Cystic Fibrosis Foundation - Greater Illinois Chapter

Cystic Fibrosis Foundation - Greater Illinois Chapter The Greater Illinois Chapter is helping to advance the Cystic Fibrosis Foundation’s mission to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives.

The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF. Cystic Fibrosis Foundation - Greater Illinois Chapter
150 North Michigan Avenue, Suite 1550
Chicago, IL, 60601

The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF. Cystic Fibrosis Foundation - Greater Illinois Chapter
150 North Michigan Avenue, Suite 1550
Chicago, IL, 60601

Operating as usual

As we continue planning for the year ahead, the CFF Greater Illinois Chapter Volunteer Outreach Committee is seeking you...
12/09/2021

As we continue planning for the year ahead, the CFF Greater Illinois Chapter Volunteer Outreach Committee is seeking your feedback on our outreach and communications efforts. Please take a moment to complete this brief survey and share your input on our virtual town hall topics, and in-person and virtual engagement events to help us create a successful 2022 calendar for the local CF community.

https://afasignup.formstack.com/forms/2022_cff_illinois_outreach_planning_survey

Thank you for your time and participation in this survey.

For questions or comments, please contact David Oshinski at [email protected].

Community Voice is a way for people with cystic fibrosis and their loved ones to help shape our future work and ensure t...
12/08/2021

Community Voice is a way for people with cystic fibrosis and their loved ones to help shape our future work and ensure the CF community and their unique needs are at the center. As an adult with CF who is bisexual, agender, multiethnic, and has a rare CF mutation, Xan deeply values how participating helps them surface the needs of underrepresented groups.
Share your unique experiences and join Community Voice: https://on.cff.org/CommunityVoiceSignUp

Community Voice is a way for people with cystic fibrosis and their loved ones to help shape our future work and ensure the CF community and their unique needs are at the center. As an adult with CF who is bisexual, agender, multiethnic, and has a rare CF mutation, Xan deeply values how participating helps them surface the needs of underrepresented groups.
Share your unique experiences and join Community Voice: https://on.cff.org/CommunityVoiceSignUp

Tomorrow's Leaders! Join us this Thursday, 12/9 from 5 PM - 6 PM CT for our end-of-the-year Jingle & Mingle! Grab your f...
12/07/2021

Tomorrow's Leaders! Join us this Thursday, 12/9 from 5 PM - 6 PM CT for our end-of-the-year Jingle & Mingle! Grab your favorite holiday sweater, ingredients for our Holiday Mule, and get ready to get festive with your fellow Tomorrow's Leaders from around the country. We can't wait to celebrate 2021 with you!

Register now: https://tomorrowsleaders.cff.org/wnytomorrowsleadersmingle

On his twelfth CFF anniversary, our true love gave to us.... DAVID OSHINSKI! We are so thankful for David and all of his...
12/07/2021

On his twelfth CFF anniversary, our true love gave to us.... DAVID OSHINSKI! We are so thankful for David and all of his hard work, dedication, and smiles that he has shared with us over the years. We know our families will join us in sending you a BIG thank you 🥳

On his twelfth CFF anniversary, our true love gave to us.... DAVID OSHINSKI! We are so thankful for David and all of his hard work, dedication, and smiles that he has shared with us over the years. We know our families will join us in sending you a BIG thank you 🥳

The Cystic Fibrosis Foundation announced its investment of $3.5 million in Pulmocide Limited, a U.K.-based biotech compa...
12/06/2021

The Cystic Fibrosis Foundation announced its investment of $3.5 million in Pulmocide Limited, a U.K.-based biotech company, to develop an inhaled drug to prevent Aspergillus fungal infections in lung transplant recipients. The investment is part of the CF Foundation’s Lung Transplant Initiative, a commitment to improve outcomes and support people with CF throughout the transplant journey. Learn more on cff.org.

The Cystic Fibrosis Foundation announced its investment of $3.5 million in Pulmocide Limited, a U.K.-based biotech company, to develop an inhaled drug to prevent Aspergillus fungal infections in lung transplant recipients. The investment is part of the CF Foundation’s Lung Transplant Initiative, a commitment to improve outcomes and support people with CF throughout the transplant journey. Learn more on cff.org.

Thank you to everyone who donated on Giving Tuesday. Because of you, the CF Foundation exceeded our goal and met the Str...
12/01/2021

Thank you to everyone who donated on Giving Tuesday. Because of you, the CF Foundation exceeded our goal and met the Stremick family match of $250,000.

Thank you to everyone who donated on Giving Tuesday. Because of you, the CF Foundation exceeded our goal and met the Stremick family match of $250,000.

Make your gift add up to more for people with #cysticfibrosis! Your #GivingTuesday gift will be matched, dollar-for-doll...
11/30/2021

Make your gift add up to more for people with #cysticfibrosis! Your #GivingTuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Give today!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Make your gift add up to more for people with #cysticfibrosis! Your #GivingTuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Give today!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Chicago, double your impact by making a gift this Giving Tuesday! Thanks to the Stremick family, whose 16-year-old grand...
11/30/2021

Chicago, double your impact by making a gift this Giving Tuesday! Thanks to the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis, your Giving Tuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF. Together, we can make CF stand 4 Cure Found.

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Chicago, double your impact by making a gift this Giving Tuesday! Thanks to the Stremick family, whose 16-year-old granddaughter, Ella, has cystic fibrosis, your Giving Tuesday gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF. Together, we can make CF stand 4 Cure Found.

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

Let this be a beautiful and cheerful Hanukkah to remember. Happy Hanukkah to all!
11/29/2021

Let this be a beautiful and cheerful Hanukkah to remember. Happy Hanukkah to all!

Let this be a beautiful and cheerful Hanukkah to remember. Happy Hanukkah to all!

It’s all adding up. This Giving Tuesday, your gift will be matched, dollar for dollar, up to $250,000, thanks to Nancy a...
11/29/2021

It’s all adding up. This Giving Tuesday, your gift will be matched, dollar for dollar, up to $250,000, thanks to Nancy and Lou Stremick, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Help everyone living with CF - make an early gift today and double your impact!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

It’s all adding up. This Giving Tuesday, your gift will be matched, dollar for dollar, up to $250,000, thanks to Nancy and Lou Stremick, whose 16-year-old granddaughter, Ella, has cystic fibrosis. Help everyone living with CF - make an early gift today and double your impact!

https://give.cff.org/givingtuesday/donate?rbref=GT3&donate=100&unitid=Illinois%20-%20Chicago

11/25/2021
Save the Date for Giving Tuesday 2021!The Tuesday after Thanksgiving is a global generosity movement and we want you to ...
11/24/2021

Save the Date for Giving Tuesday 2021!
The Tuesday after Thanksgiving is a global generosity movement and we want you to support CFF. On November 30, share your story and invite your community to join the fight against CF.

Save the Date for Giving Tuesday 2021!
The Tuesday after Thanksgiving is a global generosity movement and we want you to support CFF. On November 30, share your story and invite your community to join the fight against CF.

Now that the end of the year is approaching, it's time to start thinking about your 2022 goals! Make your miles count by...
11/23/2021

Now that the end of the year is approaching, it's time to start thinking about your 2022 goals! Make your miles count by joining Team CF for the 2022 Bank of America Chicago Marathon on October 9, 2022. Runners receive guaranteed entry to the marathon, complimentary 18-week virtual training, lots of CF Foundation swag, and so much more! If you're ready to add meaning to your miles, reserve your spot today: https://afasignup.formstack.com/forms/2022_teamcf.

Don't wait - if you register before Tuesday, November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st.

Now that the end of the year is approaching, it's time to start thinking about your 2022 goals! Make your miles count by joining Team CF for the 2022 Bank of America Chicago Marathon on October 9, 2022. Runners receive guaranteed entry to the marathon, complimentary 18-week virtual training, lots of CF Foundation swag, and so much more! If you're ready to add meaning to your miles, reserve your spot today: https://afasignup.formstack.com/forms/2022_teamcf.

Don't wait - if you register before Tuesday, November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st.

11/22/2021
“We won’t know what’s important to everyone, until we hear from everyone.” If you or your loved one has cystic fibrosis,...
11/20/2021

“We won’t know what’s important to everyone, until we hear from everyone.” If you or your loved one has cystic fibrosis, join Community Voice today to bring your insights and priorities to the forefront of CF research, care, and programs to improve the future for everyone living with CF. www.cff.org/CommunityVoice

“We won’t know what’s important to everyone, until we hear from everyone.” If you or your loved one has cystic fibrosis, join Community Voice today to bring your insights and priorities to the forefront of CF research, care, and programs to improve the future for everyone living with CF. www.cff.org/CommunityVoice

Are you ready to take on a new challenge? Join Team CF for the 2022 Bank of America Chicago Marathon to help in our miss...
11/18/2021

Are you ready to take on a new challenge? Join Team CF for the 2022 Bank of America Chicago Marathon to help in our mission to make CF stand for Cure Found. Team CF runners receive GUARANTEED entry to the Chicago Marathon (that's right, no lottery!), complimentary 18-week virtual training, plenty of CF Foundation goodies, and so much more.

Don't wait - if you register before November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st. Fill out this form to reserve your entry today: https://afasignup.formstack.com/forms/2022_teamcf.

Are you ready to take on a new challenge? Join Team CF for the 2022 Bank of America Chicago Marathon to help in our mission to make CF stand for Cure Found. Team CF runners receive GUARANTEED entry to the Chicago Marathon (that's right, no lottery!), complimentary 18-week virtual training, plenty of CF Foundation goodies, and so much more.

Don't wait - if you register before November 30th, you secure a $500 discount on your fundraising minimum! The fundraising minimum increases to $1,750 on December 1st. Fill out this form to reserve your entry today: https://afasignup.formstack.com/forms/2022_teamcf.

Calling all CF adults!  You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett.  T...
11/17/2021

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

Our very own Lauren Vignola, an adult with CF, was featured in the CF Community Blog recently. In her blog post, she sha...
11/15/2021
Coping With Comparisons on Social Media When You Have CF | Cystic Fibrosis Foundation

Our very own Lauren Vignola, an adult with CF, was featured in the CF Community Blog recently. In her blog post, she shares how she has learned to stop comparing herself to others, especially on social media. Thanks for sharing your story, Lauren!

"I scroll through accomplishments, travel, career advancements, and major life milestones up and down my feed for what seems like an eternity. While I’ve spent the past six years trying to survive cystic fibrosis, everyone else has surpassed me."

Social media. It permeates every facet of modern society. There are long lists of the positives and negatives of social media. There are pages that inspire you and some that disgust you. In between those two extremes are profiles that seem – superficially -- relatively innocent. However, it is the...

Thank you to all of our sponsors who supported Aged to Perfection: Bourbon and Bacon. Together we raised over $50,000 to...
11/12/2021

Thank you to all of our sponsors who supported Aged to Perfection: Bourbon and Bacon. Together we raised over $50,000 to help make CF stand for Cure Found.

Thank you to all of our sponsors who supported Aged to Perfection: Bourbon and Bacon. Together we raised over $50,000 to help make CF stand for Cure Found.

Every new Legacy Society donor that joins between July 15-December 28, 2021, or when the match is completed whichever co...
11/11/2021

Every new Legacy Society donor that joins between July 15-December 28, 2021, or when the match is completed whichever comes first, will be matched with a $500 contribution to the CF Foundation by The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation, up to $50,000. Join a community of people who have provided a gift in their will to help future generations by joining the Legacy Society.

Every new Legacy Society donor that joins between July 15-December 28, 2021, or when the match is completed whichever comes first, will be matched with a $500 contribution to the CF Foundation by The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation, up to $50,000. Join a community of people who have provided a gift in their will to help future generations by joining the Legacy Society.

Calling all CF adults!  You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett.  T...
11/10/2021

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

Calling all CF adults! You are invited to our first installment of “Drinks with the Doc” with Dr. Michelle Prickett. This virtual happy hour event is open to all adults with CF and their significant others, and will allow you to get to know our care center staff outside of the clinic setting. So grab a drink and join us on Wednesday, November 17th at 6:30 PM for this fun community engagement opportunity: https://afasignup.formstack.com/forms/drinkswiththedocnov7

Aged to Perfection: Bourbon and Bacon’s auction is now open to all and closes on Thursday, November 11th at 8:30 PM. Bid...
11/10/2021

Aged to Perfection: Bourbon and Bacon’s auction is now open to all and closes on Thursday, November 11th at 8:30 PM. Bidders do not need to be registered for the in-person event to purchase items. Due to tax restrictions, items may only be purchased by a resident of IL or IN or the purchaser must be in attendance at the event. Register to view and start bidding here: https://auction.cff.org/?idEvent=3190&flsr=1

We are so excited to be back for Chef’s in 2022 on April 23rd! In anticipation, we wanted to share our 2021 Grand Chefs ...
11/05/2021

We are so excited to be back for Chef’s in 2022 on April 23rd! In anticipation, we wanted to share our 2021 Grand Chefs Experience Cookbook with you all. Be sure to enjoy the variety of different food and drink recipes from our Chicagoland chefs, and keep an eye out for more information for 2022. We’re hungry just thinking about it.

https://fliphtml5.com/qejxd/xknf

We are so excited to be back for Chef’s in 2022 on April 23rd! In anticipation, we wanted to share our 2021 Grand Chefs Experience Cookbook with you all. Be sure to enjoy the variety of different food and drink recipes from our Chicagoland chefs, and keep an eye out for more information for 2022. We’re hungry just thinking about it.

https://fliphtml5.com/qejxd/xknf

We are so happy to share that we have met our 2021 Match! Thank you to all who helped us reach our goal in support of th...
11/05/2021

We are so happy to share that we have met our 2021 Match! Thank you to all who helped us reach our goal in support of the CF Foundation’s mission. We’d also like to give a big thank you to our local CF families who offered this generous matching opportunity: Jon and Mary Kay Bottorff, John and Nikki Conway, Kent and Kathy Duncan, Bart and Lilly Murphy, Peggy and Phil Reitz, and a family who wishes to remain anonymous. Please join us in thanking them!

We are so happy to share that we have met our 2021 Match! Thank you to all who helped us reach our goal in support of the CF Foundation’s mission. We’d also like to give a big thank you to our local CF families who offered this generous matching opportunity: Jon and Mary Kay Bottorff, John and Nikki Conway, Kent and Kathy Duncan, Bart and Lilly Murphy, Peggy and Phil Reitz, and a family who wishes to remain anonymous. Please join us in thanking them!

Thank you Milk Money Brewing for hosting Aged to Perfection: Bourbon and Bacon. There are limited tickets available so g...
11/05/2021

Thank you Milk Money Brewing for hosting Aged to Perfection: Bourbon and Bacon. There are limited tickets available so get yours today before we reach capacity.

www.cfbourbonandbacon.com

Thank you Milk Money Brewing for hosting Aged to Perfection: Bourbon and Bacon. There are limited tickets available so get yours today before we reach capacity.

www.cfbourbonandbacon.com

Address

150 N Michigan Ave
Chicago, IL
60601

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Greater Illinois Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

(312) 236-4491

Website

Cff.org

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Where in the Chicago area are you? We are in McHenry Co. This is my grandson. He is currently at Lurie's
Hi, My name is Heidi and I am the Outreach Coordinator for the Songs of Love Foundation. The Songs of Love Foundation is a national nonprofit 501(c)(3) organization that creates free, personalized, original songs to uplift children and teens currently facing tough medical, physical or emotional challenges. Each song is professionally produced with lyrics containing the child's name and references to all of his or her favorite activities, things, people, and pets. Songs are written and performed in any language in the musical style that the child likes best (pop, R&B, rap, rock, alternative, etc.), by a variety of talented professionals. Request a song using the link below:
Had a great time walking for Leah today!! Thanks to all who supported us by walking virtually, or wanting to walk with us, and those who donated to support the CFF! Cystic Fibrosis Foundation - Greater Illinois Chapter
Our friends at the Cystic Fibrosis Foundation - Greater Illinois Chapter are hosting a Town Hall: Family Planning and Fertility in CF, on Friday, April 30 at 12:00 PM CT. The town hall will discuss fertility and family planning issues for the CF community, while sharing resources and answering questions from attendees. Speakers include Dr. Kazmerski, Dr. Prickett and Dr. Philbrick. Register at https://afasignup.formstack.com/forms/april30familyplanningtownhall
Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help.
Our friends at the Cystic Fibrosis Foundation - Greater Illinois Chapter are hosting a Town Hall on Thursday, February 25 from 12-1 PM CT. This town hall, Managing Your Mental Health, will discuss mental health awareness in the CF community while sharing resources and interactive coping strategies to help manage your mental health during this challenging and isolating time. You can register for the event at http://bit.ly/Feb2021TownHall or by emailing David at [email protected].
An exciting announcement for CF parents and CF'ers: I'm a CF parent and I've created a FB page... "CF ZoomConnect"... for the purpose of connecting CF parents and CFers on a weekly Zoom call (Sunday evenings) to build strong and supportive relationships. The call will include breakout rooms of up to 6 or 8 people, to allow for effective conversation and relationship building. If you are a CF'er or a CF'er parent, I invite you to join us. :) https://www.facebook.com/groups/2863363707105877/
As the event industry takes an unplanned and unprecedented pause due to the #coronavirus outbreak, we offer a look back at some of the design concepts, fun details, and more from the winter season’s benefits, galas, and fundraisers across North America. Events by Andre Wells Alvin Ailey American Dance Theater Pérez Art Museum Miami Los Angeles Ballet Cystic Fibrosis Foundation - Greater Illinois Chapter Aid the Silent Liz’s Beautiful Events NDC National Development Council Glow Global Events MLSE Foundation Read with Malcolm - Share the Magic Foundation American Heart Association Tony Brewer & Company Chance for Life Design Foundry The Giving Back Fund Agency 21 Consulting
OMEGA was proud to support the Shamrockin' for a Cure hosted by the Cystic Fibrosis Foundation - Greater Illinois Chapter! The Cystic Fibrosis Foundation's mission is to cure cystic fibrosis and provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality specialized care. Glad we were able to support such a great cause at Countryside Banquets this weekend!
It was an honor to emcee the Cystic Fibrosis Foundation Grand Chefs Experience, with Marley last night. Over $200,000 was raised to help find a cure for CF. We also ate a lot of food, but that’s a given.
One of my favorite charity events!!! Cystic Fibrosis Foundation - Greater Illinois Chapter Field Museum Jo-Marie Frigo
We're only one week away from the Grand Chefs Experience 2020! Hosted by the Cystic Fibrosis Foundation - Greater Illinois Chapter, the event will honor chefs from Brindille, Elske and more! Join us: https://www.facebook.com/events/546951432568206/