07/18/2026
💫 Meet Maisie, beautiful baby girl, just 7 months old, who was diagnosed with PMM2-CDG. It causes severe multisystem issues, including neurological deficits (hypotonia, ataxia), cerebellar atrophy, and developmental delays. Mortality rate is roughly 20% in the first year of life. Affects roughly 1 in 50,000–100,000 individuals.
⭐️ Back in May, we helped Maisie and her family with gas cards for their commute to and from the hospital, as well as a month’s supply of Button Huggies.
⭐️ In June, we helped them with a “special tomato soft touch sitter chair” which will assist Maisie in sitting up and keeping her head up to eat.
⭐️ Just this past week, we helped Maisie with another set of gas cards for appointments at Columbia hospital, As well as an Eternal Feeding Pump, which is portal and light weight and essential for in home care needs for Maisie to eat.
Please keep Maisie and her family in your thoughts and prayers. God bless 🙏🏻💛