Power to Care

Power to Care P.S. There was also very little information readily available. If someone you care for is in crisis please contact Bendigo Triage on 1300 363 788.

We help family members and unpaid carers access financial, practical, and emotional support, enabling them to continue their caring roles while also pursuing their personal and other goals. My Family Matters was founded by two country Victorian mums who have experienced the trauma of having teenage children with mental illness and who discovered a void in necessary support services in their local

area. During our journey in navigating the mental health system, we discovered a system that is under-resourced with little help available beyond basic hospital care. So we started a support organisation for families and carers of people with mental illness or mental health conditions. We are here to help you connect with people who are going through similar circumstances to you, get the resources you need and know who you can go to locally. For immediate advice call 000. If you or someone you love is experiencing difficulties contact Lifeline on 13 11 14 or Beyond Blue on 1300 22 4636.

03/08/2026
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18/07/2026

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For many people, asking for help with their mental health – or even knowing where to turn – can be the hardest step.

That’s why today is such an important milestone.

Our community’s Mental Health and Wellbeing Local is officially open in Kyneton.

Located at 47–49 High Street, this free service supports adults aged 26 and over, along with their families, carers, and supporters.

Led by Mind Australia, in partnership with Bendigo Health and Thorne Harbour Health, the team provides care through flexible options including face-to-face appointments, telehealth, and outreach.

Today, Annette Death - Labor for Macedon and I met some of the incredible people who will deliver this important service.

Their message was clear: they’re here and ready to support our community.

If you or someone you know could use some mental health support, appointments are available by calling 03 4442 9100.

Mental Health and Wellbeing Locals are one of the key reforms recommended by the Royal Commission into Victoria’s Mental Health System.

The Liberals opposed the funding needed to deliver these recommendations.

We're proud to have backed this reform because everyone deserves access to mental health care closer to home.

A long but insightful read......
16/07/2026

A long but insightful read......

I have recently discovered something deeply inconvenient.

Australia’s government is actually… quite good.

According to the World Bank’s Worldwide Governance Indicators, Australia scores extraordinarily highly compared with other wealthy countries.

Sweden: 572
Australia: 563
Netherlands: 561
Singapore: 550
Canada: 549
Germany: 549
United Kingdom: 526
United States: 472

These scores look at things like government effectiveness, political stability, regulation, rule of law, corruption and whether citizens get any meaningful say in how they are governed.

Australia scores highly across nearly all of them.

We have a professional public service. We collect taxes effectively. Our institutions are stable. Our elections are peaceful. Government ministers generally leave office through voting rather than being chased out of the palace by an angry crowd carrying AK47s.

Corruption exists, obviously, because humans are involved. But internationally speaking, Australia is relatively clean, stable and competent.

The United States is the obvious outlier here mostly because it scores much lower than the other countries on political stability, rule of law, institutional trust and corruption.

Sweden, meanwhile, appears to have completed government on expert mode.

So this raises an awkward question.

If Australia is so well governed, why do so many things still feel completely cooked?

How can we have world-class government effectiveness and also housing that requires either wealthy parents, three investment properties or a minor role in the mining industry?

How can we have a sophisticated healthcare system while carers report appalling levels of exhaustion and distress?

How can we have an extremely capable bureaucracy while disability families spend their lives filling out forms, coordinating providers and trying to locate a support worker who has not suddenly moved to Queensland?

The answer is that these governance rankings measure whether government is capable of implementing policy. They do not measure whether it always chooses good policy.

A government can be extremely competent at carrying out a questionable idea. In fact, competence may allow it to carry out the questionable idea with tremendous efficiency.

This is where the NDIS becomes so interesting.

The NDIS is often presented as evidence that Australian government is hopeless. But I’m starting to think it may be the exception that proves the rule.

Australia is generally very good at running large, broad, rules-based systems.

Medicare. The PBS. The Age Pension. HECS. Compulsory super. The tax system, which will find your forgotten $27 of bank interest from 2019 even if you have personally lost all memory of ever opening the account. These systems work because government largely sets the rules, collects the money and pays benefits or funds established services.

The NDIS asked government to do something very different. It asked government to invent an entirely new market for highly personalised disability care.

Government became the funder, planner, regulator, price setter, fraud investigator and market designer.

Families became employers, recruiters, schedulers, contract managers, quality-control inspectors and emergency workforce planners.

People with disability were described as “consumers,” as though they were strolling through a pleasant marketplace comparing the relative merits of occupational therapists.

The theory was choice and control.

The reality can be spending three months trying to find someone willing to work on Friday afternoon. Why is it that no one is ever available on a Friday??

Care is not like buying groceries.

Markets work best when buyers understand the product, quality is easy to compare, suppliers can enter and leave easily, and customers can simply walk away from a bad provider.

Disability care often has none of those features.

Some participants cannot communicate whether a worker is treating them well. Families may be exhausted and desperate. Specialist workers are scarce. In many regional areas, there may be one provider or no provider.

You cannot exercise meaningful consumer choice between “the only person available” and “nobody.”

The NDIS also managed to combine central planning and free markets in a way that preserved the drawbacks of both.

Prices are regulated. Plans restrict spending. Provider entry is partly controlled. Government determines what counts as reasonable and necessary. Not in any kind of consistent way, but in a let’s see where the VIBES are at this time sort of way. But services are still expected to appear through market competition.

So it is not quite a public system. It is not quite a free market.

It is a sort of policy centaur. Half government program, half commercial marketplace, galloping around generating invoices.

The scheme also grew much faster than the institutions around it.

The workforce was not ready. The regulatory systems were not ready. The IT was not ready. Mainstream services were not ready. I suspect several government departments are STILL not emotionally ready.

Meanwhile, states, schools, hospitals and community services increasingly discovered that whenever they failed to provide something, they could point vaguely toward the NDIS. The NDIS became the place people went because everywhere else had already said no.

It was originally meant to be one part of a broader disability support system. Instead, it gradually became the system.

Michael is a good example.

We did what everyone says you should do. We enrolled him in a mainstream public school. The school tried. The teachers genuinely cared. But they simply couldn’t keep him safe or provide the level of support he needed. Eventually we had to withdraw him.

Here’s the interesting question. Was that an NDIS problem? Not really.

It was an education problem. If there had been enough genuinely specialised school places for children with very complex needs—or if schools had been resourced to provide the level of support those children require—Michael would have been learning at school instead of being at home.

But there aren’t many places where a child with Michael’s level of disability can receive that intensity of support all day. A child who needs near-continuous supervision is extraordinarily difficult for any school to accommodate. Families often end up filling the gaps themselves, with support workers funded through the NDIS helping around the edges because the education system simply can’t meet all of the child’s needs.

That’s what happened across the disability system more broadly.

The NDIS was designed to sit alongside health, education, housing and other services. Instead, whenever one of those systems couldn’t quite cope, the question gradually became:

“Can the NDIS help?”

And often the answer was yes.

Eventually the NDIS wasn’t just funding disability supports. It was quietly compensating for the limits of lots of other systems as well.

Then everyone seemed surprised by how expensive it became.

This is where Sweden offers an interesting comparison.

Sweden also uses private providers in some areas, and its system is certainly not perfect. But much more disability support is organised or directly provided by local government. The municipality carries more responsibility for making services exist.

The family is less likely to be handed a budget and told, “Congratulations on your empowerment. You are now the unpaid chief executive of a small disability-services company.”

Imagine running schools the way we run parts of disability support.

Every parent receives an individual education plan. Thousands of education companies compete. Parents recruit teachers separately. They compare hourly rates. They negotiate cancellation policies. They find someone else when the maths provider goes bankrupt.

If nobody is available, the parent teaches Year 8 algebra themselves while also appealing the funding decision.

We do not generally organise schools this way because we recognise that education is a public service requiring infrastructure, workforce planning and government responsibility.

Yet in disability, we often assume the family should become the project manager.

Parents recruit workers. Coordinate rosters. Train staff. Negotiate with providers. Chase invoices. Organise therapies. Manage crises. Fill every gap.

And when the whole structure collapses at 4:30 on a Friday afternoon, the family is the provider of last resort. And a lot of the time saying ‘family’ is another way of saying: the mother.

I recently read a comment from a woman whose mother had received excellent community palliative care. What she remembered most was not simply the shower chair, wheelchair or overnight nursing. It was that someone else absorbed the mental load.

You called one number. Someone worked out what was needed. The system organised itself around the family, rather than requiring the family to organise the system.

I wonder whether this is one of the great lessons we should take from Sweden.

A good disability system does not merely hand families funding.

It creates actual services. It trains workers. It maintains backup capacity. It coordinates care. It notices when a family is drowning before asking them to complete a 46-page form proving they are wet.

Australia’s problem may not be that government is incapable. The international evidence suggests almost the opposite. Australia has a highly capable state.

The harder question is what we ask that state to do.

Do we want government simply to finance care? Or do we want it to build the invisible architecture that makes care possible?

Michael Sandel would probably ask: what is government for?

And I think that is the real question here.

Because Australia is apparently capable of doing difficult things once it decides they matter.

The problem is not always capacity. Sometimes it is priorities. Sometimes it is institutional design. And sometimes it is the strange belief that if we call a person with profound disability a “consumer,” and possibly click your heels three times, a functioning market will magically appear around them.

Why are carers so unhappy?  A great reflection........
13/07/2026

Why are carers so unhappy? A great reflection........

Why are carers so unhappy?

After my last post, I found myself thinking about something that’s been bothering me for a long time.

Australia has around 3 million unpaid carers.

Yet carers consistently report some of the lowest levels of wellbeing in the country.

According to the Australian Institute of Health and Welfare and the annual Carers Wellbeing Survey:

• 61.1% of carers report low wellbeing, compared with 33.6% of Australian adults.
• 31.4% experience high psychological distress.
• Only 17% report being in good or excellent health, compared with 46% of other Australians.
• 42.7% say they feel lonely often or always.

Those statistics are sobering. But what strikes me is what they don’t tell us.

They tell us that carers are struggling. They don’t tell us why.

My own hypothesis is that it isn’t simply because caring is hard. It’s because carers gradually lose something much more fundamental.

They lose capacity.

By capacity, I don’t just mean energy.

I mean having enough time, support and mental space that, every now and then, you actually get to choose what you’re doing instead of simply reacting to whatever disaster has most recently wandered into the lounge room.

Enough capacity to finish a conversation. Enough capacity to read a chapter of a book. Enough capacity to exercise without being interrupted halfway through a squat because someone has decided the toilet needs inspecting for the fourteenth time. I should note that last time this happened I nearly dropped a 16kg dumbbell. Enough capacity to spend an afternoon with your partner talking about something other than therapy schedules, Centrelink forms, or who forgot to order pull-ups. Enough capacity to sleep through the night without listening for footsteps. Enough capacity to wake up feeling rested instead of already behind before the day has even begun. Enough capacity to drink a cup of tea while it’s still recognisably a hot beverage rather than an archaeological artefact.

Those things sound wonderfully ordinary.

For many carers, they slowly become luxuries.

I’ve increasingly felt that we’re measuring the wrong things.

When we talk about supporting carers, we usually ask questions like:

“Did they get respite?”

“How many support hours were funded?”

“How much money was spent?”

Those are important questions. But they’re measuring inputs.

I’m much more interested in the outcome.

Maybe the better question is:

Did this family gain enough capacity to enjoy ordinary life?

Did the support mean:

• the carer slept through the night more often?
• the carer exercised? Remember, we need them to live forever
• the marriage became a little stronger?
• siblings received one-on-one attention?
• the carer stayed in paid work?
• friendships survived?
• hobbies reappeared?
• someone laughed a little more often?

Those are outcomes. Hours are just inputs.

As I’ve been reading more economics lately, one idea has really stayed with me.

We often think the scarce resource is money but I’m not so sure. For many carers, the real scarce resources are time, autonomy, uninterrupted sleep and care capacity.

Money matters enormously, of course.

But money doesn’t automatically create a trusted person who knows your child well enough that you can truly switch off. It doesn’t automatically create a reliable backup when your support worker is sick. It doesn’t automatically create enough slack in the system that one unexpected event doesn’t cause the entire week to collapse like a badly assembled IKEA bookshelf. And it certainly doesn’t buy eight uninterrupted hours of sleep.

Sleep is one of the things I think we almost never talk about. Now lack of sleep is something every single parent of an autistic child can speak about at length.

If you’re awake several times a night listening for wandering, seizures, distress, toileting, or simply a child who doesn’t sleep for exactly three hours every single day at 2am, eventually every part of life starts to shrink.

Your patience. Your memory. Your physical health. Your relationships. Your ability to make good decisions and drive safely. Even your ability to enjoy the hours when nothing is actually wrong.

Perhaps one of the simplest questions we could ask is:

Did this support help the family sleep?

Because if the answer is yes, it probably improved almost everything else too.

That’s the capacity carers are missing.

And perhaps that’s why wellbeing is so poor. The opposite of burnout isn’t necessarily a holiday. It’s capacity.

Most carers aren’t dreaming of luxury. They’re dreaming of enough spare capacity to enjoy an ordinary Tuesday.

To read a book. To have dinner with their partner. To exercise. To sleep. To drink a hot cup of tea. To wake up and discover that nothing has gone catastrophically wrong before 7:15am.

Maybe we’ve been measuring the wrong thing all along. Perhaps the real success of a support system isn’t how many hours of care it purchased. Perhaps it’s whether it gave a family enough capacity to live an ordinary life.

Because the more I think about it, the more I wonder if we’ve made a fundamental mistake.

We don’t really treat caring like work.

And yet for many people caring for someone with profound disability is one of the most demanding jobs imaginable.

Imagine advertising this position.

Position: Full-time unpaid carer.

Hours: Approximately all of them.

Annual leave: None guaranteed.

Sick leave: That’s adorable.

Lunch breaks: Depends whether anyone decides to drink from the toilet today.

Sleep: Intermittent.

Occupational health and safety: Best of luck.

Backup staff: Only if Grandma isn’t at the dentist.

Retirement benefits: We wish you all the best.

Recruitment: Every time your support worker leaves, congratulations! You’re now HR, payroll, training manager and quality assurance.

Performance review: If your child has a difficult day in public a kind stranger will probably explain what you should have done differently.

It sounds ridiculous.

But for many carers, that’s not satire. It’s Tuesday.

And here’s the strange thing.

Every other demanding profession has systems built around protecting the worker.

Pilots have mandatory rest periods. Doctors have shift limits. Teachers have holidays. Firefighters don’t work 24 hours a day for twenty years straight.

Good workplaces know something important. You don’t get the best out of people by extracting every last drop of capacity. You build in slack. You build in leave. You build in backup. You build in recovery. Or you pay them really really well so they can go home to sleep and buy all the other things.

We all know that exhausted people eventually make mistakes, become unwell or leave altogether.

Occupational health research tells us that working more than about 55 hours a week for long periods increases the risk of burnout, heart disease and stroke. Yet many family carers don’t just work 55 hours. They’re responsible 168 hours a week. No one expects them to be actively providing care every minute—but they are never truly off duty.

So what would treating caring more like work actually look like?

Reliable backup support when someone is sick. Planning for let’s say ten sick days a year seems fair. Maybe four weeks a year of annual leave for carers in the form of respite. Respite that’s planned before families reach breaking point, not afterwards. Support that genuinely improves sleep, if this is a problem. A stable disability workforce so families aren’t constantly recruiting and training strangers. Retirement credits or superannuation that recognise decades spent doing work that saves society billions of dollars.

Most importantly, measuring whether carers are actually healthier and happier—not just whether a budget line was spent.

I would even suggest a Carer Capacity Assessment, alongside the participant’s functional assessment.

It might produce something like:

* Direct unpaid caring: 58 hours/week
* On-call responsibility: 168 hours/week
* Average uninterrupted sleep: 4.5 hours
* Days off in last 12 months: 0
* Reliable backup: None
* Risk of burnout: High

If someone submitted that as a workplace risk assessment, most employers would be expected to act. Why don’t we expect the same when the workplace is a family home?

Maybe having something like this might change what success really looks like.

Not carers surviving barely.

Carers having enough spare capacity to be parents, partners, friends, workers and human beings as well.

Most carers aren’t dreaming of luxury. They’re dreaming of enough spare capacity to enjoy an ordinary Tuesday.

To read a book.

To have dinner with their partner.

To exercise without performing an emergency dumbbell evacuation halfway through a squat.

To sleep.

Because sometimes the greatest luxury isn’t a holiday in Fiji.

It’s finishing your cup of tea while it’s still hot.

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16/06/2026

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Turning 18 is a big milestone. Here’s what families need to know 💜

There’s a lot to think about when your young person with disability turns 18, and some of it can catch you by surprise.

Our most popular fact sheet is packed with practical tips and important steps, because sometimes the best information comes from other families.

It covers:
🔹 Decision-making and legal changes
🔹 Health, finances and government supports
🔹 School transitions and what happens next
🔹 Who can speak or act on your child’s behalf

💜 A simple, helpful guide you can come back to again and again.

👉 Check out the whole checklist: https://acd.org.au/turning-18-checklist/

15/06/2026

"Caregiving", a documentary created with executive producer Bradley Cooper highlighting the challenges and triumphs of caregiving in America, the film premie...

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