American Academy for Cerebral Palsy & Developmental Medicine (AACPDM)

11/04/2020

Did Lockdowns Lower Premature Births? A New Study Adds Evidence

https://www.nytimes.com/2020/10/15/health/covid-premature-births-lockdown.html

Dutch researchers say the “impact was real,” adding to hopes that doctors will learn more about factors contributing to preterm birth.

11/03/2020

F-Words in Childhood Disability | CanChild

https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability?fbclid=IwAR3ZfDdYaDvwB9BNBR7Z7yIKLLfP2dh1dhWaw9ftvOZujbTdSKvYnUiJIFI

A research centre dedicated to generating knowledge & transforming lives of children and youth with developmental conditions and their families.

10/31/2020

EyeHarp

https://fb.watch/1sqMT142Su/

Joel, a 13 year old boy is playing with his eyes Hallelujah by Leonard Cohen. Accompanied by his brother Eric (guitar) and by Zacharias Vamvakousis (guitalele) through Jamulus online music playing software.
EMA - Escola Municipal de les Arts de Santa Perpètua de Mogoda

10/29/2020

Playgrounds are Boring. Here’s How to Make Them Fun Again

https://youtu.be/Y3H3BxvDkCM

One father in Portland, Oregon is helping design the parks of the future with inclusive playground equipment that makes play accessible to all. Subscribe her...

10/29/2020

10/29/2020

COVID-19 and the Disability Vote

AAPD RELEASES REPORT "COVID-19 AND THE DISABILITY VOTE" TO URGE STATES, COUNTIES, AND THE FEDERAL GOVERNMENT TO ENSURE SAFE AND ACCESSIBLE VOTING DURING THE PANDEMIC



Link

https://mailchi.mp/aapd/covid-disability-vote-report?e=8d6e651a58

WASHINGTON, DC – The American Association of People with Disabilities (AAPD) has published a nonpartisan policy report COVID-19 and the Disability Vote, urging federal, state, and local governments to take immediate action and ensure that voters can cast a ballot safely, accessibly, and securely ...

10/29/2020

Voting Is My Superpower! Voting Tips for People Living With Disabilities

"In general, people with disabilities vote less often than people without disabilities. When this happens, people with disabilities have less of a voice. Your vote matters! If you do not vote, you are letting other people make decisions for you. Some of these decisions may affect your rights and access."



Link

https://www.archives-pmr.org/article/S0003-9993(20)30168-4/abstract

Voter registration locations and processes vary by state. Check before you go to make sure that the location is doing voter registration and to confirm what documents you need to bring.

10/29/2020

'CPRN Investigator Funded for Feasibility Study'

Edward A. Hurvitz MD of Michigan Medicine, University of Michigan and Cerebral Palsy Research Network (CPRN) Executive Committee, was awarded the Foundation for Physical Medicine & Rehabilitation Gabriella Molnar grant for a project entitled "Feasibility of Adding Grip Strength Measures to Body Composition Assessments in Individuals with Cerebral Palsy." The aim of the project is to test the feasibility of adding measures such as waist-hip circumference, skinfold measures, and grip strength to a regular clinic appointment for individuals with cerebral palsy (CP) from age 8 through adulthood, and then potentially as data points in the CPRN CP Registry. The Michigan Adults with Pediatric Onset Disabilities research group has published extensively on chronic disease risk in adults with CP. Body composition and grip strength are well documented indicators for risk of morbidity and mortality in typical developing populations, and obesity has been associated with risk of multi-morbidity in adults with CP, including young adults between ages 18-40. The study will also include a history of chronic disease with an exploratory aim to correlate body composition and hand grip findings to history.
CPRN congratulates Dr. Hurvitz and his colleagues for their success in funding this research which was originally approved as a concept for CPRN in April 2019. This study addresses top priorities from Research CP, including the study of the effects of aging with cerebral palsy as well as laying the groundwork to do studies of exercise strategies to promote better health outcomes. Co-investigators on the study include Drs. Mark Peterson, Dan Whitney, Heidi Haapala, Mary Schmidt, Angeline Bowman and Jessica Pruente. The funding amount is $10,000 dollars, to be used for measurement equipment and research assistance. The start date is December 1, and the study is planned for 18 months.

You may view the latest post at
https://urldefense.proofpoint.com/v2/url?u=https-3A__mycp.org_2020_10_cprn-2Dinvestigator-2Dfunded-2Dfor-2Dfeasibility-2Dstudy_&d=DwIFaQ&c=aBkXpkKi7gN5fe5MqrMaN-VmRugaRb1IDRfSv2xVRy0&r=kqq_DLaCZb3HOVPT6yEFXNoOMVJBQtgXx7BXeY92R5HYopqdti2sq8zEgvgZHO7h&m=6Q9FkSdVHI8I-nSLhbnxN4xZPeGKCGfbxcoC7TFilss&s=_jcQiZHVzYytpkc3ax4NyGMkW-ks_01y-p-O7v-IYwQ&e=

10/29/2020

British Journal of Sports Medicine (BJSM)

Interested in improving your child's relationships, social skills, muscle and bone development?

http://bjsm.bmj.com/content/early/2016/09/22/bjsports-2016-096813

10/23/2020

The EACD2020 team is thrilled to announce that we will be offering a virtual program from
25-28 November 2020, similar to our traditional Annual Meeting format!
Marek Jozwiak (President of the Meeting), Małgorzata Syczewska and Christopher Newman
(Co-chairs of the Scientific committee) and their teams have been able to built-up a fantastic
program, despite all faced challenges in these difficult times. The EACD2020 team is planning
full days of emerging science, packed with plenary sessions, oral communications, posters,
mini-symposia, instructional courses, and other special events. The themes and sessions will
include scientific and educational content, including all traditional forms of knowledge - available
anytime, anywhere from any device. Many topics will be covered including among other:
• Neuromuscular problems
• Comorbidities
• Technological support of the rehabilitation process
• Neuroplasticity
• Disorders of the musculoskeletal system
The full programme of the virtual 32nd EACD Annual Meeting can be found
here
The conference will provide an opportunity for research teams to exhibit their ongoing
research and innovations and for professionals and stakeholders to benefit from cutting edge
expertise and knowledge delivered by an international panel of speakers. This event will bring
together scientists, therapists, physicians, engineers and companies from numerous fields.
For the latest updates on EACD 2020 please visit http://www.eacd2020.org or contact the
EACD2020 team via [email protected].
Do not miss the registration deadline (November 18th, 2020), and register
now via: https://www.eacd2020.org/Konferencja-32nd-EuropeanAcademy-Of-Childhood-Program,792,8875.html#registerWebinar-1
Our warmest regards and take care,
Prof. Marek Jozwiak
Dr. Christopher Newman
Assoc. prof. Malgorzata Syczewska

10/21/2020

Here's a nice graphic about standing positions from SeekFreaks, Ginny Paleg and Laura Money

10/21/2020

The Five E's of Early Intervention

https://cpresource.org/topic/early-intervention/five-es-early-intervention
Read about Dr Damiano's E-Words for early intervention

The Five E's of Early Intervention Dr. Diane Damiano, PT, PhD, FAPTA Chief Functional & Applied Biomechanics Section National Institutes of Health Additional Contributors Dr. Nathalie Maitre, MD, PhD Dr. Kathleen Friel, PhD Published on July 1, 2020 In the most general sense, early intervention refe...

10/19/2020

ABC 13 - WSET

ABC 13 - WSET

"A few months back we saw another family share they bought this bumper car for their little one. We immediately wanted to get one for our kiddo. Got his first test drive yesterday!! His first taste of independence!" -Keith Rasmussen ❤️❤️

10/16/2020

AACPDM 74th Annual Meeting

Did you hear? AACPDM's 74th Annual Meeting on-demand recordings are now available!

If you registered for the meeting, you may access the recorded sessions by logging into the annual meeting platform and clicking on the session you want to view and then clicking on the "view on-demand" button.

Didn’t register for the meeting but you want to view the content? It’s not too late to register! Visit: https://www.aacpdm.org/meetings/2020/attendee/registration. The content will remain available online through December 31, 2020! The content includes the sessions but also:
-Virtual Exhibit Hall
-Community Forum
-Poster Gallery
-Abstract Supplement
-2020 Award Recipients
-Let's Move!

AACPDM is thrilled to announce that we will be offering a virtual program, similar to our traditional Annual Meeting format! Registration rates and categories have been adjusted this year to reflect this year's virtual format.

10/16/2020

Spanish Hip Surveillance

https://prezi.com/v/jphbgurwk3cy/spanish-hip-surveillance/

Spanish Hip Surveillance

10/14/2020

Nossa Casa

https://www.facebook.com/170191190178836/posts/883581795506435/?vh=e&extid=0

Participar Importa!

#moverepoder #powermobility #mobilityispower #thepowerofmobility
#mobilidadeimporta
#mobilitymatters
#mobilidademotorizadaprecoce
#mobilidademotorizada
#cadeiraderodasmotorizada
#gobabygo
#participarimporta
#paralisiacerebral
#cerebralpalsy
#participationmatters

10/13/2020

Amazon Prime day is October 13-14, 2020! If you are shopping this week, please consider selecting the American Academy for Cerebral Palsy and Developmental Medicine through Amazon smile. When you select AACPDM at smile.amazon.com, they will donate 0.5% of eligible purchases to AACPDM!

10/10/2020

AT Lab at Community Vision

Look at all the aac, at and switch stuff you can borrow! Is this only in Oregon?

Oregon's second Explorer Mini is here! This little guy just finished his 2-week trial through our free Loan Closet. If you are interested in borrowing this or other technology, please fill out our inquiry form: https://bit.ly/Loan-Inquiry
#ExplorerMini #Permobil

10/04/2020

Hamilton's first wheelchair swing opens in Gage Park

https://urbanicity.com/hamilton/city/2020/09/hamiltons-first-wheelchair-swing-opens-in-gage-park/

In a fantastic milestone for accessibility in Hamilton’s recreation facilities, the city has just built a new wheelchair swing in the playground facilities at Gage Park. This swing, built as a playground amenity specifically for the enjoyment of Hamilton’s wheelchair users, is also notable for b...

10/03/2020

What is Cerebral Palsy?

https://youtu.be/__QBmspERTs

Understanding CP in a friendly and caring language. Produced by Nossa Casa - Brazil with support from CanChild - Canada

10/02/2020

Everyday with Emmitt

Everyday with Emmitt

After a little practice, LOOK AT THISSSS!!!!
I mean really. How cool is this??
This is the Obi robot that allows Emmitt to feed himself!!
There’s a button on his lap that he can push to let it know when he wants a bite and when he’s ready for the spoon to be taken away 🤩

09/30/2020

Wheelchair Clothing - Shop By Need Adaptive Clothing for Seniors, Disabled & Elderly Care

Can you share your favorite site for adaptive clothing?

https://www.buckandbuck.com/shop-by-need/wheelchair-clothing.html

https://www.silverts.com/

Adaptive Clothing for Seniors, Disabled & Elderly Care

09/30/2020

Not a commercial endorsement- just sharing that afo compatable stylin shoes are out there!

The Leopard High Tops. Available in Toddler Sizes 5-10 and Kid’s Sizes 11-6. Fashion. Function. Flip. Zip. Go. Enjoy! #kidsfashion

09/29/2020

Short Online Courses

Would you like to learn about general movements and early detection of CP for $15? This is NOT a certification course but you will be GMA informed

https://cpd.ncl.ac.uk/courses/course-details/10

Find short online CPD training courses on paediatric musculoskeletal conditions, the Human Tissue Act and public health evaluation.

09/29/2020

Nossa Casa Brazil on Twitter

https://twitter.com/nossacasabr/status/1310717735652012032?s=21

“Acting, playing, dancing, having fun, being around friends. #CPmakeyourmark #worldcpday @WorldCPDay https://t.co/HPPQmLrwb6”

09/29/2020

https://www.facebook.com/116574233118571/posts/342307830545209/?extid=tTaumprWxVSMWZui&d=n

Look at that face! I am privileged AND blessed to be this little boy’s mom. I know it’s not “Throw Back Thursday,” but I couldn’t resist. Photo credit goes to Wyatt’s first physical therapist, @ginnypaleg. #nationalsonsday #specialneeds #specialneedsfamily #specialneedsparents #specialneedsjourney #disability #wheelchair #specialneedsmom #cerebralpalsy #cp #cpwarrior #tubefed #gtube #afos #cerebralpalsywarrior #specialneedsfamily #specialneedskids #happylifespecialneedschild #epilepsy #scoliosis #spinalfusion #magecrods

09/27/2020

Nossa Casa

Saudades de um Congresso presencial para trocar informações com os colegas, né, gente? ⠀
⠀
Participando do Congresso virtual da AACPDM 😶 e relembrando no rolo de câmera momentos incríveis vividos no ano passado com nossos colegas.⠀
⠀
#aacpdm2020 #aacpdm ⠀
@aacpdm

09/26/2020

Happening Now! Such an insightful discussion!!

Chambers Family Lifespan Lecture Adaptive Sports Panel: How Can We Make Sports Accessible to Kids?

Background:
The world of adaptive sports often seems daunting to medical practitioners and patients who do not have experience in the arena. Lack of access to adaptive sports programs, lack of appropriate equipment, lack of education, and the misconception that people with disabilities can’t exercise is pervasive in our environment. The AACPDM Adaptive Sports Committee will present a symposia panel addressing these issues and provide a platform to discuss how to make sports more accessible to everyone, including children with disabilities.

The panel will include diverse perspectives, including Clayton Frech (a parent who started a regional junior Paralympic-style yearly sports event called Angel City Games), Patrick Lawrence, senior programs manager of the Challenged Athletes Foundation (a non-profit that provides grant funding to support disabled athletes/teams), elite adaptive athletes, and parents of children with disabilities who participate in both professional and amateur level sports. The panel will be moderated by Dr. Phoebe Scott-Wyard, Pediatric Physiatrist at Rady Children’s Hospital – San Diego, and Carolina Schaber, RN, BSN, MBA, mother to an elite Paralympic athlete.

09/26/2020

Up next!
Presentation of the Duncan Wyeth Award to Clayton Frech
Congratulations!!

CEO/Founder
Angel City Sports

Clayton Frech is a disability advocate and social entrepreneur, with a passion for diversity and inclusion across all sectors of society. He is the CEO & Founder of Angel City Sports and is Chairman of the Board of Directors for Adaptive Sports USA. In addition to serving as a board member and strategic advisor to a number of companies, he is currently launching the Ampla Institute, a career development and planning firm dedicated to helping people optimize their career potential.

Mr. Frech became involved in the disability community when his first son, Ezra, was born with some physical differences. Since then, Mr. Frech has been an active advocate, mentor to other families and parents, fundraiser, and board member for high-impact organizations, including the Challenged Athletes Foundation and Adaptive Sports USA, and, of course, Angel City Sports.

Following Ezra’s passion for sports, Mr. Frech identified major gaps in programming for athletes with physical disabilities, and in 2013, with the help of friends and family, he set out to address them. In 2015, he produced the first Angel City Games, which is now the largest Paralympic competition in the country, and the West Coast’s most prestigious Paralympic event. With a planned 75 clinics in 2020, an impressive inventory of adaptive sports equipment, and the growing flagship event the Angel City Games presented by The Hartford, Angel City Sports is leading the movement ahead of the Los Angeles 2028 Paralympic Games.

Most recently Mr. Frech served as Regional Vice-President for Safelite AutoGlass, managing the $100M California Region with over 600 employees and 35 facilities. He has also held positions including Vice President of Operations and Sustainability, Classic Party Rentals, Managing Director, NextLeft Digital Strategy Consulting, and Organizational Strategy Consultant, PricewaterhouseCoopers.

09/26/2020

Congratulations to our award recipients that are not featured in the general session! We will share this with you throughout the rest of the day.

Our first is the Gayle G. Arnold Award
The Gayle G. Arnold Award is the most prestigious award of the Academy. This award is named in honor of Dr. Arnold, a self-taught developmental pediatrician and President of the Academy (1989-90). The award is presented annually to the authors of the best scientific paper.

Award Recipient: Emma Bohn, Holland Bloorview Kids Rehabilitation Hospital Toronto, Ontario, Canada
(Pharmacological and neurosurgical interventions for managing dystonia in cerebral palsy: a systematic review update and meta-analysis using GRADE)
Fantastic work!
#aacpdm2020

09/26/2020

The final General Session of our first ever virtual meeting is in few hours! It starts at 5:00 CDT.
Meanwhile continue to enjoy the Free Paper Sessions (happening now!) and the Instructional Courses which start at 2:30pm CDT.
Our last Break/Get Up and Move Activity is before the General Session at 4:30 pm CDT.