Comments
Hello everyone,
My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it.
English survey:
https://www.surveymonkey.com/r/PQFSMVV
Spanish survey:
https://es.surveymonkey.com/r/2DXD5TX
Thank you and we appreciate all your help
Hello,
My wife died of ALS on February 3rd and I have many items to sell to help with funeral expenses. Do you have any suggestions of where I can sell these items?
Electric wheelchair
Two rolators
Walker
Shower seat
Several toilet risers
Please help. You can Facebook message me
Ted
Hello Ladies and Gentlemen of The A.L.S. Association. I'm from the UK. In this country A.L.S. is more commonly referred to as M.N.D. (Motor Neurone Disease).
I'm a musician (Chris) from Keswick. I've busked in the town for many years and because of this I've been asked to play in Tearooms, Guest Houses, Hotels, Cafés and various small venues.
People from all over the world come to Keswick in the beautiful Lake District. (Home of the red squirrel) I've sold many CDs to visitors from near and far including Japan, The States, France, Germany and places too numerous to mention.
Unfortunately I was diagnosed with Motor Neurone Disease in 2018 and can no longer play guitar.
The Motor Neuron Disease Association (M.N.D.A) is wonderful and helps people and their families with many issues brought on by this awful disease. It also helps fund research in the hope that one day there may be a cure. Work continues all the time. It relies on charitable donations only and has no government funding.
Motor Neuron Disease got me thinking of how I could help raise funds for the M.N.D. Association. Hence the idea of an album of songs. I can no longer play guitar but still manage to compose with keyboard. The results of which is a brand-new album entitled 'Legacy'. It has 19 numbers many of which were written during lockdown. Some of my older, guitar based, material has been re-mastered and re-mixed but all are original.
If you would like an album your donation to this excellent cause would be most appreciated.
A nominal donation of £7.00 ($9.00) (Suggested Price) per album would be most appreciated.
I am now a member of 'Bandcamp'. So you can download the album. It's simple. Go to : 'JustGiving!' :
https://www.justgiving.com/fundraising/Christopher-Jordan2
https://www.facebook.com/christopher.jordan.90663894
Make a donation. Then go to my page on 'Facebook' or contact me via e-mail and I will send you a code. Go to :
https://chrisjordan2.bandcamp.com/yum
Enter the code and download the album.
Don't forget the wonderful M.N.D. Association's page on:
www.mndassociation.org to find out more about the disease and how they help families, victims and fund research.
100% of all donations will go to the M.N.D. Association
The following photograph shows me in better times. My arms and hands have now lost a lot of their use, I can't walk and I use my ventilation for many hours during the day as well as all night every night.
So it's a question of doing something satisfying every day and trying to live in the moment. Let's hope our wonderful scientists and doctors, on both sides of the Atlantic, make progress in searching for a cure. Then it'll be : 'Second star to the right and on until morning.'
Thank You Very Much,
Chris.
PS. You can find a video of me playing live on my 'Facebook' page.
PPS. Would you be kind enough to pass this message on to as many people as possible ?
Hello friends of ALS Wisconsin! I work at TMJ4 and we're looking for nominations for our annual Positively Milwaukee Awards. Do you know a volunteer, healthcare worker, community advocate or all-around inspiring person in SE Wis. who deserves recognition? They could win up to $5000 for the charity of their choice and be highlighted in our November TV special honoring local unsung heroes. Lots of categories to choose from. Nominate at tmj4.com/awards. Deadline to nominate is Sept. 18th.
My first symptoms of ALS occurred in 2011, but was diagnosed in 2013. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Akanni herbal centre , It has made a tremendous difference for me (Visit www. akanniherbalcentre .com). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others.
Hello everyone, my grandfather passed away from the cruelty of ALS 10 years ago. Ever since he was diagnosed, my mother found comfort in painting her journey through grief and immense heartache during this tragic time and after his passing. When the paintings were finished. I composed the song for this video I am sharing with you now. It has all the paintings along with the words explained for each and the grief it brung to her and everybody that knew and loved my grandfather. She also has a website you can view everything separately or together as well. If you found it in your heart to view this video and share with others, it would mean the world to us and many others, hope.
www.windymorey.com
FREE DONATION: Brand new salon chair and wash bowl with stand. Never been used. Let me know if interested.
Looking to donate some supplies that my mom needed sadly she passed from ALS a few weeks ago. So we would like to donate these supplies to someone that could use them. Please pm me, Syringes, sucking machine canisters, bandages etc.
Representing Team Skippy, in memory of Kip Neilsen. Team of 198 people!!
Know anyone that could use this awesome LIFT CHAIR?? Call me 414-688-2455. $100
The walk has been a nice tradition. Is the run portion included this year?
Thanks
We wrapped up the 2019 Waupaca ALS Benefit Ride as a huge success. Despite the rain... When it Matters Most, Together We Ride! ALS impacts us all in different ways Our mission is not solely to raise money. We share love, grief, and loss. We spread awareness and understanding. We show compassion and serve a greater purpose. THAT is what brings us all together #VSALS. We thank you ALL for continuing to help spread the message, we cannot give up until we find a cure.
