Sickle Cell Association Inc CARE Committee

Sickle Cell Association Inc CARE Committee The committee members are comprised of persons with sickle cell, family members, concerned community members and volunteers.

Operating as usual

09/24/2021
09/24/2021

"I know it may be hard for people to believe, but I've never taken pain medication ever. In dealing with sickle cell, lifestyle matters and through it I believe that I can heal myself.

Living with sickle cell disease (hb SS), I do fairly well healthwise. I've been vegan since third grade and wrote a book on nutrition and sickle cell disease and in reality, I’m actually “beyond vegan”. When I say “beyond” it goes beyond food. I live a natural and positive lifestyle. I wear natural fabrics, only linen and cotton. I love music, I think everybody when they see me, I'm the person that loves to dance and move my body. I like nature. I like going to the beach or taking a hike and I’m the type of person that ends my emails with the word “peace”, because that's so important to me to be able to walk in peace, no matter what it is. This is my lifestyle.

A lot of that has to do with how I manage stress. I believe in breathing and I think a large part is my diet. Also, I am not an anxious person and I pray through everything. I make boundaries and in terms of negativity, I don't allow that. I don't want to hear about the blues. Don't get me wrong, I'm a good listener and I'm a good friend, but when it comes to drama, I don't engage.

Growing up I was a happy child, but when pain set in I wouldn't be so happy. I was depressed and felt lonely. I constantly went in and out, in and out of polar opposite emotions because of sickle cell and I remember not liking that feeling.

So I distinctly remember telling God, “If I have another pain episode, take me out. But if you don't take me out, I need to have joy.” I’m here today and I wasn't taken out and I have a very fulfilled life because I became determined to have joy in spite of having pain. It's been like that ever since that day and while I am not pleased when I have pain episodes, they don't have the same effect as they once did. Life is no longer a roller coaster. I’m living my best life.

When I’m in sickle cell pain, I don't take pain medications. I..."

Read more about Dr. Carolyn Rowley's experience with a healthy lifestyle to manage SCD: https://www.sc101.org/carolynrowley/

#sicklecell101 #sicklecell #SCDToolbox #sicklecellawarenessmonth ⁠#sc101fosc

Photos from Sickle Cell 101's post
09/23/2021

Photos from Sickle Cell 101's post

PLEASE JOIN IN ON OUR SUPPORT GROUP MEETING
09/10/2021

PLEASE JOIN IN ON OUR SUPPORT GROUP MEETING

PLEASE JOIN IN ON OUR SUPPORT GROUP MEETING

09/03/2021

Join us on Saturday, September 11th from 10 am - 1 pm for Gethsemane's Distribution Drive! We're giving away FREE items and we'll PRAY for you. See you there!

Miss Virginia Teen 2021 - Formstack
06/14/2021
Miss Virginia Teen 2021 - Formstack

Miss Virginia Teen 2021 - Formstack

The candidate who receives the most internet votes by 10 PM EST Thursday, June 17, 2021, will receive a $500 “People’s Choice” Scholarship during the 2021 Miss Virginia’s Outstanding Teen Competition on Friday, June 18, at Roanoke’s Berglund Center.

Timeline Photos
06/09/2021

Timeline Photos

Are you ready for #WorldSickleCellDay? Stop by the SCDAA website to see what our member organizations are doing to celebrate on June 19 and find an event near you: https://buff.ly/3g5qzlJ

Medical Ma*****na Reduces Pain and Hospital Visits in SCD...
06/07/2021
Medical Ma*****na Reduces Pain and Hospital Visits in SCD...

Medical Ma*****na Reduces Pain and Hospital Visits in SCD...

Use of medical ma*****na to ease pain is associated with fewer visits to the hospital in people with sickle cell disease (SCD), a study suggests. Patients given medical ma*****na felt this was an effective treatment for pain relief, and also reported a reduction in the need for opioids. The...

05/27/2021
Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Our Teen Ambassador competition is on its way. You can show your support for our teens by donating to their fundraising page.The role of the National Teen Ambassador is to serve as a Goodwill Ambassador by:Making public appearances on behalf of SCDAA.Acting as an emissary to various public officials...

05/26/2021
Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Donate to Ayana Johnson's Fundraiser for Teen Ambassador Competition - Round Two (2) by Sickle Cell Disease Association of America, Inc.

Our Teen Ambassador competition is on its way. You can show your support for our teens by donating to their fundraising page.The role of the National Teen Ambassador is to serve as a Goodwill Ambassador by:Making public appearances on behalf of SCDAA.Acting as an emissary to various public officials...

Click here to support Ayana Johnson's story *AyanaJohnsonVA2021
04/20/2021
Click here to support Ayana Johnson's story *AyanaJohnsonVA2021

Click here to support Ayana Johnson's story *AyanaJohnsonVA2021

Hi! My name is Ayana and I am raising money for the Miss America Foundation as a part of the Miss America's Outstanding Teen 2021 competition. Did you know this is the 100th year of Miss America?The Miss America Organization’s mission is to prepare great women for the world, and to prepare the wor...

04/20/2021
04/17/2021

Answer: 👉 Renal Medullary Carcinoma. 👈

This highly aggressive kidney cancer is seen in both young men and women, and carries a VERY POOR prognosis 😢
#RenalMedullaryCarcinoma #RMC #RMCSupport #Genitourinary #KidneyCancer #Medulla
#SickleCellTrait #FindACure #EndRMC

Click here to support Ayana Johnson's story *AyanaJohnsonVA2021
04/16/2021
Click here to support Ayana Johnson's story *AyanaJohnsonVA2021

Click here to support Ayana Johnson's story *AyanaJohnsonVA2021

Hi! My name is Ayana and I am raising money for the Miss America Foundation as a part of the Miss America's Outstanding Teen 2021 competition. Did you know this is the 100th year of Miss America?The Miss America Organization’s mission is to prepare great women for the world, and to prepare the wor...

Welcome! You are invited to join a webinar: Vax Facts: Real Talk about Sickle Cell & the Covid Vaccine. After registerin...
04/14/2021
Welcome! You are invited to join a webinar: Vax Facts: Real Talk about Sickle Cell & the Covid Vaccine. After registering, you will receive a confirmation email about joining the webinar.

Welcome! You are invited to join a webinar: Vax Facts: Real Talk about Sickle Cell & the Covid Vaccine. After registering, you will receive a confirmation email about joining the webinar.

Is the COVID-19 vaccine safe for sickle cell patients? Find out about the importance of getting vaccinated in Vax Facts, a straight forward webinar about sickle cell & the COVID vaccines; hosted by top sickle cell physician Dr. Ahmar Zaidi.

The Sickle Cell Connection: Step Up for Sickle Cell this Spring!
03/31/2021
The Sickle Cell Connection: Step Up for Sickle Cell this Spring!

The Sickle Cell Connection: Step Up for Sickle Cell this Spring!

March News from SCDAA March 2021 • Volume 4 ‌ ‌ ‌ Step Up for Sickle Cell this Spring! Spring is here, and we have a lot of opportunities in the next few months for you to get involved with SCDAA and

03/22/2021

Love & Relationships: Living With Sickle Cell. We hope you can join us for our next POSH Support Group facilitated by @lifewithdionnemichele on March 25th. Email us to rsvp [email protected]. In the mean time, get to know your facilitator. She is a mom of 2 sickle cell warriors, life coach and certified in relationships & intimacy @herpleasurespecialist
#livingwithsicklecellinc #posh #laff #sicklecellwarriors #sicklecellawareness #loveandintimacy #healthyrelationships #sicklecellandlove

Pay Health & Awareness Inc, using PayPal.Me
03/08/2021
Pay Health & Awareness Inc, using PayPal.Me

Pay Health & Awareness Inc, using PayPal.Me

Go to paypal.me/hakdp and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

Instagram Photos
02/25/2021

Instagram Photos

Timeline Photos
02/25/2021

Timeline Photos

New webinar: "Advancing Health Equity: A Community Conversation for Rare Disease Day” on Thursday, February 25 at 2:00pm ET. Register: bit.ly/2NbvHsB
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People with rare diseases often have limited access to diagnosis, treatment and care. The disparities can be even greater for people from underrepresented racial, ethnic or other minority groups. During this special Rare Disease Day event, the National Organization for Rare Disorders, Inc. (NORD) will bring together two patient organization leaders, a medical professional and a medical student to discuss current initiatives and possible approaches to advancing health equity.

Timeline Photos
02/23/2021

Timeline Photos

Today we honor Yvonne B. Miller, the first African American woman to serve in the Virginia General Assembly. In addition, Miller was a graduate of the Norfolk Division of Virginia State College (now Norfolk State University) and a professor of early childhood education at NSU. #NSUBHM

Address

861 Glenrock Rd, Ste 120
Norfolk, VA
23502

General information

The committee members are comprised of persons with sickle cell, family members, concerned community members and volunteers. We are always looking for volunteers or new members.

Telephone

(757) 466-0332

Products

C.A.R.E. Committee meetings on every 2nd Wednesday of each month

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Comments

Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help