04/04/2018
Hazel's 2nd Rifing Appointment is today!!! Huzzah! Her 1st session was only 4 mins long but we saw immediate results that lasted throughout the weekend!! She had far less 'shaking', hyper-extension of her arms and legs, and teeth grinding than usual! She also slept much better and for longer intervals and seemed to be in an all around better mood! We are so grateful and blessed to have found this type of therapy for her!
Thank you all for your prayers, donations, and sharing of Hazel's story! Our family is TRULY grateful to you all.
From something sad and terrible to something beautiful and inspiring. I never would have known first hand just how wonderful my fellow human beings are unless Hazel was sick. All things we experience are by our own choosing. Suffering emotionally is a perspective.. All things have meaning in life even the things we consider 'bad'. The 'bad' things are merely challenges. Challenges that you are capable of overcoming should you choose it.
I have thought long and hard about this concept, especially since the emergence of Hazel's disorders. I used to be very sad about her health and condition. I used to wonder 'why her?', 'why me?', 'why my family?'. Until one day I realized that being sad was never going to benefit me. Or my eldest daughter Bella. Or my husband. But most of all it wasn't going to help my sick little Hazel Grace.
So i did research and found other parents who are veterans with sick babies and children. I found that other people suffer everyday just as I did. Just as my baby did. I found connection in that suffering and turned it into hope.
I knew that I was strong enough to lead this march. To stand for Hazel and all of the sick children born to Iraqi Freedom veterans (and any sick children). To speak out when I see injustice and to not let my voice quaver.
but I can not stand alone. I need others to stand with me. I am only one person but together we are unstoppable.
Thank you all for your kindness and compassion. it will never be forgotten