Kalie’s journey with Dravet ended on February 25, 2019 My daughter Kalie Mae has Dravet Syndrome. Dravet is a rare epilepsy disorder that causes her to have tons of seizures and tiny twitches a day. she is on several different kinds of medications morning and night. She doesn't let that bring her down though! She is an amazing child and loves life like no one I've ever seen. She loves to ride her
scooter, push her stroller and play and run around outside. We are holding a fundraiser for her school tuition. She goes to Hope Academy and they have been a blessing for her. They offer speech and occupational therapy which is a good perk! They have done things in our Kalie that have been nothing short of miracles! Hope has been incredible to her and it would break our hearts to have to take her out. Any help, not just donations, would be appreciated! Share to get the word out and let's pull together and help Kalie Mae! http://www.gofundme.com/rally4kalie
http://www.hopeacademybr.org
http://www.dravetfoundation.org
http://www.epilepsylouisiana.org
