We Fight For Hayden

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We Fight For Hayden Hayden was born with a very rare skin disease called Epidermolysis Bullosa. Debra.org for more information! What is Show Your Seams?

Hayden Jay Esser was born on October 9th, 2015. Hayden was born with a very rare skin condition that with the slightest bump or scrap his skin will blister and fall off, its called Epidermolysis Bullosa also know as the EB the butterfly disease or they are also called The Butterfly Children. The type of EB Hayden has is called Dystrophic Epidermolysis Bullosa (DEB) which is one of the 3 worst typ

e to have. The family is trying to spread awareness for EB children, EB is so rare that its about every 7 out of million children every year and most of them DONT make it to there FIRST birthday sadly. Like Hayden, EB children are NOT guaranteed a tomorrow so we need to spread awareness and find a cure NOW. We started a wonderful trend to show our fight and support Hayden in the process by SHOWING OUR SEAMS!! Show Your Seams came about when Hayden now 11 months old is to the point where he has to wear everything "inside out" and so my 9 year old daughter said we should make a page to help raise awareness for Hayden and all EB children that have to show there seams. Hayden spent a week in the NICU at the University of Missouri Women's and Children's Hospital in Columbia , and one of the conditions for him to go home was to try and see if he could wear clothes and eat without a tube. So on the 5th day of birth we put clothes on him inside out. Well now 8 months later we have to go back to wearing his clothes inside out to try and prevent his torso for getting stuck to clothing and blistering or his skin coming off. Hayden was born with a rare skin disease called " Epidermolysis Bullosa (EB). Show Your Seams is dedicated in sharing Hayden's' story, and to spread awareness to the world about Epidermolysis Bullosa (EB). Literally " THE WORST DISEASE YOU'VE NEVER HEARD OF". As each new person Shows There Seams, it shows us that there is still HOPE for Hayden and EB children and adults and show them they are not alone. Please join us in our efforts in raising awareness about Epidermolysis bullosa and our fight to find a cure for Hayden and all other individuals suffering from this HORRIBLE disease. Thank you all!!!!

Spread your wings 🦋✨Check out this beautiful Butterfly Warmer on sale for ONLY $25.00 in our Black Friday Sale 😍! Origin...
28/11/2025

Spread your wings 🦋✨

Check out this beautiful Butterfly Warmer on sale for ONLY $25.00 in our Black Friday Sale 😍! Originally $60
It’s whimsical, elegant, and the perfect touch for any space — or the perfect gift for someone special!

wicklessbutterflies.com

With Haydens birthday 🎂 coming up I wanted to share his wishlist with all of you! If you don't see anything on list you ...
28/09/2025

With Haydens birthday 🎂 coming up I wanted to share his wishlist with all of you!

If you don't see anything on list you want to snag, he loves getting cards from people! 😁

He also loves Roblox and Fortnite!

These babys are so lightweight, stylish, and perfect for camping 🏕 beaches ⛱️ road trips 🚙 plus for our home NEEDS - ME...
09/07/2025

These babys are so lightweight, stylish, and perfect for camping 🏕 beaches ⛱️ road trips 🚙 plus for our home NEEDS - MEDS 🧪💉!!

Limited spots available - Don’t wait ✋️ snag your spot for a Summer Cooler ☀️ NOW‼️

YOU PICK COLOR 💜🩵💚 while supplies last!!

You PICK your price: $40, $55, $75 🏖

BIG goal to hit 2️⃣0️⃣ by FRIDAY‼️

Help me hit my goal and receive yourself a FREE cooler 😎 🧊

Thank you so much Debbi for Haydens new super soft and cool bamboo boxers and one of his needed drawer organizers off hi...
23/06/2025

Thank you so much Debbi for Haydens new super soft and cool bamboo boxers and one of his needed drawer organizers off his wishlist. This means alot to us ❤️

Here is Haydens Amazon wishlist ✨️ for anyone who wants to send him any gifts or just to help him out!
https://www.amazon.com/hz/wishlist/ls/110CWTRP3B60M?ref_=wl_share

Is there any Families in need of some bandage supplies? We have lots of: *8x20 Transfer *Blue line, *Green Line, *Purple...
18/06/2025

Is there any Families in need of some bandage supplies?

We have lots of:
*8x20 Transfer
*Blue line,
*Green Line,
*Purple Line,
*Sterile Cotton Tip Applicator boxes,
*1 un-opened Gtube replacement kit size 18fr 1.5cm Mic-Key Button,

More to come but all I ask is you pay for shipping! Whatever isn't claimed will be donated to debra of America later this week!

15/03/2025

Switching out little heros warmer today!! 🤖 Nicole Esser- Independent Scentsy Consultant

Y'all have been so supportive to our family and my journey and Nicole has always been the type of perosn to give more th...
08/01/2025

Y'all have been so supportive to our family and my journey and Nicole has always been the type of perosn to give more than she takes and has worked so hard to get as far as she is BUT she needs your help to achieve this goal and dream to go to Greece 🇬🇷 and Turkey 🇹🇷

She lost her job of 4 yrs right after this incentive started due to unforseen circumstances with our nursing, she had to take over the roll of full time house cleaner, making appts, taxi, mom, nurse, spouse, and this incentive period has been a tough one for sure! She is so close and she totally deserves this trip of a lifetime!

Every order helps her earn it big or small! Scentsy offers a safer alternative for candles 🕯 and the wax is made from high quality paraffin wax. They also not only offer wax and warmers they now have a body line, kids line, cleaning products, waxless products, clean air products, laundry products etc.

Let's help Nicole Esser finish the final stretch! Help her by referring friends ir fanily or shopping 🛍 at wicklessbutterflies.com every order placed will get a thank you prize for helping achieve dreams ✨️

Address

712 Green St

65240

Telephone

6602217070

Website

https://wickless21.scentsy.us/, Https://Bjeengraving.com/

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