
27/01/2023
Reminder about tomorrow’s meeting!
We are the resource and information link for Persons with Disabilities in Onslow County, NC
Operating as usual
Reminder about tomorrow’s meeting!
AGENDA
NORTH CAROLINA COMMISSION FOR MENTAL HEALTH, DEVELOPMENTAL
DISABILITIES, AND SUBSTANCE ABUSE SERVICES
Advisory Committee
*Thursday, January 26, 2023
1:00 p.m.
Call to Order
Moment of Reflection
Ethics Reminder
Welcome and Introductions
Chairman’s Report
1:00 p.m. – 1:15 p.m.
Donald Hall, Chairperson
Advisory Committee Initiatives for 2023 1:15 p.m. – 3:00 p.m.
Donald Hall
Public Comment 3:00 p.m. – 3:15 p.m.
Adjournment 3:15 p.m.
Microsoft Teams meeting
Join on your computer, mobile app or room device
Click here to join the meeting
https://teams.microsoft.com/dl/launcher/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_ZmQ1NmRlZTQtMjQxYS00N2IyLTkyYjktMmNhOTBjZTIzOGIy%40thread.v2%2F0%3Fcontext%3D%257b%2522Tid%2522%253a%25227a7681dc-b9d0-449a-85c3-ecc26cd7ed19%2522%252c%2522Oid%2522%253a%25222844b83b-15ee-4899-8ac0-e00995ee81a6%2522%257d%26anon%3Dtrue&type=meetup-join&deeplinkId=13bc0114-85ef-4f4d-880b-2bd986e70d5f&directDl=true&msLaunch=true&enableMobilePage=true&suppressPrompt=true
Meeting ID: 250 335 374 606
Passcode: LjnNBt
Join with a video conferencing device
[email protected]
Video Conference ID: 116 192 735 0
Alternate VTC instructions
Or call in (audio only)
+1 984-204-1487,,908806780# United States, Raleigh
Phone Conference ID: 908 806 780#
State to Local Consumer and Family Advisory Committee (CFAC) Meeting
Date/Time: Wednesday, Jan. 25, 2023, 6:00-7:30 p.m.
Join Link: Click here to join:
https://ncgov.webex.com/wbxmjs/joinservice/sites/ncgov/meeting/download/d6d324aaa5cc406cb9140939e542ccf1?siteurl=ncgov&MTID=m408dd0ae1a1ed9ca49413b95c3b88c3f&fbclid=IwAR2jMSuKV8jr0o7yTjRg9iLL5rQYwZh3Bdv5rpfKDkLcTTMA9ZYpBCYPJTY
Dial-In: 904-900-2303 or 415-655-0003
Access Code: 2422 176 1856
Password: beVeuiYA793
Click here to view the agenda:
https://files.constantcontact.com/6bbdb2e2901/65ab868a-1fd1-4285-8d9b-88339caf3443.pdf?rdr=true
Sign the Petition for Disability Funding Now!
I just took action to show my support for disability services. Click to do the same and sign the petition!
Shelby Lynch, C Talent Creator, is on the UK Cover of Glamour!!
Shelby Lynch: ‘Fashion is more than fun – it’s an area of my life that I can actually control’
"Shelby Lynch is a 25-year-old fashion and beauty influencer with Spinal Muscular Atrophy Type 2. This condition causes muscle weakness as she gets older and affects her breathing, so she uses a ventilator 24/7. Having been interested in fashion since the age of 13, Shelby uses her online platform to make fashion more accessible and to encourage the fashion industry to be more inclusive and representative of Disabled people.”
Massive shoutout to Abigail Ladwig, Shelbys Talent Manager!
Image description, Shelby Lynch on the cover of Glamour, Shelby is a Black women wearing dark lipstick and a light green sweater with tassels she is in a pink electric wheelchair. The words around her say, "Fashion is something I can control", "Self love issue".
Register for the Hear. Share. Act.
Lunch & Learn Series!
The disability advocacy series kicks off on January 17 at 12 pm!
Meet the Need NC’s Hear.Share.Act. returns in next week as a monthly Lunch & Learn Series, which will take place on the third Tuesday of each month. Each month this series will feature a different topic intended to help people gain basic knowledge of the systems, programs, and services in place that serve individuals with intellectual and other developmental disabilities (I/DD).
January’s topic - Back to Basics: Disability services in North Carolina
Hear: Many changes are going on in the I/DD community in North Carolina. Much of this is around the gap from closing the institutions of the past to living in communities. To make this possible, services and supports need to be in place to make this a reality and provide choices for people with I/DD and their families.
Share: Some people with I/DD and their families in North Carolina have their service and support needs to be met. What are these services and supports? Why do some people receive them and others do not?
Act: Learn ways you can impact the lives of those with I/DD and their families in North Carolina.
When: January 17, 2023, 12 - 1 pm via ZOOM
Who should attend: people with I/DD; family members/caregivers; healthcare providers; educators; policymakers; and anyone who wants to improve the lives of people with disabilities!
Spanish interpreter and CART captioning will be used.
Register Today!
https://www.eventbrite.com/e/hear-share-act-a-lunch-learn-disability-advocacy-series-tickets-507674988557
Timeline photos
Start the conversation and join the movement! You can start the change by demonstrating acceptance and showing the world that you embrace people of all abilities. As parents, siblings, relatives, spouses, children, lovers, coworkers, teachers, personal assistants, friends, and anyone else – you also have a role in our culture and life. Unified by one symbol, no matter your ability, wear your heart on their sleeve.
Hear. Share. Act: A Lunch & Learn Disability Advocacy Series
https://www.eventbrite.com/e/hear-share-act-a-lunch-learn-disability-advocacy-series-tickets-507674988557
Hear. Share. Act. is an education & information lunch and learn series event for North Carolina's I/DD community.
Photos from Onslow County Schools's post
National Council on Disability’s Health Equity Framework for People with Disabilities
https://ncd.gov/sites/default/files/NCD_Health_Equity_Framework.pdf
NEW DATES for Spring 2023
Trillium Family Weekend at Victory Junction!
March 31 – April 2, 2023 | Application Deadline: Friday, March 17, 2023
April 21 - 23, 2023 | Application Deadline: Friday April 7, 2023
Interest form:
https://app.smartsheet.com/b/form/c0dda97259d444babea403dd6de62283
For my information:
https://www.trilliumhealthresources.org/neighborhood-connections/unmet-health-related-resource-needs/victory-junction
"The Binnacle a lifestyle and resource publication where disability is centered and celebrated as diversity. Here the challenges that come with living fully as a person with a disability are embraced with gusto, joy, and humor."
http://deesdesktop.com/binnacle/
If you are a writer or know one that wants to share their story, consider sending it to the Binnacle.
https://form.jotform.com/211314279426150
We are a lifestyle and resource newsletter where disability is centered and celebrated as diversity.
Excited to be able to offer the virtual option at during the evening!
I hope families will be able to join and learn about what IDD Family Peer Support is working to provide in the community!
The IDD Family Peer Support Mission Statement is:
"Improving opportunities to find hope and resiliency through utilizing lived experiences unique to parents, caregivers, and guardians of individuals with IDD and SMI/SED. Building understanding, connections, and awareness to overcome challenges that require self-awareness and acceptance to achieve positive outcomes."
I hope families will find the time now that the holidays are winding down to connect with one another and build our community in Onslow and across the ENC!
Please let me know if you have any questions! Please share with families who might find this helpful!
Microsoft Teams meeting Join on your computer, mobile app or room device Link: [https://teams.microsoft.com/l/meetup-join/19%3ameeting_ODBjYmRkZmEtOWY5ZC00ODc3LThiYzItYzJlZTNkOTdhZmRh%40thread.v2/0?context=%7b%22Tid%22%3a%224271c62e-925a-47d5-8a91-260bb9e90e49%22%2c%22Oid%22%3a%22b64f13a0-36f2-445e-9b99-648ae9f9c128%22%7d](https://teams.microsoft.com/l/meetup-join/19%3ameeting_ODBjYmRkZmEtOWY5ZC00ODc3LThiYzItYzJlZTNkOTdhZmRh%40thread.v2/0?context=%7B%22Tid%22%3A%224271c62e-925a-47d5-8a91-260bb9e90e49%22%2C%22Oid%22%3A%22b64f13a0-36f2-445e-9b99-648ae9f9c128%22%7D) Meeting ID: 292 547 698 399 Passcode: fDjG6j
Registration link: [https://teams.microsoft.com/registration/LsZxQlqS1UeKkSYLuekOSQ,_EqNtP-zME2UVDBM12WWTg,55ED6FMEIUyfiHORNSaq0g,YjSejzAmQ0KSejkqAH7crA,iDhDbfSfvE2fKaoFd2cvhg,V7TOj-OEMUK38UgD-d2sFA?mode=read&tenantId=4271c62e-925a-47d5-8a91-260bb9e90e49](https://teams.microsoft.com/registration/LsZxQlqS1UeKkSYLuekOSQ,_EqNtP-zME2UVDBM12WWTg,55ED6FMEIUyfiHORNSaq0g,YjSejzAmQ0KSejkqAH7crA,iDhDbfSfvE2fKaoFd2cvhg,V7TOj-OEMUK38UgD-d2sFA?mode=read&tenantId=4271c62e-925a-47d5-8a91-260bb9e90e49)
If you have any question or would like more information, please let me know!
Do you know locally we have businesses that support those with disabilities?
These businesses were made by families to support their loved ones with IDD and provide them opportunities to build vocational skills and show all their amazing abilities!
Double Troube Treat Company
AUmazing Flames & Wears
Max & Co. Making Adversity X-traodinary
321 Party Boxes By KJ&S Party Creations
We have more companies in Onslow who are working to be inclusive and provide employment opportunities for those with disabilities! Share a company that you know who is doing a great job at inclusion and leading the way!
Let's highlight those companies raising awareness and showing acceptance and support them this holiday season!
Disabilities Right activist Emily Ladau shares ideas for the up coming holidays!
https://emilyladau.com/2022/11/2022-disability-holiday-gift-guide/
Support disabled creators and give back to disability organizations this holiday season!
It’s that time of year again! Teens 14+ can register for the 2023 Night to Shine!
We're hiring! 📝
Part-Time Bicultural, Bilingual (Spanish/English) Community Health Worker
If you or someone you know would be interested in this position, please click the link below to learn more!
https://bit.ly/3uv5uHO
Stakeholder Engagement Webinars
1915(i) Option Respite Draft Policy
Wednesday, Dec. 14, 2022
2:30-3:30 p.m.
Join on your computer or mobile app:
Click here to join the meeting: https://r20.rs6.net/tn.jsp?f=001ttaJ6Uj7VTCveNIJN_349RnNce0Fcl1zMpTQnHOZ6CoMjgKOnCi6Y5lX947hNEdVbsmNxp8e0BVRCagcgjVk7hwxhi9qRWrZj2EjWCz6Bwr-8CErHtsObrsYJ4tKeah2Rily5sEc-Td-_UmoAZY7bgKBAhnejmus5K6tvXbXcz72oAUpa-LWflODkIK3Tkjh0UmPtkRiTx8F0P7tmneW3ufv6tbir2AhoFAyEDgPfCdGYamn0Ei21F7OhODilH9d8BIDkDbFG0rcwafiON9akpr9cCyk33xPsxNHR7_Y7H8WxNFO1QUIfypX_Cb_r_hJ9B_s0poADSyTzVcVslAjGp0u3avfoJdCOvo_9tqKXsLbxHJm_qfq7n97QW44ke8hm2gfGqikQS686qA-SobL4uhnxEPfJnSZKOV3BSklLj-nGgKfAHG3DRYI3zwLAE0Y6iV9_F1zfVLy95rjOvOtfrDqiGw_ljBV23-fPFOgRvPwgkmj8z-KOwp3a9nIG_CLHCsMb5LPQYCorxI774XFhNhA6fvcQd7j-tD1hg_0m6GVAX3kxGPAKzKbYZWdZCsJSNbIFsHR_z4gsJ8ONZnXcS2_b8EdgcuOaQM4sT9ytBL0WK3rz68f2fCPa0LJtgJ00HcYOw0LB3pyK49HDuZx8DNgIJnblFcVPdTAsNow6gHMZwvVdOSeQj0nsPxYhocbZ67Y1Cv9HtIkQ1khJzrM3KHuW3lBa-ecjk-bEw69CUh9tFERBcctWAdAmh-bWkB7cbBxAduZ8h5BcTSQOtKvHA8wGxc921-djNSRMf04OkKbKTEXtWJrAA-2J07Y8ZVYI8MOrh49vOs=&c=Hts8ZL0hXhX2ECsB1SsqzeBO-ojtdSvAWScoopWLCXQ0rXncEyszNA==&ch=Mwq4b5wgyIwkzsheqV0ZL3c_b4w4RB1ULBECUQg7otQvt8kr5RbQ0w==
Meeting ID: 244 979 687 831
Passcode: RqEDAJ
Join with a video conferencing device:
[email protected]
Video Conference ID: 113 261 554 7
Or call in (audio only):
Dial-In: 984-204-1487
Access Code: 55824700
Friday, Dec. 16, 2022
9:00-10:00 a.m.
Join on your computer or mobile app:
Click here to join the meeting- https://teams.microsoft.com/dl/launcher/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_NGQzMGIxY2QtODliMy00ZWU2LWFiYmEtM2Q5N2NiMGM3OTBh%40thread.v2%2F0%3Fcontext%3D%257B%2522Tid%2522%253A%25227a7681dc-b9d0-449a-85c3-ecc26cd7ed19%2522%252C%2522Oid%2522%253A%25226cd80040-c1ac-4cb3-8d3a-ec36b0bef843%2522%257D%26anon%3Dtrue&type=meetup-join&deeplinkId=b27ca654-8fe9-408d-a498-76d1783b26cd&directDl=true&msLaunch=true&enableMobilePage=true&suppressPrompt=true
Meeting ID: 211 321 981 193
Passcode: 3v6Pod
Join with a video conferencing device:
[email protected]
Video Conference ID: 117 252 015 2
Or call in (audio only):
Dial-In: 984-204-1487
Access Code: 289639472
Welcome! You are invited to join a webinar: Tailored Plan 101: "Ready, Set, Launch" webinar series. After registering, you will receive a confirmation email about joining the webinar.
This webinar series is designed to support all Medicaid providers, practice managers, quality improvement professionals, care coordinators and other leaders within your practice to help you prepare for the launch of Tailored Plan in April of 2023. Please tune in for timely Medicaid updates in this m...
Easterseals UCP has a new program: IDD Family Peer Support.
They will be hosting a support group for parents and caregivers of individuals with IDD and complex needs.
The first one for the Onslow area is tomorrow. Please consider providing feedback about days and times to ensure they are meeting the needs for all parent and caregivers!
This morning, my mom and I (both proud disabled women) wished each other a happy day of us. It's the International Day of People with Disabilities, and our community deserves a celebration. But then we got to talking about how days like IDPD come and go every year, yet it feels like the world around us constantly makes one roll forward toward progress and two (or three or four) rolls back.
Much of this backward movement is weighing particularly heavy on my mind today--everything from the news out of NYC about forced institutionalization, to the fact that so many people seem to be conveniently forgetting all the lessons we should've learned because of the pandemic.
But I'm also thinking about what's giving me hope: the beautiful, diverse, vibrant community of disabled people who never settle for the status quo and refuse to keep quiet when rights are on the line. This is what I'm celebrating today. And tomorrow. And next week. And all month. And next year. Always.
So as you share your IDPD posts and host your events, don't let them simply be a one-day signal of acknowledging disabled people, a box you've checked off. Because the more than one billion disabled people who exist in this world are worthy of access and full inclusion today. And tomorrow. And next week. And all month. And next year. Always.
[Image description: Dark purple background. Text reads: “The more than one billion disabled people who exist in this world are worthy of access and full inclusion today. And tomorrow. And next week. And all month. And next year. Always.” Below is a logo of a wheel encircled by text that reads “Words I Wheel By” and my handle, .]
🎉Today is the International Day of Persons with Disabilities! 🙌
The annual observance of the International Day of Disabled Persons occurs every year on 3rd of December and was proclaimed in 1992, by the United Nations General Assembly resolution 47/3. The observance of the day aims to promote the rights and well-being of persons with disabilities at every level of society and development.
Help DRNC celebrate and advocate! Today and every day.
The mission of Disability Rights NC is to protect the legal rights of people with disabilities through individual and systems advocacy. We value the dignity of ALL people and their freedom to control their own lives. We work for justice upholding the fundamental rights of people with disabilities to live free from harm in the communities of their choice with the opportunity to participate fully and equally in society.
Thank you for your continued support!
Image: Drawings of four individuals with different disabilities set against 4 colorful rectangles.
From:
JUSTICE FOR THE AGING
Fighting Senior Poverty through Law
Most older adults say they want to remain at home as they age. An important federal program and rule help make this possible: the Medicaid Money Follows the Person (MFP) Program and Spousal Impoverishment Protections, which are both set to expire on December 31, 2023, if Congress does not act.
A new Justice in Aging Fact Sheet, Make the Medicaid Money Follows the Person Program Permanent (https://justiceinaging.org/wp-content/uploads/2022/11/Make-Medicaid-Money-Follows-the-Person-Program-Permanent.pdf), explains the importance of securing permanent federal funding for the MFP program, which provides critical assistance to states to support older adults and people with disabilities in moving out of institutions and back into their communities. Through enhanced federal funding, states provide a wide range of support to MFP enrollees. The program has helped over 107,000 people transition back into their communities, including nearly 40,000 people age 65 and older.
The Spousal Impoverishment Protection is a Medicaid eligibility rule that helps married older adults and adults with disabilities remain living at home and connected to their communities. This rule helps ensure that married couples can continue to live together and that the spouse who does not need home and community-based services (HCBS) can continue to pay for rent, food, and medication if their spouse needs HCBS. Read more about the Spousal Impoverishment Protections in this Fact Sheet, Make the Expanded Spousal Impoverishment Protection Permanent: https://www.justiceinaging.org/wp-content/uploads/2019/01/Justice-in-Aging-Federal-Spousal-Impoverishment-Fact-Sheet-11-8-18.pdf?eType=EmailBlastContent&eId=ea656829-4dfa-4d83-bf6c-dc3613e02a4d
Now is the time for Congress to permanently authorize MFP and Spousal Impoverishment Protections to ensure older adults and people with disabilities can age at home and give states the assurance they need to invest in these critical services.
Contact Us
Justice in Aging
(202) 289-6976
[email protected]
Trillium has an OPEN ENROLLMENT ANNOUNCEMENT: RESPITE
Trillium Health Resources (Trillium) is seeking to identify mission-driven organizations that are interested in providing Respite Services for Children/Adolescents. This open recruitment applies to both in-network and out-of-network providers enrolled in NC Tracks who are free of contract sanctions, fraud investigations, and/or current or previous IRS liens. More than one provider may be selected.
This recruitment is being used as a means to expand the network of Respite Providers that are capable of providing these services to Trillium Members who are also involved with the Department of Social Services.
This recruitment should not be interpreted as a contract (implicit, explicit, or implied), nor does it imply any form of an agreement to any potential candidate. In addition, no inference should be made that Trillium will purchase and/or implement in the future any of the programs or services proposed by the respondents.
Interested Providers should submit an application to the link below:
Application for Respite- https://app.smartsheet.com/b/form/57e04437bee544b7ba473322d09dc95a
Questions? Please submit here: Questions Link- https://app.smartsheet.com/b/form/d2f69c839baa4ebf8beb456192a65475
ATTENTION: Our Annual Christmas giveaway will begin at 10:00 A.M ‼️
**See Date, time, and location on the flyer below.
Upon arrival:
▪️Please make TRUNK space in advance.
▪️Please DO NOT BLOCK DRIVEWAYS🚫.
▪️To ensure your safety and ours , please remain in your vehicles at all times.
*No public restrooms.
▪️I.D. requirement : To ensure that we do not serve the same household twice in one day.
▪️Frequently asked question:
Can more than one household come in the same vehicle ?
Answer : Yes, each household is required to show an I.D.
Note: Food drives bring long lines. Therefore, you may possibly experience a wait time. Please be patient with us and keep in mind that our staff is loading each vehicle by hand with heavy objects and in bulk . It is our desire to take care of you in a timely manner.
Thank you for your patience.
•If you would like to make a donation , we accept :
- Cash app: $MountCarmelHELPS
- Check : Mount Carmel helps
- 💲Cash
This is important to watch and understand....
We all celebrated as the Samantha R case was rolled out and the highlights of getting the 16,000 off the wait list and addressing the DSP/staff crisis......but if it's true that it will close doors on facilities that are needed, like group home and medically fragile inpatient care, than we do have to have a means to still provide the choice for those who need them.
Now, I personally feel DHHS is buying time. The issues we are seeing with the Tailored Plans, the issue we are already seeing with getting providers who want to me AMHs or CMAs seems to be what they are drawing on to make the conclusion that "closing the front door" would lead to loss of placements and loss of providers.
But why? Why do agencies and clinics and doctors and those who would fall under these plans not want to be a part of them?
Is it because they now have an option to exclude a population that can be more challenging to serve? Are there not incentives or trainings being offered? What is the barrier?
Many are watching an praying that the wait list is just going to dissolve and everyone gets services.......is 10 years realistic with the rate of autism STILL rising? How do you get ahead on a problem you are literally drowning in. It's hard to keep hope when the entities that say they want to provide you choice, can't give you answers!
Exceptions, grandfathering, and looking at individual cases with assessments that truly look at the whole person not just once you have the waiver, but prior too and the same assessment you use for the Innovations Waiver verse the 1915i waivers could give a better projection of what we will actually be needed. Respite and CLS services are bandaid on suckng flesh wound for some families.......now as it stands if a family needed intermediate care in a 2 or 3 facility you are waiting until an absolute crisis happens before you get what you need.
No program is perfect and it can be easy to purpose answers, but having an appeal against something that everyone agrees needs to be better is disheartening.......I understand that DHHS agrees that 10-15 year is wrong and that they understand the staffing crisis, but what answers are we getting on how to make it happen? It feels like deflection to bide time to even see if Tailored Plans actually roll out as they have been schedule. Going to be interesting to see where this goes.
The money spent fighting........seems better spent on worming on a solution. But this is the construct of our judiciary/legislative institution!
https://m.youtube.com/watch?v=jHUhLWy65kg&feature=youtu.be
NCDHHS has announced they will appeal the Superior Court Ruling in the Samantha R. et al. vs. NCDHHS and the State of North Carolina Court Case
Come support the School Base Enterprises that the various schools have! Support students in their pursuit to gain vocational and life skills!
Please bring cash as it is easiest for the various businesses!
PLEASE SHARE!!!
FirstLight Home Care of Jacksonville, NC is having a live webinar focusing on the sensitive issue of providing help in the home to aging family members. Join in tomorrow from 8-9PM. Scan the QR code to register.
DHHS Veteran Su***de Awareness
Ways to Support and Assist with Prevention
Thursday, Nov. 17, 2022, Noon-1:30 p.m.
american-flag-wavy.jpg
As we celebrate Veterans in November, NCDHHS will host a webinar to increase awareness of the importance of building relations with Veterans and military personnel in North Carolina and provide information and resources for individuals in need of treatment and recovery services to seek help.
Date/Time: Thursday, Nov. 17, 2022, 12:00-1:30 p.m.
Join Link: Click here to register
https://register.gotowebinar.com/register/6899821819595358734
Onslow Commission for Disability Advocacy is excited to support Easterseals UCP and their new opportunity with Family Peer Support.
Peer Support has been proven to be an effective tool in supporting those going through challenges in their life. With November being Caregiver Awareness Month, this is a great time to look at how we can provide support to those who care for our loved ones with IDD.
This support group is for Parents and/or Caregivers of those with IDD. The hopes is to be able to reach families and help in giving them a platform to build upon to find the resiliency and hope needed to help their loved one and themselves reach their fullest potential!
Please SHARE and let those know about the opportunity!
IDD Family Peer Support Group
December 5th
11-1pm
Onslow Jacksonville Library
58 Doris Street
Be sure to check out the craft fair that is being put on by the Exceptional Children's Department of OCS!
School base businesses are a great opportunity for students to work on a variety of vocational skills!
Please share and come shop from some Exceptional Businesses!
FYI
Be the first to know and let us send you an email when Onslow Commission for Disability Advocacy posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.
Send a message to Onslow Commission for Disability Advocacy: