09/01/2026
When Rachel and Brian Clouse's daughters Livia and Amanda Joy were diagnosed with Fragile X Syndrome, they discovered a troubling gap: because research has focused almost entirely on males, females with FXS are chronically underdiagnosed and underserved. So they started the LivJoy Foundation — and funded a postdoctoral fellowship at USC's Arnold School of Public Health to help close that gap. Read how one grant is helping build the case for bigger research investment: https://www.sc.edu/giving/about_our_services/news_and_stories/2026/a_life_full_of_joy.php