Sickle Cell Association Inc CARE Committee

Sickle Cell Association Inc CARE Committee The committee members are comprised of persons with sickle cell, family members, concerned community
(10)

09/12/2023

Health & wellness website

08/08/2023

SAVE THE DATE FOR OUR INAUGURAL CAREER FAIR! SEPTEMBER 19th 12-4pm

If you are a High School Senior-30 years old we this event is for you! Come out to get connected to local employment, school, and trade resources! We can’t wait to see you there!

07/03/2023
06/21/2023

Discover the cutting-edge world of gene therapy in our first Masterclass Speaker Series! Join us on June 22, at 3 p.m. EST for our livestream event – Gene Therapy: A Journey Forward. Listen to special guest speakers, Lewis Hsu, M.D., SCDAA chief medical officer and Edward Donnell Ivy, M.D., SCDAA vice chief medical officer, as they discuss the role of gene therapy in our journey forward. Enroll today: http://bit.ly/SCDAA-Masterclass

Sponsored by Pfizer, SCDAA's Masterclass Speaker Series will shine a light on sickle cell disease throughout the year.

06/18/2023
06/06/2023
05/11/2023

We are celebrating Mothers who have Sickle Cell & Mothers of Sickle Cell Warriors. All moms deserve some much-needed appreciation! 💐 💐 💐 Let's take a moment to recognize the amazing Super Moms out there who are utilizing social media to stay connected, share their stories, and inspire other mothers. 🤗 From advice and tips on parenting to hilarious stories and relatable struggles -- we love you, Super Moms! 💗

03/06/2023

In celebration of Women’s History Month: come out for a tribute to the Mother of Sickle Cell, Mrs. Florence Cooper-Smith. MARCH 18th, 2pm Black History Museum & Cultural Center.. This is a Free event

02/14/2023

Smartest way to handle heavy credit card debt

02/02/2023

See you all Sunday!

01/19/2023

We’re Back!!

Virginia Sickle Cell Network invites you to join us every 3rd Tuesday of each month (virtually and in-person) to the Sickle Cell Support Connections.

If you or a family member is impacted by Sickle Cell Disease (SCD), this is the group for you. Here you can connect with others who have gone through or are currently facing daily challenges due to a SCD. You can share what’s going on in your life, listen to others, ask for support/ advice from guests who are experts in their fields, or just VENT!

Warriors of all ages, caregivers/loved ones, siblings and friends are welcome- there's a Breakout Room for you!

See you on 4th Tuesdays!

01/17/2023

Now live: San Francisco 49ers running back Tevin Coleman’s custom SCDAA cleats are up for auction! You can place a bid on the autographed cleats until Feb. 17. All proceeds will be donated to SCDAA. Learn more: https://buff.ly/3CRLAeq

11/16/2022

COLLECTING THROUGHOUT THE MONTH OF NOVEMBER!!

Thank you to the below participating businesses and organizations for support our 12th Annual Wes’ Wish Toy Drive benefiting families of CHKD’s Cancer & Blood Disorder Clinic as well as pediatric cancer families treated at surrounding facilities in Hampton Roads. You can drop off a new, unwrapped donation for ages 0-18 as well as gift cards at any of the below locations now until November 30th.

You are also able to shop our Amazon wish list and have the donations shipped straight to our door.

Shop here: https://www.amazon.com/hz/wishlist/ls/2XGZRVYMLTOU0?ref_=wl_share

We already have well over 100 children signed up and the number continues to grow by the day, so we need your help now more than ever!

Help us put hope back in the holidays!

For more information, please visit: www.WesStrong.org

10/19/2022

Howard University President Wayne A. I. Frederick, M.D., MBA, FACS is among a group of 64 esteemed surgeon educators inducted into membership in the American College of Surgeons (ACS) Academy of Master Surgeon Educators®

09/21/2022

Throughout her life, Mauriya Yancey has been hospitalized at at some point on every holiday, including her birthday. It is something she accepts as part of living with (SCD), which can cause crippling bouts of pain.
As we recognize September as Month, Yancey would like everyone to know that people with SCD are just like everyone else. Despite the physical and emotional challenges that come with living with , Yancey has never let it stop her from pursuing her dreams. A Virginia State University alumna, Yancey now works at CHKD as an inpatient pharmacy technician helping patients admitted to the hospital receive their medications on time.
“I try not to let SCD affect me,” Yancey says. “If I want to do something, I’m going to do it.”

Address

861 Glenrock Road, Ste 120
Norfolk, VA
23502

Telephone

(757) 466-0332

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Hello everyone,
My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it.
English survey: https://www.surveymonkey.com/r/PQFSMVV
Spanish survey:https://es.surveymonkey.com/r/2DXD5TX
Thank you and we appreciate all your help
https://www.facebook.com/JCNSickleCellDocumentaryMovie/videos/925611094269388/
Can you please share our opportunity?
A big thank u to whoever donates blood to help d sickle cell patients all over d world my God bless u all,u r d reason we r still alive
Hi my name is Fatima Nelson, and u have Sickle Cell disease type SS.... When people look at me they say wow you don't look sick or wow it's nothing wrong with you.
YOU NEED TO GET OUT THERE THAT SICKLE CELL IS NOT IN BLACK PEOPLE. MY GRANDSON IS MEXICAN, INDIAN AND WHITE AND HE HAS IT. HIS SISTER DIED FROM IT. WE NEED A CURET
In response to this story and because school nurses are facilitators of education and health equity:
Just finished the walk at NSU!
Come join us raise health awareness while having a good time.
The Truth About Sickle Cell That Most Of Us Will Never Here About:
MEMBER NEWS: Sickle Cell Association Inc CARE Committee,
Congratulations to our Norfolk, VA chapter on a successful banquet this past weekend!
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