Myalgic Encephalomyelitis Group Australia Ltd

02/09/2026

Happy September!

Here is our September Newsletter. We hope you find this edition interesting.

Warmly
Team MEGA 💙



https://sh1.sendinblue.com/akzy3kh479pfe.html?t=1788294265954

01/09/2026

This is it! The special launch price for the Skills for OTs CPD Bundle officially ends tonight at midnight.

If you are on the fence, I want you to picture what it will feel like to move your practice from uncertainty to autopilot:
• Systematic Frameworks: No more guessing or second-guessing your decisions. Follow proven processes that build your personal efficiency.
• Targeted Supervision Prep: Bring highly specific questions to your supervision, making the absolute most of your mentoring time.
• Consolidation Through Repetition: With 2 years of access, you can quickly review a tutorial right before seeing a client to make the knowledge stick.
• Autopilot Flow: Eventually, these core processes will run automatically, saving you hours of mental fatigue and report-writing stress.

You don't have to just take my word for it. Here is what one OT recently shared about my teaching style:
"Clare has a way of breaking down complex clinical processes into bite-sized, practical steps. I walked away not just understanding the theory, but actually knowing exactly what to write in my report and what to do in my next session!"

You get 10 tutorials, 3 bonus workshops, 2 years of access, and all the clinical downloads for just $197.

Grab it before the clock runs out tonight!

01/09/2026

If someone requires 24/7 support, do they automatically qualify for SIL?

It might sound like an obvious yes, but there’s more to consider.

For SIL, we need to understand what that support actually looks like across the full 24 hours.

How many hours of active disability support are required? What happens during the remaining hours? Is overnight support active or inactive? Could another model meet the participant’s needs more appropriately?

It’s not simply about establishing that support is needed around the clock. As OTs, we need to assess the nature, frequency and intensity of that support and clearly evidence why SIL is the most appropriate option.

I’ll be unpacking this, along with ILO and the OT’s role in assessing and reporting on different home and living pathways, live on Tuesday 15 September from 11.30am to 2.00pm AEST.

If home and living assessments are part of your practice, I’d love to have you join me!! Register via the Verve OT Learning website!

01/09/2026

Watch this space. 🤫💙

Delays in diagnosis are no longer acceptable.

Australians living with complex and chronic conditions deserve timely diagnosis, affordable care and appropriate support.

No one should have to wait years for answers — or face financial barriers to the care they need.

It’s time for change.

Here at Fibromyalgia ME CFS Australia Bridges & Pathways, We are working on it.
Support us by liking and sharing this message. Together we create change.

&Fibromyalgia ME CFS Australia Bridges & Pathways


Fibromyalgia me/cfs Gold Coast Support Group Inc.Myalgic Encephalomyelitis Group Australia LtdME/CFS Australia ME/ CFS South Australia Inc

01/09/2026

🥳💙

𝗡𝗖𝗡𝗘𝗗 𝗶𝘀 𝗲𝘅𝗰𝗶𝘁𝗲𝗱 𝘁𝗼 𝗮𝗻𝗻𝗼𝘂𝗻𝗰𝗲 𝗻𝗲𝘄 𝗴𝗿𝗮𝗻𝘁 𝗳𝗼𝗿 𝗲𝗾𝘂𝗶𝗽𝗺𝗲𝗻𝘁

Introducing the Opera Phenix Plus High-Content Screening System enabling advanced, cutting-edge imaging to facilitate our research. This technology represents an important investment in innovative research to accelerate our discoveries in the pathomechanisms of ME/CFS, long COVID and GWI. Professor Marshall-Gradisnik and Dr Eaton-Fitch received a grant of $1,465,000.00 to purchase this equipment.

We are also excited by the new opportunities that this equipment will provide for high-content drug screening and potential drug repurposing.

Best wishes,
Sonya and the NCNED Team

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia

30/08/2026

💙 Early intervention can make a difference.

For Australians living with ME/CFS and Fibromyalgia, accessing the right support early can be difficult. Too often, people face delays in diagnosis, limited treatment options, and fragmented care.

At Bridges & Pathways, we believe Australians deserve access to early intervention, prevention, informed care, and ongoing support—wherever they live.

Better access means earlier support.
Earlier support means people don't have to navigate their journey alone.

Everyone deserves the opportunity for better care, from the beginning. 🌿

30/08/2026

NDIS change takes effect TODAY 🚨

From 27 August 2026, the parameters for unscheduled NDIS plan reassessments have changed – including who can request one, when a reassessment is appropriate and how long the NDIA has to respond.

The big one for OTs? A reassessment now requires a significant and ongoing change to the participant’s disability-related support needs.

I’ve broken down what’s changed and what it means for your OT evidence: https://www.linkedin.com/pulse/ndis-plan-reassessments-what-changes-from-today-verve-ot-25e1c/

30/08/2026

If you’re supporting an adult with a developmental disability in Ontario, you may be wondering whether an online day program is a real option or just a leftover from the lockdown years. This guide walks through what virtual day programming actually…

29/08/2026

‼️ It’s on today ‼️
Severe ME Month Webinar on 3:00 pm (Brisbane time)

📢 The final program is now available on the event blog.
⚠️ Please note the presentation order has changed. We encourage you to join early to ensure you don’t miss the session you’re most interested in. Timing may shift due to unforeseen circumstances.
😎 Register for this free event via Humanitix to receive your Zoom link.
💙 We look forward to seeing you there.



https://megroupaustralia.org.au/advocacy/severe-me-month-2026-webinar-event/

https://events.humanitix.com/severe-me-month-2026-webinar-event

28/08/2026

Telehealth keeps Australians healthier and more connected, but outdated rules are keeping it out of reach for those who need it the most, say Flinders University researchers. The first of its kind global systematic review and meta-analysis found the service reduces hospital visits, improves mental h...