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Onslow Commission for Disability Advocacy

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Onslow Commission for Disability Advocacy We are the resource and information link for Persons with Disabilities in Onslow County, NC

Operating as usual

27/01/2023

Reminder about tomorrow’s meeting!

AGENDANORTH CAROLINA COMMISSION FOR MENTAL HEALTH, DEVELOPMENTALDISABILITIES, AND SUBSTANCE ABUSE SERVICESAdvisory Commi...
25/01/2023

AGENDA
NORTH CAROLINA COMMISSION FOR MENTAL HEALTH, DEVELOPMENTAL
DISABILITIES, AND SUBSTANCE ABUSE SERVICES
Advisory Committee
*Thursday, January 26, 2023
1:00 p.m.
Call to Order
Moment of Reflection
Ethics Reminder
Welcome and Introductions
Chairman’s Report
1:00 p.m. – 1:15 p.m.
Donald Hall, Chairperson
Advisory Committee Initiatives for 2023 1:15 p.m. – 3:00 p.m.
Donald Hall
Public Comment 3:00 p.m. – 3:15 p.m.
Adjournment 3:15 p.m.
Microsoft Teams meeting
Join on your computer, mobile app or room device
Click here to join the meeting
https://teams.microsoft.com/dl/launcher/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_ZmQ1NmRlZTQtMjQxYS00N2IyLTkyYjktMmNhOTBjZTIzOGIy%40thread.v2%2F0%3Fcontext%3D%257b%2522Tid%2522%253a%25227a7681dc-b9d0-449a-85c3-ecc26cd7ed19%2522%252c%2522Oid%2522%253a%25222844b83b-15ee-4899-8ac0-e00995ee81a6%2522%257d%26anon%3Dtrue&type=meetup-join&deeplinkId=13bc0114-85ef-4f4d-880b-2bd986e70d5f&directDl=true&msLaunch=true&enableMobilePage=true&suppressPrompt=true
Meeting ID: 250 335 374 606
Passcode: LjnNBt

Join with a video conferencing device
[email protected]
Video Conference ID: 116 192 735 0
Alternate VTC instructions
Or call in (audio only)
+1 984-204-1487,,908806780# United States, Raleigh
Phone Conference ID: 908 806 780#

25/01/2023

State to Local Consumer and Family Advisory Committee (CFAC) Meeting
Date/Time: Wednesday, Jan. 25, 2023, 6:00-7:30 p.m.
Join Link: Click here to join:
https://ncgov.webex.com/wbxmjs/joinservice/sites/ncgov/meeting/download/d6d324aaa5cc406cb9140939e542ccf1?siteurl=ncgov&MTID=m408dd0ae1a1ed9ca49413b95c3b88c3f&fbclid=IwAR2jMSuKV8jr0o7yTjRg9iLL5rQYwZh3Bdv5rpfKDkLcTTMA9ZYpBCYPJTY
Dial-In: 904-900-2303 or 415-655-0003
Access Code: 2422 176 1856
Password: beVeuiYA793
Click here to view the agenda:
https://files.constantcontact.com/6bbdb2e2901/65ab868a-1fd1-4285-8d9b-88339caf3443.pdf?rdr=true

17/01/2023

Shelby Lynch, C Talent Creator, is on the UK Cover of Glamour!!

Shelby Lynch: ‘Fashion is more than fun – it’s an area of my life that I can actually control’

"Shelby Lynch is a 25-year-old fashion and beauty influencer with Spinal Muscular Atrophy Type 2. This condition causes muscle weakness as she gets older and affects her breathing, so she uses a ventilator 24/7. Having been interested in fashion since the age of 13, Shelby uses her online platform to make fashion more accessible and to encourage the fashion industry to be more inclusive and representative of Disabled people.”

Massive shoutout to Abigail Ladwig, Shelbys Talent Manager!



Image description, Shelby Lynch on the cover of Glamour, Shelby is a Black women wearing dark lipstick and a light green sweater with tassels she is in a pink electric wheelchair. The words around her say, "Fashion is something I can control", "Self love issue".

17/01/2023

Register for the Hear. Share. Act.
Lunch & Learn Series!
The disability advocacy series kicks off on January 17 at 12 pm!

Meet the Need NC’s Hear.Share.Act. returns in next week as a monthly Lunch & Learn Series, which will take place on the third Tuesday of each month. Each month this series will feature a different topic intended to help people gain basic knowledge of the systems, programs, and services in place that serve individuals with intellectual and other developmental disabilities (I/DD).

January’s topic - Back to Basics: Disability services in North Carolina

Hear: Many changes are going on in the I/DD community in North Carolina. Much of this is around the gap from closing the institutions of the past to living in communities. To make this possible, services and supports need to be in place to make this a reality and provide choices for people with I/DD and their families.

Share: Some people with I/DD and their families in North Carolina have their service and support needs to be met. What are these services and supports? Why do some people receive them and others do not?

Act: Learn ways you can impact the lives of those with I/DD and their families in North Carolina.

When: January 17, 2023, 12 - 1 pm via ZOOM

Who should attend: people with I/DD; family members/caregivers; healthcare providers; educators; policymakers; and anyone who wants to improve the lives of people with disabilities!

Spanish interpreter and CART captioning will be used.

Register Today!
https://www.eventbrite.com/e/hear-share-act-a-lunch-learn-disability-advocacy-series-tickets-507674988557

Timeline photos
14/01/2023

Timeline photos

Start the conversation and join the movement! You can start the change by demonstrating acceptance and showing the world that you embrace people of all abilities. As parents, siblings, relatives, spouses, children, lovers, coworkers, teachers, personal assistants, friends, and anyone else – you also have a role in our culture and life. Unified by one symbol, no matter your ability, wear your heart on their sleeve.

Photos from Onslow County Schools's post
10/01/2023

Photos from Onslow County Schools's post

03/01/2023
ncd.gov

National Council on Disability’s Health Equity Framework for People with Disabilities

https://ncd.gov/sites/default/files/NCD_Health_Equity_Framework.pdf

01/01/2023
"The Binnacle a lifestyle and resource publication where disability is centered and celebrated as diversity. Here the ch...
29/12/2022
Home

"The Binnacle a lifestyle and resource publication where disability is centered and celebrated as diversity. Here the challenges that come with living fully as a person with a disability are embraced with gusto, joy, and humor."
http://deesdesktop.com/binnacle/

If you are a writer or know one that wants to share their story, consider sending it to the Binnacle.
https://form.jotform.com/211314279426150

We are a lifestyle and resource newsletter where disability is centered and celebrated as diversity.

28/12/2022

Excited to be able to offer the virtual option at during the evening!

I hope families will be able to join and learn about what IDD Family Peer Support is working to provide in the community!
The IDD Family Peer Support Mission Statement is:
"Improving opportunities to find hope and resiliency through utilizing lived experiences unique to parents, caregivers, and guardians of individuals with IDD and SMI/SED. Building understanding, connections, and awareness to overcome challenges that require self-awareness and acceptance to achieve positive outcomes."

I hope families will find the time now that the holidays are winding down to connect with one another and build our community in Onslow and across the ENC!

Please let me know if you have any questions! Please share with families who might find this helpful!

Microsoft Teams meeting Join on your computer, mobile app or room device Link: [https://teams.microsoft.com/l/meetup-join/19%3ameeting_ODBjYmRkZmEtOWY5ZC00ODc3LThiYzItYzJlZTNkOTdhZmRh%40thread.v2/0?context=%7b%22Tid%22%3a%224271c62e-925a-47d5-8a91-260bb9e90e49%22%2c%22Oid%22%3a%22b64f13a0-36f2-445e-9b99-648ae9f9c128%22%7d](https://teams.microsoft.com/l/meetup-join/19%3ameeting_ODBjYmRkZmEtOWY5ZC00ODc3LThiYzItYzJlZTNkOTdhZmRh%40thread.v2/0?context=%7B%22Tid%22%3A%224271c62e-925a-47d5-8a91-260bb9e90e49%22%2C%22Oid%22%3A%22b64f13a0-36f2-445e-9b99-648ae9f9c128%22%7D) Meeting ID: 292 547 698 399 Passcode: fDjG6j

Registration link: [https://teams.microsoft.com/registration/LsZxQlqS1UeKkSYLuekOSQ,_EqNtP-zME2UVDBM12WWTg,55ED6FMEIUyfiHORNSaq0g,YjSejzAmQ0KSejkqAH7crA,iDhDbfSfvE2fKaoFd2cvhg,V7TOj-OEMUK38UgD-d2sFA?mode=read&tenantId=4271c62e-925a-47d5-8a91-260bb9e90e49](https://teams.microsoft.com/registration/LsZxQlqS1UeKkSYLuekOSQ,_EqNtP-zME2UVDBM12WWTg,55ED6FMEIUyfiHORNSaq0g,YjSejzAmQ0KSejkqAH7crA,iDhDbfSfvE2fKaoFd2cvhg,V7TOj-OEMUK38UgD-d2sFA?mode=read&tenantId=4271c62e-925a-47d5-8a91-260bb9e90e49)

If you have any question or would like more information, please let me know!

19/12/2022

Do you know locally we have businesses that support those with disabilities?

These businesses were made by families to support their loved ones with IDD and provide them opportunities to build vocational skills and show all their amazing abilities!

Double Troube Treat Company
AUmazing Flames & Wears
Max & Co. Making Adversity X-traodinary
321 Party Boxes By KJ&S Party Creations

We have more companies in Onslow who are working to be inclusive and provide employment opportunities for those with disabilities! Share a company that you know who is doing a great job at inclusion and leading the way!

Let's highlight those companies raising awareness and showing acceptance and support them this holiday season!

18/12/2022

It’s that time of year again! Teens 14+ can register for the 2023 Night to Shine!

07/12/2022

We're hiring! 📝

Part-Time Bicultural, Bilingual (Spanish/English) Community Health Worker

If you or someone you know would be interested in this position, please click the link below to learn more!
https://bit.ly/3uv5uHO

Stakeholder Engagement Webinars1915(i) Option Respite Draft PolicyWednesday, Dec. 14, 20222:30-3:30 p.m.Join on your com...
07/12/2022
Join conversation

Stakeholder Engagement Webinars
1915(i) Option Respite Draft Policy

Wednesday, Dec. 14, 2022
2:30-3:30 p.m.

Join on your computer or mobile app:
Click here to join the meeting: https://r20.rs6.net/tn.jsp?f=001ttaJ6Uj7VTCveNIJN_349RnNce0Fcl1zMpTQnHOZ6CoMjgKOnCi6Y5lX947hNEdVbsmNxp8e0BVRCagcgjVk7hwxhi9qRWrZj2EjWCz6Bwr-8CErHtsObrsYJ4tKeah2Rily5sEc-Td-_UmoAZY7bgKBAhnejmus5K6tvXbXcz72oAUpa-LWflODkIK3Tkjh0UmPtkRiTx8F0P7tmneW3ufv6tbir2AhoFAyEDgPfCdGYamn0Ei21F7OhODilH9d8BIDkDbFG0rcwafiON9akpr9cCyk33xPsxNHR7_Y7H8WxNFO1QUIfypX_Cb_r_hJ9B_s0poADSyTzVcVslAjGp0u3avfoJdCOvo_9tqKXsLbxHJm_qfq7n97QW44ke8hm2gfGqikQS686qA-SobL4uhnxEPfJnSZKOV3BSklLj-nGgKfAHG3DRYI3zwLAE0Y6iV9_F1zfVLy95rjOvOtfrDqiGw_ljBV23-fPFOgRvPwgkmj8z-KOwp3a9nIG_CLHCsMb5LPQYCorxI774XFhNhA6fvcQd7j-tD1hg_0m6GVAX3kxGPAKzKbYZWdZCsJSNbIFsHR_z4gsJ8ONZnXcS2_b8EdgcuOaQM4sT9ytBL0WK3rz68f2fCPa0LJtgJ00HcYOw0LB3pyK49HDuZx8DNgIJnblFcVPdTAsNow6gHMZwvVdOSeQj0nsPxYhocbZ67Y1Cv9HtIkQ1khJzrM3KHuW3lBa-ecjk-bEw69CUh9tFERBcctWAdAmh-bWkB7cbBxAduZ8h5BcTSQOtKvHA8wGxc921-djNSRMf04OkKbKTEXtWJrAA-2J07Y8ZVYI8MOrh49vOs=&c=Hts8ZL0hXhX2ECsB1SsqzeBO-ojtdSvAWScoopWLCXQ0rXncEyszNA==&ch=Mwq4b5wgyIwkzsheqV0ZL3c_b4w4RB1ULBECUQg7otQvt8kr5RbQ0w==
Meeting ID: 244 979 687 831
Passcode: RqEDAJ

Join with a video conferencing device:
[email protected]
Video Conference ID: 113 261 554 7

Or call in (audio only):
Dial-In: 984-204-1487
Access Code: 55824700

Friday, Dec. 16, 2022
9:00-10:00 a.m.

Join on your computer or mobile app:
Click here to join the meeting- https://teams.microsoft.com/dl/launcher/launcher.html?url=%2F_%23%2Fl%2Fmeetup-join%2F19%3Ameeting_NGQzMGIxY2QtODliMy00ZWU2LWFiYmEtM2Q5N2NiMGM3OTBh%40thread.v2%2F0%3Fcontext%3D%257B%2522Tid%2522%253A%25227a7681dc-b9d0-449a-85c3-ecc26cd7ed19%2522%252C%2522Oid%2522%253A%25226cd80040-c1ac-4cb3-8d3a-ec36b0bef843%2522%257D%26anon%3Dtrue&type=meetup-join&deeplinkId=b27ca654-8fe9-408d-a498-76d1783b26cd&directDl=true&msLaunch=true&enableMobilePage=true&suppressPrompt=true
Meeting ID: 211 321 981 193
Passcode: 3v6Pod

Join with a video conferencing device:
[email protected]
Video Conference ID: 117 252 015 2

Or call in (audio only):
Dial-In: 984-204-1487
Access Code: 289639472

Welcome! You are invited to join a webinar: Tailored Plan 101: "Ready, Set, Launch" webinar series. After registering, y...
06/12/2022
Welcome! You are invited to join a webinar: Tailored Plan 101: "Ready, Set, Launch" webinar series. After registering, you will receive a confirmation email about joining the webinar.

Welcome! You are invited to join a webinar: Tailored Plan 101: "Ready, Set, Launch" webinar series. After registering, you will receive a confirmation email about joining the webinar.

This webinar series is designed to support all Medicaid providers, practice managers, quality improvement professionals, care coordinators and other leaders within your practice to help you prepare for the launch of Tailored Plan in April of 2023. Please tune in for timely Medicaid updates in this m...

Easterseals UCP has a new program: IDD Family Peer Support.  They will be hosting a support group for parents and caregi...
04/12/2022

Easterseals UCP has a new program: IDD Family Peer Support.

They will be hosting a support group for parents and caregivers of individuals with IDD and complex needs.

The first one for the Onslow area is tomorrow. Please consider providing feedback about days and times to ensure they are meeting the needs for all parent and caregivers!

03/12/2022

This morning, my mom and I (both proud disabled women) wished each other a happy day of us. It's the International Day of People with Disabilities, and our community deserves a celebration. But then we got to talking about how days like IDPD come and go every year, yet it feels like the world around us constantly makes one roll forward toward progress and two (or three or four) rolls back.

Much of this backward movement is weighing particularly heavy on my mind today--everything from the news out of NYC about forced institutionalization, to the fact that so many people seem to be conveniently forgetting all the lessons we should've learned because of the pandemic.

But I'm also thinking about what's giving me hope: the beautiful, diverse, vibrant community of disabled people who never settle for the status quo and refuse to keep quiet when rights are on the line. This is what I'm celebrating today. And tomorrow. And next week. And all month. And next year. Always.

So as you share your IDPD posts and host your events, don't let them simply be a one-day signal of acknowledging disabled people, a box you've checked off. Because the more than one billion disabled people who exist in this world are worthy of access and full inclusion today. And tomorrow. And next week. And all month. And next year. Always.

[Image description: Dark purple background. Text reads: “The more than one billion disabled people who exist in this world are worthy of access and full inclusion today. And tomorrow. And next week. And all month. And next year. Always.” Below is a logo of a wheel encircled by text that reads “Words I Wheel By” and my handle, .]

03/12/2022
03/12/2022

🎉Today is the International Day of Persons with Disabilities! 🙌

The annual observance of the International Day of Disabled Persons occurs every year on 3rd of December and was proclaimed in 1992, by the United Nations General Assembly resolution 47/3. The observance of the day aims to promote the rights and well-being of persons with disabilities at every level of society and development.

Help DRNC celebrate and advocate! Today and every day.

The mission of Disability Rights NC is to protect the legal rights of people with disabilities through individual and systems advocacy. We value the dignity of ALL people and their freedom to control their own lives. We work for justice upholding the fundamental rights of people with disabilities to live free from harm in the communities of their choice with the opportunity to participate fully and equally in society.

Thank you for your continued support!

Image: Drawings of four individuals with different disabilities set against 4 colorful rectangles.

02/12/2022
justiceinaging.org

From:
JUSTICE FOR THE AGING
Fighting Senior Poverty through Law

Most older adults say they want to remain at home as they age. An important federal program and rule help make this possible: the Medicaid Money Follows the Person (MFP) Program and Spousal Impoverishment Protections, which are both set to expire on December 31, 2023, if Congress does not act.

A new Justice in Aging Fact Sheet, Make the Medicaid Money Follows the Person Program Permanent (https://justiceinaging.org/wp-content/uploads/2022/11/Make-Medicaid-Money-Follows-the-Person-Program-Permanent.pdf), explains the importance of securing permanent federal funding for the MFP program, which provides critical assistance to states to support older adults and people with disabilities in moving out of institutions and back into their communities. Through enhanced federal funding, states provide a wide range of support to MFP enrollees. The program has helped over 107,000 people transition back into their communities, including nearly 40,000 people age 65 and older.

The Spousal Impoverishment Protection is a Medicaid eligibility rule that helps married older adults and adults with disabilities remain living at home and connected to their communities. This rule helps ensure that married couples can continue to live together and that the spouse who does not need home and community-based services (HCBS) can continue to pay for rent, food, and medication if their spouse needs HCBS. Read more about the Spousal Impoverishment Protections in this Fact Sheet, Make the Expanded Spousal Impoverishment Protection Permanent: https://www.justiceinaging.org/wp-content/uploads/2019/01/Justice-in-Aging-Federal-Spousal-Impoverishment-Fact-Sheet-11-8-18.pdf?eType=EmailBlastContent&eId=ea656829-4dfa-4d83-bf6c-dc3613e02a4d

Now is the time for Congress to permanently authorize MFP and Spousal Impoverishment Protections to ensure older adults and people with disabilities can age at home and give states the assurance they need to invest in these critical services.

Contact Us

Justice in Aging
(202) 289-6976
[email protected]

01/12/2022
Smartsheet Forms

Trillium has an OPEN ENROLLMENT ANNOUNCEMENT: RESPITE

Trillium Health Resources (Trillium) is seeking to identify mission-driven organizations that are interested in providing Respite Services for Children/Adolescents. This open recruitment applies to both in-network and out-of-network providers enrolled in NC Tracks who are free of contract sanctions, fraud investigations, and/or current or previous IRS liens. More than one provider may be selected.

This recruitment is being used as a means to expand the network of Respite Providers that are capable of providing these services to Trillium Members who are also involved with the Department of Social Services.

This recruitment should not be interpreted as a contract (implicit, explicit, or implied), nor does it imply any form of an agreement to any potential candidate. In addition, no inference should be made that Trillium will purchase and/or implement in the future any of the programs or services proposed by the respondents.

Interested Providers should submit an application to the link below:
Application for Respite- https://app.smartsheet.com/b/form/57e04437bee544b7ba473322d09dc95a

Questions? Please submit here: Questions Link- https://app.smartsheet.com/b/form/d2f69c839baa4ebf8beb456192a65475

01/12/2022

ATTENTION: Our Annual Christmas giveaway will begin at 10:00 A.M ‼️
**See Date, time, and location on the flyer below.

Upon arrival:
▪️Please make TRUNK space in advance.

▪️Please DO NOT BLOCK DRIVEWAYS🚫.

▪️To ensure your safety and ours , please remain in your vehicles at all times.
*No public restrooms.

▪️I.D. requirement : To ensure that we do not serve the same household twice in one day.

▪️Frequently asked question:
Can more than one household come in the same vehicle ?
Answer : Yes, each household is required to show an I.D.

Note: Food drives bring long lines. Therefore, you may possibly experience a wait time. Please be patient with us and keep in mind that our staff is loading each vehicle by hand with heavy objects and in bulk . It is our desire to take care of you in a timely manner.

Thank you for your patience.

•If you would like to make a donation , we accept :
- Cash app: $MountCarmelHELPS
- Check : Mount Carmel helps
- 💲Cash

This is important to watch and understand....We all celebrated as the Samantha R case was rolled out and the highlights ...
01/12/2022
NCDHHS Appeals Superior Court Ruling in the Samantha R. et al. vs. NCDHHS

This is important to watch and understand....

We all celebrated as the Samantha R case was rolled out and the highlights of getting the 16,000 off the wait list and addressing the DSP/staff crisis......but if it's true that it will close doors on facilities that are needed, like group home and medically fragile inpatient care, than we do have to have a means to still provide the choice for those who need them.

Now, I personally feel DHHS is buying time. The issues we are seeing with the Tailored Plans, the issue we are already seeing with getting providers who want to me AMHs or CMAs seems to be what they are drawing on to make the conclusion that "closing the front door" would lead to loss of placements and loss of providers.

But why? Why do agencies and clinics and doctors and those who would fall under these plans not want to be a part of them?

Is it because they now have an option to exclude a population that can be more challenging to serve? Are there not incentives or trainings being offered? What is the barrier?

Many are watching an praying that the wait list is just going to dissolve and everyone gets services.......is 10 years realistic with the rate of autism STILL rising? How do you get ahead on a problem you are literally drowning in. It's hard to keep hope when the entities that say they want to provide you choice, can't give you answers!

Exceptions, grandfathering, and looking at individual cases with assessments that truly look at the whole person not just once you have the waiver, but prior too and the same assessment you use for the Innovations Waiver verse the 1915i waivers could give a better projection of what we will actually be needed. Respite and CLS services are bandaid on suckng flesh wound for some families.......now as it stands if a family needed intermediate care in a 2 or 3 facility you are waiting until an absolute crisis happens before you get what you need.

No program is perfect and it can be easy to purpose answers, but having an appeal against something that everyone agrees needs to be better is disheartening.......I understand that DHHS agrees that 10-15 year is wrong and that they understand the staffing crisis, but what answers are we getting on how to make it happen? It feels like deflection to bide time to even see if Tailored Plans actually roll out as they have been schedule. Going to be interesting to see where this goes.

The money spent fighting........seems better spent on worming on a solution. But this is the construct of our judiciary/legislative institution!


https://m.youtube.com/watch?v=jHUhLWy65kg&feature=youtu.be

NCDHHS has announced they will appeal the Superior Court Ruling in the Samantha R. et al. vs. NCDHHS and the State of North Carolina Court Case

Come support the School Base Enterprises that the various schools have! Support students in their pursuit to gain vocati...
30/11/2022

Come support the School Base Enterprises that the various schools have! Support students in their pursuit to gain vocational and life skills!

Please bring cash as it is easiest for the various businesses!

PLEASE SHARE!!!

30/11/2022

FirstLight Home Care of Jacksonville, NC is having a live webinar focusing on the sensitive issue of providing help in the home to aging family members. Join in tomorrow from 8-9PM. Scan the QR code to register.

30/11/2022
15/11/2022

DHHS Veteran Su***de Awareness
Ways to Support and Assist with Prevention

Thursday, Nov. 17, 2022, Noon-1:30 p.m.

american-flag-wavy.jpg

As we celebrate Veterans in November, NCDHHS will host a webinar to increase awareness of the importance of building relations with Veterans and military personnel in North Carolina and provide information and resources for individuals in need of treatment and recovery services to seek help.

Date/Time: Thursday, Nov. 17, 2022, 12:00-1:30 p.m.
Join Link: Click here to register
https://register.gotowebinar.com/register/6899821819595358734

Onslow Commission for Disability Advocacy is excited to support Easterseals UCP and their new opportunity with Family Pe...
14/11/2022

Onslow Commission for Disability Advocacy is excited to support Easterseals UCP and their new opportunity with Family Peer Support.

Peer Support has been proven to be an effective tool in supporting those going through challenges in their life. With November being Caregiver Awareness Month, this is a great time to look at how we can provide support to those who care for our loved ones with IDD.

This support group is for Parents and/or Caregivers of those with IDD. The hopes is to be able to reach families and help in giving them a platform to build upon to find the resiliency and hope needed to help their loved one and themselves reach their fullest potential!

Please SHARE and let those know about the opportunity!

IDD Family Peer Support Group
December 5th
11-1pm
Onslow Jacksonville Library
58 Doris Street

Be sure to check out the craft fair that is being put on by the Exceptional Children's Department of OCS!School base bus...
08/11/2022

Be sure to check out the craft fair that is being put on by the Exceptional Children's Department of OCS!

School base businesses are a great opportunity for students to work on a variety of vocational skills!

Please share and come shop from some Exceptional Businesses!

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Onslow Commission for Disability Advocacy is excited to support Easterseals UCP and their new opportunity with Family Peer Support.

Peer Support has been proven to be an effective tool in supporting those going through challenges in their life. With November being Caregiver Awareness Month, this is a great time to look at how we can provide support to those who care for our loved ones with IDD.

This support group is for Parents and/or Caregivers of those with IDD. The hopes is to be able to reach families and help in giving them a platform to build upon to find the resiliency and hope needed to help their loved one and themselves reach their fullest potential!

Please SHARE and let those know about the opportunity!

IDD Family Peer Support Group
December 5th
11-1pm
Onslow Jacksonville Library
58 Doris Street
Be sure to check out the craft fair that is being put on by the Exceptional Children's Department of OCS!

School base businesses are a great opportunity for students to work on a variety of vocational skills!

Please share and come shop from some Exceptional Businesses!
Wanted to thank Ceclia Peers from Trillium Health Resources today in presenting a lot of valuable information about the Local Medicaid Enty/Managed Care Organization. Navigating the Medicaid system in North Carolina can be challenging and having the opportunity to ask questions is crucial to building the advocacy in Onslow! Feel free to reach out to Trillium with any follow up questions and to explore all they have to offer! https://www.trilliumhealthresources.org/explore-trillium/contact-us
NC Medicaid Managed Care: Tailored Plan Launch Delayed until April 1, 2023

NC Medicaid will delay the implementation of the NC Medicaid Managed Care Behavioral Health and Intellectual/Developmental Disabilities (I/DD) Tailored Plans until April 1, 2023. (For more about the delay and specific services that will go live Dec, 1, 2022, please see the recent press release.

Beneficiaries that were enrolled or chose to enroll in the Tailored Plan will be mailed a letter beginning Oct. 28, 2022, notifying them of the change to the Tailored Plan start date. These beneficiaries will continue to receive services they do today until April 1., 2023.


A new service will begin on Dec. 1, 2022. NC Medicaid and Local Management Entity/Managed Care Organization’s (LME/MCOs) will support Tailored Care Management providers as they launch their services Dec. 1, 2022. Beneficiaries who are eligible for Tailored Care Management will have a single designated care manager supported by a multidisciplinary team to provide integrated care management that addresses the beneficiary’s whole-person health needs. Information about Tailored Care Management will be mailed to beneficiaries in mid-November.


Beneficiaries will continue to receive behavioral health services, I/DD and Traumatic Brain Injury (TBI) supports through their LME/MCO and physical health and pharmacy services through NC Medicaid Direct, just as they do today.

NC Medicaid will share more information on the beneficiary choice period and other key dates leading up to the April 1, 2023, launch in the coming weeks.

What beneficiaries need to know:
The Tailored Plan is an integrated health plan for individuals with significant behavioral health needs and I/DD. Tailored Plans will provide physical and behavioral health to members and will also serve other special populations, including Innovations and Traumatic Brain Injury (TBI) waiver enrollees and waitlist members, and is responsible for managing the State’s non-Medicaid behavioral health, developmental disabilities and TBI services for uninsured and underinsured North Carolinians.

Tailored Plan Enrollment Criteria

NC Medicaid will identify beneficiaries who qualify for Tailored Plans based on programs, diagnoses, admissions or visits and services only available through the Tailored Plans.

Enrollment in Tailored Plans will continue to be an ongoing process.

Tailored Plans will begin providing health care services to members April 1, 2023. Many people who receive behavioral health, I/DD and TBI services through LME/MCOs and NC Medicaid Direct will transition to a Behavioral Health I/DD Tailored Plan April 1, 2023. Beneficiaries will continue to receive their health care through their current health care option until April 1, 2023.

Health care options for beneficiaries are specific to their situation. If a beneficiary needs to receive behavioral health, I/DD or TBI services, the beneficiary or their providers may fill out the Request to Move form. The beneficiaries’ needs will be evaluated and if they meet the criteria, they will be moved back into NC Medicaid Direct, or a Tailored Plan based on their specific needs.

Ombudsman Role:
The NC Medicaid Ombudsman is an independent advocate for NC Medicaid beneficiaries. We can help you learn more about Tailored Plans and answer questions related to NC Medicaid Managed Care. If you need assistance, you can visit ncmedicaidombudsman.org/tailored-plans or call the NC Medicaid Ombudsman at 877-201-3750, 8 a.m.- 5 p.m., Monday through Friday (except for State holidays).

We support beneficiaries who have questions about Tailored Plan enrollment. Beneficiaries who receive a Tailored Plan enrollment notice and have questions can call the Ombudsman for assistance.

What you can do:
Register for our monthly webinars. Our webinars are designed for NC Medicaid beneficiaries, health care providers and other NC Medicaid Managed Care stakeholders. We're interactive! Presenters will solicit feedback from attendees about their experiences with NC Medicaid Managed Care and answer questions from attendees. Click here to register. https://us02web.zoom.us/webinar/register/WN_al-k5gaYQZ2AdQXkCg1YWw
Request a presentation from the NC Medicaid Ombudsman. Presentations can be tailored to the audience and available in person. Visit our website at ncmedicaidombudsman.org/for-community-partners/
Engage with us on social media (see links below).
Presented by NC Child and the North Carolina Council on Developmental Disabilities

We are failing families caring for a child with disabilities and/or complex medical needs across the state

And it's costing us all.

UNSEEN:
How We're Failing Parent Caregivers & Why It Matters | Documentary Trailer

https://www.youtube.com/watch?v=I-RgSPtjZd0

Join us to watch the film, followed by a panel discussion featuring North Carolina families, providers and representatives from NC Child and the North Carolina Council on Developmental Disabilities. Let's get a conversation going about what can be done to meet the needs of North Carolina families caring for a child with disabilities and/or complex medical needs.


We will also share opportunities for stakeholders to strengthen their advocacy skills.



Families, Professionals and Policy Makers are invited to attend.




THURSDAY, NOVEMBER 17th

11:00 am to 1:00 pm

"An estimated 16.8 million people in the U.S. are caring for a child with disabilities or complex medical
needs. The demands of daily life and chronic stress can negatively affect the mental and physical
wellbeing of parent caregivers. With limited accommodations and uncertainty about the future, caregivers
often face isolation and exhaustion. In Unseen, parents are brutally honest about their experience,
providing insight such as:
• “We’re just hanging on by a thread most of the time. The hardest part is that it’s nobody’s fault. It’s not
our fault. It’s not his fault. It’s just part of our life.”
• “Our parenting and caregiving will continue indefinitely, and that’s just overwhelming.”
• “Most caregivers are not fine, and they are not doing well.”

REGISTER FOR THIS LIVE EVENT:
https://us02web.zoom.us/webinar/register/1716643031799/WN_Ss9fqwLRQrmPIPgplWWbeg
Trillium Health Equity Council Membership Opportunity



Trillium is seeking to engage with members in our communities to establish a Health Equity Council that will seek input related to issues of health awareness, health literacy, health equity, and identification of health disparities.



The foundation of our engagement model is based on core principles that include:

• People - Recognizing members as the experts in their health
care needs. As such, collaborating with members and
stakeholders as experts in the development of:

· Annual Trillium Tailored Plan goals and strategies for engaging
with historically marginalized populations

· Establishing recommended health care and access to care
priorities

· Messaging and member outreach through health awareness
and literacy

• Place of a with an emphasis on where equity happens:

o Recommendations of initiatives that address health/health
related disparities in specific areas

o Tailored interventions to reduce health disparities with specific
measurable outcomes

• Partnerships with “everyone in the community” approach with
an emphasis on:

o Tailored interventions to increase well being

o Addressing social determinants of health (SDOH) impacting
members who may be eligible for Healthy Opportunities funding
in specific areas

o Grow acceptance and inclusion through relationships and
partnerships



If you are interested in serving on the Trillium Health Equity Council please click the form below to sign up. Applications will be reviewed and members selected for the council in November. The Council will hold the first meeting in January of 2023.





https://app.smartsheet.com/b/form/2666714a337a4e38bda165d511b2cf90
If you are seeing challenges with receiving services, consider attending the Southern Regional Advisory Board Meeting and use your voice during the public comment!

"Southern Regional Advisory Board Meeting Schedule

Southern Regional Advisory Board meetings are held at either between Trillium Health Resources Jacksonville Office (165 Center Street, Jacksonville, NC 28546) and Trillium Health Resources Wilmington Office (3809 Shipyard Blv., Wilmington NC 28403) on the 4th Thursday of every other month at 4:00 pm - 6:00 pm. Meetings are open to the public."

You can reach out to Cecelia Peers
[email protected]
1-866-998-2597
for more information and request the virtual link to the meeting. The next meeting is November 17th.

https://www.trilliumhealthresources.org/regional-operations/southern-region