This might be the most important parenting advice ever.
Parent to Parent of Pennsylvania connects families of children with disabilities or special needs on a one to one basis according to conditions or concerns.
Established in 1996, Parent to Parent of PA is a statewide agency that links families of children with disabilities or special needs for the purposes of support and information. Our regional offices are located throughout the state of Pennsylvania. Requests for matches can be made via phone, email, or our website. Based on your individual needs, we will link you to a volunteer peer supporter. They are the lifeline of the program. They have experienced the joys and challenges of living with individuals with a disability or special need. Currently, we have 1,365 ready to share their stories.
This might be the most important parenting advice ever.
The Pennsylvania Department of Education, Bureau of Special Education is pleased to announce the following training opportunity:
Open Hands Open Access Deaf-Blind Intervener Learning Module Training Kick Off
Dates and Locations:
January 7, 2021 - Webinar
9:00am – 3:00pm
The Open Hands Open Access (OHOA) Deaf-Blind Intervener Learning Modules are a national resource designed to increase awareness, knowledge, and skills related to intervention for students who are deaf-blind and are being served in educational settings. This program will be hosted throughout the school year by the PA Deaf-Blind Project for both educational teams and interested individual participants with the desire to understand the unique educational needs of students who experience deaf-blindness. Participants must commit to the entire training program. This session will introduce the individual modules and describe timelines, organization and training guidelines.
Presenters: Tina Hertzog and Patti McGowan
Audience: Teams and Individuals working and/or interested in professional development for students who are deaf-blind, including parents, teachers, paraprofessionals, administrators, and other service providers, including those who may or may not be seeking to become interveners.
Credits: Act 48 Clock hours; RID; Hours of Instructional time
You may register online by clicking on the name of the event on the Training Events Calendar at: https://www.pattan.net/events/
For content related information and questions, please contact Sue Ann Houser, Educational Consultant at [email protected].
For general registration information and questions, please contact Lorraine Byer, Support Staff, PaTTAN East at [email protected].
If you are interested, click the link below to register!
United Way of Lancaster County, PA
Do you know someone in Lancaster County who needs a new heating system? #WarmHomeWarmHearts is here to help! United Way of Lancaster County and Ranck Plumbing, Heating & Air Conditioning are teaming up to donate and install a free heating system to a local household.
It’s often a friend or family member who is able to best identify the person needing a hand. Nominate a friend or family member TODAY... https://www.uwlanc.org/warm-home-warm-hearts
Variety - the Children's Charity of Pittsburgh
A REASON TO SMILE is seeing 13-year old Kaiden on his new adaptive bike! His mom, Lisa describes why a two wheeled bike didn’t work and how life-changing the adaptive bike will be for her son,
“We tried for several months with a two wheeled bike. Kaiden has so much pride. He tries and tries, but he’s unable to keep his balance on it. He falls but gets back up because he really would love to ride a bike. His younger sister loves to ride bikes. This would be A DREAM OF HIS to have the freedom of the wind blowing on his face and to ride a bike. Plus, the benefits it would provide in except use and strength.”
#varietykids #mybike #adaptivebikes #pediatrictherapy #helpingkids #milesofSMILES #allfortheKIDS #pittsburgh #ridingbikes #freedom #inclusion
Meeting ID: 867 3019 0846
Join Zoom Meeting:
Join by Phone:
P2P USA Partnership - https://mailchi.mp/a088c85eb4ae/p2p-usa-announces-partnership
A program of the Tuscarora Intermediate Unit an EOE Funded by the PA Department of Education and The PA Department of Human Services, Office of Child Development and Early Learning, (OCDEL)
Insider Tips on PA ABLE
Wednesday, November 18 from 11:30 a.m. – 12:15 p.m.
PA ABLE provides a way to save safely for your day-to-day purchases as well as larger goals, like a home or vacation. Learn the ins and outs of how to make this savings program work for you.
Register Here: https://patf.us/money-talks/webinars/
PEAL's Director of Parent Advising Cindy Duch will be doing a presentation for University of Pittsburgh's National Rehabilitation Research and Training (RRT) Center on Family Support!
Check out her presentation, Special Education During Remote Learning, Wednesday, October 21 from 3-4 PM ET. Register below!
The Arc Lancaster Lebanon PA
Tonight at 6 pm: Return to School COVID Guidance
Join the associates from Bradley Goldsmith on Zoom as they discuss guidance from the US and PA Department of Education, and how it relates to:
– IEP rights
– Compensatory Services
– School closures
To attend the training, please click this link at the scheduled event time: https://us02web.zoom.us/j/4983645800?pwd=UVg0enYxRXEzRDBTYTF5VE9SQ2JrZz09
We're happy to share this invitation from our friends at Positive Exposure, where they will be talking about empowering people with limited mobility to explore and enjoy accesible leisure and travel. You can't miss it!
POSITIVE EXPOSURE Connects is back!
We're very excited for our conversation with Wheelchair Traveling tomorrow (Thursday, October 15) at 2:00 PM EST! Learn about accessible traveling and how this community is ensuring accessibility in all kinds of places for everyone!
#PositiveExposure #BetterTogether #ChangeHowYouSee #SeeHowYouChange #Traveling #AccessibleTravel #Accessibility #Camping #Glamping #Wheelchair
IMAGE DESCRIPTION: Black Background with white font. POSITIVE EXPOSURE logo is in the upper left corner. POSITIVE EXPOSURE Connects, October 15. Facebook Live with Rick Guidotti. A Conversation with Wheelchair Traveling. 2:00 PM EST. Three square images below. Each image shows a girl in a wheelchair smiling in different outdoor or city locations.
For our DHH families in NEPA, you probably know Mary Ann! She was featured in a beautiful article today in the Times-Tribune ❤️
Mary Ann Stefko looked at returning to Northeast Pennsylvania as a way to give back to the people who helped her at the start of her career. The Clarks Summit native, who now lives in Scranton, had worked for the Western Pennsylvania School for the...
Free Screening for...
Aromatic L-amino Acid Decarboxylase (AADC) deficiency
Parent to Parent USA is excited to share a new partnership that we are embarking on with PTC Therapeutics, a manufacturer of therapies for rare diseases, to share information on a rare disease that can start out with a diagnosis of Cerebral Palsy.
When a child’s cerebral palsy goes unexplained, a rare genetic disorder may be the cause. One such rare disorder is called Aromatic L-amino Acid Decarboxylase (AADC) deficiency, which can cause hypotonia and other symptoms in children. One of our partners, PTC Therapeutics, is offering a no-cost screening program to help identify if AADC deficiency is the potential cause for your child’s cerebral palsy.
The no-cost screening for AADC deficiency is available directly through your doctor. Speak with your physician to understand if this screening is right for your family. To learn more about the screening, please visit: https://aboutaadc.com/diagnosis/diagnostic-journey/
For any questions, please reach out to [email protected]
Getting your child tested What to expect If your child has weak muscle tone and delayed development, the doctor may perform a range of tests such as an MRI, a CT scan, or an EEG to look for problems in the brain. If these tests do not seem to suggest a specific diagnosis, the doctor may do ad
Partnering with Parents and Caregivers to Understand and Improve Distance Learning Experiences:
Are you are a parent or caregiver of a child with extensive support needs (e.g., intellectual disability, multiple disabilities, autism and pervasive support needs.) who has been offered any form of distance learning? CSUN wants to hear about your experience! Please consider completing our 10-20 minute survey. Within the survey you may also volunteer for a 1 hour interview. Your experiences may provide valuable information to guide the design of accessible distance learning for families.
Click here to learn more! https://www.surveymonkey.com/r/COVID19_Parent_Survey
Please contact the principal investigator, Samantha Toews, from the California State University, Northridge Department of Special Education at [email protected] with any questions.
Zoom’s latest accessibility features let you pin and spotlight multiple videos during calls
Getting everyone in the call, no exceptions.
Allegheny Intermediate Unit
Nothing is normal in the “new normal” so how can you adapt and thrive? Join us for a FREE virtual comprehensive classroom management training series that will explore how to design an effective classroom management plan for both in person and virtual settings. First session is October 9. Act 48 hours are available, register here: https://www.smore.com/3pg76
Parent to Parent of Pennsylvania
Save the date! Registration information to follow.
Save the date! Registration information to follow.
The next Eastern PA Special Needs Association (EPSNA) meeting will be held on October 22nd at 10am. Heather Hulse from McAndrews Law will present on the topic of “Navigating Special Education During COVID-19.” Heather will provide an overview of obtaining evaluations and appropriate special education services and supports during COVID-19 including appropriateness of in-person versus virtual instruction.
To RSVP, send an email to Missy Modesti at: [email protected]
Did you know that autism can be diagnosed by 18-24 months? And yet, the median age of diagnosis in the US remains at 4-5 years and has not changed for over a decade. Sharpen your observation skills in our Earlier Detection of Autism webinar on Thursday, September 24th. Watch videos with us to learn what autism looks like before it is usually diagnosed.
Link to Register: https://fla.st/2FHCgzF
Date: Thursday, September 24, 2020
Time: 12:30 to 2:00pm (Eastern Time)
Webinar Agenda—Earlier Detection of Autism and Access to Care
• Strategies to collect a virtual systematic observation at home to capture social communication development and early signs of autism
• More practice detecting early red flags of autism and scoring the SORF (Systematic Observation of Red Flags) based on the DSM-5 diagnostic criteria
• Updates on Baby Navigator and Autism Navigator new online resources and how they can help families of children from birth to 24 months and beyond
This free webinar series is for diagnostic team members, interdisciplinary healthcare professionals, early intervention providers, early childhood specialists. This series is for those enrolled in our online courses for professional development and courses available to the public. We invite anyone interested to register. When you register, you will receive a confirmation email with a link to the SORF manual and other resources that we encourage you to review to get the most out of the webinar.
Don’t miss our webinar this week—there’s still room to register. Knowing the early signs of autism can make all the difference. Autism Navigator courses offer a rare collection of videos of toddlers with autism at 18-24 months, so you can learn what autism looks like before it’s usually diagnosed.
Autism Navigator is collaborating with ECHO Autism and Autism Science Foundation to bring this webinar series to you. This webinar will help you plan and conduct systematic observations with families of young children 12 to 36 months of age that can be done virtually or face to face.
The SORF is an evaluation tool used as a follow-up to a positive autism screen in primary care or for children referred to a specialty clinic for concerns about autism. Since face-to-face diagnostic evaluations may not be possible at this time, a virtual observation can provide families with a way to keep evaluation and referral going so families can access appropriate early intervention. We will show video clips from virtual observations to practice scoring autism symptoms using the SORF and have a Q&A after each agenda topic.
We cannot record our webinars because we show photos and videos of our families, so make sure to register with the link above.
Mark your calendars for the 2nd and 4th Thursdays of each month to save the dates for this webinar series. We will have new content and videos to watch together each webinar. Please share this invitation with colleagues who may have an interest in learning about using the SORF virtually to improve early detection of autism.
Help spread the word by sharing this with your friends. #autism #autismnavigator #SORF #babynavigator #16earlysignsofautism
Pennsylvania PBS, working with the Pennsylvania Department of Education, have created Learning at Home, connecting you to thousands of hours of educational and entertaining videos, activities and games to support you.
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, confer...
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