Cystic Fibrosis Canada

Cystic Fibrosis Canada Cystic Fibrosis Canada is a Canada-wide health charity helping Canadians with cystic fibrosis live longer, healthier lives.

The Cystic Fibrosis Canada page is an online community where people can share information, tell their story, and interact with one another.

We can't believe it's been a week since Walk Day 💙Thanks to the incredible dedication of our community, over 4,000 parti...
06/07/2026

We can't believe it's been a week since Walk Day 💙

Thanks to the incredible dedication of our community, over 4,000 participants came together for the Walk and raised $2 million and counting in support of cystic fibrosis research, healthcare, and advocacy.

Thank you, again, to all of the participants, fundraisers, staff, coordinators, volunteers and sponsors for stepping toward a future without CF.

If you haven’t had a chance to contribute yet, there’s still time. Donations will be accepted until July 31, 2026. https://bit.ly/4rXlii2

When Stan Czajkowsky passed away in December 2025, his family knew they wanted to honour a life defined by quiet kindnes...
06/05/2026

When Stan Czajkowsky passed away in December 2025, his family knew they wanted to honour a life defined by quiet kindness.
A proud uncle to Maddy and Mikayla, who live with cystic fibrosis, Stan believed deeply in helping others. Through fundraising for CF, their family found connection, purpose, and hope.
Today, Stan’s wife Kim is carrying that forward through a memorial fundraiser—ensuring Stan’s legacy continues to make a difference.

Read more about Stan’s story here: https://bit.ly/4obkWns

For nearly two decades, Pat MacDiarmid has helped show what compassionate, whole-person CF care can look like 💙 As a soc...
06/04/2026

For nearly two decades, Pat MacDiarmid has helped show what compassionate, whole-person CF care can look like 💙 As a social worker at the Adult CF Clinic at St. Paul’s Hospital, Pat has supported adults living with CF through the emotional, practical and everyday realities of life with a lifelong disease.

This year, we’re proud to recognize her with the 2025 Multidisciplinary Healthcare Award: Social Worker in celebration of her leadership and lasting impact on the CF community. Thank you, Pat, for all you’ve given 💙

Read more about Pat’s work and the legacy she leaves behind as she prepares to retire → https://bit.ly/4oarOS6

06/03/2026

How does progress feel when it changes things for some, but not for all? 💭🎙️

Episode 5 of Breathless is here. This week features Teresa, whose experience with CF reflects a different side of the Trikafta era. As others share life changing results, Teresa navigates a reality where those treatments are not yet an option for someone like her.

A thoughtful and honest look at progress, hope and the realities that remain. Listen now wherever you get your podcasts. 🎧

🧪 What could help us better understand CF-related diabetes?🫁 How can we make antibiotics work better against lung infect...
06/02/2026

🧪 What could help us better understand CF-related diabetes?
🫁 How can we make antibiotics work better against lung infections?
💭 What does life in the modulator era actually feel like?

On June 17, you don’t have to read the headlines - you can hear directly from the people working to answer these questions.

Join our Spotlight on CF Research Webinar and meet Canadian researchers Dr. Sylvie Lesage, Dr. Joel Finbloom and Dr. Jonathan Rayment as they share their latest studies. Whether you’re part of the CF community, interested in research or simply curious about what’s next, this is your chance to learn more and ask questions live.

📅 June 17, 2026 | 2:00–3:15 p.m. ET
🌎 English & French with live simultaneous interpretation

Can’t attend live? Register anyway and receive the recording afterward. Register now: https://bit.ly/4usH4Mw

Post-secondary studies can come with extra challenges when you’re living with cystic fibrosis - but support is available...
06/01/2026

Post-secondary studies can come with extra challenges when you’re living with cystic fibrosis - but support is available ✨

Through the RAREvolution Scholarship Program, students aged 17–29 living with a rare disease (including CF!) and pursuing post-secondary studies can receive up to $5,000 to help cover education costs, along with connection to a mentorship and supportive peer network!

If this opportunity could support your next chapter, applications are open now until June 12. Find the details and apply here: https://bit.ly/4dUKZub

Hello June ☀️💙 Looking for connection this summer? Peer Connect is back with three sessions this month to connect with o...
06/01/2026

Hello June ☀️💙 Looking for connection this summer? Peer Connect is back with three sessions this month to connect with others in the CF community!

Whether you’re living with CF or supporting someone who does, these small group sessions are the space to share experiences, ask questions and connect with people who get it:

🌼 June 2 | 8 PM ET | For: Adults (18+) living with CF

🌼 June 8 | 8 PM ET | For: Parents & guardians of people living with CF

🌼 June 11 | 7 PM ET | For: Young adults living with CF

Pull up a chair, join from wherever you are and spend an evening in community 💙 Register now: https://cysticfibrosis.ca/peer-connect

05/31/2026

And that’s a wrap on Walk Day! 👟

Thank you to every participant, volunteer, and supporter who helped make this year unforgettable. 💙 Take a minute to watch this special video from our President and CEO, Kelly Grover, and members of the CF community as we celebrate the impact we’re making together.

We’d also like to express our gratitude towards our Visionary Sponsor, Vertex Pharmaceuticals Inc. and National Sponsor, CARSTAR Collision and Glass, for their generous support and commitment to our community.

Save the date📅: Our next Walk Day is on May 30, 2027!

What made Walk Day special for you? Share your highlight with us in the comments.

It's Walk Day! 👟 Today we celebrate the 22nd year of the Walk To Make Cystic Fibrosis History and the incredible support...
05/31/2026

It's Walk Day! 👟

Today we celebrate the 22nd year of the Walk To Make Cystic Fibrosis History and the incredible support of our amazing CF community. 💙

Thank YOU for joining us across the country as we take a a brighter future for all Canadians living with CF.

Keep an eye on our Facebook and Instagram stories to see all the exciting activities happening at various Walk locations across the country. You can share your own stories with us by tagging and using the hashtag !

We’re getting ready to take a a future without limits at the Walk To Make Cystic Fibrosis History! 💙 Whether you’re wa...
05/30/2026

We’re getting ready to take a a future without limits at the Walk To Make Cystic Fibrosis History! 💙

Whether you’re walking with us in person or virtually, your support makes a powerful difference. Together, let’s help change the CF story!

📅Date: Sunday, May 31, 2026
📍Location & Time: Check your local Walk page on CrowdChange
👟Don’t forget: wear your Walk t-shirt, bring your water bottle, and share your photos with us on social media by tagging and using the hashtag !
🔗Learn more: https://bit.ly/4beb6LF

Address

1305-20 Eglinton Avenue West
Toronto, ON
M4R1K8

Website

Alerts

Be the first to know and let us send you an email when Cystic Fibrosis Canada posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share