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National Alliance for Caregiving

Learn more about us at www.caregiving.org. You can also follow our work on Twitter ()

19/11/2024

As we honor , Zuzette’s story reminds us of the power of support systems for family caregivers. When Zuzette attended a Title VI Older Americans Act conference, she discovered that, beyond being a loving daughter, she was also a caregiver. This eye-opening experience connected her to resources she never knew existed.

For countless family caregivers, the Older Americans Act (OAA) provides essential support. Reauthorizing the OAA means ensuring that millions of older adults and family caregivers, like Zuzette, can access critical services like respite care, transportation, and caregiver training.

Together, let’s advocate for a strengthened so every caregiver can get the support they deserve.

Learn more about her story. https://www.caregiving.org/care_stories/zuzette/

19/11/2024

Tomorrow is the day! 🎉

The Caregiver Nation Summit brings together 150+ leaders, advocates, and family caregivers who drive real change for the caregiving community. We’re thrilled to welcome a thoughtful group of speakers who will share their insights on policy, caregiving, and building a more equitable support system (check out our speaker lineup in the image below).

If you haven’t registered, don’t worry—there’s still time to join us! Tune in via live stream to hear from these thought leaders and participate in the conversation that will help shape the future of family caregiving.

Register now to be part of this important discussion:
https://us06web.zoom.us/webinar/register/WN_St5dS0UgSTWY1EbzDBWC2A #/registration

18/11/2024

40% of family caregivers are in high-intensity caregiving situations, taking on the complex, around-the-clock responsibilities of caring for a loved one.

Their dedication is vital but can also lead to immense personal strain.

Let’s bring attention to the resources and support they need. Share this post or share a story in the comments to raise awareness of the commitment of family caregivers.

18/11/2024

We’re excited to share that Jason Resendez, President & CEO of the National Alliance for Caregiving, was recently featured on the Health Affairs Podcast! 🎧

In this interview, Jason discusses the impact of the CY2025 Medicare Physician Fee Schedule on family caregivers and their integration into healthcare systems.

Listen to the full episode to hear about how these policies will help shape the future of caregiving in the U.S. https://www.healthaffairs.org/do/10.1377/hp20241114.629550/full/

15/11/2024

While in-person spots for the fast-approaching Caregiver Nation Summit are now closed, you can still join us virtually!

Don’t miss this unique opportunity to connect, learn, and advocate for family caregivers nationwide. Register now to be part of powerful conversations and access resources that are transforming caregiving policy and support.

Date: November 20-21
Virtual registration: https://us06web.zoom.us/webinar/register/WN_St5dS0UgSTWY1EbzDBWC2A #/registration

15/11/2024

National Family Caregivers Month is an opportunity to recognize leaders who are transforming workplace culture to support employed caregivers. This week in our Care @ Work campaign, we feature the inspiring stories of Payal Sahni at Pfizer and Renee Minnis at Honor.

Thank you, Payal and Renee, for your dedication to creating supportive, understanding workplaces for family caregivers.

14/11/2024

Family caregivers are at the heart of healthcare, stepping up to provide critical support without formal training. Nancy’s story exemplifies this dedication: as her mom’s primary caregiver after a stroke, Nancy had to quickly learn complex tasks like administering medications and monitoring her mother’s recovery.

Now, thanks to opportunities reimbursable under Medicare’s Caregiver Training Services, more caregivers like Nancy can receive the training they need to feel prepared and confident in their roles. Beginning in early 2024, Medicare providers can be reimbursed for training family caregivers in essential medical tasks, a crucial step toward recognizing and supporting family caregivers as part of the healthcare team.

NAC continues advocating for expanded caregiver training options, including telehealth for caregivers in rural areas. Learn more by reading Nancy’s story. https://www.caregiving.org/care_stories/nancy/

13/11/2024

The National Alliance for Caregiving (NAC) invites you to join us on December 11, 2024, for a critical webinar that builds on the findings of our latest report, Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers.

Family caregivers are essential in the transplant process, yet their contributions often go unrecognized. This webinar will explore the challenges they face, the lack of adequate support, and the critical role they play in the patient’s journey—before, during, and after the transplant.

What you’ll learn:
⭐️Key findings from our report on family caregiver support in transplant centers
⭐️The vital role of family caregivers in improving patient health outcomes
⭐️ Opportunities to enhance support for caregivers across the transplant process

Join experts, advocates, and family caregivers for this engaging discussion on how we can drive systemic change and better support those who care for transplant patients.

Register now: https://us06web.zoom.us/webinar/register/WN_YwapZJlaRoi0BMxSeJz7MQ #/registration

Read the report here: https://www.caregiving.org/transplant-caregiving/

13/11/2024

The Act on RAISE Campaign, spearheaded by NAC, is excited to be a part of the next RAISE Family Caregiving Advisory Council meeting scheduled for November 13 from 12 – 5 pm ET.

Join via Zoom at 1:00 pm EST to hear more about Act on RAISE Campaign’s vision for an updated National Strategy to Support Family Caregivers. Meeting information can be found here: https://acl.gov/news-and-events/announcements/raise-advisory-council-meeting

Learn more about the National Strategy: https://acl.gov/CaregiverStrategy

Campaign comments touch on the need to:
➡️ Increase federal investments in family caregiver programs and identify new
funding mechanisms to implement the National Strategy.
➡️ Strengthen Medicare for family caregivers by enhancing the implementation and adoption of Caregiver Training Services (CTS) reimbursement.
➡️ Expand access to Home and Community-Based Services (HCBS) for family
caregivers – including respite – across Medicaid programs.
➡️ Reduce caregivers’ out-of-pocket expenses through tax credits.
➡️ Leverage existing authorities to advance National Strategy outcomes through
rulemaking.

Thank you to our partners: USAging, Justice in Aging, AARP, Caring Across Generations for sharing your expertise and insights.

The Act on RAISE Campaign unites more than 100 partners to champion the nation’s first National Strategy to Support Family Caregivers. Through strategic advocacy and coalition mobilization, we drive bold federal action and investment, leveraging the National Strategy framework to elevate support for family caregivers nationwide.

12/11/2024

Good news for Medicare enrollees or caregivers who support those with Medicare – starting in 2025, no one will pay more than $2,000 for covered prescription drugs in a year. You can also choose to spread out out-of-pocket prescription drug costs over the calendar year.

Review your or someone you care for’s plan to make sure it covers your drugs and meets your needs and budget. Medicare Open Enrollment is open now through December 7, 202. Don’t miss out. https://go.cms.gov/drugcoverage-cap

12/11/2024

We’re thrilled to announce Michelle Lujan Grisham, Governor of New Mexico, will deliver the closing remarks at our upcoming Caregiver Nation Summit!

Her leadership and advocacy for families in New Mexico align with our mission to elevate caregiving across the nation. Don’t miss out on her inspiring words – virtual registration is still available. Register now to join us for this important event and hear from Governor Lujan Grisham. https://us06web.zoom.us/webinar/register/WN_St5dS0UgSTWY1EbzDBWC2A #/registration

12/11/2024

The National Alliance for Caregiving’s 2024 Transplant Caregiver Report is LIVE!

Whether it's for a solid organ or a bone marrow or stem cell transplant, behind every transplant journey is a family caregiver navigating immense challenges, from complex medical tasks to emotional support.

This report uncovers critical gaps in caregiver support across U.S. transplant centers and outlines six actionable recommendations to strengthen caregiver programs, ensuring better outcomes for patients and their families.

Learn how we can improve the transplant caregiving experience and create a more equitable healthcare system.

Read the full report: https://www.caregiving.org/transplant-caregiving/

11/11/2024

This Veteran’s Day, we honor the courage and dedication of our veterans, as well as their caregivers who provide essential support.

Caregiving for veterans often means managing complex health needs and advocating tirelessly. Today, we recognize the strength and sacrifices of our veteran caregivers and the invaluable role they play in our nation.

11/11/2024

1 in 4 family caregivers struggles to care for their own health while caring for a loved one. This , let’s raise awareness of the impact caregiving has on well-being.

By sharing this post, you can help spark conversations about the need for more resources and support for family caregivers.

It’s time to value family caregivers. Let’s stand together to ensure every caregiver has the support they deserve.

08/11/2024

At this year’s Caregiver Nation Summit, we’re talking about how narrative drives change – this is a conversation you won’t want to miss!

✨ From Stories to Care Solutions: The Power of Narrative Change✨
🎤 Vicki Shabo, New America
🎤 Ty Lewis, In Case I Forget Consulting
🎤 Parvathy Krishnan, Krishnan Family Foundation
🎤 Yosimar Reyes, Poet and Family Caregiver

Don't miss this opportunity to learn from leading voices and engage in conversations that will help shape the future of caregiving.

We are sold out in person, but you can still register for virtual attendance today. https://us06web.zoom.us/webinar/register/WN_St5dS0UgSTWY1EbzDBWC2A #/registration

07/11/2024

National Family Caregivers Month is a time to drive change and inspire action. Throughout the month, our Care @ Work campaign will spotlight senior leaders balancing caregiving and careers. By making these experiences visible, we aim to transform workplace culture to better support America's 32 million employed family caregivers.

Thank you Carlos Dortrait at Bristol Myers Squibb and Teresa Cronin at Eisai for sharing your stories! We are grateful for your leadership in fostering a culture of care within your workplace.

07/11/2024

The Centers for Medicare and Medicaid Services continues to make strides in recognizing family caregivers as essential partners in healthcare. This month, the agency finalized the CY2025 Physician Fee Schedule, building on last year’s progress to expand caregiver training services. These updates include:

➡️ Provisional approval for telehealth-based caregiver training services
➡️ Incentives for direct care and medical tasks training
➡️ New payment structures for behavior management training

These changes stem from public comments made by NAC, the ACT on RAISE Campaign, and the Cancer Caregiving Collaborative, demonstrating the power of collective advocacy.

Read the full memo on our website to learn how these changes impact caregivers and healthcare systems. Let’s keep pushing for a more equitable and sustainable caregiving future.https://www.caregiving.org/wp-content/uploads/2024/11/MFS_2025_NAC-Update.pdf

07/11/2024

Caregiving for a loved one with triple-negative breast cancer can be overwhelming.

Join our partnerCancerCare’s virtual workshop on November 13, 2024 at 1:30pm ET to learn how caregivers can manage stress and challenges. This event will offer critical insights and support for caregivers navigating this difficult journey.

Register today: https://www.cancercare.org/connect_workshops/1134-caregivers_coping_stresses_caregiving_loved_one_triple_negative_breast_cancer_2024-11-13

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Family caregivers are so often focused on the needs of their care recipients that they neglect their own health. Don’t let serious illness crash your Halloween fun. Get your flu and COVID-19 vaccines so you and your loved ones don’t miss out. #RiskLessDoMore

At Caregiver Nation Summit 2024, we’ll gather in Washington, D.C., to raise awareness, build coalitions, and drive meaningful policy changes to support our nation’s 53 million family caregivers. What to expect: ✔️ Networking with caregivers, advocates, and policymakers ✔️ Sessions on educating and advocating for caregivers’ needs ✔️ A special Hill Day to speak directly with congressional leaders about caregiving issues Don’t miss out—registration is now open! Let’s make caregiving more sustainable, equitable, and dignified. https://www.caregivernationsummit.org/ #CaregiverNationSummit2024 #PolicyChange #CaregiverAdvocacy

Our CEO and President, Jason Resendez, was recently interviewed by Scripps News for their series, The Cost of Aging, where he discussed the rising costs of eldercare in the U.S. According to the National Council on Aging, the average cost of assisted living in the U.S. is $54K per year, but it varies widely across states due to factors like real estate, the cost of goods, and state policy choices such as Medicaid expansion. Jason highlighted some key drivers behind the rising costs, including: ✔️Increased longevity, people living longer, thus requiring more long-term care ✔️Higher rates of chronic diseases adding to healthcare expenses ✔️Access to paid leave policies, which forces family caregivers to juggle work and care responsibilities, often increasing out-of-pocket costs There are emerging resources to address these challenges: ✔️CMS has introduced health provider payments for caregiver training services ✔️States tax credits that assist with caregiving expenses ✔️Employers offering caregiver resources and services to help workers manage caregiving alongside their jobs Thank you, Scripps News, for elevating this conversation on your platform. #Caregiving #Eldercare #Healthcare #Aging #CostOfAging

Our President and CEO Jason Resendez appeared on the "Rethinking Alzheimer’s Disease" podcast to discuss health equity in Alzheimer’s and the urgent need to support the more than 11 million caregivers providing Alzheimer’s care. Listen to episode 5: 'What’s the Role of a Care Partner' to hear more insights: https://healthunmuted.com/rethinking-alzheimers-disease-podcast Thank you to NAC member Eisai US Alzheimer's Disease and Brain Health and Health Unmuted for elevating these issues! #Alzheimers #dementia #dementiacare #caregiving #alzheimersdisease #HealthUNMUTED

Yesterday, we hosted a webinar called COVID-19 Vaccines: What Family Caregivers Need to Know. You can watch the recording of the webinar below.

September marks the 1st anniversary of the National Strategy to Support Family Caregivers. We're celebrating the Strategy’s milestones! The #ActOnRAISE campaign looks forward to building on this action to make life better for family caregivers!

Congressional Briefing on Family Caregiving in Diverse Communities: Addressing the Needs of Diverse Family Caregivers for Older Adults

World Carers Conversation | Day 4: Caregiving in Asia and the South Pacific

World Carers Conversation Day 2: Caregiving in the Americas

Caregiving Trends & Their Impact on Alzheimer's Caregivers

Join Home Instead Senior Care gerontologist Lakelyn Hogan and C. Grace Whiting, president and CEO of the National Alliance for Caregiving for #CaregiverChats on 7/24 at 11 a.m. CT to hear the latest caregiving trends and how they impact Alzheimer's and dementia caregivers. We'll offer suggestions to ease common caregiving challenges: ➡️ Difficulty coordinating care ➡️ Caring for personal health and well-being ➡️ Finding respite care ➡️ Financial strain ➡️ Register for the webinar ➡️ https://bit.ly/2lDyufL ➡️ Watch on Facebook Live with this post These new insights are coming from the "Caregiving in the U.S. 2020" report. (report download: https://bit.ly/2B5DAdo)

Can Do Multiple Sclerosis delivers health & wellness education programs for people living with #MS and their families. These online tools are developed to help individuals living with MS and their #caregivers thrive. View stories from MS patients & their caregivers: http://bit.ly/34LNWcb

NATIONAL BRIEFING: Caregivers of Individuals with Crohn's Disease or Ulcerative Colitis

Watch the live briefing of A National Study of Caregivers of Individuals with Crohn's Disease or Ulcerative Colitis in Washington, D.C. This groundbreaking new study describes the experiences of more than 700 people who care for someone living with Inflammatory Bowel Disease (IBD). Findings revealed that a significant majority of this unpaid and under-recognized workforce is providing care for 10-20 hours per week; juggling tasks ranging from medical/nursing support, to specialty food preparation and medical and school advocacy -- while working full or part-time. The National Alliance for Caregiving (NAC), the Crohn’s & Colitis Foundation, ImproveCareNow and researchers from Crimson Research at New Mexico State University (NMSU) worked collaboratively to develop the study. The study was made possible through grant funding from the David R. Clare and Margaret C. Clare Foundation. Briefing Speakers C. Grace Whiting, J.D. President and CEO National Alliance for Caregiving Randall Rutta Federal Policy Consultant American Autoimmune Related Diseases Association Laura D. Wingate Senior Vice President of Education, Support, & Advocacy Crohn's & Colitis Foundation Jaime Holland Patient and Caregiver Crohn’s & Colitis Foundation Rebecca Kaplan Caregiver Crohn’s & Colitis Foundation Steven Woolf, M.D. Caregiver and Member of Parent Working Group ImproveCareNow

National Heart Valve Disease Awareness Day

National Heart Valve Disease Awareness Day is calling attention to the 5 million+ Americans who have been diagnosed with heart valve disease. If you or a loved one is over the age of 65, make sure to know the signs and symptoms of valve disease. #ValveDiseaseDay

Why do we need Caregiving Champions?

We believe Caregiving Champions matter to caregivers and caregiver advocates. Help spread the word about what Caregiving Champions mean to you as a caregiver and caregiving advocate.

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