22/06/2026
Today is International Dravet Syndrome Awareness Day. While epilepsy is not rare, there are rare subsets of the condition, and Dravet Syndrome is one such type of rare epilepsy.
Dravet Syndrome is a severe type of epilepsy characterized by often prolonged seizures that usually begin in the first year of life. It affects one in 20,000 – 40,000 people worldwide. It is a genetic condition.
Seizures are difficult to control, while a range of other symptoms also present including sleep disorders, behavioural problems and sensitivity to infections. Most children have normal development when seizures begin but as seizures continue, they typically develop developmental disability and miss developmental milestones.
Dravet can be an extremely difficult condition for both children living with the condition but also for their families, and today is an important day for raising awareness, and recognising all those living with the condition and the families that support them. The constant care required for someone with Dravet Syndrome can severely impact the person’s and the family’s quality of life.
Epilepsy Care Group (Singapore) is the voice for people living with epilepsy and their families. As part of Dravet Syndrome Awareness Day, our key aim is to drive meaningful progress and ensure that families have access to care and support.
We believe that no one with epilepsy should go it alone.
