Parent to Parent of Pennsylvania

Parent to Parent of Pennsylvania Parent to Parent of Pennsylvania connects families of children with disabilities or special needs on a one to one basis according to conditions or concerns.
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Established in 1996, Parent to Parent of PA is a statewide agency that links families of children with disabilities or special needs for the purposes of support and information. Our regional offices are located throughout the state of Pennsylvania. Requests for matches can be made via phone, email, or our website. Based on your individual needs, we will link you to a volunteer peer supporter. The

Established in 1996, Parent to Parent of PA is a statewide agency that links families of children with disabilities or special needs for the purposes of support and information. Our regional offices are located throughout the state of Pennsylvania. Requests for matches can be made via phone, email, or our website. Based on your individual needs, we will link you to a volunteer peer supporter. The

Operating as usual

09/03/2021

Missed our last webinar on #SupportedDecisionMaking with Jonathan Martinis from the Burton Blatt Institute?
The full recording and presentation slides are now available on-demand on the National Resource Center for Supported Decision-Making's website. This is a must-see!
http://www.supporteddecisionmaking.org/webinar-series-p2p

09/02/2021
08/26/2021
Congrats to the Lancaster LICC. Very creative way to meet families were they are!The Lancaster County LICC created this ...
08/19/2021
2020-21 LICC Resource Fair

Congrats to the Lancaster LICC. Very creative way to meet families were they are!

The Lancaster County LICC created this Virtual Resource Fair for families of children in Early Intervention. This collaborative effort with parents, professionals, and community partners will be a valuable resource for families of young children now and in the future.

https://bit.ly/LICCVirtualResourceFair2021

Thank you for attending our virtual resource fair sponsored by Lancaster Interagency Coordinating Council A network of parents, professionals, and community agencies that support Early Intervention services for infants, toddlers, preschoolers, and their families. Through the engagement of communi...

The Essentials of IEP WritingThe Pennsylvania Department of Education, Bureau of Special Education is pleased to announc...
08/19/2021
PaTTAN - Events

The Essentials of IEP Writing

The Pennsylvania Department of Education, Bureau of Special Education is pleased to announce the following online course opportunity:

The Essentials of IEP Writing

August 16, 2021 – September 27, 2021,

November 8, 2021 – December 20, 2021,

January 24, 2022 – March 7, 2022,

March 28, 2022 – May 9, 2022,

This PaTTAN-developed self-paced online course provides instruction on writing an Individualized Education Program (IEP).
Through the use of videos, audio PowerPoints, and PaTTAN publications, participants will complete modules on common terminology, leading IEP team meetings, and sections I-VII of the IEP.

Target Audience:
Special Education Teachers, Administrators, General Education Teachers, Parents

Registration:
All participants should register for this PaTTAN-sponsored event by visiting our website at https://www.pattan.net/events/

You will receive directions regarding how to access The Essential of IEP Writing a few days before the course is scheduled to begin.

Participants must complete all twelve modules and complete the quiz in order to receive Act 48 Professional Education hours.

There is no cost for this course.

For questions about registration, contact:
Karen Weaver, PaTTAN Pittsburgh, 412-826-6842, [email protected]

For questions regarding content, contact:
Cecil Crouch, PaTTAN Pittsburgh, 412-826-6866, [email protected]

PLEASE PASS ON THIS INFORMATION TO ANY AND ALL and/or
POST IT FOR ALL TO SEE!
Thank you for helping to spread the word!!

PLEASE NOTE: PaTTAN has implemented a single-sign-on system for both the new website and our online registration system for events. If you already have a user name and password to register for trainings, use those same credentials here to login.

08/17/2021
08/17/2021
Jungle Cruise | Official Trailer 2
08/04/2021
Jungle Cruise | Official Trailer 2

Jungle Cruise | Official Trailer 2

This summer, join Dwayne Johnson and Emily Blunt on the adventure of a lifetime. 🚢 Watch the new trailer for Disney’s Jungle Cruise and see the movie in the...

08/04/2021

SUPPORTED DECISION MAKING- Health Care and Life Planning: https://bit.ly/sdm-webinar-080521

Parent to Parent USA invites you to join us along with our partners at the Burton Blatt Institute for our next webinar on Supported Decision making presented by guardianship guru Jonathan Martinis. The third in our series, “Supported Decision-Making in Health Care and Life Planning,” is scheduled for 8/5 at 4:00pm EST.

Supported Decision-Making is a way for people with disabilities to make their own decisions, with support from people they trust, and be more in control of their lives and rights. In this session, we’ll discuss ways for people to use Supported Decision-Making to play a lead role in their health care, money management, and other important life areas.

This free webinar is open to staff, families, and Parent to Parent supporters nationwide and will be recorded. Registration is required: https://bit.ly/sdm-webinar-0805

Request for EI family input on progress monitoring  Dear Families,We are looking for a couple families who currently hav...
07/26/2021
Home - Early Intervention Technical Assistance Online Learning Portal

Request for EI family input on progress monitoring


Dear Families,

We are looking for a couple families who currently have a child in Early Intervention to make a 2-3 minute video of a positive experience with IFSP/IEP Progress Monitoring. Your story will be shared with EI program administrators as part of a EI Leadership podcast series. We will provide tech tips on how to record the video as well as guiding questions to support your story.

Examples of stories may be:

-How your child’s team clearly explained how your child was meeting or not meeting his/her Outcomes/Goals and provided understandable answers to any questions you had.

-Ways you stayed connected to your child’s team to understand how he/she was doing (making progress) in between Quarterly Updates or IEP meetings.

-How your child’s team showed and explained a visual representation (graph or chart) of your child’s data to enhance the discussion about his/her progress

-How your child’s team responded to your concern or addressed your frustration about why your child was not making progress.
We can provide a $25 honorarium to complete this activity.

If you are interested or have any questions, please contact Mary Mikus at [email protected] by Wednesday, July 28th . After you reply, we will set up a time to talk further.

Thanks for your interest.

Mary

Mary Mikus|EITA Consultant
Early Intervention Technical Assistance | Pennsylvania Training and Technical Assistance Network
333 Technology Drive | Malvern, PA 19355
610-878-7209 (direct line) | 800-441-3215 ext. 7209 | 610-265-5737 (fax)
www.pattan.net www.eita-pa.org

Resources to Support Early Intervention Work During COVID-19 Resources to Support Families During COVID-19 Take a visual tour of our EITA Portal! Assistive Technology Autism Coaching and Collaborative Partnerships Dual Language Learners Early Language and Literacy Inclusion Leadership Low Incidence....

07/22/2021

The Newborn Screening Family Education Program, a core program of Expecting Health, is excited to share with you the recordings of our recent webinar series, From Emergency to Everyday: Reflections on a Year of COVID-19 in Newborn Screening.

In this series, we brought together the newborn screening community to discuss what we can "start, stop, and continue" doing to support families through future health emergencies. Check out some of the strategies that we discussed by watching the recordings on YouTube: https://bit.ly/3wJfVq0

Timeline Photos
07/22/2021

Timeline Photos

07/22/2021
07/20/2021
Autism families! If you have a loved one on the spectrum around high school or older, you might be interested in this wo...
07/11/2021

Autism families! If you have a loved one on the spectrum around high school or older, you might be interested in this workshop by and fit autistic people.

07/07/2021
07/07/2021
Easton area families, check out this Open House craft day!!
07/06/2021

Easton area families, check out this Open House craft day!!

Easton area families, check out this Open House craft day!!

07/06/2021

Increased Access to Communities

Settlement of Lawsuit Gives People with Mobility Impairments Greater Access to their Communities

Harrisburg, PA | Following a class-action lawsuit filed by Disability Rights Pennsylvania, removable medical equipment, such as wheelchair ramps, wheelchair lifts, ceiling lifts, and stair glides, is now covered under Medicaid for children and adults with mobility impairments.

The lawsuit filed on behalf of a class of children in June 2018, B.B. et al v. Miller, 1:18-cv-01257 (M.D. Pa.), alleged that the Department of Human Services (DHS) violated the Social Security Act by denying requests for removable medical equipment. The lawsuit also alleged that the Defendant failed to inform the plaintiff class of the availability of such equipment under Medicaid (commonly known as Medical Assistance) and by leading youth, hospitals, equipment vendors, families, advocates, and others to believe that such devices were not covered under Medical Assistance.

The lawsuit led to a settlement which will now be submitted to the Court for approval on behalf of the plaintiff class. The settlement provides that Medical Assistance now covers wheelchair lifts, stair glides, ceiling lifts, metal accessibility ramps, and other items that are used by a beneficiary with a mobility impairment to enter and exit the home or to support activities of daily living and are removable or reusable without damage to the item. Details of the settlement will be distributed in a notice to the class, and class members will be able to submit comments to the Court on the settlement as part of a hearing on the fairness of the settlement.

As part of the settlement, DHS revised its Medical Assistance regulations to reflect this new coverage, which was approved by the Federal Centers for Medicaid and Medicare Services (CMS), retroactive to April 1, 2021. The revised coverage approved by CMS applies not only to the children in the plaintiff class, but to all Medical Assistance recipients in Pennsylvania, regardless of age.

Kelly Darr, Legal Director for Disability Rights Pennsylvania said, “Medical Assistance coverage of this equipment is essential to ensure that people with disabilities have access to their communities. Pennsylvanians enrolled in Medical Assistance who need this equipment should request it even if they have been denied or told that the equipment was not covered in past.”

For more information on the new Medical Assistance regulations, contact Disability Rights Pennsylvania by calling 800-692-7443, Option 6, or sending an email to [email protected].

Disability Rights Pennsylvania
301 Chestnut Street Suite 300 | Harrisburg, Pennsylvania 17101
800-692-7443 | [email protected]

Great news!!
07/01/2021

Great news!!

Great news!!

Timeline Photos
06/22/2021

Timeline Photos

On July 15th, nearly all working families will start seeing $250 to $300 per child automatically deposited in their bank accounts or sent to their mailboxes. Here are some frequently asked questions about the #ChildTaxCredit:

➡️What's happening?
The American Rescue Plan increased the #ChildTaxCredit payments from $2,000 per child to $3,000 per child for children over the age of six and from $2,000 to $3,600 for children under the age of six -- and made the payments automatic and monthly for most.

➡️Who qualifies for the payments?
Nearly all families with kids will qualify. Couples making less than $150,000 and single parents making less than $112,500 qualify for the full benefit. Those with higher incomes may qualify for a smaller benefit or no benefit.

➡️Do I have to do anything to get the payments?
Nearly all working families with kids will get the Child Tax Credit automatically. If you filed your 2019 or 2020 tax return, or if you signed up for stimulus payments using the IRS's Non-filer tool last year, you're all set.

➡️What if I didn't file taxes?
For those who didn't earn enough income to be required to pay taxes, you can use the Non-Filers tool to sign up for the Child Tax Credit.
If you're late filing taxes, you can still file a return to get monthly Child Tax Credit payments in 2021.

➡️Can we get these benefits after 2021?
The new Child Tax Credit enacted in the American Rescue Plan is only for 2021 -- but President Biden's American Families Plan proposes extending the credit for years and years to come.

Learn more about the #ChildTaxCredit and spread the word at childtaxcredit.gov

Photos from Tech OWL - Technology for Our Whole Lives's post
06/22/2021

Photos from Tech OWL - Technology for Our Whole Lives's post

The Rise of the Hands-On Dads
06/21/2021
The Rise of the Hands-On Dads

The Rise of the Hands-On Dads

Gender roles in parenting have evolved over the years. Get ideas from other fathers on how to be more active in your child's recovery.

Timeline Photos
06/15/2021

Timeline Photos

TIU 11 is pleased to announce our first Science Summer Camp for children ages 8-13. Science Camp will be held 9:00 am – 3:00 pm Tuesday, July 6th – Friday, July 9th, 2021.

On Friday, camp will end at 2:00 pm. Our first three days of camp will be held at TIU 11’s Spark Lab. The final day includes outside field experience at Riverside Park in Mount Union. Broad topics this summer include: Pollinators Need Our Help!, Space Exploration and Things That Move. While we can predict that our campers will design and create models from recyclables, create their own website, create a simple computer game or plan missions, we want our campers to have the voice, choice and space to design and create a project of their own. Each camper will receive a micro:bit to add a computer program to enhance their project.

- Cost for camp is $155 per camper and includes all supplies, small electronic components and a micro:bit.

- Transportation to and from TIU 11 and Riverside Park is the responsibility of families.

- Maximum campers – 24 and minimum campers – 10

- TIU 11 Science Camp will be implementing the CDC Guidance for Operating Youth Camps.

- Up to 24 campers will be selected and others placed on a waiting list. You will be notified no later than Wednesday, June 30th if your child(ren) have been selected to attend Science Camp.

Register @ https://stem.tiu11.org/2021sciencesummercamp/

Timeline Photos
06/15/2021

Timeline Photos

Come out and have fun bowling at the Freeland Y!

06/15/2021
Welcome! You are invited to join a meeting: HCBS update for parents and families. After registering, you will receive a ...
06/11/2021
Welcome! You are invited to join a meeting: HCBS update for parents and families. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: HCBS update for parents and families. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: HCBS update for parents and families. After registering, you will receive a confirmation email about joining the meeting.

06/11/2021

Starts Monday! We are excited to announce our new summer food program, Well Fed, Well Read Program, for kids. In partnership with McBride Memorial Library, we can feed bodies and build success this summer. Begins June 14, noon-1:00pm!

Timeline Photos
06/09/2021

Timeline Photos

🗣 ¡La encuesta familiar de intervención tempranaya está disponible!
Familias,
su voz es importante!

Todas las respuestas se agruparán con otras del estado y árealocal, y todas las respuestas serán confidenciales.

Las respuestas de la encuesta se utilizarán a nivel estatal y localpara informar a los Servicios y Apoyo de Intervención Temprana.

Realice la encuesta en:⬇

https://www.surveymonkey.com/r/FamSurSpan2021

o use el QR en su teléfono o tableta.

Address

6340 Flank Dr, Ste 600
Harrisburg, PA
17112

General information

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Come join the #CaregiveBakery special event - tomorrow, Wednesday, May 19, 1:00ET where I will be host to Icylee Basketbill, Candy Nixon and Elissa Lewin from #NancysHouse. We will have a lively and informative discussion about the lives of parents of children who recognize that #AbilitiesOutweighDisabilities Register now to join us tomorrow: https://zoom.us/.../tJMtc--urD0jE9dZIyHleLckn_wB-som2kzy After you register you will receive the link to come join us. I'm looking forward to meeting you tomorrow.
Please join us tomorrow, Wednesday, May 19, 1:00 ET at #TheSweetSpot - a Zoom Special Event hosted by #TheCaregiversBakery. We will be joined by Icylee Basketbill, Candy Nixon and Elissa Lewin from #NancysHouse. Come share, learn, and connect with each other as a community of parents who understand that abilities outweigh disabilities. You must register in advance: https://zoom.us/.../tJMtc--urD0jE9dZIyHleLckn_wB-som2kzy to receive the link to join us.
Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help.
Parents of children with special needs, please help us learn how employers can be more supportive of employed caregivers by completing a brief, 10-15-minute survey! Remember to share with others who might benefit from this study as well. Follow this link to the survey: https://ecu.az1.qualtrics.com/jfe/form/SV_6hPAjYKJhAboA97
Parents of children with special needs, please help us learn how employers can be more supportive of employed caregivers by completing a brief, 10-15-minute survey! Remember to share with others who might benefit from this study as well. Follow this link to the survey: https://ecu.az1.qualtrics.com/jfe/form/SV_6hPAjYKJhAboA97
Parents of children with special needs, please help us learn how employers can be more supportive of employed caregivers by completing a brief, 10-15-minute survey! Remember to share with others who might benefit from this study as well. Follow this link to the survey: https://ecu.az1.qualtrics.com/jfe/form/SV_6hPAjYKJhAboA97
Hey Everyone, NEPA Inclusive, located in Pittston, PA, is hosting a series of Zoom Webinars explaining how SMART Technology (Amazon Alexa, Google Home etc.) can positively affect and improve the lives of people with disabilities!!!! Our next two webinars are on November 4th and November 12th!!! Sign up and share!!! Thank you!!!   Visit the link to sign up!!!
Hey Everyone, NEPA Inclusive is hosting a series of Zoom Webinars explaining how SMART Technology (Amazon Alexa, Google Home etc.) can positively affect and improve the lives of people with disabilities!!!! Our next two webinars are on November 4th and November 12th!!! Sign up and share!!! Thank you!!!   Visit the link to sign up!!!
The Virtual Pennsylvania Walk4Hearing is Sunday, October 18th. Looking forward to seeing old friends and meeting new ones! Visit www.hearingloss.org to learn more and to register. One lucky child will win the American Girl's 2020 Girl of the Year, Joss Kendrick. Joss is a surfer and a cheerleader. She was born with hearing loss and wears a hearing aid in her right ear. Enter the Walk with Joss Kids Contest soon!
Wanted to share 2 workshops I hosted for Disability Pride Virtual PA. Our 2 children with hearing loss shared their personal experiences in high school, college and now graduate school. Please feel free to contact me if you have questions! Facebook videos Accommodations & Assistive Listening Devices for HoH Students https://www.facebook.com/342739665785204/videos/591091144941383/?__so__=channel_tab&__rv__=all_videos_card CaptionCall Workshop https://www.facebook.com/342739665785204/videos/3199853806737921/?__so__=channel_tab&__rv__=all_videos_card