The Greater Illinois Chapter is helping to advance the Cystic Fibrosis Foundation’s mission to cure c
About CF:
Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.
Operating as usual
Please join us in a virtual round of applause for the Greater Illinois Chapter’s Unsung Hero, Dave Wonder! We are incredibly thankful for Dave’s dedication to the fight against cystic fibrosis and his above-and-beyond efforts that make a significant impact on the CF community. Please join us in congratulating Dave Wonder in the comments! 🎉
Join us tonight, January 26, 2023 at 7 p.m. CST/8 p.m. EST for the Cystic Fibrosis Foundation’s third National Annual Meeting.
During this special virtual hour, our President and CEO, Michael Boyle, MD, will share his vision for the year ahead and will host an engaging panel discussion with Foundation leaders, including Whitney Brown, MD, Tiffany Burnett, Mary Dwight, JP Clancy, MD, and Steve Rowe, MD. Panelists will discuss the progress we’ve made in cure, care, and community in 2022, and their focus for the year to come.
Click the link below to register.
https://engage.cff.org/annualmeeting?utm_source=managing-cf-landing-full&utm_medium=web&utm_campaign=nam-2023
No one likes . Don’t miss your chance to run the Bank of America Chicago Marathon with Team CF! Put your grit to the test and dedicate your miles to finding a cure for CF.
Team CF runners will receive complimentary 18-week virtual marathon training, a Team CF running shirt, CFF swag, fundraising guidance, and so much more. Join the tight-knit and dedicated Team CF community by clicking the link below!
https://fightcf.cff.org/site/TR/TeamCF/45_Greater_Illinois_Chicago?team_id=116151&pg=team&fr_id=9806&fbclid=IwAR0zV_s-BPf8OQ0ziZrgnEw9sY4SP_M1STLYBfU3lqHfR1i964RsfrkvBAA
Help us give a huge round of applause to our chapter’s 2022 Corporate Team of the Year, Team Keller Williams Momentum, led by Chris Pry and Genie Taddeo! We are so grateful to Keller Williams Momentum for their time, commitment, and dedication to the fight against CF. Join us in congratulating and thanking Keller Williams Momentum in the comments! 🎉✨
Congratulations to the recipient of the Outstanding Corporate/In-Kind Partner Award: Louis Glunz Beer Inc.! Their support has made a significant impact on fighting for a cure for CF. Join us in thanking Louis Glunz Beer Inc. in the comments!
Save the Date: Next week, January 30th-February 3rd, is our annual Great Strides Team Sign-On Week! Keep an eye on our social media to learn more about our awesome prizes for our teams who register next week. Join us in taking this 👟~step~👟 to help make CF stand for Cure Found!
Mark your calendars and plan to register next week: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page
Cheers to Gene and Georgetti for their continued support of The Grand Chefs Experience! We so appreciate your dedication towards making CF stand for Cure Found. Click the link below to join them at this one-of-a-kind Chicago tasting event!
http://www.cffgrandchefs.com/
We are thrilled to congratulate the Greater Illinois Chapter's Outstanding Special Event Partners-- Kari and Nick Gbur!🎉 Their dedication to the CF community has made a significant impact in moving us closer to our mission of finding a cure. We could not be more grateful! Join us in thanking Kari and Nick Gbur in the comments!
A huge congratulations to Jennifer McClary, the recipient of the Greater Illinois Chapter's Volunteer of the Year Award! We are incredibly thankful for Jennifer's dedication to the fight against cystic fibrosis through her volunteering efforts. Join us in giving a shout-out to Jennifer McClary in the comments!🎉✨
Thank you to our sponsor, American Airlines! 🎉✈️ We are forever grateful for your continued generosity and support in transforming the future of CF.
Help make a difference in the CF community by clicking the link below to buy your Grand Chefs Experience Tickets today.
http://www.cffgrandchefs.com/
The Greater Illinois Chapter Annual Volunteer Appreciation and Recognition Brunch is right around the corner! Don’t miss your chance to hear directly from the Cystic Fibrosis Foundation CFFT Lab Director, Dr. Martin Mense, regarding the progress we’ve made in our path to a cure, care, and community in 2022, and the focus for the year to come. Click here to reserve your spot now: https://engage.cff.org/ChicagoAM2022/?fbclid=IwAR1E-Uk03ZdF92DqOcvCWPs9ZYX5edIB9_JNFXrRe9Cg1quOgkMKTX-PylA
Join us in raising a glass to Wintrust! We could not be more grateful for their support of our 2023 Grand Chefs Experience. There's still time to buy your ticket to this delectable tasting event! Click here to get yours today: http://www.cffgrandchefs.com/✨🎟️
Join us in giving a massive thank you to BJ Krech and Sally Golden for their noteworthy contributions to our Peer-to-Peer program! We are absolutely thrilled to announce them as our 2022 Outstanding Peer-to-Peer Partner Recipients.✨ BJ and Sally's dedication to the fight against CF is bringing us one step closer to a cure. Help us congratulate BJ Krech and Sally Golden, and their team Rally for Tali, in the comments!
We’re proud to congratulate Greater Illinois Chapter’s CF Star, Pat Conway!🌟 Pat's hard work and passion for raising awareness of cystic fibrosis and supporting the CF community through their volunteering is moving us closer to a cure for everyone living with CF. Join us in thanking Pat Conway in the comments!
Wow! Shout out to all our registered Great Strides teams! Click the link below to join them at one of our six in-person Chicagoland walks as we stride together to make CF stand for Cure Found. 💪
https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page&fbclid=IwAR0KX28XoUlmv4cFAnvtlATP7I2be4ZqrgGHuVCdv_pF_zD6rimzZUfBKMEE
Join us at the Field Museum for our Grand Chefs Experience on March 4th! Table and ticket prices are set to increase on February 1st, so don't wait!
www.cffgrandchefs.com
✨RSVP TODAY:✨ We are beyond excited and honored to welcome the CF Foundation’s Therapeutics Lab director, Dr. Martin Mense to our Annual Meeting on February 5th, 2023. Click here to join Dr. Mense in celebrating our progress in 2022 and to hear about the ongoing research that will transform the future of this disease: https://engage.cff.org/ChicagoAM2022/?fbclid=IwAR3HuRPDC7jna8L6oOf048zlwJBq9ssT5q1Cbmk4HBJkd_7wka5vX5mJ5fk
Nightcap wouldn't be the same without you!✨Join us for an elegant evening of expertly-made cocktails with Sue the dinosaur on Saturday, March 4, 2023. Click here to get your tickets today: http://www.cffgrandchefs.com/
Join us on Tuesday, January 17, 2023 and Thursday, January 19, 2023 from 7 to 8 p.m. ET for the Tomorrow's Leaders College Program Winter Series. Visit here to register: https://cff.swoogo.com/collegeprogram/winter
Celebrating Margie Weides and 18 years of service to the CF Community. Congratulations on a standout career and best wishes for your retirement!
✨SPEAKER ANNOUNCEMENT:✨We are absolutely thrilled to welcome the CF Foundation’s very own Martin Mense, PHD, SVP of Drug Discovery and CFFT Lab Director, to our Annual Meeting on February 5th, 2023.
Martin Mense, Ph.D., SVP of Drug Discovery and CFFT Lab Director, has been a dedicated CF advocate since joining the CF Foundation in 2009 as the Principal Scientist for Drug Discovery when he established and oversaw the CF Foundation’s internal lab research. After closely working with the Flatley Discovery Lab, in 2012 Dr. Mense spearheaded an independent and fully CF Foundation-operated and -funded laboratory, which now boasts 42 employees. The lab’s activities span most aspects of cystic fibrosis-related in-vitro biology, including small molecule screening, gene-editing and stem cell biology, functional assays, primary cell banking, and next-generation sequencing and bioinformatics. A cornerstone of Dr. Mense’s work for the Foundation is providing advice and support for the funded programs that look to repair and increase CFTR function. Please join us to hear exciting and important research-related updates directly from Dr. Mense himself!
Click here to join Dr. Mense in celebrating the progress and milestones we have reached this past year and to hear about the ongoing research that will transform the future of this disease: https://engage.cff.org/ChicagoAM2022/
Commit to making a difference, both personally and in your community, by joining the ranks of Team CF for the Bank of America Chicago Marathon! Not only will your fundraising support research to find a cure for cystic fibrosis, but you’ll also embark on an incredible personal journey of conquering the Chicago Marathon. This is your chance to make a meaningful impact!
Click here to sign up today: https://fightcf.cff.org/site/TR/TeamCF/45_Greater_Illinois_Chicago?team_id=116151&pg=team&fr_id=9806&fbclid=IwAR0OjLdzFDn8vFtZCIlogbnfQxj2PtF6mWUSDywxnmmWAK7PzohfxZQyhJQ
2023 Great Strides is officially here and we are so excited to introduce this year’s Greater Illinois Great Strides Local Ambassador, Emily Steinhaus, and her parents, Laura and Michael.
"Hi! We are the Steinhauses and are so excited to be your ambassador family for this year’s Great Strides walks. I'm Laura, and me and my husband, Michael, have a 3-year-old daughter named Emily. In many ways, Emily is just like most kids her age; she loves using her imagination, playing at the playground, riding her bike, doing crafts, reading, learning about letters and numbers, and playing games of all kinds. There’s one thing that makes her different from most kids: Emily was diagnosed with cystic fibrosis at 3 weeks old. She does her daily breathing treatments and takes all her medications like a champ since she has never known a routine without CF care.
Even though Emily is only 3 years old, our family's life has already been wonderfully impacted by the work that the Cystic Fibrosis Foundation does. Fundraising for the Foundation through events like Great Strides helps to fund continued research and development of therapies to help people with CF just like Emily get and stay healthy! Our family loves to participate in Great Strides with our team, Emily’s Entourage, because we know the generous donations received make a true difference in so many lives. Plus, the event is so much fun! We will be at West Suburban Great Strides this year; which walk will you be at?"
-Laura Steinhaus
Join the Steinhaus Family and find your walk today!: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page
Do you want to join the
Happy New Year, Great Striders!🎉 We are thrilled to announce this year’s official Great Strides dates and locations, and we hope you can join us at one of our six in-person celebrations this spring. We can’t wait to see all of you as we walk in support of making CF stand for Cure Found. !
Register for a walk today: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page
Because of your unwavering commitment, we have made incredible progress toward our ultimate mission: finding a cure for cystic fibrosis. While the future is bright, we are not done. You can help us accelerate our progress in 2023. Make your gift before midnight: https://give.cff.org/eoy5/donate?rbref=EOY2202&donate=100&unitid=Illinois%20-%20Chicago
When Don Gouchie was diagnosed with cystic fibrosis in the 1960s, most people with the disease weren’t expected to live to attend elementary school.
Today, Don is 63, and five years post double-lung transplant. In addition, after a nearly 40-year career in the tech industry, he is retired and can spend more time with his wife, Linda. We are doing all that we can to ensure there is a treatment for everyone with CF, and ultimately a cure. Make your year-end gift today and help drive cutting-edge research forward: https://give.cff.org/eoy5/donate?rbref=EOY2202&donate=100&unitid=Illinois%20-%20Chicago
We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You are a vital part of making that dream come true. As you think about your plans during this season of giving, we wanted to share some of the different ways you can make a big impact! ✨Make sure to swipe to learn how you can make an impact through Donor Advised Funds.✨
There’s still time to register to run with ! For over 15 years, our Team CF Superheroes have been adding meaning to their miles by dedicating their run in the Bank of America Chicago Marathon to helping make a difference in the lives of those with CF. This is your chance to make an impact AND get guaranteed entry to the 2023 Bank of America Chicago Marathon. Our Team CF Superheroes commit to raising $1,250 for the Cystic Fibrosis Foundation and will receive the following benefits:
• Guaranteed entry for the 2023 Bank of America Chicago Marathon
• Complimentary 18-week virtual marathon training
• Team CF running shirt for race day
• CF Foundation fundraising incentives
• Fundraising guidance and online tools to help you exceed your individual fundraising goal
• And more!
Lace up and get registered: https://afasignup.formstack.com/forms/2023_teamcf?fbclid=IwAR1OoOeFhTrQC83FH_lbD1N_zRC49uVrMFnFYQr94mVVUcZ8JzYMR4WmbIk
Our official 2022 Cycle video is here! Thank you to everyone who put the pedal to the metal and joined us in riding for a cure! Together, we will make CF stand for Cure Found. 💪✨
Want to cross running a marathon off your bucket list? Receive access to a guaranteed entry to the world-famous 2023 Bank of America Chicago Marathon by running with Team CF. Add meaning to your miles by dedicating your run to finding a cure. Runners who join Team CF commit to raising $1,750 for the Cystic Fibrosis Foundation and will receive the following benefits:
• Guaranteed entry for the 2023 Bank of America Chicago Marathon
• Complimentary 18-week virtual marathon training
• Team CF running shirt for race day
• CF Foundation fundraising incentives
• Fundraising guidance and online tools to help you exceed your individual fundraising goal
• And more!
Limited spots are available - https://afasignup.formstack.com/forms/2023_teamcf
We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You are a vital part of making that dream come true. As you think about your plans during this season of giving, we wanted to share some of the different ways you can make a big impact! ✨Make sure to swipe to learn how you can make an impact through stocks, bonds, and securities.✨
Still need a spot in the 2023 Bank of America Chicago Marathon? Join Team CF to receive a guaranteed entry and help us make a difference for those living with cystic fibrosis!
In addition to guaranteed entry, Team CF runners will receive complimentary 18-week virtual marathon training, Team CF running shirt and other goodies, and fundraising guidance and online tools. And best of all, you’ll be joining us in our mission to make CF stand for Cure Found!
Add meaning to your miles and join Team CF today: http://fightcf.cff.org/goto/2023TeamCF.
Thanks to your generous support, the Cystic Fibrosis Foundation has made outstanding progress for those living with this disease. We won't be satisfied, however, until there is a therapy and ultimately a cure for every person with cystic fibrosis.
We are driven by a dream that someday every person born with CF will have the chance to live a long, healthy life. You are a vital part of making that dream come true. As you think about your plans during this season of giving, we wanted to share some of the different ways you can make a big impact! ✨Make sure to swipe to learn how you can make an impact through a check, credit card, or online gift.✨
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We are thrilled to announce we are only $8,759 away from meeting our dollar for dollar match goal of $25,000! Here are Kent and Kathy Duncan with a few words of encouragement: “From the bottom of our hearts, thank you to everyone who has donated to the Cystic Fibrosis Foundation. Your generosity in supporting the Foundation and the Annual Fund provides the promise for adding tomorrows to every CF fighter’s life.” Together, we can make an impact. By joining the match today, you will help make a difference: https://give.cff.org/greater-illinois/Donate --- The Greater Illinois Chapter is excited to announce that local families Mary Kay & Jon Bottorff, Nikki & John Conway, Kathy & Kent Duncan, Lilly & Bart Murphy and Peggy & Phil Reitz have kindly offered a $25,000 local matching gift opportunity! Beginning October 3rd, all gifts in the amount of $1 to $9,999 in support of the Greater Illinois Annual Fund will be matched dollar for dollar up to $25,000 by December 31st, or when the match is completed, whichever comes first. Donations received in excess of the matching goal of $25,000 will be used to support the CF Foundation's mission.
Thank you to Viatris for their support of Great Strides and the CF Foundation! Together we're going to make CF stand for Cure Found.
Please join us in thanking AbbVie for their generous support of Great Strides and the CF Foundation!
Team Tuesday is here, and we are excited to bring on more walkers for this year’s IN-PERSON event! For day 2 of team week, we are challenging you to recruit 5 NEW walkers to celebrate with you and your team at our Great Strides walk! Remember, the teams who complete all 5 tasks of team week will win a VIP Package for walk day!
Don’t know where to start with your fundraising effort for Great Strides? No worries, we are here to help! Tomorrow we will be kicking off our annual Facebook Fundraising Friday where you can easily join in on the fundraising fun by connecting your personal fundraising efforts to a Facebook Fundraiser. Need ideas on how to best utilize your Facebook Fundraiser? Take a look at our Facebook Fundraising TeamMATE Talk to get ready and geared up for Friday!
Thank you all for coming along with me as I shared what a day in my life looks like! I am so lucky to be surrounded by a great community like you who are all working towards the same goal – a cure for CF. I hope to see you all at a Great Strides walk in May! 💜
As I mentioned earlier, I love Tiktok! Here’s a fun one of me transitioning into my vest for my chest therapy!
Good morning, everyone! My name is Laila and I’m this year’s Local Ambassador. I’m so excited to be taking over the CFF Chicago Office’s social media today to give you a little insight into what a day in my life looks like. Keep an eye on Facebook and Instagram today as I share what a day in my life looks like!
We are so excited to kick-off our 2022 Great Strides season! Join us as we talk all things Great Strides, from incentives to Local Ambassadors! See you this Saturday, March 12th at 10 am!
Thank you to all of the Great Strides teams who have signed up during Team Sign-On Week! Keep watching for a message from our Local Ambassador, Laila!
Way to go! Thanks to all of our SUPERHEROS who have signed up their teams this week! So far, 10 teams have registered this week. Can you help us reach our goal of registering 30 teams this week? Our next milestone is 20 teams - if we get 20 teams registered, then Hannah and Katie will be making their 2022 debut with the parent trap handshake! Sign up today ➡ https://fightcf.cff.org/site/SPageServer/?pagename=143_gs_landing_page
Are you ready for Team Sign-On Week? Starting TODAY, Monday 2/7, you could be eligible to win any of these awesome prizes! Start gathering your team and register this week to join in on the 2022 Great Strides fun!
Happy National Grandparents’ Day to all of our CF Grandparents and Grampions! We are thankful for all you have done to support our CF Families. All grandparents are invited to attend our Music Trivia event to celebrate on Wednesday, September 15th at 7:00PM CST. Register here: https://engage.cff.org/ILGrandparentsDay?_ga=2.68394005.563965942.1630001406-1428816381.1575991961
Thank you to everyone who participated in Chicago's 2021 CF Cycle for Life ride! Whether you rode in person or from afar, you helped us get one step closer to making CF stand for Cure Found. Please join us in watching our 2021 CF Cycle for Life Virtual Celebration!🥳🚴♀️
Thank you to our National Gold Sponsor, AbbVie, for their continued and steadfast support for the Cystic Fibrosis Foundation! We are so grateful to them for their unwavering dedication to our mission to find a cure!
Thank you to our National Silver Sponsor, Vertex, for their unwavering support in our collective mission to make CF stand for Cure Found!
Today we're raising a glass to everyone in our community in honor of Cystic Fibrosis Awareness Month! Special thanks to Teddy at @theleavittstreet for making us this CF inspired cocktail, The Violet Rose. This CF Awareness Month, we want to encourage nominating an honoree to Chicago's Magnificent. Nominated Honorees show exemplary leadership in their lives and are active in their communities. Nominate someone Today at http://bit.ly/MagNom2021
Warning: Adorable Post Ahead! While FestivAle has always been a celebration of craft beers for beer lovers, by beer lovers, in one case, that celebration of love has continued on for many years. Johnny and Allison met at FestivAle back in 2014 when both were invited by friends at the last minute. An unexpected meeting in front of the @SmylieBrothersBrewingCo Tasting station resulted in one unforgettable conversation and a serendipitous love of Purple Line beer. The pair was married on October 7, 2017 and have since welcomed an adorable son, Jack. We want to #cheers Johnny and Allison and thank all the breweries who make our events magical!
Thank you to our National Bronze Sponsor, Viatris, for their generous support of our Greater Illinois Great Strides program. We are so grateful to have them as a member of our Great Strides family!
Thank you to National Silver Sponsor, Vertex, for their continued support of our Greater Illinois Great Strides program! We are so appreciative of their dedication to the CF Foundation’s mission!
Thank you to our National Gold Sponsor, AbbVie, for their continued dedication and support of our Greater Illinois Great Strides program! We are so grateful to have virtually celebrated with everyone this past Saturday!
Our assistant counselors from National Charity League have put together an awesome video with a few camp crafts that you can make with materials around your house! If you complete the crafts, don’t forget to tag us in your photos.
Thank you for tuning in to our Virtual Camp Great Strides program! Join in on the fun by leaving comments under this video, tagging your teamMATEs, and cheering on your fellow campers!
Are you as excited for Camp Great Strides as we are? Join campers Sarah, Mae, and Beth as they share a spooooky story to get us in the camping state of mind!
We’re halfway through Camp Great Strides Spirit Week and almost to walk day! We want to know why you walk in our Great Strides walks. Take a look here to see why our Camp Great Strides Counselors stride. Comment on our post and tag us in your own!
Campers Mae, Beth, and Sarah are getting into the Camp Great Strides mood by reading scary stories by the campfire! Tune in on Saturday, May 15th to join in on more of our Camp Great Strides fun!
Wondering what to expect at Camp Great Strides on May 15th? Take a listen as our Local Ambassador Megan walks us through what event day will look like! Make sure to RSVP here: https://www.facebook.com/events/126156172820350
For the third installment of our TeamMATE Talk series, Katie Reardon will walk us through hosting a successful Facebook Fundraiser from beginning to end and share her tips and tricks to take advantage of Facebook's helpful features!
In our second installment of TeamMATE Talks, check out this video from Cheriz Kunkel and Andrew Loebach on all the great features of the new Fight CF app! Download the Fight CF app from the App Store or Google Play today!
Back by popular demand, TeamMATE Talks! Check out this short video from Randell Gans on virtual fundraising. Randell is 33 years old with CF and an avid TeamMATE with that Foundation. Take a look to see what Randell has done to be successful while fundraising in a virtual world.
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