Parent to Parent of Pennsylvania

Parent to Parent of Pennsylvania Parent to Parent of Pennsylvania connects families of children with disabilities or special needs on a one to one basis according to conditions or concerns.

Established in 1996, Parent to Parent of PA is a statewide agency that links families of children with disabilities or special needs for the purposes of support and information. Our regional offices are located throughout the state of Pennsylvania. Requests for matches can be made via phone, email, or our website. Based on your individual needs, we will link you to a volunteer peer supporter. They are the lifeline of the program. They have experienced the joys and challenges of living with individuals with a disability or special need. Currently, we have 1,365 ready to share their stories.

Operating as usual

Scary Mommy
11/22/2020

Scary Mommy

This might be the most important parenting advice ever.

(www.instagram.com/scarymommy)

11/19/2020
The Pennsylvania Department of Education, Bureau of Special Education is pleased to announce the following training oppo...
11/19/2020

The Pennsylvania Department of Education, Bureau of Special Education is pleased to announce the following training opportunity:

Open Hands Open Access Deaf-Blind Intervener Learning Module Training Kick Off

Dates and Locations:
January 7, 2021 - Webinar

Time:
9:00am – 3:00pm

The Open Hands Open Access (OHOA) Deaf-Blind Intervener Learning Modules are a national resource designed to increase awareness, knowledge, and skills related to intervention for students who are deaf-blind and are being served in educational settings. This program will be hosted throughout the school year by the PA Deaf-Blind Project for both educational teams and interested individual participants with the desire to understand the unique educational needs of students who experience deaf-blindness. Participants must commit to the entire training program. This session will introduce the individual modules and describe timelines, organization and training guidelines.

Presenters: Tina Hertzog and Patti McGowan

Audience: Teams and Individuals working and/or interested in professional development for students who are deaf-blind, including parents, teachers, paraprofessionals, administrators, and other service providers, including those who may or may not be seeking to become interveners.

Credits: Act 48 Clock hours; RID; Hours of Instructional time

Registration Information:
You may register online by clicking on the name of the event on the Training Events Calendar at: https://www.pattan.net/events/

For content related information and questions, please contact Sue Ann Houser, Educational Consultant at [email protected].

For general registration information and questions, please contact Lorraine Byer, Support Staff, PaTTAN East at [email protected].

11/19/2020
United Way of Lancaster County, PA
11/16/2020

United Way of Lancaster County, PA

Do you know someone in Lancaster County who needs a new heating system? #WarmHomeWarmHearts is here to help! United Way of Lancaster County and Ranck Plumbing, Heating & Air Conditioning are teaming up to donate and install a free heating system to a local household.

It’s often a friend or family member who is able to best identify the person needing a hand. Nominate a friend or family member TODAY... https://www.uwlanc.org/warm-home-warm-hearts

Variety - the Children's Charity of Pittsburgh
11/16/2020

Variety - the Children's Charity of Pittsburgh

A REASON TO SMILE is seeing 13-year old Kaiden on his new adaptive bike! His mom, Lisa describes why a two wheeled bike didn’t work and how life-changing the adaptive bike will be for her son,

“We tried for several months with a two wheeled bike. Kaiden has so much pride. He tries and tries, but he’s unable to keep his balance on it. He falls but gets back up because he really would love to ride a bike. His younger sister loves to ride bikes. This would be A DREAM OF HIS to have the freedom of the wind blowing on his face and to ride a bike. Plus, the benefits it would provide in except use and strength.”
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#varietykids #mybike #adaptivebikes #pediatrictherapy #helpingkids #milesofSMILES #allfortheKIDS #pittsburgh #ridingbikes #freedom #inclusion

11/02/2020
11/02/2020
PEAL Center
10/23/2020

PEAL Center

Insider Tips on PA ABLE

Wednesday, November 18 from 11:30 a.m. – 12:15 p.m.

PA ABLE provides a way to save safely for your day-to-day purchases as well as larger goals, like a home or vacation. Learn the ins and outs of how to make this savings program work for you.

Register Here: https://patf.us/money-talks/webinars/

10/22/2020
PEAL Center
10/20/2020
PEAL Center

PEAL Center

PEAL's Director of Parent Advising Cindy Duch will be doing a presentation for University of Pittsburgh's National Rehabilitation Research and Training (RRT) Center on Family Support!

Check out her presentation, Special Education During Remote Learning, Wednesday, October 21 from 3-4 PM ET. Register below!

10/19/2020
We're happy to share this invitation from our friends at Positive Exposure, where they will be talking about empowering ...
10/15/2020

We're happy to share this invitation from our friends at Positive Exposure, where they will be talking about empowering people with limited mobility to explore and enjoy accesible leisure and travel. You can't miss it!

POSITIVE EXPOSURE Connects is back!

We're very excited for our conversation with Wheelchair Traveling tomorrow (Thursday, October 15) at 2:00 PM EST! Learn about accessible traveling and how this community is ensuring accessibility in all kinds of places for everyone!

#PositiveExposure #BetterTogether #ChangeHowYouSee #SeeHowYouChange #Traveling #AccessibleTravel #Accessibility #Camping #Glamping #Wheelchair

IMAGE DESCRIPTION: Black Background with white font. POSITIVE EXPOSURE logo is in the upper left corner. POSITIVE EXPOSURE Connects, October 15. Facebook Live with Rick Guidotti. A Conversation with Wheelchair Traveling. 2:00 PM EST. Three square images below. Each image shows a girl in a wheelchair smiling in different outdoor or city locations.

For our DHH families in NEPA, you probably know Mary Ann! She was featured in a beautiful article today in the Times-Tri...
10/12/2020
North­east Woman | The Times-Tribune

For our DHH families in NEPA, you probably know Mary Ann! She was featured in a beautiful article today in the Times-Tribune ❤️

https://www.pressreader.com/usa/the-times-tribune/20201011/282527250903734?fbclid=IwAR3o_c3JwOrgCgyWmc_yGDg20L1UCdUXx4nVvaiPvCManASkfzdtQJLELDo

Mary Ann Ste­fko looked at re­turn­ing to North­east Penn­syl­va­nia as a way to give back to the peo­ple who helped her at the start of her ca­reer. The Clarks Sum­mit na­tive, who now lives in Scran­ton, had worked for the Western Penn­syl­va­nia School for the...

10/09/2020
Free Screening for...Aromatic L-amino Acid Decarboxylase (AADC) deficiencyHi everyone,Parent to Parent USA is excited to...
10/08/2020
Diagnostic Journey

Free Screening for...
Aromatic L-amino Acid Decarboxylase (AADC) deficiency

Hi everyone,

Parent to Parent USA is excited to share a new partnership that we are embarking on with PTC Therapeutics, a manufacturer of therapies for rare diseases, to share information on a rare disease that can start out with a diagnosis of Cerebral Palsy.


When a child’s cerebral palsy goes unexplained, a rare genetic disorder may be the cause. One such rare disorder is called Aromatic L-amino Acid Decarboxylase (AADC) deficiency, which can cause hypotonia and other symptoms in children. One of our partners, PTC Therapeutics, is offering a no-cost screening program to help identify if AADC deficiency is the potential cause for your child’s cerebral palsy.



The no-cost screening for AADC deficiency is available directly through your doctor. Speak with your physician to understand if this screening is right for your family. To learn more about the screening, please visit: https://aboutaadc.com/diagnosis/diagnostic-journey/



For any questions, please reach out to [email protected]

Getting your child tested What to expect If your child has weak muscle tone and delayed development, the doctor may perform a range of tests such as an MRI, a CT scan, or an EEG to look for problems in the brain. If these tests do not seem to suggest a specific diagnosis, the doctor may do ad

10/08/2020
10/05/2020
10/03/2020
PEAL Center
10/02/2020

PEAL Center

Partnering with Parents and Caregivers to Understand and Improve Distance Learning Experiences:

Are you are a parent or caregiver of a child with extensive support needs (e.g., intellectual disability, multiple disabilities, autism and pervasive support needs.) who has been offered any form of distance learning? CSUN wants to hear about your experience! Please consider completing our 10-20 minute survey. Within the survey you may also volunteer for a 1 hour interview. Your experiences may provide valuable information to guide the design of accessible distance learning for families.

Click here to learn more! https://www.surveymonkey.com/r/COVID19_Parent_Survey

Please contact the principal investigator, Samantha Toews, from the California State University, Northridge Department of Special Education at [email protected] with any questions.

Allegheny Intermediate Unit
10/02/2020

Allegheny Intermediate Unit

Nothing is normal in the “new normal” so how can you adapt and thrive? Join us for a FREE virtual comprehensive classroom management training series that will explore how to design an effective classroom management plan for both in person and virtual settings. First session is October 9. Act 48 hours are available, register here: https://www.smore.com/3pg76

Happy October!
10/01/2020

Happy October!

Parent to Parent of Pennsylvania
09/29/2020

Parent to Parent of Pennsylvania

Save the date! Registration information to follow.

Save the date! Registration information to follow.
09/26/2020

Save the date! Registration information to follow.

PEAL Center
09/24/2020

PEAL Center

The next Eastern PA Special Needs Association (EPSNA) meeting will be held on October 22nd at 10am. Heather Hulse from McAndrews Law will present on the topic of “Navigating Special Education During COVID-19.” Heather will provide an overview of obtaining evaluations and appropriate special education services and supports during COVID-19 including appropriateness of in-person versus virtual instruction.

To RSVP, send an email to Missy Modesti at: [email protected]

Autism Navigator
09/23/2020

Autism Navigator

Did you know that autism can be diagnosed by 18-24 months? And yet, the median age of diagnosis in the US remains at 4-5 years and has not changed for over a decade. Sharpen your observation skills in our Earlier Detection of Autism webinar on Thursday, September 24th. Watch videos with us to learn what autism looks like before it is usually diagnosed.

Link to Register: https://fla.st/2FHCgzF
Date: Thursday, September 24, 2020
Time: 12:30 to 2:00pm (Eastern Time)

Webinar Agenda—Earlier Detection of Autism and Access to Care
• Strategies to collect a virtual systematic observation at home to capture social communication development and early signs of autism
• More practice detecting early red flags of autism and scoring the SORF (Systematic Observation of Red Flags) based on the DSM-5 diagnostic criteria
• Updates on Baby Navigator and Autism Navigator new online resources and how they can help families of children from birth to 24 months and beyond

This free webinar series is for diagnostic team members, interdisciplinary healthcare professionals, early intervention providers, early childhood specialists. This series is for those enrolled in our online courses for professional development and courses available to the public. We invite anyone interested to register. When you register, you will receive a confirmation email with a link to the SORF manual and other resources that we encourage you to review to get the most out of the webinar.

Don’t miss our webinar this week—there’s still room to register. Knowing the early signs of autism can make all the difference. Autism Navigator courses offer a rare collection of videos of toddlers with autism at 18-24 months, so you can learn what autism looks like before it’s usually diagnosed.

Autism Navigator is collaborating with ECHO Autism and Autism Science Foundation to bring this webinar series to you. This webinar will help you plan and conduct systematic observations with families of young children 12 to 36 months of age that can be done virtually or face to face.

The SORF is an evaluation tool used as a follow-up to a positive autism screen in primary care or for children referred to a specialty clinic for concerns about autism. Since face-to-face diagnostic evaluations may not be possible at this time, a virtual observation can provide families with a way to keep evaluation and referral going so families can access appropriate early intervention. We will show video clips from virtual observations to practice scoring autism symptoms using the SORF and have a Q&A after each agenda topic.

We cannot record our webinars because we show photos and videos of our families, so make sure to register with the link above.

Mark your calendars for the 2nd and 4th Thursdays of each month to save the dates for this webinar series. We will have new content and videos to watch together each webinar. Please share this invitation with colleagues who may have an interest in learning about using the SORF virtually to improve early detection of autism.

Help spread the word by sharing this with your friends. #autism #autismnavigator #SORF #babynavigator #16earlysignsofautism

PEAL Center
09/23/2020
PEAL Center

PEAL Center

Pennsylvania PBS, working with the Pennsylvania Department of Education, have created Learning at Home, connecting you to thousands of hours of educational and entertaining videos, activities and games to support you.

09/23/2020
Join our Cloud HD Video Meeting

Join our Cloud HD Video Meeting

Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, confer...

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6340 Flank Dr, Ste 600
Harrisburg, PA
17112

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Hey Everyone, NEPA Inclusive, located in Pittston, PA, is hosting a series of Zoom Webinars explaining how SMART Technology (Amazon Alexa, Google Home etc.) can positively affect and improve the lives of people with disabilities!!!! Our next two webinars are on November 4th and November 12th!!! Sign up and share!!! Thank you!!!   Visit the link to sign up!!!
Hey Everyone, NEPA Inclusive is hosting a series of Zoom Webinars explaining how SMART Technology (Amazon Alexa, Google Home etc.) can positively affect and improve the lives of people with disabilities!!!! Our next two webinars are on November 4th and November 12th!!! Sign up and share!!! Thank you!!!   Visit the link to sign up!!!
The Virtual Pennsylvania Walk4Hearing is Sunday, October 18th. Looking forward to seeing old friends and meeting new ones! Visit www.hearingloss.org to learn more and to register. One lucky child will win the American Girl's 2020 Girl of the Year, Joss Kendrick. Joss is a surfer and a cheerleader. She was born with hearing loss and wears a hearing aid in her right ear. Enter the Walk with Joss Kids Contest soon!
Wanted to share 2 workshops I hosted for Disability Pride Virtual PA. Our 2 children with hearing loss shared their personal experiences in high school, college and now graduate school. Please feel free to contact me if you have questions! Facebook videos Accommodations & Assistive Listening Devices for HoH Students https://www.facebook.com/342739665785204/videos/591091144941383/?__so__=channel_tab&__rv__=all_videos_card CaptionCall Workshop https://www.facebook.com/342739665785204/videos/3199853806737921/?__so__=channel_tab&__rv__=all_videos_card
Links for this previous post are now included.
Pennsylvania Bikers for Justice is working hard to help children with disabilities. Please like our page and send us any information you believe will be helpful with our efforts. https://m.facebook.com/PABIKERS4JUSTICE/
Were you matched with a P2P support parent while your child was in EI? Please consider participating in this important Parent to Parent research.
We want you to join PIHEC and LCCC on Friday, November 16 at Lehigh Carbon Community College Schnecksville campus for: The Fall 2018 Symposium; Envisioning Possibilities, Eliminating Barriers, Building Capacity Don't let a registration fee stop you, scholarships available! Students, Faculty/Staff, administration, families, and community partners from across Pennsylvania will come together to share their experiences along with best practices of developing and implementing authentic inclusive post-secondary education opportunities for ALL… Breakfast and lunch are included. Topics to be discussed are: Personal reflection of college students in inclusive postsecondary education UDL, methods, practice, tools for diverse learners High School Steps That Lead to College The college search Expanding Opportunity, Building Capacity, Finding Champions Facilitated small group discussions And closing plenary session Please see the attached registration flyer for more information. To register please go to: HTTPS://bit.ly/2N88syL Or for additional information please contact the consortium office at 717-871-7357 Look forward to seeing you there, Michelle
Please spread the word about this opportunity and join PIHEC and LCCC on Friday, November 16 at Lehigh Carbon Community College's Schnecksville campus for: The Fall 2018 Symposium; Envisioning Possibilities, Eliminating Barriers, Building Capacity Students, Faculty/Staff, administration, families, and community partners from across Pennsylvania will come together to share their experiences along with best practices of developing and implementing authentic inclusive post-secondary education opportunities for ALL… Breakfast and lunch are included. Topics to be discussed are: Personal reflection of college students in inclusive postsecondary education UDL, methods, practice, tools for diverse learners High School Steps That Lead to College The college search Expanding Opportunity, Building Capacity, Finding Champions Facilitated small group discussions And closing plenary session Please see the attached registration flyer for more information. To register please go to: HTTPS://bit.ly/2N88syL Or for additional information please contact the consortium office at 717-871-7357 Hotel Information: Hotel Information: Rooms are available at Holiday Inn Express & Suites Allentown West at the group rate of $105 /night for single or double occupancy for Thursday November 15. Rooms may be available before and after these dates, subject to availability. The room block expires October 16, 2018, so please reserve as soon as practical. HOLIDAY INN EXPRESS & SUITES ALLENTOWN WEST Address: 5630 Tilghman St, Allentown, PA 18104 Phone: (610) 530-5545
In Lycoming County, Pennsylvania, UDservices.org refuses to let my incapictated son change to Casey Ball Services. Tell them it's not their place to refute his compentency! (We have PoA.) Avoid UDServices at all costs!