Epilepsy New Jersey

Epilepsy New Jersey Epilepsy Advocacy for Individuals & Their Families
Education | Awareness | Action | Training
(1)

06/07/2026

Summer brings big changes for families managing epilepsy - hotter days, shifting routines, travel, camp, swimming, and more time outdoors.

Join Epilepsy Alliance America and member organization Epilepsy Services of New Jersey on Wednesday, June 10 at 12pm for Staying Safe with Epilepsy All Summer Long, a practical webinar for people with epilepsy, caregivers, and families preparing for the season.

Dr. Inna Hughes, member of Epilepsy Alliance America's National Professional Advisory Committee, will walk us through how heat, hydration, sleep changes, activity, camp, medications, and outdoor time can affect seizure risk, along with guidance for swimming safety and helpful summer resources.

This session is open to anyone living with epilepsy or supporting a child, student, camper, or loved one this summer.

Register here: https://register.gotowebinar.com/register/1578570398277608281

Looking for childcare options for your child with a disability?Join Family Resource Network’s Self-Hired Respite Coordin...
06/06/2026

Looking for childcare options for your child with a disability?

Join Family Resource Network’s Self-Hired Respite Coordinator, Melissa Canaan, for a live webinar, A Guide to Self-Hired Respite Services, on Wednesday, June 17, from 6:00pm to 7:00pm.

Whether you’re getting started for the first time or renewing services, this webinar will help you better understand how self-hired respite works in New Jersey and what steps to take next.

Webinar will cover:
✔️ Eligibility requirements
✔️ Hiring and payment processes
✔️ Making the most of approved respite hours
✔️ Submitting required documentation and logs
✔️ Tips for staying organized throughout the year

There will also be time for questions, so bring anything you’re wondering about, from getting started to staying organized once services are underway.

Summer brings a lot of change for families managing epilepsy: hotter days, looser routines, travel, camp, swimming, and ...
06/05/2026

Summer brings a lot of change for families managing epilepsy: hotter days, looser routines, travel, camp, swimming, and more time outdoors.

Join us on June 10th at 12pm for Staying Safe with Epilepsy All Summer Long, a practical webinar for people with epilepsy, caregivers, and families planning for the summer months.

We’ll talk through:

☀️ How heat, dehydration, sleep changes, and activity can impact seizure risk
🏕️ Summer camp tips for families and caregivers
💧 Hydration, sun exposure, and medication management
🏊 Swimming and outdoor safety considerations
📋 Helpful resources to support a safer summer

This session is for anyone living with epilepsy, caring for someone with epilepsy, or supporting a child, student, camper, or loved one this summer.

Register now at https://bit.ly/4ac2QMe

06/04/2026

Summer brings big changes for families managing epilepsy - hotter days, shifting routines, travel, camp, swimming, and more time outdoors.

Join Epilepsy Alliance America and member organization Epilepsy New Jersey on Wednesday, June 10 at 12pm for Staying Safe with Epilepsy All Summer Long, a practical webinar for people with epilepsy, caregivers, and families preparing for the season.

Dr. Inna Hughes, member of Epilepsy Alliance America's National Professional Advisory Committee, will walk us through how heat, hydration, sleep changes, activity, camp, medications, and outdoor time can affect seizure risk, along with guidance for swimming safety and helpful summer resources.

This session is open to anyone living with epilepsy or supporting a child, student, camper, or loved one this summer.

Register here: https://register.gotowebinar.com/register/1578570398277608281

Since 2020, 192,826 people have completed Seizure Recognition and Response Training, helping create safer, more prepared...
06/02/2026

Since 2020, 192,826 people have completed Seizure Recognition and Response Training, helping create safer, more prepared communities for individuals living with epilepsy. Our next goal is reaching 200,000 people trained.

If someone near you had a seizure, would you know what to do? Help Epilepsy Services of New Jersey reach this incredible milestone.

Every person trained has the power to make a difference.

The free, on-demand training is available in English and Spanish. Epilepsy Services of New Jersey also provides live, instructor-led trainings for schools, law enforcement, businesses, healthcare providers, and community organizations.

Get trained now: https://bit.ly/3KWDgkO

Epilepsy Services of New Jersey is a proud affiliate of the Family Resource Network

Epilepsy Alliance America

Reminder! Live Q&A Tonight! Adult services can bring up a lot of questions for families, especially when DDD, Medicaid, ...
06/01/2026

Reminder! Live Q&A Tonight!

Adult services can bring up a lot of questions for families, especially when DDD, Medicaid, NJCAT, support coordination, and guardianship start showing up in the same conversation.

Join us for a 30-minute LIVE Q&A on Monday, June 1 at 6:30pm with Allison Wawrin, Trainer at Caregivers of New Jersey.

This session is for New Jersey families who are preparing for adult services or trying to understand where to start.

We’ll talk through questions families often ask, including:
- When should we apply for DDD services?
- What is the NJCAT, and how does it affect services?
- What is the difference between waiver programs?
- How does support coordination work?
- Where do Medicaid, SSI, and guardianship fit into the process?

Bring the questions you have been trying to sort through.

Register for the LIVE Q&A:
https://bit.ly/4sypLZA

Adult services can bring up a lot of questions for families, especially when DDD, Medicaid, NJCAT, support coordination,...
05/29/2026

Adult services can bring up a lot of questions for families, especially when DDD, Medicaid, NJCAT, support coordination, and guardianship start showing up in the same conversation.

Join us for a 30-minute LIVE Q&A on Monday, June 1 at 6:30pm with Allison Wawrin, Trainer at Caregivers of New Jersey.

This session is for New Jersey families who are preparing for adult services or trying to understand where to start.

We’ll talk through questions families often ask, including:
- When should we apply for DDD services?
- What is the NJCAT, and how does it affect services?
- What is the difference between waiver programs?
- How does support coordination work?
- Where do Medicaid, SSI, and guardianship fit into the process?

Bring the questions you have been trying to sort through.

Register for the LIVE Q&A:
https://attendee.gotowebinar.com/rt/2635375892068649815

05/29/2026

75% of seats sold!
Get your tickets now.

The Mark Shaparin Foundation presents:

Movie Night in NYC featuring “Under the Lights”

Tickets are on sale now for an advance screening with Filmmaker Miles Levin in Person!

Join us for this special event in New York City on Sunday, June 7th 2026.

We will begin with a short-film, “Informed Silence” by Director Spencer Choice.

Then we will watch the full-length feature film “Under the Lights” by Director Miles Levin.

The Directors of both films will be in person for the screening and Q&A. Miles will be offering free signed “Under the Lights” posters and a photo opportunity.   Sips and snacks provided (Wine, Beer, Light Food).

We would like to thank UCB for their generous support as the Lead Sponsor of this event as well as our community supporters Paul’s Purple Warriors, Milo&Me, Joanna Sophia Foundation and Epilepsy Services of New Jersey.

https://www.markshaparinfoundation.org/underthelights








me

talks


We recently had the honor of gathering with mothers of children living with epilepsy for an evening built around connect...
05/28/2026

We recently had the honor of gathering with mothers of children living with epilepsy for an evening built around connection, understanding, and community.

Our annual Mother's Appreciation Dinner brought together women who truly get it. The sleepless nights, the constant vigilance, the fierce advocacy, and the immeasurable love that drives it all.

Some conversations were lighthearted. Some were emotional. Many continued long after dinner ended.

What filled the room most was something rare: the feeling of being completely understood, without needing to explain a single thing.

Thank you to every mother who joined us at Park Avenue Club, and to Jazz Pharmaceuticals and Neurelis for making the evening possible. Nights like this remind us that no one walks this journey alone, and we are so grateful to walk it alongside you.

Epilepsy Services of New Jersey is a proud affiliate of the Family Resource Network

Every journey looks different, and the right support can make all the difference. The Family Resource Network offers one...
05/26/2026

Every journey looks different, and the right support can make all the difference.

The Family Resource Network offers one-to-one services that are flexible, personalized, and centered on each individual’s goals. From community-based programs and respite opportunities to individualized care at home, we’re here to support individuals and families every step of the way.

For some services, parents or family members may even be hired and paid as the Direct Support Professional (DSP), providing greater continuity, comfort, and peace of mind. Whether you’re seeking a trained professional or exploring a family DSP option, our team will work with you to find the right fit.

Learn more about our services at familyresourcenetwork.org

Address

50 Millstone Road, Bldg 300, Suite 201
East Windsor, NJ
08520

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18003365843

Website

Alerts

Be the first to know and let us send you an email when Epilepsy New Jersey posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Epilepsy New Jersey:

Shortcuts

Share