Angelman Syndrome Foundation

Angelman Syndrome Foundation The Angelman Syndrome Foundation works to advance the awareness and treatment of Angelman Syndrome t
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Missed the t-shirt deadline? Want more Angelman Strong gear in your life? 💙Good news: shop for Angelman Strong merch any...
05/29/2026

Missed the t-shirt deadline? Want more Angelman Strong gear in your life? 💙
Good news: shop for Angelman Strong merch anytime in our online store! Tees, hoodies, stickers, mugs and more to show your support proudly!

👉 https://asf-shop.myspreadshop.com/all

We are

The sibling experience is unique, and at the ASF Family Conference, siblings will have space to connect, learn, laugh, a...
05/28/2026

The sibling experience is unique, and at the ASF Family Conference, siblings will have space to connect, learn, laugh, and be celebrated 💙

From fun social events and music therapy to meaningful conversations about the ups and downs of the sibling journey, there’s something for every age and stage. Sibs can build friendships through SibShops, share experiences with others who “get it,” and learn how to become future advocates for their sibling with AS.

Whether they’re little siblings, teens siblings, or adults, these sessions and activities are designed to help them feel supported, empowered, and connected.

See the agenda for session details: https://events.mindfulmeetings.com/2026asfconference/agenda_overview

Oak Hill Bio has shared a community letter to the Angelman syndrome community with an important update on the next steps...
05/27/2026

Oak Hill Bio has shared a community letter to the Angelman syndrome community with an important update on the next steps of the development of rugon­ersen.

They are actively preparing to initiate the Phase 3 study in the middle of 2026. Eligibility criteria are available on clinical trials.gov; additional details, including study locations, will be updated as they become available.

Read the letter: https://bit.ly/4f6cXWi

View study on clinicaltrials.gov: https://clinicaltrials.gov/study/NCT07605429

Caring for a loved one with Angelman syndrome can be rewarding, exhausting, emotional, and isolating all at once. In hon...
05/26/2026

Caring for a loved one with Angelman syndrome can be rewarding, exhausting, emotional, and isolating all at once.

In honor of Mental Health Awareness Month, take a few minutes to explore the collection of resources on our website that can help families navigate burnout, build connections, and find support through every stage of the journey.

Visit angelman.org and click “Find Resources” to explore sub topics like:
• Emotional Support
• Siblings
• Support
…and more.

👉 https://angelman.org/resources/filter/meta/sub_topic!is_custom_checkbox:Emotional%20Support,Siblings,Support

Looking for connection in person? The 2026 ASF Family Conference this August will include special activities and opportunities for caregivers, siblings, grandparents, and family members to connect, recharge, and build community with others who truly understand.

Support can look like a conversation, a shared experience, a helpful resource, or simply knowing someone else gets it. You are not meant to carry this alone. 💙

The full agenda for the 2026 ASF Family Conference is now available! 🎉Start planning your conference experience! Check o...
05/21/2026

The full agenda for the 2026 ASF Family Conference is now available! 🎉
Start planning your conference experience!
Check out everything this event has to offer: https://itl.ink/53a7b9e4

You'll see:
✨ Educational sessions with leading experts
✨ Emerging therapies and research updates
✨ Workshops and consultations
✨ Exhibitor fair resources and tools
✨ Social events and receptions
✨ Opportunities to connect with families who truly understand the Angelman syndrome journey

More than a conference, this is a place to learn, connect, ask questions, build friendships, and feel supported by a community that gets it.
Still need to register? Visit asfconference.org

The Safety Sleeper by Abram's Nation creates comfort and opportunity for families, and their partnership with ASF helps ...
05/21/2026

The Safety Sleeper by Abram's Nation creates comfort and opportunity for families, and their partnership with ASF helps create memorable moments of connection.

Thank you for supporting families around the world throughout their journey and for being such a valued part of this community.

05/20/2026

Re-sharing an ASF Podcast episode packed with travel tips for Angelman families as summer travel season approaches. ✈️

Tune in as guests hosts, Chloe and AJ Knouff chat with Haily Green about her best Disney travel tips. Hailey is a WonderMakers travel agent and mom of four. Her daughter, Ellie has Angelman syndrome, which has given Haily firsthand experience in navigating travel with special needs.
Her biggest advice to families is that travel is like a muscle. It gets better with practice.
Listen on Spotify, Apple Podcasts and YouTube Podcasts

Introducing the Magical Miles Angels! ✨ 🏃🏻‍♂️Join ASF for the 2027 Disney Princess Half Marathon Weekend in Orlando, FL....
05/19/2026

Introducing the Magical Miles Angels! ✨ 🏃🏻‍♂️
Join ASF for the 2027 Disney Princess Half Marathon Weekend in Orlando, FL.

📆 February 25 – March 1, 2027
🏰Walt Disney World Resort | Orlando, Florida
♿Duo Teams welcome! (please note age restrictions)

Limited space! Only 100 Bibs Available Across All Events: 5K, 10K, Half Marathon, Challenge

Find details & complete the interest form today!
https://angelman.org/events/magical-miles-2027

A heartfelt thank you to Ultragenyx for being a consistent and valued partner to the ASF community. Your commitment to c...
05/19/2026

A heartfelt thank you to Ultragenyx for being a consistent and valued partner to the ASF community. Your commitment to creating meaningful experiences for individuals with Angelman syndrome and their families continues to make a powerful impact.

More families in the Angelman syndrome community are exploring ABA therapy and asking important questions about whether ...
05/18/2026

More families in the Angelman syndrome community are exploring ABA therapy and asking important questions about whether it may be a good fit for their individual.
To help, the ASF enlisted some experts to create a new ABA resource for individuals with Angelman syndrome.

This resource is designed to help families consider, implement, or reassess ABA as part of a broader support plan, with information grounded in evidence-based practices and real-world considerations.
👉 Access the resource here: https://itl.ink/f4fe9bda

Address

3015 E. New York Street, Suite A2 #285
Aurora, IL
60504

Telephone

+16309784245

Website

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