Bleeding Disorders Foundation of North Carolina

08/18/2026

Fresh air, warm sand, and great connections. You don't want to miss our 2026 Blood Brotherhood and SOAR (women, girls 16 +, and mothers that have daughters with bleeding disorders) Weekend in Wrightsville Beach this year! Register today! ☀️🌊

Registration Link: https://ow.ly/ep5a50ZB66G

New this year: there is a $25 deposit required to hold each party’s hotel room*. We will have a self-infusion and self-injection workshop Sunday morning, and other educational sessions throughout the weekend.
*If paying the $25 deposit would create a financial barrier for you or your family, please let us know on the registration form.

08/14/2026

THANK YOU to everyone who raises money and donates to Bleeding Disorders Foundation of North Carolina, allowing our organization to make an impact in the larger community.

08/13/2026

🎙️Each month, NBDF sits down with experts in the bleeding disorders community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org Conversations features discussions with lived-experience experts, researchers, healthcare providers, and advocates to explore the stories, challenges, breakthroughs, and questions faced by individuals and families living with bleeding disorders. Their first episode on women and girls with bleeding disorders is available to listen to now: https://ow.ly/Phm950Zzy5c

08/10/2026

🌸☀️ The Spring/Summer 2026 Newsletter is now live on the BDFNC website! 🗞️

Catch up on the latest news, updates, events, and highlights from BDFNC. Click the link below to explore the newest edition! ✨

https://ow.ly/ICGf50Zy7Qn

08/06/2026

Lexington, we're coming your way! 🍽️✨

Don't miss your chance to register for the BDFNC Community Dinner coming to your city on September 10, 2026. Connect with fellow community members and join us for an evening of meaningful conversation and connection.

Use the link below to register!
https://ow.ly/EQ6Q50Zx4ZX

08/05/2026

STIMATE® is expected to return to the U.S. market in October 2026.
Ferring Pharmaceuticals has announced that STIMATE® (desmopressin acetate) nasal spray is expected to become available following FDA approval after resolving the packaging issues that led to its voluntary recall in 2020.

NBDF is working to learn more about product availability, distribution, and formulary inclusion and will continue to share updates as they become available.

🔗 Read more: https://bit.ly/4x2baas

07/24/2026

Applications are now open for Save One Life's NEXT Leaders Congress, taking place October 9–11 in Phoenix, AZ!

NEXT is our national leadership conference for adults ages 20–30 living with bleeding disorders. More than a conference, it is a movement powered by the next generation of leaders shaping the future of care, advancing access, and promoting equity across the bleeding disorders community.

Apply today: https://ow.ly/jaG950Zs7mO

07/22/2026

🚨 Location Update 🚨

Hendersonville, we have a new dinner location!

Golden Corral Buffet & Grill
2530 Chimney Rock Road
Hendersonville, NC 28792

Be sure to register on our Upcoming Events page before registration closes. Link below!

https://ow.ly/rrZC50Zrtmf

We can't wait to see you there!

Join the Bleeding Disorders Foundation of North Carolina for an evening of great food, meaningful conversation, and community connection. In partnership with Novo Nordisk, this educational dinner brings together members of the Hendersonville-area community for a relaxed and engaging experience. Alon...

07/16/2026

Hendersonville, the deadline to register for your community dinner is quickly approaching! Click on the link below to register. 🍽️

https://bleedingdisordersnc.org/events/community-dinner-hendersonville-nc/