Missouri Developmental Disabilities Council

Missouri Developmental Disabilities Council MODDC is federally-funded and directed by a Council of 25 self-advocates and family members. Comments should be respectful and promote accurate information.

This is a non-partisan space to share resources, inspire advocacy, and connect. MODDC reserves the right to determine if comments fit within our guidelines. Content that is assessed to be disrespectful or promotes misinformation will be removed. The council's mission is to assist individuals, families, and the community to include all people with developmental disabilities in every aspect of life.

Values Statement:
MODDC cares about what people with developmental disabilities and their families go through in their everyday lives. MODDC works hard to make a difference by standing up for what we believe in and improving disability systems. In our work, we advocate for and expect the following:

Collaboration: Collaboration means working with others on the same goal to get something done. Empowerment: Empowerment means people having the confidence to make choices and taking action in their lives. Equity: Equity means everyone gets what they need to succeed, not just the same things. This is because everyone is different and has different needs. Fulfilled, dignified lives: This means:
• Being treated with respect.
• Being valued for who you are.
• Having the chance to make choices and living your life to the fullest. Inclusion: Inclusion means everyone feels welcome and part of the group. Everyone has the chance to participate and learn. Integration: Integration means people with disabilities having the same rights and access to community resources as anyone else.
• Neighborhood
• School
• Work
• Transportation
• Recreation

Leadership: Leadership means a person or group that gets people excited to work together, to get something done. Opportunity: Opportunity means everyone has the chance to do something they want to do. The chance to be a part of something and to be your best. Respect for lived experienced: This means a person’s life story is:
• Important to hear and understand.
• The person’s truthful view of the situation.
• Just as important as anyone else’s life story.

06/17/2026

Missouri DD Community, you are invited to join us for Coffee for Change, a new advocacy and networking event!

Coffee for Change is an event series for people with DD and their families to network, learn about policy issues, and explore ways to get involved with advocacy.

Join us for our next event in Kansas City!

Date: July 10, 2026
Time: 9AM CT
Location:
Eitas Corporate Office
8511 Hillcrest Road
Kansas City, MO 64138

Sign up link: https://bit.ly/4wWPVYq

Visit the Coffee for Change page on our website to learn more and find the newest event dates: https://bit.ly/CoffeeforChange

The Olmstead Decision: What is it, what does it mean, and why does it matter?People with disabilities should have the sa...
06/16/2026

The Olmstead Decision: What is it, what does it mean, and why does it matter?

People with disabilities should have the same opportunities as anyone else to live their best lives. They should have the supports they need to live in the community of their choice.

This includes public spaces, housing opportunities, education, and work. Before Olmstead, these rights of people with disabilities were not protected by law.

Swipe through to learn more about the Olmstead Decision, a 1999 Supreme Court decision establishing the rights of people with disabilities to live a full life in their community.

Visit our website and read the full Olmstead White Paper here:https://moddcouncil.org/wp-content/uploads/2025/05/MO-Olmstead-White-Paper.pdf

 : Advisory groups like the Medicaid Advisory Committee (MAC) and Beneficiary Advisory Committee (BAC) exist so people w...
06/05/2026

: Advisory groups like the Medicaid Advisory Committee (MAC) and Beneficiary Advisory Committee (BAC) exist so people with disabilities and families can help shape Medicaid services. In Missouri, the BAC is called MO HealthNet Community Connection (MCC).

At least 25% of the MAC members are people who serve on the BAC to help create change for Missouri Medicaid services.

Your voice belongs at the table.

Read more here: https://mydss.mo.gov/mhd/community-connection

Missouri DD Council's Medicaid Advocacy NOFA ends on June 8th — just a few days a way!MODDC is accepting applications fo...
06/03/2026

Missouri DD Council's Medicaid Advocacy NOFA ends on June 8th — just a few days a way!

MODDC is accepting applications for a two-year project to support Medicaid advocacy for Missourians with intellectual and developmental disabilities (I/DD) and their families.

Application Deadline: June 8, 2026

Learn more: https://moddcouncil.org/grants-nofas/

06/01/2026

Missouri DD Community, you are invited to join us for Coffee for Change, a new advocacy and networking event!

Coffee for Change is an event series for people with intellectual and developmental disabilities (I/DD) and their families to network, learn about policy issues, and explore ways to get involved with advocacy.

Our first event will be in Perryville, with more events planned across the state through October.

Date: June 3, 2026
Time: 10AM CT
Location: Robinson Construction Event Center, 2411 Walters Lane, Perryville, MO 63775
Sign up link: https://bit.ly/MODDCPerryville

Visit the Coffee for Change page on our website to learn more and find the newest event dates: https://bit.ly/CoffeeforChange

MODDC has always partnered with federal and state administrations. We appreciate the current administration’s desire to ...
05/29/2026

MODDC has always partnered with federal and state administrations. We appreciate the current administration’s desire to continue to work with us. MODDC is concerned that Missouri is a part of a lawsuit that could hurt the rights of people with developmental disabilities. If the lawsuit is successful, it will negatively impact Missourians with disabilities and their right to live and receive services in their own communities.

Texas v. Kennedy is the name of the lawsuit. Missouri is 1 of the 7 states in the lawsuit. The lawsuit is trying to stop a rule that helps people with disabilities be part of their communities. The rule comes from an important law called Section 504 and a Supreme Court decision called Olmstead v. L.C. These protections make sure people with disabilities can live where they want, have jobs, and join in community activities. If Missouri wins the lawsuit, it could take away these important rights and make life harder for people with disabilities.

How to share your thoughts:

Use MODDC's Fast Democracy Action Alert Link to advocate to Attorney General Hannaway and Governor Mike Kehoe.
Link: https://fastdemocracy.com/campaigns/i9dEeSbKI/MO-Needs-to-Avoid-Unintended-Outcomes-of-the-Texas-v--Kennedy-Lawsuit

- Explain why this lawsuit could have a negative impact on people with disabilities.
- Share how it could affect people with disabilities' access to their services and health care needs.

If you would like to learn more, visit MODDC’s website: https://moddcouncil.org/our-work/position-statements/texas-v-kennedy/

The Texas v. Kennedy lawsuit (also known as the 504 lawsuit) will hurt the rights of people with disabilities in Missouri. The lawsuit tries to stop a rule that helps people with disabilities live, work, and get services in their own communities. This rule is based on Section 504 and a Supreme Court...

Missouri DD Council's Medicaid Advocacy NOFA closes in two weeks!MODDC is currently accepting applications for a two-yea...
05/27/2026

Missouri DD Council's Medicaid Advocacy NOFA closes in two weeks!

MODDC is currently accepting applications for a two-year project to support Medicaid advocacy for Missourians with intellectual and developmental disabilities (I/DD) and their families.

Application Deadline: June 8, 2026

Learn more: https://moddcouncil.org/grants-nofas/

Nicole from empower: abilities recently tried out a new driving simulator during the organization’s annual meeting.The s...
05/20/2026

Nicole from empower: abilities recently tried out a new driving simulator during the organization’s annual meeting.

The simulator is part of Road Ready Transportation Training, a partnership between empower: abilities and MODDC. The program helps people with developmental disabilities build confidence and learn safe, independent transportation skills through hands-on training.

empower: abilities is a Center for Independent Living that serves people with all types of disabilities across southwest Missouri.

Pictured: Jada Turley-Winchester (MODDC staff), Angelica Fisher (empower: abilities Director of Independent Living Services), and Nicole Rokusek (Youth Specialist)

Address

1706 East Elm Street, P. O. Box 687
Jefferson City, MO
65102

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