HDSA-Albany

06/03/2026

A member of our HDSA-Albany board is participating in the NYC Marathon to support our cause by raising funds. Huntington's Disease is a devastating and incurable rare disorder that combines the debilitating effects of ALS, Alzheimer's, and Parkinson's, progressively eroding mental, emotional, and physical capabilities. At 18 years old, I received a diagnosis of Huntington's Disease, and since then, I have devoted myself to increasing awareness about this condition. To achieve this goal, I have engaged in various activities such as panel discussions, podcasts, educational series, and medical interviews. Additionally, I have introduced innovative fundraising initiatives, including movement months and kickball tournaments. Running a marathon, however, is a new challenge I had not previously considered. I kindly request your support in this endeavor by donating to help combat Huntington's Disease.

https://people.com/woman-diagnosed-with-huntingtons-disease-at-18-speaks-out-exclusive-11974246?fbclid=IwRlRTSAR9GZZleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEefuYlfn2LCw7Fl1RFgdQLLuq6SB5VWr32y_qBUF9gJps0OOIZbCS-Ptfahbg_aem_D-2rVRoOlcn-FEziLLz2DA

Fundraising page:

https://give.hdsa.org/fundraiser/7121529

06/02/2026

Our Albany support group is hosting an in person meeting on 7/20. Below is the information how to sign up.

05/31/2026

Information about our Albany support group on 6/1. Registration information below.

05/30/2026

For families impacted by Huntington's disease, every day brings challenges most people never see. A parent watching symptoms progress. A child living with uncertainty. A family holding onto hope for more answers and better treatments.

If you've been following along, sharing posts, or learning more about HD this month, now is the moment to turn awareness into impact. Visit, hdsa.org/hdawareness

05/29/2026

A member of our HDSA-Albany board is participating in the NYC Marathon to support our cause by raising funds. Huntington's Disease is a devastating and incurable rare disorder that combines the debilitating effects of ALS, Alzheimer's, and Parkinson's, progressively eroding mental, emotional, and physical capabilities. At 18 years old, I received a diagnosis of Huntington's Disease, and since then, I have devoted myself to increasing awareness about this condition. To achieve this goal, I have engaged in various activities such as panel discussions, podcasts, educational series, and medical interviews. Additionally, I have introduced innovative fundraising initiatives, including movement months and kickball tournaments. Running a marathon, however, is a new challenge I had not previously considered. I kindly request your support in this endeavor by donating to help combat Huntington's Disease.

https://people.com/woman-diagnosed-with-huntingtons-disease-at-18-speaks-out-exclusive-11974246?fbclid=IwRlRTSAR9GZZleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEefuYlfn2LCw7Fl1RFgdQLLuq6SB5VWr32y_qBUF9gJps0OOIZbCS-Ptfahbg_aem_D-2rVRoOlcn-FEziLLz2DA

Fundraising page:

https://give.hdsa.org/fundraiser/7121529

Race for a cure

05/26/2026

Awareness creates understanding. Hope propels us forward. Real change happens when people choose to rise, speak up, lead, and make a difference.

Help support HDSA and help strengthen the programs, services, and community support that individuals and families affected by Huntington’s disease have come to rely on. When awareness meets action, hope becomes powerful.

Take Action. Go to: hdsa.org/hdawareness

05/22/2026

A member of our HDSA-Albany board is participating in the NYC Marathon to support our cause by raising funds. Huntington's Disease is a devastating and incurable rare disorder that combines the debilitating effects of ALS, Alzheimer's, and Parkinson's, progressively eroding mental, emotional, and physical capabilities. At 18 years old, I received a diagnosis of Huntington's Disease, and since then, I have devoted myself to increasing awareness about this condition. To achieve this goal, I have engaged in various activities such as panel discussions, podcasts, educational series, and medical interviews. Additionally, I have introduced innovative fundraising initiatives, including movement months and kickball tournaments. Running a marathon, however, is a new challenge I had not previously considered. I kindly request your support in this endeavor by donating to help combat Huntington's Disease.

https://people.com/woman-diagnosed-with-huntingtons-disease-at-18-speaks-out-exclusive-11974246?fbclid=IwRlRTSAR9GZZleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEefuYlfn2LCw7Fl1RFgdQLLuq6SB5VWr32y_qBUF9gJps0OOIZbCS-Ptfahbg_aem_D-2rVRoOlcn-FEziLLz2DA

Fundraising page:

https://give.hdsa.org/fundraiser/7121529

Jenna Cotromano shares how a Huntington’s disease diagnosis at 18 changed her life and why she now uses social media to support others.