03/30/2026
Let's bring Connecticut into the 21st Century!
In 1981, the United States redefined "developmental disability" in terms of functional needs instead of select clinical diagnoses. Since then, all other states have adopted functional definitions for disability, while Connecticut has held to archaic medical criteria for eligibility. The Land of Steady Habits.
If you are in need of assistance with Activities of Daily Living (ADL), Instrumental Activities of Daily Living (IADL), or you need any Home and Community Based Service (HCBS) as determined by a standard functional assessment such as the Katz Index, Lawton IADL Scale, or the Diagnostic Adaptive Behavior Scale, then it really should not matter what "disease" you have or not. Assistance should be rationed in accordance with individual level of need, not by categorical presumptions about medical diagnoses.
Connecticut House Bill No. 5557 is a start. This bill would align the definition of "intellectual disability" in Connecticut General Statutes with the meaning as provided in the DSM-5, which now encourages a more comprehensive view of the individual. Then the State could adopt standard functional assessments to ensure that those with the greatest needs are served, regardless of clinical labels.
Let's do this now. It's the right thing.