Consumer and Community Involvement Program

16/06/2026

Bone and muscle are closely connected, working together to support strength, mobility, and overall health. Muscles and bones communicate and work together: healthy muscles help keep bones strong, while strong bones support muscle function. However, in conditions like muscular dystrophy, declining muscle health can have a negative impact on bone strength. Despite this important relationship, there is still much to learn about how bone and muscle interact in the context of muscular dystrophies.

To help address this gap, we are inviting a Research Buddy to join the team at the University of Western Australia. In this role, you will collaborate with researchers, contribute to shaping the project, provide valuable feedback on study design, and help ensure the research reflects the needs and priorities of the community.

Experience Required:

➡️ Have lived experience as a patient or as a parent/carer of someone living with muscular dystrophy, preferably either Duchenne, facioscapulohumeral or dysferlinopathy.

Find out more & apply 👉 https://bit.ly/43cZqVJ

12/06/2026

Joondalup Health Campus is working with the community to shape the future of mental health research in Perth’s northern suburbs. This project aims to ensure research focuses on what matters most to people with lived experience, as well as their families, carers, and the wider community.

We are seeking insights from people who:

➡️ Have lived experience of mental health challenges or mental health care, or
➡️ Support, or have supported, a family member or friend with their mental health, or
➡️ Have an interest in improving mental health care in the community
➡️ You may live in the northern suburbs of Perth or have a connection to Joondalup Health Campus (JHC) or mental health services in the northern suburbs of Perth.

This survey will inform the upcoming Mental Health: Joondalup Health Campus Research - Research Priority Setting Workshop being held on the 2nd September.

You can complete the survey here 👉 https://bit.ly/3Q4F51T

04/06/2026

The Perth Children's Hospital and Health Service (PCH) NICU allied health team, wants to work together with families to improve its developmental care rounds. Developmental care rounds are weekly visits where the allied health team meets with families at the bedside. Your feedback will help this team understand what works well and what it can do better for parents, carer and babies, and no prior research experience is required.

What Skills or Experience Do I Need?

➡️ We are looking for parents or carers with lived experience of having a baby admitted to the PCH NICU (ward 3B), who was seen by the allied health team on the developmental round
➡️ You should be comfortable contributing to group discussions, reviewing documents, and joining online meetings using Zoom/Teams.

Find out more & apply 👉https://bit.ly/4933HhY

03/06/2026

Have you received care at Sir Charles Gairdner Hospital and/or Osborne Park Hospital? Registrations will soon close for the 'Help shape future medical research at SCGH and OPH - Community Conversation' being held on 10 June 2026 from 10am to 12pm.

Share your experiences and perspectives to help inform future approaches to consumer and community involvement in research and clinical trials across SCGH and OPH.

An $80 honorarium is offered to attendees and light refreshments will be provided. Find out more & register your attendance: https://bit.ly/4nbJ1de

Have you or someone you care for received care at Sir Charles Gairdner Hospital or Osborne Park Hospital? You can help shape the future of medical research by sharing your ideas in a short survey and optional Community Conversation.

➡️ Take the survey 👉https://bit.ly/4s2EMSZ
➡️ Register your interest in attending the Community Conversation 👉https://bit.ly/42jk1Hi

North Metropolitan Health Service

03/06/2026

Sinus surgery is often performed to help people breathe better and relieve long‑term sinus symptoms, and packing materials are commonly used to support healing. This research aims to improve recovery after sinus surgery by developing new packing materials used inside the nose after the procedure.

We seek consumers who have had sinus surgery, or care for someone who has to join the project as a Research Buddy. You will help guide the project by providing feedback on ideas and design, ensuring the research focuses on what matters most to patients and leads to more comfortable and practical solutions.

Find out more & apply 👉https://bit.ly/4dyvJ6g

02/06/2026

We would like to thank those who attended the WAHTN, New NHMRC-CHF Consumer Statement Consumer and Community Involvement in Health and Medical Research Webinar! 🙌

A big thank you to everyone who joined us. It was fantastic to see such strong interest from across the Australian research community, including researchers, consumers, health services, and partners coming together to explore the Consumer Statement.

We hope you found the discussion valuable and insightful as we unpacked what’s changing, what it means for the sector, and how we can all strengthen consumer and community involvement in health and medical research.

🎥 Missed the webinar or want to revisit the conversation?
You can now watch the full recording on our YouTube channel here: https://youtu.be/xmJSwC3pSeg

Please feel free to share the recording with colleagues and networks who may benefit from it.

The WAHTN CCIProgram hosted a Webinar for all in the WA research sector – researchers, consumers and community, Institutions, heath services, Government and ...

02/06/2026

We are seeking consumers with lived experience of osteosarcoma, including patients, parents, caregivers, and survivors to contribute to a research project investigating how osteosarcoma spreads to the lungs. Apply now and become a part of this Consumer Advisory Group.

Find out more & apply here 👉 https://bit.ly/3PjjemY

25/05/2026

📢 The WAHTN CCIProgram has welcomed the launch of the country’s first National Health and Medical Research Strategy 2026 – 2036. 📢

“The new Strategy provides a roadmap for all in the health and medical research sector, and we particularly welcome the recognition in the Strategy of both meaningful consumer and community involvement and, the role Research Translation Centres like WAHTN play in ensuring research is relevant, authentic and makes a difference to those in our communities” said Deb Langridge from the WAHTN CCIProgram.

It was also wonderful to see the WAHTN CCIProgram showcased as a case study of consumers and communities as research collaborators in the new Strategy, thereby recognising the leading role WA has played in driving the significance and importance of lived experience voices in research prioritisation, ideation, implementation and translation.

Read the National Health and Medical Research Strategy 2026 – 2036 here:

The strategy sets out a 10-year vision for strengthening Australia’s health and medical research system. It will help shape the future of health and medical research in Australia.

11/05/2026

We’re excited to celebrate the release of the new Statement on Consumer and Community Involvement in Health and Medical Research! 🎉

We celebrate the WAHTN-CCIProgram and The Kids Research Institute Australia for their role in developing this important statement. We’re also proud to recognise Anne McKenzie AM and Debra Langridge for their valuable contributions through the NHMRC - MRFF Consumer Advisory Group.

Want to learn more about the Statement? Join the upcoming WAHTN webinar on Thursday 21 May at midday — for anyone involved in delivering, supporting or funding research.

👉 Read the Consumer Statement: https://bit.ly/48UOuiR
👉 Register your webinar attendance: https://bit.ly/4taNVsy

NHMRC and Consumers Health Forum of Australia have released the new joint Statement on Consumer and Community Involvement in Health and Medical Research.

Under the new statement, the future of Australia’s health and medical research sector will be shaped by both scientific and lived experience expertise by consumers and communities. Quality research will be built on long term, reciprocal relationships that benefit everyone involved and accurately reflect the needs of consumers and communities.

The release of the new statement reflects our joint commitment for consumer and community involvement to be embedded across Australia’s health and medical research sector.

Familiarise yourself with the updated version on NHMRC’s website: https://ow.ly/rcZ950YXhvf

11/05/2026

📣 Have you received wound care? We want to hear from you!

Wound care can be complex, and your experience matters. We’re inviting people with lived experience receiving wound care to join a research project at Murdoch University as Research Buddies.

By sharing your insights, you can help shape how future nurses are trained.

💬 What’s involved:
✔️ Share your experiences
✔️ Provide feedback on training materials
✔️ Attend a few online meetings (flexible involvement)

💰 Honorarium: $50/hour
🖥️ Meetings: Online (Teams/Zoom)
💙 Help improve wound care for future patients.

👉 Find out more and submit your application: https://bit.ly/4ejDu25