09/06/2026
This year for our MHFD vs. MHPD charity ragball game we are teaming up to support a local precious boy named Waylon! Please join us on September 13th at 5pm in support for Waylon and his family.
His mom, Kerrigan, has shared some of the trials little Waylon has faced but how much of a fighter he’s shown he is.
‘Waylon’s Story 💙
Waylon came into this world with an incredibly complex heart, diagnosed with hypoplastic right heart syndrome, tricuspid atresia, transposition of the great arteries, dextrocardia, and multiple holes within his heart.
Within his first 19 days of life, Waylon underwent four open-chest procedures. He received pulmonary artery bands and multiple stents to help his heart and circulation until he was strong enough for his next major surgery. He has spent the overwhelming majority of his life inside the hospital, yet somehow continues to show everyone around him what it means to fight.
In May, Waylon underwent his Norwood open-heart surgery—one of the biggest steps in his heart journey. His recovery was anything but easy. He faced respiratory struggles, infections, wound complications, collapsed lungs, repeated time on the ventilator, and countless setbacks. But again and again, Waylon kept fighting his way forward.
After finally getting a few precious days at home, Waylon returned in August for G-tube surgery. What was supposed to help him move forward turned into another incredibly difficult chapter. He developed significant complications afterward, became critically ill, and eventually suffered a devastating injury to his brain.
Once again, our little warrior was fighting for his life.
Although we are seeing significant weakness on his left side, we have also started seeing small, subtle movements.
Waylon’s story isn't just a story about congenital heart disease, surgeries, brain injury, or hospital stays. It is a story about an unbelievably strong little boy who has continued fighting.
There are still so many unknowns ahead. His heart journey isn't finished, and neither is his neurological recovery. We don't know exactly what the future will look like, but if Waylon has taught us anything, it's to never underestimate him.
Through every surgery, every setback, every frightening night and every tiny victory, God has carried our boy.
So we will keep praying. We will keep believing. We will celebrate every little movement, every milestone, and every step forward.
This is Waylon the Warrior.’