Cystic Fibrosis Foundation - Greater Illinois Chapter

12/09/2021

As we continue planning for the year ahead, the CFF Greater Illinois Chapter Volunteer Outreach Committee is seeking your feedback on our outreach and communications efforts. Please take a moment to complete this brief survey and share your input on our virtual town hall topics, and in-person and virtual engagement events to help us create a successful 2022 calendar for the local CF community.

https://afasignup.formstack.com/forms/2022_cff_illinois_outreach_planning_survey

Thank you for your time and participation in this survey.

For questions or comments, please contact David Oshinski at [email protected].

12/08/2021

Community Voice is a way for people with cystic fibrosis and their loved ones to help shape our future work and ensure the CF community and their unique needs are at the center. As an adult with CF who is bisexual, agender, multiethnic, and has a rare CF mutation, Xan deeply values how participating helps them surface the needs of underrepresented groups.
Share your unique experiences and join Community Voice: https://on.cff.org/CommunityVoiceSignUp

Community Voice is a way for people with cystic fibrosis and their loved ones to help shape our future work and ensure the CF community and their unique needs are at the center. As an adult with CF who is bisexual, agender, multiethnic, and has a rare CF mutation, Xan deeply values how participating helps them surface the needs of underrepresented groups.
Share your unique experiences and join Community Voice: https://on.cff.org/CommunityVoiceSignUp

12/07/2021

Tomorrow's Leaders! Join us this Thursday, 12/9 from 5 PM - 6 PM CT for our end-of-the-year Jingle & Mingle! Grab your favorite holiday sweater, ingredients for our Holiday Mule, and get ready to get festive with your fellow Tomorrow's Leaders from around the country. We can't wait to celebrate 2021 with you!

Register now: https://tomorrowsleaders.cff.org/wnytomorrowsleadersmingle

12/07/2021

On his twelfth CFF anniversary, our true love gave to us.... DAVID OSHINSKI! We are so thankful for David and all of his hard work, dedication, and smiles that he has shared with us over the years. We know our families will join us in sending you a BIG thank you 🥳

On his twelfth CFF anniversary, our true love gave to us.... DAVID OSHINSKI! We are so thankful for David and all of his hard work, dedication, and smiles that he has shared with us over the years. We know our families will join us in sending you a BIG thank you 🥳

12/06/2021

The Cystic Fibrosis Foundation announced its investment of $3.5 million in Pulmocide Limited, a U.K.-based biotech company, to develop an inhaled drug to prevent Aspergillus fungal infections in lung transplant recipients. The investment is part of the CF Foundation’s Lung Transplant Initiative, a commitment to improve outcomes and support people with CF throughout the transplant journey. Learn more on cff.org.

The Cystic Fibrosis Foundation announced its investment of $3.5 million in Pulmocide Limited, a U.K.-based biotech company, to develop an inhaled drug to prevent Aspergillus fungal infections in lung transplant recipients. The investment is part of the CF Foundation’s Lung Transplant Initiative, a commitment to improve outcomes and support people with CF throughout the transplant journey. Learn more on cff.org.

12/01/2021

Thank you to everyone who donated on Giving Tuesday. Because of you, the CF Foundation exceeded our goal and met the Stremick family match of $250,000.

Thank you to everyone who donated on Giving Tuesday. Because of you, the CF Foundation exceeded our goal and met the Stremick family match of $250,000.

12/01/2021

Chicago, make an impact by making a gift this Giving Tuesday! Together, we can make CF stand 4 Cure Found. Give today!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Chicago, make an impact by making a gift this Giving Tuesday! Together, we can make CF stand 4 Cure Found. Give today!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

11/30/2021

Make your gift add up to more for people with #cysticfibrosis! Your #GivingTuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Give today!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Make your gift add up to more for people with #cysticfibrosis! Your #GivingTuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Give today!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

11/30/2021

Chicago, double your impact by making a gift this Giving Tuesday! Thanks to the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis, your Giving Tuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF. Together, we can make CF stand 4 Cure Found.

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Chicago, double your impact by making a gift this Giving Tuesday! Thanks to the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis, your Giving Tuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF. Together, we can make CF stand 4 Cure Found.

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

11/29/2021

Let this be a beautiful and cheerful Hanukkah to remember. Happy Hanukkah to all!

Let this be a beautiful and cheerful Hanukkah to remember. Happy Hanukkah to all!

11/29/2021

It’s all adding up. This Giving Tuesday, your gift will be matched, dollar for dollar, up to $250,000, thanks to Nancy and Lou Stremick, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Help everyone living with CF - make an early gift today and double your impact!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

It’s all adding up. This Giving Tuesday, your gift will be matched, dollar for dollar, up to $250,000, thanks to Nancy and Lou Stremick, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Help everyone living with CF - make an early gift today and double your impact!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

11/25/2021

11/24/2021

Save the Date for Giving Tuesday 2021!
The Tuesday after Thanksgiving is a global generosity movement and we want you to support CFF. On November 30, share your story and invite your community to join the fight against CF.

Save the Date for Giving Tuesday 2021!
The Tuesday after Thanksgiving is a global generosity movement and we want you to support CFF. On November 30, share your story and invite your community to join the fight against CF.

11/23/2021

Now that the end of the year is approaching, it's time to start thinking about your 2022 goals! Make your miles count by joining Team CF for the 2022 Bank of America Chicago Marathon on October 9, 2022. Runners receive guaranteed entry to the marathon, complimentary 18-week virtual training, lots of CF Foundation swag, and so much more! If you're ready to add meaning to your miles, reserve your spot today: https://afasignup.formstack.com/forms/2022_teamcf.

Don't wait - if you register before Tuesday, November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st.

Now that the end of the year is approaching, it's time to start thinking about your 2022 goals! Make your miles count by joining Team CF for the 2022 Bank of America Chicago Marathon on October 9, 2022. Runners receive guaranteed entry to the marathon, complimentary 18-week virtual training, lots of CF Foundation swag, and so much more! If you're ready to add meaning to your miles, reserve your spot today: https://afasignup.formstack.com/forms/2022_teamcf.

Don't wait - if you register before Tuesday, November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st.

11/22/2021

11/20/2021

“We won’t know what’s important to everyone, until we hear from everyone.” If you or your loved one has cystic fibrosis, join Community Voice today to bring your insights and priorities to the forefront of CF research, care, and programs to improve the future for everyone living with CF. www.cff.org/CommunityVoice

“We won’t know what’s important to everyone, until we hear from everyone.” If you or your loved one has cystic fibrosis, join Community Voice today to bring your insights and priorities to the forefront of CF research, care, and programs to improve the future for everyone living with CF. www.cff.org/CommunityVoice

11/18/2021

Are you ready to take on a new challenge? Join Team CF for the 2022 Bank of America Chicago Marathon to help in our mission to make CF stand for Cure Found. Team CF runners receive GUARANTEED entry to the Chicago Marathon (that's right, no lottery!), complimentary 18-week virtual training, plenty of CF Foundation goodies, and so much more.

Don't wait - if you register before November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st. Fill out this form to reserve your entry today: https://afasignup.formstack.com/forms/2022_teamcf.

Are you ready to take on a new challenge? Join Team CF for the 2022 Bank of America Chicago Marathon to help in our mission to make CF stand for Cure Found. Team CF runners receive GUARANTEED entry to the Chicago Marathon (that's right, no lottery!), complimentary 18-week virtual training, plenty of CF Foundation goodies, and so much more.

Don't wait - if you register before November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st. Fill out this form to reserve your entry today: https://afasignup.formstack.com/forms/2022_teamcf.

11/18/2021

Join a community of young professionals across the country who are committed to finding a cure for CF, while growing personally and professionally. Register now: https://afasignup.formstack.com/forms/2021_tomorrows_leaders_registration

Join a community of young professionals across the country who are committed to finding a cure for CF, while growing personally and professionally. Register now: https://afasignup.formstack.com/forms/2021_tomorrows_leaders_registration

11/17/2021

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

11/15/2021

Coping With Comparisons on Social Media When You Have CF | Cystic Fibrosis Foundation

Our very own Lauren Vignola, an adult with CF, was featured in the CF Community Blog recently. In her blog post, she shares how she has learned to stop comparing herself to others, especially on social media. Thanks for sharing your story, Lauren!

"I scroll through accomplishments, travel, career advancements, and major life milestones up and down my feed for what seems like an eternity. While I’ve spent the past six years trying to survive cystic fibrosis, everyone else has surpassed me."

Social media. It permeates every facet of modern society. There are long lists of the positives and negatives of social media. There are pages that inspire you and some that disgust you. In between those two extremes are profiles that seem – superficially -- relatively innocent. However, it is the...

11/12/2021

Thank you to all of our sponsors who supported Aged to Perfection: Bourbon and Bacon. Together we raised over $50,000 to help make CF stand for Cure Found.

Thank you to all of our sponsors who supported Aged to Perfection: Bourbon and Bacon. Together we raised over $50,000 to help make CF stand for Cure Found.

11/11/2021

Every new Legacy Society donor that joins between July 15-December 28, 2021, or when the match is completed whichever comes first, will be matched with a $500 contribution to the CF Foundation by The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation, up to $50,000. Join a community of people who have provided a gift in their will to help future generations by joining the Legacy Society.

Every new Legacy Society donor that joins between July 15-December 28, 2021, or when the match is completed whichever comes first, will be matched with a $500 contribution to the CF Foundation by The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation, up to $50,000. Join a community of people who have provided a gift in their will to help future generations by joining the Legacy Society.

11/10/2021

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

11/10/2021

Aged to Perfection: Bourbon and Bacon’s auction is now open to all and closes on Thursday, November 11th at 8:30 PM. Bidders do not need to be registered for the in-person event to purchase items. Due to tax restrictions, items may only be purchased by a resident of IL or IN or the purchaser must be in attendance at the event. Register to view and start bidding here: https://auction.cff.org/?idEvent=3190&flsr=1

11/05/2021

We are so excited to be back for Chef’s in 2022 on April 23rd! In anticipation, we wanted to share our 2021 Grand Chefs Experience Cookbook with you all. Be sure to enjoy the variety of different food and drink recipes from our Chicagoland chefs, and keep an eye out for more information for 2022. We’re hungry just thinking about it.

https://fliphtml5.com/qejxd/xknf

We are so excited to be back for Chef’s in 2022 on April 23rd! In anticipation, we wanted to share our 2021 Grand Chefs Experience Cookbook with you all. Be sure to enjoy the variety of different food and drink recipes from our Chicagoland chefs, and keep an eye out for more information for 2022. We’re hungry just thinking about it.

https://fliphtml5.com/qejxd/xknf

11/05/2021

We are so happy to share that we have met our 2021 Match! Thank you to all who helped us reach our goal in support of the CF Foundation’s mission. We’d also like to give a big thank you to our local CF families who offered this generous matching opportunity: Jon and Mary Kay Bottorff, John and Nikki Conway, Kent and Kathy Duncan, Bart and Lilly Murphy, Peggy and Phil Reitz, and a family who wishes to remain anonymous. Please join us in thanking them!

We are so happy to share that we have met our 2021 Match! Thank you to all who helped us reach our goal in support of the CF Foundation’s mission. We’d also like to give a big thank you to our local CF families who offered this generous matching opportunity: Jon and Mary Kay Bottorff, John and Nikki Conway, Kent and Kathy Duncan, Bart and Lilly Murphy, Peggy and Phil Reitz, and a family who wishes to remain anonymous. Please join us in thanking them!

11/05/2021

Thank you Milk Money Brewing for hosting Aged to Perfection: Bourbon and Bacon. There are limited tickets available so get yours today before we reach capacity.

www.cfbourbonandbacon.com

Thank you Milk Money Brewing for hosting Aged to Perfection: Bourbon and Bacon. There are limited tickets available so get yours today before we reach capacity.

www.cfbourbonandbacon.com