Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

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Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA's mission is to provide support, education, and hope to everyone affected by CRPS.

09/01/2026

🔹 All Ages🔹 Countless Diagnoses🔹 Millions of Stories🔹 One Movement 🔹

Pain looks different for everyone. But the need to be seen, heard, understood, and supported connects us all.

This Pain Awareness Month, we’re bringing together millions of individual experiences to create —a collective voice too powerful to ignore.

Your story matters. Your voice matters. And together, our voices can create change.

This September, join the movement. Share. Learn. Speak out.

—together.

Follow along all month: https://uspainfoundation.org/painawarenessmonth

08/31/2026

As of Monday, August 31st, Ambros Therapeutics' neridronate trial now has 24 sites.

Visit crps-rise.com for more details as well as their study page on the ClinicalTrials.gov website (https://bit.ly/4u7YSfa) as new trial sites are rolling out weekly!

This is *not* RSDSA’s study. Please direct study questions and comments to [email protected].

→ Phoenix, AZ
→ Tucson, AZ
→ La Jolla, CA (new)
→ Napa, CA
→ Pasadena, CA
→ Tustin, CA
→ Washington, DC
→ Brandon, FL
→ Daytona Beach, FL
→ Pembroke Pines, FL
→ Lawrenceville, GA
→ Newnan, GA
→ Chicago, IL
→ Orland Park, IL
→ Overland Park, KS (new)
→ Reno, NV
→ Shrewsbury, NJ
→ Charlotte, NC
→ Wilmington, NC
→ Winston-Salem, NC
→ Dayton, OH (new)
→ Fort Worth, Texas
→ Houston, TX
→ Charlottesville, VA

08/18/2026

THIS SUNDAY! | If you're in the Myrtle Beach, SC area, the Myrtle Beach Pelicans vs. Fayetteville Woodpeckers Game Fundraiser will take place this Sunday, August 23rd at 6:35PM. It will be a great opportunity to connect with others who have while enjoying America's pastime. ⚾️

Learn more inside the Facebook event! ↓

08/14/2026

Watch as our guests answer your questions related to having surgery when you have a CRPS diagnosis.

Dr. Joshua Prager is a distinguished board-certified pain medicine physician at the California Pain Medicine Center in Santa Monica. His professional activities include chairing and participating in evidence-based guideline projects, developing a revised treatment algorithm for CRPS, and serving on the RSDSA Board of Directors. He is also analyzing data on managing ketamine infusion side effects for treating CRPS and depression.

Dr. Salim Hayek is the Chief of the Division of Pain Medicine at University Hospitals Cleveland Medical Center and a Professor of Anesthesiology at Case Western Reserve University. He is well published and serves on the editorial board of most pain journals. Dr. Hayek has had a number of service accomplishments at the local and national levels including being the former president of the North American Neuromodulation Society.

Learn more about RSDSA at rsds.org.

08/14/2026

We are so excited for today’s Facebook and YouTube Live with Joshua Prager MD, MS and Salim Hayek MD, PhD. Here are a few tips to get ready for the event on desktop and mobile:

→ Join us here on Facebook at 7p Eastern. The live will be at the top of our feed and under the Live tab. You can also watch it on YouTube and LinkedIn.

→ Come ready with your questions. We do have a set of questions we've collected ahead of time, and we will ask questions from the chat until we run out of time. Please keep your answers in the chat general and short so we can easily decipher your question in real time.

→ If you miss the live or want to watch it again later, be sure to click on the Live tab. Facebook keeps all live videos for 30 days, but it will live forever on YouTube!

→ As always, send us a message or comment below with any questions!

→ Our event is FREE. Any comments you may see about paying for the livestream are not from the RSDSA team.

08/13/2026

As of Thursday, August 13th, Ambros Therapeutics' neridronate trial now has 21 sites.

Visit crps-rise.com for more details as well as their study page on the ClinicalTrials.gov website (https://bit.ly/4u7YSfa) as new trial sites are rolling out weekly!

This is *not* RSDSA’s study. Please direct study questions and comments to [email protected].

→ Phoenix, AZ
→ Tucson, AZ
→ Napa, CA
→ Pasadena, CA
→ Tustin, CA
→ Washington, DC
→ Brandon, FL
→ Daytona Beach, FL
→ Pembroke Pines, FL
→ Lawrenceville, GA
→ Newnan, GA
→ Chicago, IL
→ Orland Park, IL
→ Reno, NV
→ Shrewsbury, NJ
→ Charlotte, NC
→ Wilmington, NC
→ Winston-Salem, NC
→ Fort Worth, Texas (new)
→ Houston, TX
→ Charlottesville, VA (new)

08/11/2026

Get ready: RSDSA's Facebook and YouTube Live with Joshua Prager MD, MS and Salim Hayek MD, PhD focused on and surgery is this Friday, August 14 at 7 PM Eastern / 4 PM Pacific.

This event will be recorded and available for replay if you can't watch it live!

08/05/2026

The August 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available: https://bit.ly/4w4yl37. This edition of In Rare Form is sponsored by Abbott.

As always we are focused on Research, Education, Support, and Community updates! A brief summary of this jam packed newsletter is below:

🔬 Research + Education 📚

RSDSA would love to learn more about our community members so we can better serve you. Please take a few minutes to complete our short demographic survey (and help us spread the word!): https://bit.ly/3Rhym5l

The Complex Regional Pain Syndrome-Relief and Improvement Study for Efficacy (CRPS-RISE) trial by Ambros Therapeutics now has 19 sites across the country. New sites are being added regularly! Click through to learn how the trial works and to see if you qualify: https://crps-rise.com

A list of additional CRPS research studies can be found on pages 3 and 4, including a paid virtual opportunity from the University of Bath.

We have two livestreams coming up! On Friday, August 14th at 7PM Eastern we have our Facebook and YouTube Live with Joshua Prager MD, MS and Salim Hayek MD, PhD focused on CRPS and surgery. This event will be recorded and available for replay if you can't make it to the livestream! Comment below with the surgery-related questions you would like them to answer.

On Tuesday, September 22nd we’ll host a livestream with Abbott on the difference between Dorsal Root Ganglion (DRG) Therapy and Spinal Cord Stimulation (SCS). More details to come!

🫂 Support + Community 🎗️

The CRPS Warriors of Florida Support Group is meeting today, Wednesday, August 5th at 4PM Eastern on Zoom. RSVP in the Facebook event to receive the Zoom link.

Fight the Flame is hosting their August CRPS Support Group Meeting this Saturday, August 8th at 1PM Eastern. To RSVP and receive the meeting link, email [email protected].

Horry & Brunswick Counties CRPS/RSD Support Group & Surrounding Area’s is hosting the Myrtle Beach Pelicans vs. Fayetteville Woodpeckers Game Fundraiser on Sunday, August 23rd. Fight the Flame is also hosting their Fight the Flame 5k and 1k Family Roll & Stroll on Sunday, September 27 in Charlotte, North Carolina.

The CRPS Connection: RSDSA's Adult Weekend Retreat (Join the Waitlist) event is sold out and currently has a waitlist. Email us at [email protected] to join the waitlist.

The 6th Annual Picklin' for a Cure Awareness and Fundraising Pickleball Tournament will take place at Udall Park in Tucson, Arizona from October 16-18, 2026.

As always, you can find a link to all of our current in-person, Zoom, Facebook, and peer support groups on page 12.

If you are interested in sponsoring a future issue of In Rare Form, please contact us at [email protected].

08/04/2026

Please join us for our August CRPS Support Group meeting.

This month, guest speaker Brendan Nolan, PT, DPT, TPS, will present:

Navigating CRPS: Clinical Insights and Considerations

This conversation will offer valuable information for people living with CRPS, caregivers, families, and others who want to better understand the condition.

📅 Saturday, August 8, 2026
⏰ 1:00–3:00 p.m. Eastern
📧 To RSVP and receive the meeting link, email [email protected]

Our support group is a welcoming place to learn, connect, ask questions, and feel understood. You are not alone.

Address

PO Box 502
Milford, CT
06460

Telephone

+18776627737

Website

http://crps.org/

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