Sickle Cell Society UK

Sickle Cell Society UK The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group o

The Sickle Cell Society is a registered charity that supports and represents people affected by sickle cell disease to improve their overall quality of life.

📢 Join us for the Sickle Cell Society Annual General Meeting 2026!We’re looking forward to bringing our community togeth...
05/09/2026

📢 Join us for the Sickle Cell Society Annual General Meeting 2026!

We’re looking forward to bringing our community together once again for our AGM – an opportunity to reflect on our work, hear updates from the Society and connect with our community.

📅 Saturday 12 September 2026
⏰ 10:30am
📍 De Vere Grand Connaught Rooms, London

Please note, there is a registration fee for this year’s AGM, which covers lunch on the day.

🎟️ Spaces are limited, so scan the QR code on the flyer to secure your place.

We look forward to seeing you there! 🧡

🩸 Did you know you can give blood from the age of 17?This Sickle Cell Awareness Month, we’re teaming up with Give Blood ...
04/09/2026

🩸 Did you know you can give blood from the age of 17?

This Sickle Cell Awareness Month, we’re teaming up with Give Blood Spread Love to encourage more people from our communities to become blood donors.

Blood transfusions can be an important part of treatment for people living with sickle cell, and matched blood matters. In particular, there is an urgent need for more donors of Black heritage to help provide better-matched blood for patients who need regular transfusions.

And if you have sickle cell trait, you may still be able to give blood.

Giving blood takes around an hour from start to finish, with the donation itself taking around 10 minutes – a small amount of time that can make a huge difference. ❤️

👉 Swipe through to learn more, then scan the QR code to register and join the Give Blood Squad. Why not bring someone along with you too?

📢 Join us for the SELSE HCC Sickle Cell Patient & Staff Education Day 2026!Taking place online on Wednesday 23 September...
03/09/2026

📢 Join us for the SELSE HCC Sickle Cell Patient & Staff Education Day 2026!

Taking place online on Wednesday 23 September, 10am–4pm, the day will bring together patients, carers, families and healthcare professionals to share experiences, learn from one another and strengthen connections across the sickle cell community.

We’re pleased that our Sickle Cell Society Mentoring Team will also be presenting on the day, sharing more about our work supporting children and young people living with sickle cell.

The programme includes sessions covering children and young people, interactive discussions for all ages, and adult-focused topics around care, experiences and wellbeing.

💻 Online via MS Teams
📅 Wednesday 23 September 2026
⏰ 10am–4pm

Scan the QR code on the flyer to join.

🧡 September is Sickle Cell Awareness Month.This month, we’re continuing to raise awareness, share the facts and amplify ...
02/09/2026

🧡 September is Sickle Cell Awareness Month.

This month, we’re continuing to raise awareness, share the facts and amplify the voices of people living with sickle cell.

From the growing number of people affected in the UK to the ongoing need for blood donations, treatment and specialist care, there is still more to be done.

Our theme Young Voices Rising: Own Your Health Now. Live Well with Sickle Cell also puts a spotlight on empowering the next generation with the knowledge, confidence and support to take an active role in their health.

👉 Swipe through for some of the latest facts and figures on sickle cell in the UK, and help us spread awareness by sharing this post.

September is Sickle Cell Awareness Month.We're staying with Young Voices Rising — the theme we launched in June, because...
01/09/2026

September is Sickle Cell Awareness Month.

We're staying with Young Voices Rising — the theme we launched in June, because the conversation didn't stop there.

Young people with sickle cell aren't waiting for their lives to start. They're learning to explain pain, ask for adjustments and manage their own care right now. That experience should be shaping care, research and public understanding today, not eventually.

Own your health now!

Over the coming weeks we'll be sharing your stories, the facts and figures, and much more.

Your experience is evidence.The APPG & Sickle Cell Society has opened a call for evidence as part of its inquiry into si...
27/08/2026

Your experience is evidence.

The APPG & Sickle Cell Society has opened a call for evidence as part of its inquiry into sickle cell and thalassaemia service improvement — and we want to hear from you.

Submissions are welcome from people living with sickle cell disorder or thalassaemia, family members and carers, healthcare professionals, researchers, health system leaders, healthcare bodies and relevant organisations.

The care you get in A&E. The wait for pain relief. The service that got it right. Written evidence from the community is what turns individual experiences into national recommendations.

📅 Deadline: Wednesday 30 September

Full guidance on how to submit, including a guide to the questions, please follow the link https://buff.ly/6UjytGC .

Where do you go for information on your condition?We know that patients are experts in their condition and there are man...
13/08/2026

Where do you go for information on your condition?

We know that patients are experts in their condition and there are many resources available to support you as advocates in your own care for sickle cell and thalassaemia. NHS England would like to understand more about where you go to find out more information, how easy it is to find resources and what you would like to see improved.

Please complete this short survey to share your views and experiences. Your responses will be used to shape the development of a new education project to improve the accessibility of patient information and resources.

Scan the attached QR code attached to complete the survey and share with friends and family!

Any questions, please contact: [email protected]

⛳ A huge thank you to everyone involved in the Windrush Trophy Charity Golf Day at Woolston Manor Golf Club, which raise...
11/08/2026

⛳ A huge thank you to everyone involved in the Windrush Trophy Charity Golf Day at Woolston Manor Golf Club, which raised an incredible £2,000 for the Sickle Cell Society.

Special thanks to Charles Sam, Windrush Trophy and Woolston Manor for making it such a success. 💙

Share Your Voice! Sickle Cell Research Participants Wanted!We're looking for young people aged 13-24 living with sickle ...
05/08/2026

Share Your Voice! Sickle Cell Research Participants Wanted!

We're looking for young people aged 13-24 living with sickle cell and parents/caregivers to share their experiences of healthcare transition.

Moving from children's to adult healthcare can be challenging. We want to understand your experiences so we can create better support and resources for healthcare practitioners to use when helping young people in their health transition journey.

We are looking for:
• Young people (13-24 years) living with sickle cell
• Parents and caregivers of young people (aged 13-24) living with sickle cell

What's involved: Taking part in one online focus group where you'll share your experiences with other participants in your age group who have had similar experiences
Who can take part: Anyone living in England or Wales who is preparing for, going through, or has been through the move from children's to adult healthcare.

Why it matters: Your experiences will help us create better support and resources for healthcare transition.

Interested? Contact us at: [email protected] or 07587970965

This Saturday, create something from nothing. ✂️📖Join us for "In the Age of Everything. How do we Create from Nothing?" ...
23/07/2026

This Saturday, create something from nothing. ✂️📖

Join us for "In the Age of Everything. How do we Create from Nothing?" – a free Zines & Collage workshop designed for people living with Sickle Cell Disorder.

In a world full of constant noise, take time to slow down, get creative, connect with others, and express yourself in a relaxed, supportive space. No experience needed.

🗓 Saturday 25th July
⏰ 1:00pm–5:00pm
📍 Bay20 Community Centre, Ladbroke Grove, W10 6JG

✨ Free to attend
✨ Free lunch included
✨ Community-led creative workshop
✨Ages 10+ living with Sickle Cell Disorder (plus one family member or friend)

Last chance to register: bit.ly/createfromnothing

Address

54 Station Road
London
NW104UA

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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