childhood cancer organizations through shared information and promotion of member organization's missions, events and initiatives. We also produce original content related to the mission of curing childhood cancer.

Mission: Our mission is to raise awareness of Childhood Cancer and to unite the childhood cancer world to speak and fight as "One Voice United Against Childhood Cancer". Together, we can accomplish more.

Tune in and Tweet in.  High Grade Pediatric Brain Tumor Twitter Chat.  Wednesday, September 5, at 11AM ET. The designate...
09/05/2018

Tune in and Tweet in. High Grade Pediatric Brain Tumor Twitter Chat. Wednesday, September 5, at 11AM ET. The designated chat hashtag is #KidsBrainTumors.

The chat will be moderated by Weill Cornell Brain and Spine Center (@WCMCBrainSpine), and we will be co-hosting along with Dr. Mark Souweidane (@DrSouweidane), Director of Pediatric Neurosurgery at Weill Cornell Medicine and cofounder of the Children's Brain Tumor Project, and Professor David Walker (@DavidWalker40), Professor of Pediatric Oncology at University of Nottingham and Chair of the Children's Brain Tumor Drug Delivery Consortium in the UK.

How to participate:
*Be sure you follow the moderator and co-hosts at @WCMCBrainSpine, @CAC2, @DrSouweidane and @DavidWalker40
Login to Twitter by 11AM ET on September 5
*Be prepared with what you might want to ask, or feel free to simply observe the conversation
*All posts, comments and replies must contain the hashtag #KidsBrainTumors
*Follow the hashtag to watch the conversation in real-time. You can put the hashtag into the search bar to view all posts

REMINDER: There will be an interactive Twitter Chat on pediatric brain tumors tomorrow at 11AM ET. Moderated by Weill Cornell Pediatric Brain and Spine Center (@WCMCBrainSpine) and cohosted by the Coalition Against Childhood Cancer (@CAC2org), Dr. Mark Souweidane (@DrSouwiedane) and Professor David Walker (@DavidWalker40), University of Nottingham and Chair of the @CBTDDC in the UK. Use the hashtag #KidsBrainTumors to join the conversation.

Visit: http://www.childrensbraintumorproject.org/eve…/twitter-chat/ for more information and to add to your calendar.

#childhoodcancerACTIONmonth
#pediatricbraintumors
#KidsBrainTumors

This afternoon, the Childhood Cancer STAR Act, passed through the House of Representatives.  It now goes to the White Ho...
05/23/2018

This afternoon, the Childhood Cancer STAR Act, passed through the House of Representatives. It now goes to the White House to be signed into law!

We thank all of the PAC2 gang for there support to make this happen.

Dr. Eugenie Kleinerman – Head, Division of Pediatrics, M. D. Anderson Cancer Center: “Curing childhood cancer is the...
03/21/2018

Dr. Eugenie Kleinerman – Head, Division of Pediatrics, M. D. Anderson Cancer Center: “Curing childhood cancer is the equivalent of curing breast cancer in terms of productive life years saved.” Did you know that National Cancer Institute Director?

From our friends at For The Day Foundation.  Share this with your pediatric cancer circles in the Detroit area:Calling a...
03/16/2018
For a Day's 11th Annual Fashion Show

From our friends at For The Day Foundation. Share this with your pediatric cancer circles in the Detroit area:

Calling all patients, survivors, and siblings in the Detroit/Grand Rapids area - come be a star at the For a Day Foundation's 11th annual Fashion Show! May 6th, Carson's, Clinton Township, MI. Details & RSVP information at foraday.org/fashionshow

02/22/2018

We stand with the Parkland parents and kids. We stand with the Sandy Hook parents and kids. We know the pain and anger of losing children. We know what it’s like to bury a child. And, we know the frustration of fighting for common sense change.

For a decade we’ve advocated for change. For a decade we’ve advocated against the leading cause of death by disease for kids under 20: childhood cancer. Many, many others in this community have advocated much longer and far stronger. Because cancer kills more kids than all other diseases combined.

BUT - our elected officials and the NCI have refused to increase funding for childhood cancer research. And increased funding for research is the common sense step to fight for children with cancer. There is no cure being hidden by big pharma. There is no magic treatment. It takes the blood, sweat and tears of the dedicated researchers to identify better treatments.

Until that happens, our kids will continue to face old, outdated treatments, originally designed for adults, to try to save their lives. In the US alone, about 50 kids are diagnosed with cancer every day. 1 in 5 will die within 5 years. For some childhood cancers there is no treatment.

About 10 kids are killed every single day by cancer. Monday, 10. Tuesday, 10. Wednesday, 10. Thursday, 10. Friday, 10. Saturday, 10. Sunday, 10. Next week, repeat. Next month, repeat. Ad infinitum.

Until we fund more childhood cancer research.

We must protect our children in schools and from the #1 killer disease: childhood cancer. We must take action and make common sense change. To quote the kids: “Talk is bullsh*t, we need ACTION!”

#NeverAgain
#CureChildhoodCancer

Dear National Cancer Institute Director Sharpless,Rep. Mike McCaul tells America that childhood cancer the #1 threat to ...
01/11/2018

Dear National Cancer Institute Director Sharpless,

Rep. Mike McCaul tells America that childhood cancer the #1 threat to our children.

After careful evaluation of NCI's research funding, PAC2 concludes that childhood cancer research is severely underfunded in the NCI portfolio.

How do these two facts align? Or are we wrong?

Thanks!

My Daughter Died, But I’m Still Mothering Her
01/10/2018
My Daughter Died, But I’m Still Mothering Her

My Daughter Died, But I’m Still Mothering Her

Jacqueline Dooley recalls her difficult transition from being a mother with earthly duties, to becoming one with more spiritual concerns for a teenage daughter with terminal cancer.

Helping kids with cancer provides a rare opportunity for bipartisan cooperation.  Right now, more than 75 percent of mem...
01/09/2018
Helping kids with cancer offers chance for bipartisan cooperation in Congress

Helping kids with cancer provides a rare opportunity for bipartisan cooperation. Right now, more than 75 percent of members of the House of Representatives and almost a third of senators have voiced their support by cosponsoring the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act which would expand research into childhood cancer.

Dear National Cancer Institute Director Sharpless,Our evaluation of NCI funding for cancer research shows that #childhoo...
12/21/2017
NCI Funding: more lies, damn lies and statistics...

Dear National Cancer Institute Director Sharpless,

Our evaluation of NCI funding for cancer research shows that #childhoodcancer funding should be increased -- to more appropriately address its mortality impacts, and, really, to show we care about our children at LEAST as much as we (adults) care about ourselves. We know you guys know way more than we do, so can you just show me where we're wrong in this analysis.....?

Thanks, and Merry Christmas
#1Decade
cc: National Cancer Institute - News and Public Affairs, Donald J. Trump, Fox News CBS News ABC News NBC News The New York Times Washington Post USA TODAY

The recent post on the National Cancer Institute's Pediatric Cancer Research and Pediatric Cancer-Related Activities Report discussed NCI's response to a direc…

If your members of Congress have signed on, please contact them and tag them on social media. Thank them for their suppo...
12/12/2017

If your members of Congress have signed on, please contact them and tag them on social media. Thank them for their support and call upon them to help get #STARAct passed. If they haven't, tell them that children with cancer need their help.

You can find your Senators and Representative and their contact information here: http://stepupforchildhoodcancer.com/sponsor-map/.

"My Dog Named Hope" is a story about a family and how they cope with childhood cancer.
11/18/2017
Book helps children with cancer cope with their disease

"My Dog Named Hope" is a story about a family and how they cope with childhood cancer.

Just in time for the holidays you can buy a child a great book and help save lives at the same time. My Dog Named Hope is a story about a family and how they cope with childhood cancer. Joe Dean is the author of the colorful children's tale.

11/13/2017
Open The Door

Thanks First Citizens Bank and Teen Cancer America! And esp Roger and Pete! "we're not gonna take it"

Help us open the door to better cancer care. #LetMyLoveOpenTheDoor | https://www.LetMyLoveOpenTheDoor.com Teenagers fighting cancer don't belong in pediatric...

Vickie Buenger, PhD, president of the Coalition Against Childhood Cancer said in a press release:“The FDA’s decision...
11/13/2017
FDA approves dasatinib for children with Philadelphia chromosome-positive chronic myeloid leukemia

Vickie Buenger, PhD, president of the Coalition Against Childhood Cancer said in a press release:

“The FDA’s decision to approve the expanded use of [dasatinib] in children with Philadelphia chromosome-positive chronic myeloid leukemia in chronic phase may bring new hope to these patients and their families.”

The FDA expanded the indication for dasatinib to include the treatment of children with Philadelphia chromosome-positive chronic myeloid leukemia in chronic phase. The approval was granted under priority review and the indication received orphan drug designation.

Please help us get the word out that the stories of two childhood cancer survivors will be featured nationally on CBS th...
11/10/2017
ccThrive

Please help us get the word out that the stories of two childhood cancer survivors will be featured nationally on CBS this Sunday after football. Bryan and Gavin are co-founders of ccThrive whose mission is to build inspire childhood cancer survivors to thrive by providing role models that demonstrate that survivorship is not necessarily defined by diminished physical and cognitive capacities. ccThrive is a Coalition Against Childhood Cancer member, and encourages children with cancer to be as active as possible, both physically and cognitively and once off treatment, to be proactive and persistent in their full rehabilitation and entry into competitive pursuits.
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https://www.facebook.com/llbean/videos/10155401494682415

Your donation will turn surviving into thriving for thousands of children. Help redefine what it means to survive childhood cancer!

The American Cancer Society. #ChildhoodCancer. 2016
11/01/2017

The American Cancer Society. #ChildhoodCancer. 2016

10/30/2017
Week in review: Caltagirone celebrates passage of bill to aid pediatric cancer research | Reading Eagle - NEWS

Good idea to add a donation box for childhood cancer research on tax returns in Pennsylvania. I mean, come on Alaska, Wyoming, Washington, District of Columbia, North Carolina, California etc. Hell, come on IRS and Donald J. Trump, let's do it on Fed Tax forms: that's a tax reform we can support!!

Also: Seth Williams gets five years in prison; more than 500 noncitizens may have voted in Pennsylvania elections

After tons of hard work by Smashing Walnuts and others, "they" are listening! "Talk is bullsh*t, we need action" - Gabby...
10/30/2017
Kids First Pediatric Research Program Moves Forward

After tons of hard work by Smashing Walnuts and others, "they" are listening! "Talk is bullsh*t, we need action" - Gabby. Congratulations!

A new data resource center is being developed for the Gabriella Miller Kids First Research Program, so investigators can better collaborate on childhood cancers and birth defect research.

From #TeamDamon..........My son Damon’s arm was amputated due to Osteosarcoma. He has a great sense of humor and came ...
10/29/2017
Brian A. Billeck on Twitter

From #TeamDamon..........

My son Damon’s arm was amputated due to Osteosarcoma. He has a great sense of humor and came up with this costume.

On June 27, 2017, the American Academy for Pediatrics and Environmental Working Group sent the letter attached and below...
10/29/2017
Nation’s Pediatricians, EWG Urge EPA to Ban Pesticide that Harms Kids’ Brains

On June 27, 2017, the American Academy for Pediatrics and Environmental Working Group sent the letter attached and below to Environmental Protection Agency Administrator Scott Pruitt on the agency's recent decision to pull back a scheduled ban on the pesticides chlorpyrifos.

On June 27, 2017, the American Academy for Pediatrics and EWG sent the letter attached and below to Environmental Protection Agency Adminsitrator Scott Pruitt on the agency's recent decision to pull back a scheduled ban on the pesticides chlorpyrifos. -- June 27, 2017

10/29/2017
Meeting Library | Meeting Library

Advances in the Treatment of Pediatric Bone Sarcomas

- Germline cancer risk mutations are commonly detected in patients with bone sarcomas, particularly osteosarcoma.

- The implications of identifying germline cancer risk mutations are significant enough to warrant a consideration of referral of all patients with bone sarcoma, particularly those with osteosarcoma, to a cancer risk clinic.

- By focusing on the transcriptional activity of the most common fusion found in Ewing sarcoma (ES), EWSR1-FLI1, investigators have identified promising new therapeutic avenues in this disease.

- As trials of new therapeutic approaches derive from research on EWSR1-FLI1, accurate molecular characterization of all patients with ES enrolled in clinical trials is essential.

- Clinical investigation in osteosarcoma is currently focused on conducting phase II trials of novel agents for which preclinical studies and the osteosarcoma genomic landscape suggest potential activity (including immunotherapy, receptor tyrosine kinase inhibitors, and modulators of bone development).

This content is made available for your personal use, educational advancement, or professional development. Unauthorized reproduction is prohibited. For permission to re-use for commercial or other purposes, please contact [email protected]

10/29/2017
Meeting Library | Meeting Library

From @American Society of Clinical Oncology: Late Effects

Breast Cancer After Childhood, Adolescent, and Young Adult Cancer: It’s Not Just About Chest Radiation

- Women treated for childhood, adolescent, and young adult cancer are at an increased risk of breast cancer at a young age.

- The highest risk of breast cancer is observed in women treated with chest radiation for HL, though other treatment- and host-related factors are associated with elevated risk.

- Genetic factors appear to be associated with risk; survivors, particularly sarcoma and leukemia survivors, and those with familial risk should be referred for genetic counseling.

- In women exposed to chest radiation, surveillance with mammography and breast MRI are recommended starting at age 25 or 8 years after exposure, whichever occurs last.

- Prevention measures are being explored to mitigate survivors’ risk.

This content is made available for your personal use, educational advancement, or professional development. Unauthorized reproduction is prohibited. For permission to re-use for commercial or other purposes, please contact [email protected]

This is a non-partisan issue, all Americans should be concerned.  "Trump hasn’t managed to pass significant legislatio...
10/29/2017
Trump’s Legacy: Damaged Brains

This is a non-partisan issue, all Americans should be concerned.

"Trump hasn’t managed to pass significant legislation so far, which is true. But he has been tragically effective at dismantling environmental and health regulations — so that Trump’s most enduring legacy may be cancer, infertility and diminished I.Q.s for decades to come."

President Trump’s E.P.A. is fine with children eating food tainted by a pesticide derived from a nerve gas.

From the Coalition Against Childhood Cancer - a great, searchable, comprehensive list of support resources for childhood...
10/28/2017
Coalition Against Childhood Cancer

From the Coalition Against Childhood Cancer - a great, searchable, comprehensive list of support resources for childhood cancer......

This next generation of our Hope Portal strives to connect childhood cancer families to the information and support resources they need–faster than ever. It offers families a robust list of organizations around the country that may be able to provide assistance to children with cancer and their families.

The original Hope Portal was designed and supported by the Children’s Hospital of Los Angeles. We are now working with the Association of Pediatric Hematology and Oncology Nurses, the Association of Pediatric Oncology Social Workers, and KBI Biopharma to build up, improve, and share this resource for the benefit of children with cancer and and their families.

When Dr Beck was hired by the new administration, it was for an “administratively determined” position. It is an unu...
10/27/2017
Why Has the E.P.A. Shifted on Toxic Chemicals? An Industry Insider Helps Call the Shots

When Dr Beck was hired by the new administration, it was for an “administratively determined” position. It is an unusual classification that means she was not hired based on a competitive process — as civil servants are — and she was also not identified as a political appointee. There are only about a dozen such posts at the E.P.A., among the 15,800 agency employees, and the jobs are typically reserved for technical experts, not managers with the authority to give orders.

Crucially, the special status meant that Dr. Beck did not have to abide by the ethics agreement Mr. Trump adopted in January, which bars political appointees in his administration from participating for two years “in any particular matter involving specific parties that is directly and substantially related to my former employer or former clients, including regulations and contracts.”

“It was a clear demonstration this administration has been captured by the industry,” said Elizabeth Southerland, who served as the director of science and technology in the Office of Water until her retirement in July.

“Everyone was furious,” said Ms. Southerland, the official from the Office of Water. “Nancy was just rewriting the rule herself. And it was a huge change. Everybody was stunned such a substantial change would be made literally in the last week.”

The general counsel’s objections to the substance of the changes were among the most alarming.

The rules, with Dr. Beck’s changes, were sent to the White House and approved by the June deadline. Mr. Pruitt assembled the team in late June for a brief ceremony to celebrate the completion of the work.

Mr. Pruitt’s chief of staff, Ryan Jackson, instructed Ms. Hamnett to ignore the recommendation of agency scientists, she said.

The scientists had called for a ban based on research suggesting the pesticide might cause developmental disabilities in children. Just over a week later, Ms. Hamnett submitted a draft order that would deny the request for a ban.

“It was hard, very hard,” she said, worrying that the pesticide would continue to harm children of farmworkers. “That was not one of my best days.”

Mr. Pruitt has selected a replacement for Ms. Hamnett: Michael L. Dourson, a toxicologist who has spent the last two decades as a consultant helping businesses fight E.P.A. restrictions on the use of potentially toxic compounds.

A scientist who worked for the chemical industry now shapes policy on hazardous chemicals. Within the E.P.A., there is fear that public health is at risk. (At right, a signing ceremony for new rules on toxic chemicals.)

Address

Washington, DC
20006

General information

Webpage - http://www.peopleagainstchildhoodcancer.org Contact PAC2 - [email protected] Petition for Increased Funding - http://bit.ly/Petition_To_Raise_Awareness_and_Funding_for-Childhood-Cancer

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