Scleroderma Society of Ontario

Scleroderma Society of Ontario We are a nonprofit organization dedicated to supporting those living with scleroderma.

Golf Tournament: trellis.org/hamiltongolftournament
Conference: www.sclerodermaconference.ca
Newsletter: lp.constantcontactpages.com/sl/WHo794d/ssomailinglist

⛳ Tee up for a good cause!The 18th Annual Hamilton Scleroderma Charity Golf Tournament is coming up, and we want YOU on ...
08/01/2026

⛳ Tee up for a good cause!

The 18th Annual Hamilton Scleroderma Charity Golf Tournament is coming up, and we want YOU on the green! 🏌️‍♀️🏌️‍♂️

📅 Sunday, September 13
📍 Century Pines Golf Club

Grab your favourite foursome, invite your colleagues, or join us as an individual golfer for a day of great golf, great company, and an even better cause. Your participation helps support patient support, research, awareness, and advocacy for the scleroderma community.

Want to get your business involved? Sponsorship opportunities are also available!

👉 Check out the link in our bio to register or learn more about sponsoring the tournament.

We are pleased to welcome Take a Pain Check to our 22nd Bi-Annual National Scleroderma Conference Exhibit Hall!Take a Pa...
07/31/2026

We are pleased to welcome Take a Pain Check to our 22nd Bi-Annual National Scleroderma Conference Exhibit Hall!

Take a Pain Check was launched as a podcast in March 2021 by Natasha Trehan. Natasha was diagnosed at the age of 13 with Juvenile Idiopathic Arthritis, and is currently furthering her education, after completing her undergraduate degree in Translational and Molecular Medicine at the University of Ottawa in 2025. As a teenager, she felt alone and was unable to find resources to connect with other people with similar lived experiences. After joining a support group 2 years into her journey, and meeting tons of other youth, Take a Pain Check Podcast was born to ensure that young patients feel supported in every step of the way.

Soon after the podcast launched, a community was built and we became Take a Pain Check Foundation in October 2021. Take a Pain Check Foundation is a non-profit organization committed to the mission and vision of supporting youth and young adults with rheumatic diseases through social media, initiatives, advocacy, and raising awareness. Take a Pain Check is currently changing the lives of individuals impacted with rheumatic diseases by creating a safe community. The goal is to empower youth to advocate for themselves, and to create a place where they feel understood.

We are pleased to introduce RPT Karen Gordon as a speaker at the 2026 national scleroderma conference in Ottawa.Karen is...
07/23/2026

We are pleased to introduce RPT Karen Gordon as a speaker at the 2026 national scleroderma conference in Ottawa.

Karen is a registered physiotherapist with the Arthritis Rehabilitation and Education Program (AREP) at Arthritis Society Canada in Ottawa, Ontario. She enjoys helping clients learn to manage their arthritis by providing client-centered primary care and self-management education as well as teaching clinical skills to health care providers. She holds a Bachelor of Science in Physiotherapy from McGill University and is a board member of the Arthritis Health Professions Association (AHPA). In her spare time, Karen enjoys birding, biking, cross-country skiing and exploring new places.

We are pleased to welcome the Scleroderma Canada Student Network (SCSN) to our 22nd Bi-Annual National Scleroderma Confe...
07/15/2026

We are pleased to welcome the Scleroderma Canada Student Network (SCSN) to our 22nd Bi-Annual National Scleroderma Conference Exhibit Hall!

In 2024, after completing an internship with Scleroderma United, Co-Presidents Elyse Da Costa and Kaitlyn Flanagan were a part of founding a student group known as Scleroderma United for Students at UTSC or the University of Toronto Scarborough. After working to build the student group over the course of the 24/25 academic year, they both decided to contact Scleroderma Canada to engage in any partnership opportunities.

After Elyse and Kaitlyn announced the support of Scleroderma Canada at the Make a Move Walk in June of 2025, the student group has only grown from there. Over the course of the 25/26 academic year, they have grown connections with others on campus and helped raise awareness through their role as Co-Presidents. They also serve as Marketing and Content Creation Managers for ScleroCare, a web-based application dedicated to supporting those living with Scleroderma funded by Scleroderma Canada. In this role, Elyse and Kaitlyn regularly update the Instagram and pages of ScleroCare and founded a podcast known as "Be ScleroAware" where summaries of different aspects of the autoimmune disease are covered. They hope to continue expanding their reach within the field and further extend their student group to various institutions across Canada over the course of this summer.

We are pleased to introduce Dr. Brett Thombs as a speaker at the 2026 national scleroderma conference in Ottawa.Dr. Thom...
07/08/2026

We are pleased to introduce Dr. Brett Thombs as a speaker at the 2026 national scleroderma conference in Ottawa.

Dr. Thombs is a Professor and Tier 1 Canada Research Chair, McGill University. He founded and directs the Scleroderma Patient-Intervention Network (SPIN), a collaboration of investigators, health care providers, and patients who work together to better understand the patient experience of living with scleroderma and conduct trials of programs to address prioritized problems.

Dr. Thombs has been awarded lifetime awards from the Association of Rheumatology Health Professionals and Academy of Psychosomatic Medicine and membership in the Canadian Academy of Health Sciences and College of New Scholars, Artists and Scientists of the Royal Society of Canada.

We are pleased to introduce Dr. Nancy Maltez as a speaker at the 2026 national scleroderma conference in Ottawa.Dr. Malt...
07/04/2026

We are pleased to introduce Dr. Nancy Maltez as a speaker at the 2026 national scleroderma conference in Ottawa.

Dr. Maltez is a Rheumatologist at The Ottawa Hospital, where she has been a member of the Division of Rheumatology since 2018. After completing her Internal Medicine and Rheumatology training in Ottawa, she joined the Clinician Investigator Program, focusing on connective tissue diseases and earned an MSc in Epidemiology. Dr. Maltez's research and clinical interests center on advanced cellular therapies, including autologous stem cell transplantation and CAR-based therapies for refractory autoimmune diseases.

We are pleased to introduce Dr. Janet Pope as a speaker at the 2026 national scleroderma conference in Ottawa.Dr. Pope i...
06/24/2026

We are pleased to introduce Dr. Janet Pope as a speaker at the 2026 national scleroderma conference in Ottawa.

Dr. Pope is a Professor of Medicine and Rheumatologist at the University of Western Ontario, Schulich School of Medicine. She has published over 650 articles; resulting in several research accolades; and is also a passionate teacher/educator especially in rheumatoid arthritis, lupus and scleroderma.

She has been an active member and on the scientific board of the Canadian Scleroderma Research Group (CSRG) from its onset and regularly advises the Scleroderma Society of Canada and also of Ontario. She currently co-hosts Around the Rheum podcasts. Janet has a social media presence on Twitter () where her have a reputation of teaching physical findings to >20,000 followers.

We are pleased to introduce Dr. Claire Adams as a speaker at the 2026 national scleroderma conference in Ottawa.Dr. Adam...
06/18/2026

We are pleased to introduce Dr. Claire Adams as a speaker at the 2026 national scleroderma conference in Ottawa.

Dr. Adams is a psychologist and Arthritis Society Canada Postdoctoral Fellow in the Department of Psychiatry, McGill University,and Lady Davis Institute for Medical Researchat the Jewish General Hospital in Montreal, Quebec. She works within the Scleroderma Patient-centered Intervention Network (SPIN), an international patient-researcher-clinician collaboration that aims to improve the lives of people with scleroderma through patient-oriented research. Her research focuses on exploring ways researchers and patients or others with lived experience can work together to carry out research that is relevant and useful, as well as ways to improve coping and quality of life among people with scleroderma.

We are pleased to welcome the Canadian Scleroderma Research Group (CSRG) to our 22nd Bi-Annual National Scleroderma Conf...
06/11/2026

We are pleased to welcome the Canadian Scleroderma Research Group (CSRG) to our 22nd Bi-Annual National Scleroderma Conference Exhibit Hall!

Founded in 2003, the CSRG is a national network of researchers and healthcare professionals dedicated to advancing scleroderma research and improving patient outcomes across Canada.

Today, the CSRG supports one of the world's leading scleroderma registries, with clinical data and biospecimens from more than 1,600 patients, fostering groundbreaking research and collaboration.

They are excited to connect with patients, caregivers, and healthcare providers to discuss the relaunch of CSRG 2.0 and explore new opportunities to advance research, innovation, and patient-centered care in scleroderma.

Would you ignore the signs?Recognizing the early symptoms of scleroderma matters more than you think. Early awareness ca...
06/11/2026

Would you ignore the signs?

Recognizing the early symptoms of scleroderma matters more than you think. Early awareness can lead to faster diagnosis, better treatment options, and improved outcomes.

Don't overlook the signs.

Scleroderma starts small. Awareness shouldn't.

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41 King William Street, Suite 202
Hamilton, ON
L8R1A2

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