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Sickle Cell Association Inc CARE Committee

Sickle Cell Association Inc CARE Committee The committee members are comprised of persons with sickle cell, family members, concerned community members and volunteers.

Operating as usual

Photos from Twotarrergirls, Inc.'s post
03/24/2022

Photos from Twotarrergirls, Inc.'s post

Timeline photos
03/18/2022

Timeline photos

We are very proud of everything our SCDAA Teen Ambassador Ayana Johnson is accomplishing. Last weekend, the Virginia House of Delegates formally recognized her as the reigning Miss Roanoke Valley Outstanding Teen 2022 and highlighted her efforts as an ambassador for sickle cell disease. Watch her introduction: https://buff.ly/3NaDL7s

Timeline photos
03/05/2022

Timeline photos

March is Blood Clot Awareness Month. Sickle cell warriors are especially at risk for developing blood clots, and they can be dangerous. Take the time this month to learn the signs and symptoms so you can stay healthy: https://buff.ly/3hyMyBq #BloodClotAwarenessMonth #StopTheClot

Timeline photos
01/31/2022

Timeline photos

Look at all these great events coming your way next week! Don’t miss our first meeting -- Membership Monday on February 7th at 6:30pm on Facebook live with President & CEO, Gil Bland, as he shares information about membership benefits and leadership opportunities with the Urban League of Hampton Roads. To learn more and sign up, visit: https://ulhryp.org/
#JoinWeek #ULHR #UrbanLeague #BlackCard

Miss Juneteenth (VA)
01/31/2022
Miss Juneteenth (VA)

Miss Juneteenth (VA)

  The 757FreedomFest is honored to host and present the Miss Juneteenth pageant to the  Hampton Roads 757 Communities.  Juneteenth is another opportunity to uplift our young people while simultaneously rewarding and empowering tomorrow's leaders.

01/30/2022
Photos from Living with Sickle Cell, Inc.'s post
01/20/2022

Photos from Living with Sickle Cell, Inc.'s post

COVIDtests.gov - Free at-home COVID-19 tests
01/19/2022
COVIDtests.gov - Free at-home COVID-19 tests

COVIDtests.gov - Free at-home COVID-19 tests

Every home in the U.S. is eligible to order 4 free at-home COVID-19 tests. The tests are completely free. Orders will usually ship in 7-12 days.

FREE VIRTUAL EVENT
12/30/2021
FREE VIRTUAL EVENT

FREE VIRTUAL EVENT

Attend this free virtual event to honor the legacy of Dr. Martin Luther King, Jr. and recognize dedicated leaders in our community.

09/24/2021
09/24/2021

"I know it may be hard for people to believe, but I've never taken pain medication ever. In dealing with sickle cell, lifestyle matters and through it I believe that I can heal myself.

Living with sickle cell disease (hb SS), I do fairly well healthwise. I've been vegan since third grade and wrote a book on nutrition and sickle cell disease and in reality, I’m actually “beyond vegan”. When I say “beyond” it goes beyond food. I live a natural and positive lifestyle. I wear natural fabrics, only linen and cotton. I love music, I think everybody when they see me, I'm the person that loves to dance and move my body. I like nature. I like going to the beach or taking a hike and I’m the type of person that ends my emails with the word “peace”, because that's so important to me to be able to walk in peace, no matter what it is. This is my lifestyle.

A lot of that has to do with how I manage stress. I believe in breathing and I think a large part is my diet. Also, I am not an anxious person and I pray through everything. I make boundaries and in terms of negativity, I don't allow that. I don't want to hear about the blues. Don't get me wrong, I'm a good listener and I'm a good friend, but when it comes to drama, I don't engage.

Growing up I was a happy child, but when pain set in I wouldn't be so happy. I was depressed and felt lonely. I constantly went in and out, in and out of polar opposite emotions because of sickle cell and I remember not liking that feeling.

So I distinctly remember telling God, “If I have another pain episode, take me out. But if you don't take me out, I need to have joy.” I’m here today and I wasn't taken out and I have a very fulfilled life because I became determined to have joy in spite of having pain. It's been like that ever since that day and while I am not pleased when I have pain episodes, they don't have the same effect as they once did. Life is no longer a roller coaster. I’m living my best life.

When I’m in sickle cell pain, I don't take pain medications. I..."

Read more about Dr. Carolyn Rowley's experience with a healthy lifestyle to manage SCD: https://www.sc101.org/carolynrowley/
⁠
#sicklecell101 #sicklecell #SCDToolbox #sicklecellawarenessmonth ⁠#sc101fosc

Photos from Sickle Cell 101's post
09/23/2021

Photos from Sickle Cell 101's post

PLEASE JOIN IN ON OUR SUPPORT GROUP MEETING
09/10/2021

PLEASE JOIN IN ON OUR SUPPORT GROUP MEETING

09/03/2021

Join us on Saturday, September 11th from 10 am - 1 pm for Gethsemane's Distribution Drive! We're giving away FREE items and we'll PRAY for you. See you there!

Miss Virginia Teen 2021 - Formstack
06/14/2021
Miss Virginia Teen 2021 - Formstack

Miss Virginia Teen 2021 - Formstack

The candidate who receives the most internet votes by 10 PM EST Thursday, June 17, 2021, will receive a $500 “People’s Choice” Scholarship during the 2021 Miss Virginia’s Outstanding Teen Competition on Friday, June 18, at Roanoke’s Berglund Center.

Timeline photos
06/09/2021

Timeline photos

Are you ready for #WorldSickleCellDay? Stop by the SCDAA website to see what our member organizations are doing to celebrate on June 19 and find an event near you: https://buff.ly/3g5qzlJ

Medical Marijuana Reduces Pain and Hospital Visits in SCD...
06/07/2021
Medical Marijuana Reduces Pain and Hospital Visits in SCD...

Medical Marijuana Reduces Pain and Hospital Visits in SCD...

Use of medical marijuana to ease pain is associated with fewer visits to the hospital in people with sickle cell disease (SCD), a study suggests. Patients given medical marijuana felt this was an effective treatment for pain relief, and also reported a reduction in the need for opioids. The...

05/27/2021
Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Our Teen Ambassador competition is on its way. You can show your support for our teens by donating to their fundraising page.The role of the National Teen Ambassador is to serve as a Goodwill Ambassador by:Making public appearances on behalf of SCDAA.Acting as an emissary to various public officials...

05/26/2021
Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Our Teen Ambassador competition is on its way. You can show your support for our teens by donating to their fundraising page.The role of the National Teen Ambassador is to serve as a Goodwill Ambassador by:Making public appearances on behalf of SCDAA.Acting as an emissary to various public officials...

Click here to support Ayana Johnson's story *AyanaJohnsonVA2021
04/20/2021
Click here to support Ayana Johnson's story *AyanaJohnsonVA2021

Click here to support Ayana Johnson's story *AyanaJohnsonVA2021

Hi! My name is Ayana and I am raising money for the Miss America Foundation as a part of the Miss America's Outstanding Teen 2021 competition. Did you know this is the 100th year of Miss America?The Miss America Organization’s mission is to prepare great women for the world, and to prepare the wor...

Address

861 Glenrock Rd, Ste 120
Norfolk, VA
23502

General information

The committee members are comprised of persons with sickle cell, family members, concerned community members and volunteers. We are always looking for volunteers or new members.

Telephone

(757) 466-0332

Website

http://www.sicklecellhrva.net

Products

C.A.R.E. Committee meetings on every 2nd Wednesday of each month

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Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help
https://www.facebook.com/JCNSickleCellDocumentaryMovie/videos/925611094269388/
Can you please share our opportunity?
A big thank u to whoever donates blood to help d sickle cell patients all over d world my God bless u all,u r d reason we r still alive
A big thank u to whoever donates blood to help d sickle cell patients all over d world my God bless u all,u r d reason we r still alive
Hi my name is Fatima Nelson, and u have Sickle Cell disease type SS.... When people look at me they say wow you don't look sick or wow it's nothing wrong with you.
YOU NEED TO GET OUT THERE THAT SICKLE CELL IS NOT IN BLACK PEOPLE. MY GRANDSON IS MEXICAN, INDIAN AND WHITE AND HE HAS IT. HIS SISTER DIED FROM IT. WE NEED A CURET
In response to this story and because school nurses are facilitators of education and health equity:
Just finished the walk at NSU!
Come join us raise health awareness while having a good time.
The Truth About Sickle Cell That Most Of Us Will Never Here About:
MEMBER NEWS: Sickle Cell Association Inc CARE Committee, Congratulations to our Norfolk, VA chapter on a successful banquet this past weekend!