09/03/2026
I’ve spent years advocating for disability rights and services in Wisconsin. I’ve met with state representatives, spoken about Medicaid before the entire Legislature, given speeches, participated in public forums, written letters almost monthly, and repeatedly explained the barriers disabled people face.
I’ve done the meetings, speeches, letters, testimony, and advocacy.
It has gotten me nowhere.
At one point, my own state representative told me, “We can’t always get what we want.”
This isn’t about getting what I want. It’s about having the support I need to live safely, with dignity.
I received a standing ovation after explaining what the system’s response can look like for someone like me: Wisconsin sends me a box of disposable underwear and literally says, “Somebody will clean you up later.”
A box of supplies is not a substitute for accessible, hands-on care.
I shouldn’t have to sit before the entire Legislature and explain why being left without the support I need is undignified and unacceptable.
Disabled people shouldn’t have to repeatedly prove that our basic needs are worth meeting.
At some point, advocacy has to lead to action.