Clicky

Cystic Fibrosis Foundation - Greater Illinois Chapter

Cystic Fibrosis Foundation - Greater Illinois Chapter The Greater Illinois Chapter is helping to advance the Cystic Fibrosis Foundation’s mission to cure c

About CF:
Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.

Operating as usual

Please join us in a virtual round of applause for the Greater Illinois Chapter’s Unsung Hero, Dave Wonder! We are incred...
01/27/2023

Please join us in a virtual round of applause for the Greater Illinois Chapter’s Unsung Hero, Dave Wonder! We are incredibly thankful for Dave’s dedication to the fight against cystic fibrosis and his above-and-beyond efforts that make a significant impact on the CF community. Please join us in congratulating Dave Wonder in the comments! 🎉

Join us tonight, January 26, 2023 at 7 p.m. CST/8 p.m. EST for the Cystic Fibrosis Foundation’s third National Annual Me...
01/26/2023

Join us tonight, January 26, 2023 at 7 p.m. CST/8 p.m. EST for the Cystic Fibrosis Foundation’s third National Annual Meeting.

During this special virtual hour, our President and CEO, Michael Boyle, MD, will share his vision for the year ahead and will host an engaging panel discussion with Foundation leaders, including Whitney Brown, MD, Tiffany Burnett, Mary Dwight, JP Clancy, MD, and Steve Rowe, MD. Panelists will discuss the progress we’ve made in cure, care, and community in 2022, and their focus for the year to come.

Click the link below to register.
https://engage.cff.org/annualmeeting?utm_source=managing-cf-landing-full&utm_medium=web&utm_campaign=nam-2023

No one likes . Don’t miss your chance to run the Bank of America Chicago Marathon with Team CF! Put your grit to the tes...
01/26/2023

No one likes . Don’t miss your chance to run the Bank of America Chicago Marathon with Team CF! Put your grit to the test and dedicate your miles to finding a cure for CF.

Team CF runners will receive complimentary 18-week virtual marathon training, a Team CF running shirt, CFF swag, fundraising guidance, and so much more. Join the tight-knit and dedicated Team CF community by clicking the link below!

https://fightcf.cff.org/site/TR/TeamCF/45_Greater_Illinois_Chicago?team_id=116151&pg=team&fr_id=9806&fbclid=IwAR0zV_s-BPf8OQ0ziZrgnEw9sY4SP_M1STLYBfU3lqHfR1i964RsfrkvBAA

Help us give a huge round of applause to our chapter’s 2022 Corporate Team of the Year, Team Keller Williams Momentum, l...
01/25/2023

Help us give a huge round of applause to our chapter’s 2022 Corporate Team of the Year, Team Keller Williams Momentum, led by Chris Pry and Genie Taddeo! We are so grateful to Keller Williams Momentum for their time, commitment, and dedication to the fight against CF. Join us in congratulating and thanking Keller Williams Momentum in the comments! 🎉✨

Congratulations to the recipient of the Outstanding Corporate/In-Kind Partner Award: Louis Glunz Beer Inc.! Their suppor...
01/25/2023

Congratulations to the recipient of the Outstanding Corporate/In-Kind Partner Award: Louis Glunz Beer Inc.! Their support has made a significant impact on fighting for a cure for CF. Join us in thanking Louis Glunz Beer Inc. in the comments!

Save the Date: Next week, January 30th-February 3rd, is our annual Great Strides Team Sign-On Week! Keep an eye on our s...
01/24/2023

Save the Date: Next week, January 30th-February 3rd, is our annual Great Strides Team Sign-On Week! Keep an eye on our social media to learn more about our awesome prizes for our teams who register next week. Join us in taking this 👟~step~👟 to help make CF stand for Cure Found!​

Mark your calendars and plan to register next week: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page

Cheers to Gene and Georgetti for their continued support of The Grand Chefs Experience! We so appreciate your dedication...
01/24/2023

Cheers to Gene and Georgetti for their continued support of The Grand Chefs Experience! We so appreciate your dedication towards making CF stand for Cure Found. Click the link below to join them at this one-of-a-kind Chicago tasting event!

http://www.cffgrandchefs.com/

We are thrilled to congratulate the Greater Illinois Chapter's Outstanding Special Event Partners-- Kari and Nick Gbur!🎉...
01/23/2023

We are thrilled to congratulate the Greater Illinois Chapter's Outstanding Special Event Partners-- Kari and Nick Gbur!🎉 Their dedication to the CF community has made a significant impact in moving us closer to our mission of finding a cure. We could not be more grateful! Join us in thanking Kari and Nick Gbur in the comments!

A huge congratulations to Jennifer McClary, the recipient of the Greater Illinois Chapter's Volunteer of the Year Award!...
01/23/2023

A huge congratulations to Jennifer McClary, the recipient of the Greater Illinois Chapter's Volunteer of the Year Award! We are incredibly thankful for Jennifer's dedication to the fight against cystic fibrosis through her volunteering efforts. Join us in giving a shout-out to Jennifer McClary in the comments!🎉✨

Thank you to our sponsor, American Airlines! 🎉✈️ We are forever grateful for your continued generosity and support in tr...
01/20/2023

Thank you to our sponsor, American Airlines! 🎉✈️ We are forever grateful for your continued generosity and support in transforming the future of CF.
Help make a difference in the CF community by clicking the link below to buy your Grand Chefs Experience Tickets today.
http://www.cffgrandchefs.com/

The Greater Illinois Chapter Annual Volunteer Appreciation and Recognition Brunch is right around the corner! Don’t miss...
01/19/2023

The Greater Illinois Chapter Annual Volunteer Appreciation and Recognition Brunch is right around the corner! Don’t miss your chance to hear directly from the Cystic Fibrosis Foundation CFFT Lab Director, Dr. Martin Mense, regarding the progress we’ve made in our path to a cure, care, and community in 2022, and the focus for the year to come. Click here to reserve your spot now: https://engage.cff.org/ChicagoAM2022/?fbclid=IwAR1E-Uk03ZdF92DqOcvCWPs9ZYX5edIB9_JNFXrRe9Cg1quOgkMKTX-PylA

Join us in raising a glass to Wintrust! We could not be more grateful for their support of our 2023 Grand Chefs Experien...
01/19/2023

Join us in raising a glass to Wintrust! We could not be more grateful for their support of our 2023 Grand Chefs Experience. There's still time to buy your ticket to this delectable tasting event! Click here to get yours today: http://www.cffgrandchefs.com/✨🎟️

Join us in giving a massive thank you to BJ Krech and Sally Golden for their noteworthy contributions to our Peer-to-Pee...
01/18/2023

Join us in giving a massive thank you to BJ Krech and Sally Golden for their noteworthy contributions to our Peer-to-Peer program! We are absolutely thrilled to announce them as our 2022 Outstanding Peer-to-Peer Partner Recipients.✨ BJ and Sally's dedication to the fight against CF is bringing us one step closer to a cure. Help us congratulate BJ Krech and Sally Golden, and their team Rally for Tali, in the comments!

We’re proud to congratulate Greater Illinois Chapter’s CF Star, Pat Conway!🌟 Pat's hard work and passion for raising awa...
01/18/2023

We’re proud to congratulate Greater Illinois Chapter’s CF Star, Pat Conway!🌟 Pat's hard work and passion for raising awareness of cystic fibrosis and supporting the CF community through their volunteering is moving us closer to a cure for everyone living with CF. Join us in thanking Pat Conway in the comments!

Join us at the Field Museum for our Grand Chefs Experience on March 4th! Table and ticket prices are set to increase on ...
01/17/2023

Join us at the Field Museum for our Grand Chefs Experience on March 4th! Table and ticket prices are set to increase on February 1st, so don't wait!

www.cffgrandchefs.com

01/16/2023
Nightcap wouldn't be the same without you!✨Join us for an elegant evening of expertly-made cocktails with Sue the dinosa...
01/14/2023

Nightcap wouldn't be the same without you!✨Join us for an elegant evening of expertly-made cocktails with Sue the dinosaur on Saturday, March 4, 2023. Click here to get your tickets today: http://www.cffgrandchefs.com/

Join us on Tuesday, January 17, 2023 and Thursday, January 19, 2023 from 7 to 8 p.m. ET for the Tomorrow's Leaders Colle...
01/13/2023

Join us on Tuesday, January 17, 2023 and Thursday, January 19, 2023 from 7 to 8 p.m. ET for the Tomorrow's Leaders College Program Winter Series. Visit here to register: https://cff.swoogo.com/collegeprogram/winter

Celebrating Margie Weides and 18 years of service to the CF Community. Congratulations on a standout career and best wis...
01/13/2023

Celebrating Margie Weides and 18 years of service to the CF Community. Congratulations on a standout career and best wishes for your retirement!

✨SPEAKER ANNOUNCEMENT:✨We are absolutely thrilled to welcome the CF Foundation’s very own Martin Mense, PHD, SVP of Drug...
01/12/2023

✨SPEAKER ANNOUNCEMENT:✨We are absolutely thrilled to welcome the CF Foundation’s very own Martin Mense, PHD, SVP of Drug Discovery and CFFT Lab Director, to our Annual Meeting on February 5th, 2023.

Martin Mense, Ph.D., SVP of Drug Discovery and CFFT Lab Director, has been a dedicated CF advocate since joining the CF Foundation in 2009 as the Principal Scientist for Drug Discovery when he established and oversaw the CF Foundation’s internal lab research. After closely working with the Flatley Discovery Lab, in 2012 Dr. Mense spearheaded an independent and fully CF Foundation-operated and -funded laboratory, which now boasts 42 employees. The lab’s activities span most aspects of cystic fibrosis-related in-vitro biology, including small molecule screening, gene-editing and stem cell biology, functional assays, primary cell banking, and next-generation sequencing and bioinformatics. A cornerstone of Dr. Mense’s work for the Foundation is providing advice and support for the funded programs that look to repair and increase CFTR function. Please join us to hear exciting and important research-related updates directly from Dr. Mense himself!

Click here to join Dr. Mense in celebrating the progress and milestones we have reached this past year and to hear about the ongoing research that will transform the future of this disease: https://engage.cff.org/ChicagoAM2022/

Commit to making a difference, both personally and in your community, by joining the ranks of Team CF for the Bank of Am...
01/12/2023

Commit to making a difference, both personally and in your community, by joining the ranks of Team CF for the Bank of America Chicago Marathon! Not only will your fundraising support research to find a cure for cystic fibrosis, but you’ll also embark on an incredible personal journey of conquering the Chicago Marathon. This is your chance to make a meaningful impact!
Click here to sign up today: https://fightcf.cff.org/site/TR/TeamCF/45_Greater_Illinois_Chicago?team_id=116151&pg=team&fr_id=9806&fbclid=IwAR0OjLdzFDn8vFtZCIlogbnfQxj2PtF6mWUSDywxnmmWAK7PzohfxZQyhJQ

2023 Great Strides is officially here and we are so excited to introduce this year’s Greater Illinois Great Strides Loca...
01/10/2023

2023 Great Strides is officially here and we are so excited to introduce this year’s Greater Illinois Great Strides Local Ambassador, Emily Steinhaus, and her parents, Laura and Michael.

"Hi! We are the Steinhauses and are so excited to be your ambassador family for this year’s Great Strides walks. I'm Laura, and me and my husband, Michael, have a 3-year-old daughter named Emily. In many ways, Emily is just like most kids her age; she loves using her imagination, playing at the playground, riding her bike, doing crafts, reading, learning about letters and numbers, and playing games of all kinds. There’s one thing that makes her different from most kids: Emily was diagnosed with cystic fibrosis at 3 weeks old. She does her daily breathing treatments and takes all her medications like a champ since she has never known a routine without CF care.

Even though Emily is only 3 years old, our family's life has already been wonderfully impacted by the work that the Cystic Fibrosis Foundation does. Fundraising for the Foundation through events like Great Strides helps to fund continued research and development of therapies to help people with CF just like Emily get and stay healthy! Our family loves to participate in Great Strides with our team, Emily’s Entourage, because we know the generous donations received make a true difference in so many lives. Plus, the event is so much fun! We will be at West Suburban Great Strides this year; which walk will you be at?"

-Laura Steinhaus

Join the Steinhaus Family and find your walk today!: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page

Do you want to join the
01/06/2023

Do you want to join the

Happy New Year, Great Striders!🎉 We are thrilled to announce this year’s official Great Strides dates and locations, and...
01/05/2023

Happy New Year, Great Striders!🎉 We are thrilled to announce this year’s official Great Strides dates and locations, and we hope you can join us at one of our six in-person celebrations this spring. We can’t wait to see all of you as we walk in support of making CF stand for Cure Found. !

Register for a walk today: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page

01/01/2023
12/31/2022
12/27/2022
12/25/2022
When Don Gouchie was diagnosed with cystic fibrosis in the 1960s, most people with the disease weren’t expected to live ...
12/20/2022

When Don Gouchie was diagnosed with cystic fibrosis in the 1960s, most people with the disease weren’t expected to live to attend elementary school.
Today, Don is 63, and five years post double-lung transplant. In addition, after a nearly 40-year career in the tech industry, he is retired and can spend more time with his wife, Linda. We are doing all that we can to ensure there is a treatment for everyone with CF, and ultimately a cure. Make your year-end gift today and help drive cutting-edge research forward: https://give.cff.org/eoy5/donate?rbref=EOY2202&donate=100&unitid=Illinois%20-%20Chicago

We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You a...
12/15/2022

We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You are a vital part of making that dream come true. As you think about your plans during this season of giving, we wanted to share some of the different ways you can make a big impact! ✨Make sure to swipe to learn how you can make an impact through Donor Advised Funds.✨

There’s still time to register to run with ! For over 15 years, our Team CF Superheroes have been adding meaning to thei...
12/14/2022

There’s still time to register to run with ! For over 15 years, our Team CF Superheroes have been adding meaning to their miles by dedicating their run in the Bank of America Chicago Marathon to helping make a difference in the lives of those with CF. This is your chance to make an impact AND get guaranteed entry to the 2023 Bank of America Chicago Marathon. Our Team CF Superheroes commit to raising $1,250 for the Cystic Fibrosis Foundation and will receive the following benefits:
• Guaranteed entry for the 2023 Bank of America Chicago Marathon
• Complimentary 18-week virtual marathon training
• Team CF running shirt for race day
• CF Foundation fundraising incentives
• Fundraising guidance and online tools to help you exceed your individual fundraising goal
• And more!

Lace up and get registered: https://afasignup.formstack.com/forms/2023_teamcf?fbclid=IwAR1OoOeFhTrQC83FH_lbD1N_zRC49uVrMFnFYQr94mVVUcZ8JzYMR4WmbIk

12/13/2022

Our official 2022 Cycle video is here! Thank you to everyone who put the pedal to the metal and joined us in riding for a cure! Together, we will make CF stand for Cure Found. 💪✨

Want to cross running a marathon off your bucket list? Receive access to a guaranteed entry to the world-famous 2023 Ban...
12/10/2022

Want to cross running a marathon off your bucket list? Receive access to a guaranteed entry to the world-famous 2023 Bank of America Chicago Marathon by running with Team CF. Add meaning to your miles by dedicating your run to finding a cure. Runners who join Team CF commit to raising $1,750 for the Cystic Fibrosis Foundation and will receive the following benefits:
• Guaranteed entry for the 2023 Bank of America Chicago Marathon
• Complimentary 18-week virtual marathon training
• Team CF running shirt for race day
• CF Foundation fundraising incentives
• Fundraising guidance and online tools to help you exceed your individual fundraising goal
• And more!

Limited spots are available - https://afasignup.formstack.com/forms/2023_teamcf

We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You a...
12/09/2022

We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You are a vital part of making that dream come true. As you think about your plans during this season of giving, we wanted to share some of the different ways you can make a big impact! ✨Make sure to swipe to learn how you can make an impact through stocks, bonds, and securities.✨

Still need a spot in the 2023 Bank of America Chicago Marathon? Join Team CF to receive a guaranteed entry and help us m...
12/08/2022

Still need a spot in the 2023 Bank of America Chicago Marathon? Join Team CF to receive a guaranteed entry and help us make a difference for those living with cystic fibrosis!

In addition to guaranteed entry, Team CF runners will receive complimentary 18-week virtual marathon training, Team CF running shirt and other goodies, and fundraising guidance and online tools. And best of all, you’ll be joining us in our mission to make CF stand for Cure Found!

Add meaning to your miles and join Team CF today: http://fightcf.cff.org/goto/2023TeamCF.

Thanks to your generous support, the Cystic Fibrosis Foundation has made outstanding progress for those living with this...
12/06/2022

Thanks to your generous support, the Cystic Fibrosis Foundation has made outstanding progress for those living with this disease. We won't be satisfied, however, until there is a therapy and ultimately a cure for every person with cystic fibrosis.
We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You are a vital part of making that dream come true. As you think about your plans during this season of giving, we wanted to share some of the different ways you can make a big impact! ✨Make sure to swipe to learn how you can make an impact through a check, credit card, or online gift.✨

Address

150 N Michigan Avenue
Chicago, IL
60601

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

(312) 236-4491

Alerts

Be the first to know and let us send you an email when Cystic Fibrosis Foundation - Greater Illinois Chapter posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Videos


Other Public & Government Services in Chicago

Show All

Comments

It is with immense gratitude, and lots of excitement, that I announce the grand total raised from the fifth annual Fairways For Airways Golf Outing benefiting the Cystic Fibrosis Foundation. Together with your help, we raised ✨$22,465✨ to help give more tomorrows to people with cystic fibrosis and get us closer to a cure! Thank you all, from the very bottom of our hearts, for all your love and support.

Cystic Fibrosis Foundation Cystic Fibrosis Foundation - Greater Illinois Chapter
Many people walk during the month of May to raise money and symbolically represent the great strides the Cystic Fibrosis Foundation is taking towards getting closer to a cure for CF. This is the 17th year Hickory Creek Middle School has walked! Thank you Mr. Wonder, Mrs. Dotson, the HC staff and Encore team for the work you did raising $10k this year!!! A huge shoutout to the parents and students for donating and walking and supporting and responding to how and why we help others in need. Thank you to D157c Superintendent Wernet, Frankfort Police Chief Chelepis, Frankfort Mayor Ogle and Hannah from the CFF for speaking at the assembly and recognizing how truly amazing the 6th, 7th & 8th graders are when it comes to helping others. Blessed to be a part of this community that is truly making a difference in the lives of those with CF.







Cystic Fibrosis Foundation - Greater Illinois Chapter
Link to fundraising page—-> http://fightcf.cff.org/goto/HCMSTigers2022
Where in the Chicago area are you? We are in McHenry Co. This is my grandson. He is currently at Lurie's
Hi,

My name is Heidi and I am the Outreach Coordinator for the Songs of Love Foundation.
The Songs of Love Foundation is a national nonprofit 501(c)(3) organization that creates free, personalized, original songs to uplift children and teens currently facing tough medical, physical or emotional challenges. Each song is professionally produced with lyrics containing the child's name and references to all of his or her favorite activities, things, people, and pets. Songs are written and performed in any language in the musical style that the child likes best (pop, R&B, rap, rock, alternative, etc.), by a variety of talented professionals.

Request a song using the link below:

Had a great time walking for Leah today!! Thanks to all who supported us by walking virtually, or wanting to walk with us, and those who donated to support the CFF! Cystic Fibrosis Foundation - Greater Illinois Chapter
Our friends at the Cystic Fibrosis Foundation - Greater Illinois Chapter are hosting a Town Hall: Family Planning and Fertility in CF, on Friday, April 30 at 12:00 PM CT. The town hall will discuss fertility and family planning issues for the CF community, while sharing resources and answering questions from attendees. Speakers include Dr. Kazmerski, Dr. Prickett and Dr. Philbrick.

Register at https://afasignup.formstack.com/forms/april30familyplanningtownhall
Hello everyone,
My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it.
English survey: https://www.surveymonkey.com/r/PQFSMVV
Spanish survey:https://es.surveymonkey.com/r/2DXD5TX
Thank you and we appreciate all your help.
Our friends at the Cystic Fibrosis Foundation - Greater Illinois Chapter are hosting a Town Hall on Thursday, February 25 from 12-1 PM CT. This town hall, Managing Your Mental Health, will discuss mental health awareness in the CF community while sharing resources and interactive coping strategies to help manage your mental health during this challenging and isolating time.

You can register for the event at http://bit.ly/Feb2021TownHall or by emailing David at [email protected].
An exciting announcement for CF parents and CF'ers: I'm a CF parent and I've created a FB page... "CF ZoomConnect"... for the purpose of connecting CF parents and CFers on a weekly Zoom call (Sunday evenings) to build strong and supportive relationships. The call will include breakout rooms of up to 6 or 8 people, to allow for effective conversation and relationship building. If you are a CF'er or a CF'er parent, I invite you to join us. :) https://www.facebook.com/groups/2863363707105877/
x

Other Public & Government Services in Chicago (show all)

Consulado del Ecuador en Chicago Genesys Works - Chicago Noble Advocacy Pakistan Consulate General Chicago P2 Consulting Cook County Civil Process Service Public Building Commission of Chicago ABA Commission on Women National Association for Urban Debate Leagues Impressions2Go Mobile Fingerprinting Resolution Systems Institute TC Public Relations Japan America Society of Chicago (JASC) Chicago United for Equity Chicago Department of Transportation