A.L.S. Family Charitable Foundation

10/27/2022

Thank you so much to everyone who took the time to contribute a video or note to this wonderful tribute!

It has been the opportunity of a lifetime to help patients and their families for these many years and I cannot wait to see what unfolds in this next chapter.

Thanks also to my friend and cofounder Donna Jordan for the many ways you made everything possible—and for this lovely keepsake video! Here it is for anyone who’d like to see.

- Mary Ann

https://youtu.be/Gl6gErYSnSM

09/30/2022

This is it: our last day as A.L.S. Family Charitable Foundation. It has been a privilege to serve New England families struggling against ALS: our hearts will remain with you.

One last time, we like to thank our supporters: if you're not already, we hope you will support The Susie Foundation, whose mission is very similar to the one that has guided us all these years.

Last but not least, we'd like to shout out our long-time sponsors: Superior Rail & Iron Works, Allied Recycling Center, Thomas J. O'Neill, Inc., O'Neill Real Estate, Dino's Sports Bar, Stop & Shop, USI Insurance Services, Chalker Heating and Fuel, Coastal Mountain Creative, Cape Cod Life, Denmarks Cleaning Services, Ocean Spray, Vermont Pure Water, Anchor Self Storage, Coca-Cola Beverages Northeast, Cape Cod Broadcasting Media, Mr T's Auto Repair, TD Bank, Roche Bros. Supermarkets, Bridgewater Savings Bank, Cape Cod Five, Battles Buick GMC, 99 Restaurants, Guardian Self Storage, Cuoto Management, Lynda Kenney, Tiny & Sons Glass, Hi-Way Concrete Products, Bailey's Surf & Turf, Cormier's AUTO, Sunderland Printing, Barnstable County Sheriff's Office Printing, The Town of Bourne, MA, Mass Maritime, and the Army Corps of Engineers.

09/13/2022

With this past Sunday's Cliff Walk as our last hurrah, we are now winding down here at ALS Family Charitable Foundation. Thank you to all who who came out to mark the tradition.

We are truly grateful for all your support throughout the years: it has been an honor to care for the New England ALS families we have encountered and supported.

For those who were unable to attend the last Cliff Walk, here's a video of Mary Ann's final speech as our leader & President.

Thank you for your many years of dedication, Mary Ann!

26th and final Cliff Walk for ALS

09/10/2022

Tomorrow!
Join us to get together ONE LAST TIME 💙

11am.
Buzzards Bay Park, Main Street, Buzzards Bay

09/09/2022

Reminder > Sunday September 11th, at 11am. Buzzards Bay Park, Main Street, Buzzards Bay, we are gathering together ONE LAST TIME 💙

The weather looks great! Feel free to bring your own: bring picnics, drinks, blankets, chairs, anything you need to feel comfortable (except tents, which are prohibited by the town).
This is a simple gathering; no music, food or raffles provided, but an opportunity to get together one last time at this special place that is near and dear to our hearts! 💙

We will not be soliciting donations, but if you are moved to fundraise or make donations, checks can be made payable to The Susie Foundation. Any donations received by us will be turned over to TSF once processed. 💙

09/09/2022

Our final Cliff Walk for A.L.S. is coming up this Sunday, September 11th.

If you’re coming down to walk, there will be water available in the pavilion before you start your walk. As there will be no water tables along the route, so please keep that in mind and plan accordingly.

We're looking forward to seeing all who will be able to make our final Cliff Walk, whether you walk or just come down to say hi!

If you would like to make a donation to continue to help patients and families, please visit https://alsfamily.ejoinme.org/MyPages/DonationPage/tabid/44582/Default.aspx

As funds received will be directed to The Susie Foundation, if you would like to make a donation directly to TSF, please visit https://secure.givelively.org/donate/the-susie-foundation

09/09/2022

Rest In Peace Queen Elizabeth

09/07/2022

A reminder; We will gather one last time, on Sunday September 11th at 11am, Buzzards Bay Park, Main Street, Buzzards Bay, where our Cliff Walk has taken place for so many years.

This "event" will be SUPER SIMPLE: no music, no food, no raffles. Our objective is to gather one last time before the foundation closes at the end of the month.

Feel free to bring your own: bring picnics, drinks, blankets, chairs, anything you need to feel comfortable (except tents, which are prohibited by the town).

We will not be soliciting donations, but if you are moved to fundraise or make donations, checks can be made payable to The Susie Foundation. Any donations received by us will be turned over to TSF once processed.

The A.L.S. Family Charitable Foundation was co-founded by family members of ALS patients to help others living with this terrible disease.

09/07/2022

September self care 🌻

09/01/2022

CLIFF WALK UPDATE!

We are still working to get the word out: for those who may have missed this important news:

This year's Cliff Walk will be held September 11 at 11:00 AM at Buzzards Bay Park, Main Street, in Buzzards Bay, MA.

*** HOWEVER ***

This "event" will be SUPER SIMPLE: no music, no food, no raffles.

Our objective is to gather one last time before the foundation closes at the end of the month.

You are absolutely welcome to Bring Your Own: bring picnics, drinks, blankets, chairs, anything you need to feel comfortable (except tents, which are prohibited by the town).

We will not be soliciting donations, but if you are moved to fundraise or make donations, checks can be made payable to The Susie Foundation. Any donations received by us will be turned over to TSF once processed.

08/22/2022

To our beloved ALS Family,

We’ve made the heart-wrenching decision to close our Foundation on September 30th. Since 2001, we’ve been supporting ALS research efforts and putting our ALS families first, as we know first hand how devastatingly horrific this disease is physically, financially, and emotionally.

Sadly, due to COVID-19, we have been unable to hold most of our fundraising events to continue to provide financial assistance to patients and their families through our many Patient Programs. It is because of our inability to help families as we have in the past, and continuing concerns about COVID and the economy that we have made the extremely difficult decision to close. While we're hopeful with the promising reports from some of the clinical trials, one of our greatest regrets is to leave before there is a cure.

However, we are able to close with confidence that there is an organization that holds our same values of families first. The Susie Foundation and their founder Ryan Matthews are well-established and well known to us. We have provided major grants to TSF in the past specifically because we believe in their mission and their methods of direct support, and they will be the recipient of all remaining funds as well as any donations that come in for the Cliff Walk. We trust TSF as a steward of our mission to put families first, and please check out their website for more information at thesusiefoundation.org. We truly hope you will support this exceptional organization as you have us: they do great work for New England families living with ALS.

We will gather one last time, on Sunday September 11th at Buzzards Bay Park, Main Street, Buzzards Bay, where our Cliff Walk has taken place for so many years. There will not be any of the usual festivities; no music, food or raffles, but this is an opportunity to get together one last time at this special place that is near and dear to our hearts. Bring picnics, blankets, chairs - and of course, proudly wear your amazing team tees.

If you would like to collect or make a donation to bring to the final Cliff Walk, please feel free to make checks payable to The Susie Foundation. Any checks made to our Foundation or cash received will be passed along to TSF.

Donna and I thank you for your support and dedication through the years. Our work with the A.L.S. Family Charitable Foundation and our patients and their families in loving memory of Cliff Jordan, Jr. and Edward J. Sciaba, Sr. has been the privilege of a lifetime. We could not have accomplished all that we have without the endless support of our ALS families, our volunteers, staff and sponsors. You will forever remain in our hearts.
- Mary Ann (Sciaba) Singersen

The A.L.S. Family Charitable Foundation was co-founded by family members of ALS patients to help others living with this terrible disease.

08/11/2022

Thought of the day. 💛